Babis Perantonakis – T1D Exchange

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- 1 year, 4 months ago
  
  Tom Webb has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Never be afraid to state your fears and admiration to your friends ✨️ If you do not know, ask a question.
- 1 year, 5 months ago
  
  Rose Lentzke has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Be patient and learn as much as you can about how to take care of yourself.
- 1 year, 5 months ago
  
  PamK has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  I would let the person/people know that you can live a long, happy, healthy life with diabetes as long as you keep your blood sugars controlled. That is the key! It may take some time to get regulated, but once you do, stay that way. It's the best thing for you and you'll feel so much better if you do. Also, don't fret over the occasional high or low blood sugar. They will happen. It's just part of life with diabetes.
- 1 year, 5 months ago
  
  Melissa Childers has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Blood sugar numbers are treatment tools, not a judgement on how well you are doing.
- 1 year, 5 months ago
  
  John Henninger has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  1. Electronics have totally improved T1D management. Use them. 2. Team up with a specialist/clinic on T1D if possible. 3. A good life and T1D can work. 4. I learned more about food and my functioning as a human as a T1D than I ever imagined.
- 1 year, 5 months ago
  
  M McSwain has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Subscribe to the Juicebox Podcast
- 1 year, 5 months ago
  
  Alejandra Marquez has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  I would say look for a support group at the online diabetes community near you.
- 1 year, 5 months ago
  
  Brian Vodehnal has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  you are your own best clinician. never stop testing or monitoring your blood sugars. things will change and things will not be perfect or under control all the time. you are human and you make mistakes...learn and move on. never be afraid to ask for help.
- 1 year, 5 months ago
  
  Bob Jackson has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  1. Make sure your doctor is a diabetic specialist. 2. Find a support group. 3. Educate yourself on diabetes.
- 1 year, 5 months ago
  
  Anneyun has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Both my shoulders were frozen for 6 years. I had a cortisone shot in each (at different times). The cortisone put my into ketoacidosis but it did relieve a lot of the pain for the remaining years. And they did ‘unfreeze” on their own and I have good range of motion now.
- 1 year, 5 months ago
  
  Emily Meister has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Learn all you can about T1D and always advocate for yourself. Stay in control, do not let it control you. Be realistic, the better controlled you are the better your life and health will be. There is very few things you cannot accomplish. Stay positive.
- 1 year, 5 months ago
  
  Tb-well has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  You only get one body. Do your best to take care of it and don’t be afraid to ask questions of doctors and endocrinologists.
- 1 year, 5 months ago
  
  Kim Murphy has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Diabetes is a disease you can live with. The pump and CGM are crucial to good control and will help you or your child avoid complications from the Diabetes. That being said you have to advocate for yourself in order to get most health Insurance companies to pay for anything other than syringes. It takes a lot of time to jump through all the hoops and to get your Doc to document and send all the paperwork for the Prior Authorization. Don't give up it is worth the effort to get the pump and CGM. Even with insurance prepare for it to cost a lot of money. I felt like diabetes was a death sentence when I first heard about my Diagnosis. Now 37 years later I realize it can be dealt with and you can have an almost normal life.
- 1 year, 5 months ago
  
  Lawrence S. has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  I had/have frozen shoulders. I had surgery on my right shoulder around 2000, and my left shoulder around 2010. The 2000 surgery went well, with long physical therapy. I never was fully recovered. But, at least I could use it. After about 12 years, I was back to pre-2000 on that shoulder. My left shoulder, 2010, turned out worse after surgery. I was in terrible pain for several years, with long-term physical therapy. It is improved now, but still partially frozen.
- 1 year, 5 months ago
  
  anj1832 has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  You are not alone. You’re not the only one going through this. Look for social media groups to join to gain support and share experiences. Don’t ever think you are “failing.” This isn’t a pass or fail type of disease.. you’ll have your good days and you’ll have your fair share of bad ones too. Don’t let the bad days get you down. Each day is a new day to reset.
- 1 year, 5 months ago
  
  Carolann Hunt has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Get a Dexcom as soon as possible
- 1 year, 5 months ago
  
  Teri Morris has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  TID dx - April 1979 I am currently living with frozen shoulders for almost two years now. Physiotherapist said there's nothing they can do, as shoulders are "fuzed" with only 40% movement. How long did you live with your frozen shoulder, and what was the surgery/recovery like? It did not come back?
- 1 year, 5 months ago
  
  Teri Morris has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Try not to let the endocrinologist's judgement bother you to the core. You're doing the best you can, and they are there to help you achieve that.
- 1 year, 5 months ago
  
  jbielecki has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Give yourself grace. Really. Be kind to yourself. Strong long-term care takes an incredible amount of self-advocacy with your care team, so it's important to keep your emotional batteries charged so that you're able to be in the driver's seat to get the best available guidance and support.
- 1 year, 5 months ago
  
  Jan Masty has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Don’t expect perfection! You have some leeway but you have to figure out where and how much. Try to live a regular life in spite of the diabetes. It’ll keep you much happier.. I have done the above for 63 years of diabetes and am still doing well. It’s doable!
- 1 year, 5 months ago
  
  Molly Jones has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  My advice exactly. Education helps incredibly. After you get the basics down you can find CME (continuing medical education) at regular diabetic websites that can be quite helpful as they are directed towards the professionals or look toward pubmed.gov the national library of medicine for endocrinology journals. They can help with your individual problems.
- 1 year, 5 months ago
  
  JuJuB has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Two things that go together: 1. Adopt a low-carb lifestyle. While there are complex reasons that people develop T1D it is, at the most basic level, an intolerance to carbohydrates. Reduce the volume of carbs, and you can reduce your bolus, which reduces the likelihood you will be on a roller-coaster. (This is called "the law of small numbers".) ALSO... with SO many people (in the US anyway) presenting with SO many dietary distinctions, saying about your child (or yourself), "I just want to eat like a normal (person/kid)" is a false construct. That statement says to me, "I don't want to work very hard to live my (or for my child to live her/his) best life." Okay... if that's what you REALLY want... 2. If you DO adopt a low-carb lifestyle, make it a FULL FAMILY change. High-carb foods are tasty, but offer little in the way of nutrition or sustenance. "Carbohydrate" is NOT an essential nutrient (where protein and fat are, for example). Teach your family that good nutrition and good health is for everyone, not just for the individual who developed diabetes. (FYI, the highs and lows -- the roller coaster -- contribute at least as much to diabetes complications as plain old highs do. ALSO... while the brain DOES need some glucose to function (and glucose is what result from carb-based meals), and you will find endocrinologists who INSIST on carbs for a child to thrive, this is an ignorant and VERY old-school approach.) - T1D dx: October 1970 - Retinal damage, carpal tunnel, and frozen shoulder procedures btwn 2000 and 2015. - Low-carb life since March 2016. - Current A1c: 5.4% - ZERO additional complications since 3/2016. - #GRIT
- 1 year, 5 months ago
  
  TomH has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  If you’re older, confirm whether you’re T1 or T2, get a GAD test; then learn as much as you can about the disease and be your own advocate, particularly if your doc is not T1. Let the doc know he/she is an essential advisor, but you’re in the driver’s seat. You live with the disease, the doc sees you for 15 minutes every three months at most.
- 1 year, 5 months ago
  
  ChrisW has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Walk away from any medical person who attempts to scare or threaten you into doing what they ask. A T1D is going to change your life and you will survive.
- 1 year, 5 months ago
  
  Derek West has commented in the same post you commented in :
  In honor of World Diabetes Day, what is a piece of advice you would share with someone who is newly diagnosed with T1D, or a parent of a newly diagnosed child?
  Read up on it as much as you can
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