Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 19 minutes ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Lows wake me up. The CGM alarm system kicks in if my body doesn’t. I will shut the alarm system off after I’ve treated the low because gastroparesis slows absorption and that alarm can continue needlessly for another hour until the is sufficiently corrected.
    • 24 minutes ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Occasionally from lows - the biggest disruption is the every 3 day reminder to change my pump that goes off at 2am
    • 24 minutes ago
      Lawrence S. likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 2 hours, 29 minutes ago
      Marty likes your comment at
      How often does diabetes disrupt your sleep?
      Diabetes doesn't necessarily interrupt my sleep per se. Its always the darn dexcom G7 losing signal at random waking me up.
    • 3 hours, 11 minutes ago
      D-connect likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 4 hours, 23 minutes ago
      atr likes your comment at
      How often does diabetes disrupt your sleep?
      Almost every night, my sleep is interrupted, at least 9 times out of 10 nights. My BG drops and the T:slim pumps insulin on the down slide until I get to 70 before it stops. It is, in my opinion, a flaw in the algorithm. I don't understand why the algorithm can see the continuous drop in BG. I have numerous screen captures of this situation. I have gotten into the habit of checking my BG right at bed time. Even taking some carbs at bedtime doesn't prohibit lows at night. It is literally exhausting.
    • 23 hours, 16 minutes ago
      KarenM6 likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 1 day, 3 hours ago
      Natalie Daley likes your comment at
      Since starting on a CGM, has your healthcare provider’s frequency of ordering A1C testing changed?
      T1D comes with more than its fair share of dystopian grace notes. However, the indefatigable frequency of A1c testing seems to go on forever. I started with the Medtronic CGM dubbed "The Harpoon" in 2006. Tests and frequencies have not changed an inch in 20 years. (¬////¬)
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      Often? Try Always! I only see my doc 1x a year to legally fill Rx. Otherwise I manage 100% on my own and make all my own dosing adjustments.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 2 days ago
      Amanda Barras likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 2 days, 3 hours ago
      kristina blake likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 2 days, 3 hours ago
      Marty likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      My pump and I use the data to make adjustments at every meal, and even during the day, e.g. corrections. But I also use the data to track longer term trends and usage so that I can make adjustments to my pump regimen, bolus rates, correction rates, basal rates etc.
    • 2 days, 4 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      This is one of those times when I want to ask T1DExchange “what is the motivation behind this question”? What are you trying to learn from it?
    • 2 days, 4 hours ago
      Mike S likes your comment at
      Do you use your CGM data to help make adjustments in your diabetes management plan?
      As noted by Lawrence, isn’t that what CGM’s are for? I’m on MDI’s and a SmartPen. Data is what determines my doses.
    • 2 days, 15 hours ago
      Bekki Weston likes your comment at
      If you use a CGM, is it accurate on day 1?
      It takes a few hours to get close.
    • 2 days, 16 hours ago
      Bekki Weston likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      Usually when it's about to expire.
    • 2 days, 23 hours ago
      lis be likes your comment at
      How often do you adjust a planned physical activity because of how your glucose is trending?
      If I am above 150mg/dl don't need to carb up. If I am around 100mg/dl I definitely need to carb up. Aren't we always evaluating where we are and anticipating where we might land. That is part of active management.
    • 3 days, 3 hours ago
      Phyllis Biederman likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      For me it's compression lows - and that's it. I see that most complaints are about connection to phones. I don't (won't) use my phone. I have to have a work phone with me at least 60 hours a week, and I'm not interested in carrying (or wearing) two phones. I rarely lose connection between my Tandem X2 pump and the sensor/transmitter. Sometimes I will walk away while it's charging and take myself out of range, but that's on me.
    • 3 days, 5 hours ago
      Derek West likes your comment at
      What is the best spot for CGM accuracy
      Dexcom is ok with other locations if approved by your doctor.
    • 3 days, 5 hours ago
      Lawrence S. likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      1 and 2 days before its about to expire. It goes out of range several times those days. They should prescribe a 10 day CGM for every 8 days because on average, that is the use it seems we get.. and if you call to report it, you lose an hour on the phone!
    • 3 days, 5 hours ago
      Lawrence S. likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      It's a G7...one feature they added to the new version was random signal loss.
    • 3 days, 5 hours ago
      Meerkat likes your comment at
      Over the past week, what percent of the time have you been within your glucose target range?
      Around 95%
    • 4 days ago
      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      It’s usually at the end of my sensor session. Day 8 or 9
    • 4 days ago
      lis be likes your comment at
      When I have a temporary signal loss with my CGM, it’s usually when I’m:
      I tried to answer all of them but it wouldn’t let me. Or maybe my answer should be-for no apparent reason. It happens any time from day five on with no particular reason.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
        • T1D Care Plans
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of April through the end of June 2022?

    Home > LC Polls > How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of April through the end of June 2022?
    Previous

    Have you had a virtual care appointment via phone or video call (sometimes called a telehealth or telemedicine visit) with your T1D health care provider?

    Next

    If you have T1D and have a child under the age of 18 who has not been diagnosed with T1D, at what age would you start screening your child for T1D autoantibodies?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    News

    Out of Insulin? Expert Tips from Diana Isaacs, PharmD 

    Jewels Doskicz, 3 days ago 9 min read  
    News

    Drew Mendelow: Teen Creator of T1D1, a Free Insulin Calculator App for T1D Management 

    Michael Howerton, 1 week ago 6 min read  
    Lifestyle

    Protein, Glucose, and T1D: Expert Insights from Jennifer Okemah, MS, RDN 

    Jewels Doskicz, 2 weeks ago 8 min read  
    Lifestyle

    The Story of Dr. Guy Hornsby: From Teen Athlete to T1D Trailblazer 

    Michael Howerton, 3 weeks ago 8 min read  
    Research

    Type 2 Diabetes in Youth: A Rising Concern 

    Jewels Doskicz, 3 weeks ago 5 min read  
    Research

    Top T1D Exchange Research Highlights of 2025 

    Sarah Howard, 2 months ago 6 min read  

    19 Comments

    1. Molly Jones

      I live in the US but have a very good health insurance plan that pays for 100% of the diabetic supplies.

      4 years ago Log in to Reply
      1. Kim Johnston

        Hey Molly, do you mind sharing your health insurance plan?

        4 years ago Log in to Reply
    2. Carolann Hunt

      Someone gave us extra pods and I will order Dexcom soon so no orders that quarter.

      4 years ago Log in to Reply
    3. P-O Heidling

      I live in Sweden and here all diabetes medications and supplies for T1D are made available at no personal cost. The general healthcare insurance issued by the state, available for all citizens (young, old, employed, unemployed…everyone) in this country, pays for all these things for all type 1 diabetics.

      2
      4 years ago Log in to Reply
    4. RegMunro

      My out of pocket expenses were for extra glucose food for hypo rescue, but that’s it

      4 years ago Log in to Reply
    5. Mick Martin

      $0. I live in the United Kingdom of Great Britain and Northern Ireland where ALL of my diabetes medications and supplies are paid for by our NHS (National Health Service), which is funded via direct taxation of all working people.

      4 years ago Log in to Reply
    6. Tom Caesar

      Not counting the $1200 in insurance premiums

      4 years ago Log in to Reply
    7. pru barry

      It horrifies me when I start to wonder how we’d all survive without health insurance.
      BUT, other countries find the ability to provide their diabetics with needed supplies without the need for expensive insurance. What is wrong with us?
      Could it be greed in a certain segment???

      4 years ago Log in to Reply
      1. Lena Selbrand

        Yes, greed is what it is and that health care in America is a commodity, and not a human right!
        In Sweden I haven’t spent a penny on anything diabetes related, except for my doctor’s visits!

        4 years ago Log in to Reply
      2. Gustavo Avitabile

        Health care is free in most European countries, whereas it has high cost in US. Here in Italy, I am provided for all drugs, devices, and medical care I need, except for paying a small contribution (we call it a “ticket”) mainly meant to discourage unreasonable requests. It amounted to about 15 $ for me in April-June.

        4 years ago Log in to Reply
      3. Leona Hanson

        Trump tryed he just gave it the wrong name medicare for all he should have gave it another name maybe everyone would have voted for it

        4 years ago Log in to Reply
    8. ChrisW

      Not including the 32 hours of my billable time spent on phone calls to get my medications and supplies prescribed, approved and dispensed on time.

      2
      4 years ago Log in to Reply
    9. Bob Durstenfeld

      Just my insulin was almost $500, then add the 20 other meds that I currently take. It gets scarry expensive on a quarterly basis.

      4 years ago Log in to Reply
    10. Pauline M Reynolds

      My figure was high because I purchased a new insulin pump and CGM during that time. Otherwise, it would have been $70.

      4 years ago Log in to Reply
    11. Daniel Bestvater

      I live in Canada and have no health insurance. So I spend about $1,000/mth or $3,000 every 3 months.

      4 years ago Log in to Reply
    12. Bonnie Lundblom

      This question probably should have had an “Other” answer, since it didn’t I selected 501-750 since my Medicare Supplemental plan that’s used to cover the remaining 20% leftover after Medicare pays their part, I pay $220/month for that.

      4 years ago Log in to Reply
    13. Molly Jones

      My husband’s employer provides Premera heritage prime, which is not available on an individual level. These are his “golden handcuffs.”
      Hopefully my medical conditions are all cured by before he retires. Aaaahhhhhhh……. yeah right.

      4 years ago Log in to Reply
    14. Steve Rumble

      My insurance does not cover CGMs, so . . .

      The cost provides CGM necessities for 3 months.

      4 years ago Log in to Reply
    15. Leona Hanson

      I’ve spent $22.00 on all my supplies $3.00 more dollars when I get my cgm

      4 years ago Log in to Reply

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of April through the end of June 2022? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]