Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 12 hours, 25 minutes ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      Yes - many meter studies - and an actos study
    • 12 hours, 25 minutes ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      Only a few. Mainly blood tests and surveys. The others often have restrictions that don’t allow me to participate.
    • 12 hours, 25 minutes ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      I participated in the Look Ahead program by Brown University and Miriam Hospital. It was about diabetes, heart disease and weight control. I was in the control group and the first year I gained weight and found out I had heart disease. The stress test at the beginning of the trial showed an abnormality, so I already had a cardiologist when I needed my first of 16 stents.
    • 12 hours, 26 minutes ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      I participated in Tandem's trial for ControlIQ and several Dexco. Adhesive trials. Long ago I participated in a study for non-invasive blood glucose testing using a technique called Ramen Spectrum Analysis using different frequenciesof light, that trial could not raise funds to continue.
    • 12 hours, 28 minutes ago
      keith johnson likes your comment at
      Have you ever participated in diabetes-related research?
      Various studies at the Joslin Clinic, the first one back in 2010-2011 for CGMs to be covered by medical insurance companies. I also have done a pizza study to determine how to gauge the longer response by the body to eating pizzas with all its fats.
    • 17 hours, 44 minutes ago
      Laurie B likes your comment at
      Have you ever participated in diabetes-related research?
      Several times. Found out that my pancreas is about 25% of the size it “ought to be” for someone my age. Who knew? Just turned down an opportunity to transform into a lab rat for 8 months on tests of a new insulin product. Weekly clinic visits, four finger sticks a day, two additional devices to tote around and a change in CGM brand. Sorry, not for me.
    • 17 hours, 45 minutes ago
      Laurie B likes your comment at
      Have you ever participated in diabetes-related research?
      I’ve participated in a couple different ones. One was muscle biopsies on the legs…looking at how long term diabetes may affect muscles. Another on different pumps
    • 18 hours, 36 minutes ago
      Kathy Hanavan likes your comment at
      Have you ever participated in diabetes-related research?
      I have taken surveys about diabetes care and participate in All of US DNA research and I am doing that now answering these questions each day.
    • 1 day, 7 hours ago
      lis be likes your comment at
      How important is diabetes research to you?
      Due to age, etc, it probably won't benefit me personally but it's extremely important for the future! After all, isn't T1D going to be cured within 5 - 10 years? ;)
    • 1 day, 12 hours ago
      Derek West likes your comment at
      How important is diabetes research to you?
      Strange question—all insulin development, medical devices — e.g. CGMS, pumps, etc are all research products. Would I rather go back to the starvation diet I was given and pills that didn’t work?
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      How important is diabetes research to you?
      Strange question—all insulin development, medical devices — e.g. CGMS, pumps, etc are all research products. Would I rather go back to the starvation diet I was given and pills that didn’t work?
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      How important is diabetes research to you?
      I answered “very important,” but it very much depends on what the research is about. Genetic likelihood for family members? Not important for me. Possible stem cell treatment to regenerate a functioning pancreas? Extremely important. Possible connection between frequency of T1D low or high bg episodes and dementia? Extremely important! Impacts of different types of regular exercise on long term T1D management success? Very important. Etc.
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      How important is diabetes research to you?
      All we are doing is treating the symptoms. We need a cure that doesn't require anti rejection inections.
    • 1 day, 12 hours ago
      Lawrence S. likes your comment at
      How important is diabetes research to you?
      Over the last 35 years, acure has been promised in 5 to 10 years. What is a real answer?
    • 1 day, 15 hours ago
      John Barbuto likes your comment at
      How important is diabetes research to you?
      Over the last 35 years, acure has been promised in 5 to 10 years. What is a real answer?
    • 1 day, 15 hours ago
      John Barbuto likes your comment at
      How important is diabetes research to you?
      Due to age, etc, it probably won't benefit me personally but it's extremely important for the future! After all, isn't T1D going to be cured within 5 - 10 years? ;)
    • 1 day, 15 hours ago
      Patricia Dalrymple likes your comment at
      How important is diabetes research to you?
      It is important to me, not for me, but for the future
    • 1 day, 15 hours ago
      kristina blake likes your comment at
      How important is diabetes research to you?
      It is important to me, not for me, but for the future
    • 1 day, 16 hours ago
      Carol Meares likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      The list is great. Medications need to be on the list too.
    • 1 day, 16 hours ago
      Kristi Warmecke likes your comment at
      How important is diabetes research to you?
      It is important to me, not for me, but for the future
    • 1 day, 17 hours ago
      Kathy Hanavan likes your comment at
      How important is diabetes research to you?
      I answered “very important,” but it very much depends on what the research is about. Genetic likelihood for family members? Not important for me. Possible stem cell treatment to regenerate a functioning pancreas? Extremely important. Possible connection between frequency of T1D low or high bg episodes and dementia? Extremely important! Impacts of different types of regular exercise on long term T1D management success? Very important. Etc.
    • 1 day, 17 hours ago
      Kathy Hanavan likes your comment at
      How important is diabetes research to you?
      Over the last 35 years, acure has been promised in 5 to 10 years. What is a real answer?
    • 2 days, 13 hours ago
      Lawrence S. likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      I think access to healthcare - especially for those things we need to thrive (i.e. insulin, CGM's, pumps). I fear that things will go back to the pre-ACA days where people with pre-existing conditions can be refused coverage. Since the things we need (listed above) are Rx items and very expensive for paying out of pocket at retail prices, it will become close to impossible for us to live - not to mention thrive.
    • 2 days, 13 hours ago
      Lawrence S. likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      Most all of the choices are important. My other health conditions/general health also affect my diabetes health.
    • 2 days, 14 hours ago
      Patricia Dalrymple likes your comment at
      What do you think is most important to your diabetes health? (Choose all that apply)
      In addition, to all the choices mentioned, Advocacy is important, given the fact that many in the healthcare field, think as we age, we have T2 Diabetes. This can be challenging when you are in a hospital as many don't understand what we have to do to maintain a reaonable BG, and many they lack knowledge of the devices we use to stay healthy.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    How well do you understand the details of your health insurance coverage (e.g., which medications are covered, how much a service will cost, the steps you need to take about getting a service or product covered, etc.) Please select the number or statement that best represents your knowledge.

    Home > LC Polls > How well do you understand the details of your health insurance coverage (e.g., which medications are covered, how much a service will cost, the steps you need to take about getting a service or product covered, etc.) Please select the number or statement that best represents your knowledge.
    Previous

    If you use an insulin pump, please select the option which most accurately completes the statement for you: The last time I changed my pump site, I filled my reservoir/cartridge/pod with enough insulin to last me...

    Next

    Have you (or your loved one with T1D) gotten a flu shot this year?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    News

    Understanding Time in Range, GMI, and A1C in Type 1 Diabetes 

    Jewels Doskicz, 2 days ago 4 min read  
    News

    Out of Insulin? Expert Tips from Diana Isaacs, PharmD 

    Jewels Doskicz, 1 week ago 9 min read  
    News

    Drew Mendelow: Teen Creator of T1D1, a Free Insulin Calculator App for T1D Management 

    Michael Howerton, 2 weeks ago 6 min read  
    Lifestyle

    Protein, Glucose, and T1D: Expert Insights from Jennifer Okemah, MS, RDN 

    Jewels Doskicz, 3 weeks ago 8 min read  
    Lifestyle

    The Story of Dr. Guy Hornsby: From Teen Athlete to T1D Trailblazer 

    Michael Howerton, 3 weeks ago 8 min read  
    Research

    Type 2 Diabetes in Youth: A Rising Concern 

    Jewels Doskicz, 4 weeks ago 5 min read  

    28 Comments

    1. Ahh Life

      Maybe I am just a delicate scold who get the vapors over things like knowledge and understandability. Or maybe I simply have a brain of cinder-block denseness. I dunno.

      But I am intrigued by those of you who answered 5, “full or clear understanding.” My medicare book alone has about 2,000 pages. My supplemental insurance has only slightly fewer pages.

      The larger problem it would seem is a reminder of just how much we’ve acclimated ourselves to the presence of awful legalistic hour-glass capitalists into our collective health care that choke off everything but profits and abundant CEO salaries.

      18
      3 years ago Log in to Reply
      1. Lawrence S.

        Perfectly said.

        3
        3 years ago Log in to Reply
      2. Andrew Stewart

        Private insurance is not all that complicated to understand. I’m not looking forward to medicare and when I do my response will surely change.
        #BeWell

        1
        3 years ago Log in to Reply
    2. Debbie Dallmann

      I have been blessed with extremely good insurance and secondary to cover whatever I need.

      3 years ago Log in to Reply
    3. GLORIA MILLER

      I have Medicare as primary and almost never check to see what is covered under that plan. My secondary coverage is with federal Blue Cross Blue Shield and I know they will pick up anything that Medicare does not cover. My mother, who died in 2019 with lung cancer, had the same insurance and never paid a dime out of pocket for her medical needs.

      1
      3 years ago Log in to Reply
      1. Kris Sykes-David

        I am turning 65 in February and will be doing the same. My husband was the Federal employee. We decided to keep Fed BC/BS instead of switch to an Advantage plan. I hope it works, it has for him!

        3 years ago Log in to Reply
    4. Barbara Bubar

      The real trick comes when you call –in this case, a Medicare Advantage Plan company—to ask a question. THAT is a time consuming nightmare of transfers and waits to try and get someone who can figure out a possible answer. We happen to be fortunate to have an excellent local representative with the company and she has us contact her —but just how many of us does she have the time to help? The plans are all, as said above, SO complicated and they change every year. How can any phone representative keep up with the changes??? They cannot.

      2
      3 years ago Log in to Reply
    5. Lawrence S.

      I feel that I have a basic understanding of my Medicare and Secondary NYS Gov’t Empire Plan. I am always surprised at how much I have to pay after my primary and secondary get through. My copays are usually larger than I expect. I’m tired of fighting with them.

      2
      3 years ago Log in to Reply
    6. Jane Cerullo

      Made a mistake choosing the wrong plan for me. When I was able to reenroll I researched several plans and was happy with the plan last year and will continue to use this year

      3 years ago Log in to Reply
    7. pru barry

      I spent nearly all yesterday afternoon with the “book” and online, and on the phone when I’d finally reached a decision. There used to be a group to help seniors with this, but two years ago the person who tried to help was at much at sea as I am. So now I do it alone, with the idea that if I wind up with no coverage for the supplies needed to keep my 69 year use of needles and pumps alive, I will reinforce my whining with a scream they might be able to hear. The whole scenario is a disgrace, and the insurance companies should be mortified. But…..apparently they aren’t. Nothing really happens, and each year is torture.
      Thank goodness for trees, birds, and soft breezes!

      8
      3 years ago Log in to Reply
    8. Marty

      I spend a lot on Medicare and a Medicare supplement that completely covers copays and deductibles for all Medicare-approved healthcare. It took a while, but I finally have a good understanding of what Medicare approves. I also pay for a supplemental drug plan with a complicated tier coverage system, which I have to research for every new drug. My longtime endo had a problem with the Medicare requirement for face-to-face visits every 90 days so I had to find a new endo who would take me on. It also took a long time to find an insulin supplier who would/could bill Medicare Part B properly. As I said, it look a lot of effort to figure out how to use my Medicare benefits but I think I finally have things under control.

      1
      3 years ago Log in to Reply
      1. Liz Avery

        Ditto. The proper insulin supplier was a hang up for me for a year. I too think I have things under control finally.

        3 years ago Log in to Reply
      2. Bill Williams

        With traditional Medicare, a Medigap (supplement) policy and a Part D plan that fixes my insulin co-pay at zero all the way through the donut hole, my annual cost is essentially fixed. It’s not cheap, but at least I don’t get surprised.

        2
        3 years ago Log in to Reply
    9. Nevin Bowman

      My experience: the doctor can choose which insurance to accept, the insurance can choose which doctors and medications to cover, and I the patient, have zero say in any of that. Meanwhile, I pay a fortune to have almost no rights.

      4
      3 years ago Log in to Reply
    10. skoogirl

      I understand health insurance very well. I read the fine print. I have to fight tooth and nail for them to cover things that the policy clearly covers. I have contacted health advocates at work to get things added to the formulary. I routinely file appeals. Our current system puts the consumer at a disadvantage and the insurance companies seem to know that most people give up after the first “no” and take advantage.

      4
      3 years ago Log in to Reply
      1. Ms Cris

        Exactly. In my other career, I learned how to get insurance companies to fulfill their end of the bargain, ask the same question in different ways, etc. I apply those same principles to this now!

        3 years ago Log in to Reply
    11. Steve Rumble

      I have had the same basic coverage through Kaiser for 33 years! During that time I have learned the ins and outs of the coverage and where to find additional information if needed.

      3 years ago Log in to Reply
    12. Kristine Warmecke

      What I don’t understand and need clear understanding of is the Insulin Act. Does ANYONE understand it, including the lawmakers who wrote and voted on it?

      1
      3 years ago Log in to Reply
      1. Lawrence S.

        I researched it a while back. My understanding is that effective January 1, 2023, if you are on Medicare the cost of insulin is $35 per month.
        Unfortunately, if you are not on Medicare, there is no cap.

        The political side of that I that the Democrats wanted full discounts for everyone. Almost all of the Republicans voted against it. The Medicare patient coverage was left untouched.

        2
        3 years ago Log in to Reply
      2. Ms Cris

        LMAO! They do not understand T1 is not “T2 you’re born with”…that’s it’s literally life or death for us. They are lobbied to heavily to change profit margins for pharma.

        I write my reps and senators 2x per year each about it.

        The U.S. system is so broken. I’m a dual citizen, and in the other country, most of what I need is free, including insulin. Unfortunately, it’s too far to ship that much insulin safely.

        1
        3 years ago Log in to Reply
    13. Kim Murphy

      I understand it perfectly it is horrible when it comes to covering diabetes and it’s associated costs. I pay $350 a month to have it and it covers nothing until my $6000 deductible is met!

      2
      3 years ago Log in to Reply
    14. Janis Senungetuk

      Every year it gets harder to understand. I’m covered under my spouse’s employer (a hospital) with primary insurance that costs a huge portion of each paycheck. Last year, without any warning, increased my cost for DME by 40%. My secondary insurance is original Medicare. Although they’re secondary, my DME orders are limited by Medicare rules, creating the constant stress of running out before the next shipment. I wouldn’t wish this very broken health CARE system on anyone.

      3
      3 years ago Log in to Reply
    15. Lawrence S.

      Here’s a perfect example of what just happened to me minutes ago. My doctor prescribed Omeprazole tablet 20 mg for me in April, 2022. My drug company, CVS/Caremark, told me they are not covered, I must buy the over-the-counter. I just received the 2023 Formulary, and it shows Omeprazole as a covered drug. I called CVS/Caremark, and they said that the Omeprazole would have been covered if the doctor has written the prescription as, “Omeprazole Rx capsule 20mg.” I’ve been paying out of pocket since April, and it’s not even written in the Formulary the way they told me over the phone to have it prescribed. How could anyone possible know that. It comes down to who you talk to on the phone, and what mood they’re in. Geesh!

      2
      3 years ago Log in to Reply
      1. Lawrence S.

        A follow up. I got an email from the nurse at my doctor’s office telling me that she filled the prescription the correct way previously. Now, I’m negotiating between my doctor’s office and the insurance company to get a $%^&* prescription filled. OMG!

        3 years ago Log in to Reply
    16. Ms Cris

      I understand almost all the details. I’ve gotten really good at it to the point I threaten to send them a bill for my time to solve their issues.

      But, they always find a way to sneak in a surprise, don’t they?

      2
      3 years ago Log in to Reply
      1. Kayci Marr

        You’re hilarious! I love it!

        3 years ago Log in to Reply
    17. Kayci Marr

      I understand it and I also understand that insurance companies are practicing medicine without a medical degree 😡that we have to often explain what a CGM and pump is to someone who holds our life in their hands. America.

      1
      3 years ago Log in to Reply
    18. Babis Perantonakis

      In my country the Public Insurance covers 100% all services, products etc. for diabetics (Greece)

      3 years ago Log in to Reply

    How well do you understand the details of your health insurance coverage (e.g., which medications are covered, how much a service will cost, the steps you need to take about getting a service or product covered, etc.) Please select the number or statement that best represents your knowledge. Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]