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    • 9 hours, 25 minutes ago
      T1D 31 years likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 16 hours, 36 minutes ago
      ChrisW likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 20 hours, 5 minutes ago
      mojoseje likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      After 35 years of insulin dependence, and going through MDI, then pump stand alone, the AID, I now get 2 days out of 200 units, or 4 units per hr average. I estimate that to be 4.
    • 20 hours, 5 minutes ago
      mojoseje likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 20 hours, 11 minutes ago
      Brian Vodehnal likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 20 hours, 19 minutes ago
      KCR likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      After 35 years of insulin dependence, and going through MDI, then pump stand alone, the AID, I now get 2 days out of 200 units, or 4 units per hr average. I estimate that to be 4.
    • 20 hours, 19 minutes ago
      KCR likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I put 3, seems to be a moving target for me after ~50 years of T1D. If I sit still my body needs much more insulin, if I just walk around the block the opposite is the case. Even with control-IQ I need multiple basal-bolus patterns. I use anywhere between 12 to 40 units of humalog daily with the same number of carbohydrates. All depends on activity.
    • 20 hours, 20 minutes ago
      KCR likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 20 hours, 21 minutes ago
      atr likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I put 3, seems to be a moving target for me after ~50 years of T1D. If I sit still my body needs much more insulin, if I just walk around the block the opposite is the case. Even with control-IQ I need multiple basal-bolus patterns. I use anywhere between 12 to 40 units of humalog daily with the same number of carbohydrates. All depends on activity.
    • 20 hours, 23 minutes ago
      atr likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 20 hours, 51 minutes ago
      Daniel Bestvater likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 21 hours, 30 minutes ago
      TEH likes your comment at
      On a scale of 1-5, how insulin resistant would you say you are?
      I can’t give a fixed answer. Insulin resistance is not static. It varies considerably with diet, activity, sleep and stress.
    • 1 day, 7 hours ago
      Laurie B likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
    • 1 day, 11 hours ago
      Kristi Warmecke likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
    • 1 day, 18 hours ago
      kristina blake likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
    • 1 day, 18 hours ago
      kristina blake likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 1 day, 19 hours ago
      Ahh Life likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Several years ago I participated in a study assesing the value of regular counseliing and guidance, through virtual appointments for CGM users. I participated because they provided Dexcom G6 devices for the first 6 months of the study and I had wanted to experience life with a CGM. Because it was all virtual I was able to participate from a variety of locations visited during a cross country road trip, VA to CA, including Rapid Cty, SLC and the Bay area in CA. The experience with CGM was such a benefit that after the 6 month period I continued in the study, but purchased Dexcom G6s myself - not covered by my insurance! I would not have considered purchasing the CGM without the positive experience.
    • 1 day, 19 hours ago
      Steve Rumble likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 1 day, 19 hours ago
      Anita Stokar likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 1 day, 19 hours ago
      Anita Stokar likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Read up on Eladon and Tegoprubart. You might be shocked at the lack of side effects. Although I’m interested to hear how long term goes in the next few years.
    • 1 day, 20 hours ago
      John Barbuto likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 1 day, 21 hours ago
      KCR likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 1 day, 21 hours ago
      Kathy Hanavan likes your comment at
      Would you participate in a fully virtual research study with no in-person visits?
      Depends on what it is. Generally they do not want older adults
    • 1 day, 21 hours ago
      lis be likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 1 day, 21 hours ago
      lis be likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
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    How well do you understand the details of your health insurance coverage (e.g., which medications are covered, how much a service will cost, the steps you need to take about getting a service or product covered, etc.) Please select the number or statement that best represents your knowledge.

    Home > LC Polls > How well do you understand the details of your health insurance coverage (e.g., which medications are covered, how much a service will cost, the steps you need to take about getting a service or product covered, etc.) Please select the number or statement that best represents your knowledge.
    Previous

    If you use an insulin pump, please select the option which most accurately completes the statement for you: The last time I changed my pump site, I filled my reservoir/cartridge/pod with enough insulin to last me...

    Next

    Have you (or your loved one with T1D) gotten a flu shot this year?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    28 Comments

    1. Ahh Life

      Maybe I am just a delicate scold who get the vapors over things like knowledge and understandability. Or maybe I simply have a brain of cinder-block denseness. I dunno.

      But I am intrigued by those of you who answered 5, “full or clear understanding.” My medicare book alone has about 2,000 pages. My supplemental insurance has only slightly fewer pages.

      The larger problem it would seem is a reminder of just how much we’ve acclimated ourselves to the presence of awful legalistic hour-glass capitalists into our collective health care that choke off everything but profits and abundant CEO salaries.

      18
      3 years ago Log in to Reply
      1. Lawrence S.

        Perfectly said.

        3
        3 years ago Log in to Reply
      2. Andrew Stewart

        Private insurance is not all that complicated to understand. I’m not looking forward to medicare and when I do my response will surely change.
        #BeWell

        1
        3 years ago Log in to Reply
    2. Debbie Dallmann

      I have been blessed with extremely good insurance and secondary to cover whatever I need.

      3 years ago Log in to Reply
    3. GLORIA MILLER

      I have Medicare as primary and almost never check to see what is covered under that plan. My secondary coverage is with federal Blue Cross Blue Shield and I know they will pick up anything that Medicare does not cover. My mother, who died in 2019 with lung cancer, had the same insurance and never paid a dime out of pocket for her medical needs.

      1
      3 years ago Log in to Reply
      1. Kris Sykes-David

        I am turning 65 in February and will be doing the same. My husband was the Federal employee. We decided to keep Fed BC/BS instead of switch to an Advantage plan. I hope it works, it has for him!

        3 years ago Log in to Reply
    4. Barbara Bubar

      The real trick comes when you call –in this case, a Medicare Advantage Plan company—to ask a question. THAT is a time consuming nightmare of transfers and waits to try and get someone who can figure out a possible answer. We happen to be fortunate to have an excellent local representative with the company and she has us contact her —but just how many of us does she have the time to help? The plans are all, as said above, SO complicated and they change every year. How can any phone representative keep up with the changes??? They cannot.

      2
      3 years ago Log in to Reply
    5. Lawrence S.

      I feel that I have a basic understanding of my Medicare and Secondary NYS Gov’t Empire Plan. I am always surprised at how much I have to pay after my primary and secondary get through. My copays are usually larger than I expect. I’m tired of fighting with them.

      2
      3 years ago Log in to Reply
    6. Jane Cerullo

      Made a mistake choosing the wrong plan for me. When I was able to reenroll I researched several plans and was happy with the plan last year and will continue to use this year

      3 years ago Log in to Reply
    7. pru barry

      I spent nearly all yesterday afternoon with the “book” and online, and on the phone when I’d finally reached a decision. There used to be a group to help seniors with this, but two years ago the person who tried to help was at much at sea as I am. So now I do it alone, with the idea that if I wind up with no coverage for the supplies needed to keep my 69 year use of needles and pumps alive, I will reinforce my whining with a scream they might be able to hear. The whole scenario is a disgrace, and the insurance companies should be mortified. But…..apparently they aren’t. Nothing really happens, and each year is torture.
      Thank goodness for trees, birds, and soft breezes!

      8
      3 years ago Log in to Reply
    8. Marty

      I spend a lot on Medicare and a Medicare supplement that completely covers copays and deductibles for all Medicare-approved healthcare. It took a while, but I finally have a good understanding of what Medicare approves. I also pay for a supplemental drug plan with a complicated tier coverage system, which I have to research for every new drug. My longtime endo had a problem with the Medicare requirement for face-to-face visits every 90 days so I had to find a new endo who would take me on. It also took a long time to find an insulin supplier who would/could bill Medicare Part B properly. As I said, it look a lot of effort to figure out how to use my Medicare benefits but I think I finally have things under control.

      1
      3 years ago Log in to Reply
      1. Liz Avery

        Ditto. The proper insulin supplier was a hang up for me for a year. I too think I have things under control finally.

        3 years ago Log in to Reply
      2. Bill Williams

        With traditional Medicare, a Medigap (supplement) policy and a Part D plan that fixes my insulin co-pay at zero all the way through the donut hole, my annual cost is essentially fixed. It’s not cheap, but at least I don’t get surprised.

        2
        3 years ago Log in to Reply
    9. Nevin Bowman

      My experience: the doctor can choose which insurance to accept, the insurance can choose which doctors and medications to cover, and I the patient, have zero say in any of that. Meanwhile, I pay a fortune to have almost no rights.

      4
      3 years ago Log in to Reply
    10. skoogirl

      I understand health insurance very well. I read the fine print. I have to fight tooth and nail for them to cover things that the policy clearly covers. I have contacted health advocates at work to get things added to the formulary. I routinely file appeals. Our current system puts the consumer at a disadvantage and the insurance companies seem to know that most people give up after the first “no” and take advantage.

      4
      3 years ago Log in to Reply
      1. Ms Cris

        Exactly. In my other career, I learned how to get insurance companies to fulfill their end of the bargain, ask the same question in different ways, etc. I apply those same principles to this now!

        3 years ago Log in to Reply
    11. Steve Rumble

      I have had the same basic coverage through Kaiser for 33 years! During that time I have learned the ins and outs of the coverage and where to find additional information if needed.

      3 years ago Log in to Reply
    12. Kristine Warmecke

      What I don’t understand and need clear understanding of is the Insulin Act. Does ANYONE understand it, including the lawmakers who wrote and voted on it?

      1
      3 years ago Log in to Reply
      1. Lawrence S.

        I researched it a while back. My understanding is that effective January 1, 2023, if you are on Medicare the cost of insulin is $35 per month.
        Unfortunately, if you are not on Medicare, there is no cap.

        The political side of that I that the Democrats wanted full discounts for everyone. Almost all of the Republicans voted against it. The Medicare patient coverage was left untouched.

        2
        3 years ago Log in to Reply
      2. Ms Cris

        LMAO! They do not understand T1 is not “T2 you’re born with”…that’s it’s literally life or death for us. They are lobbied to heavily to change profit margins for pharma.

        I write my reps and senators 2x per year each about it.

        The U.S. system is so broken. I’m a dual citizen, and in the other country, most of what I need is free, including insulin. Unfortunately, it’s too far to ship that much insulin safely.

        1
        3 years ago Log in to Reply
    13. Kim Murphy

      I understand it perfectly it is horrible when it comes to covering diabetes and it’s associated costs. I pay $350 a month to have it and it covers nothing until my $6000 deductible is met!

      2
      3 years ago Log in to Reply
    14. Janis Senungetuk

      Every year it gets harder to understand. I’m covered under my spouse’s employer (a hospital) with primary insurance that costs a huge portion of each paycheck. Last year, without any warning, increased my cost for DME by 40%. My secondary insurance is original Medicare. Although they’re secondary, my DME orders are limited by Medicare rules, creating the constant stress of running out before the next shipment. I wouldn’t wish this very broken health CARE system on anyone.

      3
      3 years ago Log in to Reply
    15. Lawrence S.

      Here’s a perfect example of what just happened to me minutes ago. My doctor prescribed Omeprazole tablet 20 mg for me in April, 2022. My drug company, CVS/Caremark, told me they are not covered, I must buy the over-the-counter. I just received the 2023 Formulary, and it shows Omeprazole as a covered drug. I called CVS/Caremark, and they said that the Omeprazole would have been covered if the doctor has written the prescription as, “Omeprazole Rx capsule 20mg.” I’ve been paying out of pocket since April, and it’s not even written in the Formulary the way they told me over the phone to have it prescribed. How could anyone possible know that. It comes down to who you talk to on the phone, and what mood they’re in. Geesh!

      2
      3 years ago Log in to Reply
      1. Lawrence S.

        A follow up. I got an email from the nurse at my doctor’s office telling me that she filled the prescription the correct way previously. Now, I’m negotiating between my doctor’s office and the insurance company to get a $%^&* prescription filled. OMG!

        3 years ago Log in to Reply
    16. Ms Cris

      I understand almost all the details. I’ve gotten really good at it to the point I threaten to send them a bill for my time to solve their issues.

      But, they always find a way to sneak in a surprise, don’t they?

      2
      3 years ago Log in to Reply
      1. Kayci Marr

        You’re hilarious! I love it!

        3 years ago Log in to Reply
    17. Kayci Marr

      I understand it and I also understand that insurance companies are practicing medicine without a medical degree 😡that we have to often explain what a CGM and pump is to someone who holds our life in their hands. America.

      1
      3 years ago Log in to Reply
    18. Babis Perantonakis

      In my country the Public Insurance covers 100% all services, products etc. for diabetics (Greece)

      3 years ago Log in to Reply

    How well do you understand the details of your health insurance coverage (e.g., which medications are covered, how much a service will cost, the steps you need to take about getting a service or product covered, etc.) Please select the number or statement that best represents your knowledge. Cancel reply

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