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    • 21 minutes ago
      Deborah Wright likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 1 hour, 25 minutes ago
      atr likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Yes. I was diagnosed in 2008 or 2009. I don't know how to explain how difficult it is living with celiac disease. It affects everything I eat. Eating at restaurants or other peoples houses, pot-luck dinners are high risk. There are many foods, or food supplements that have hidden gluten ingredients, such as soy sauce, caramel, licorice, and many more. I avoid eating food that other people cook. There is no such thing as a gluten free restaurant, unless the restaurant is completely gluten free (cross contamination of foods). Any food that may contain wheat, rye and barley cannot be eaten. Also, oats are a risk because of cross contamination with wheat, rye or barley. I bake my own bread from gluten free flour. There are lots of books and articles on the subject, but it is mostly learn as you go.
    • 2 hours, 13 minutes ago
      Kristi Warmecke likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 2 hours, 13 minutes ago
      Kristi Warmecke likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Also tested negative. That should have been an option.
    • 3 hours, 24 minutes ago
      Sarah Berry likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      Tested. No celiac
    • 3 hours, 24 minutes ago
      Sarah Berry likes your comment at
      Have you been tested for and diagnosed with celiac disease?
      N/A was the best answer I had. I have been tested for celiac disease in multiple ways all negative.
    • 4 hours, 43 minutes ago
      Derek West likes your comment at
      Have you noticed a difference in how hot versus cold caffeinated drinks affect your glucose levels?
      I do not drink cold caffeinated drinks!
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      Have you noticed a difference in how hot versus cold caffeinated drinks affect your glucose levels?
      I don’t drink caffeinated drinks.
    • 1 day, 23 hours ago
      Ahh Life likes your comment at
      Have any of your T1D devices ever been recalled? Share in the comments on what steps you took after learning about the recall.
      No recalls, but there should be one right now for Tandem infusion sets. The new sets are impossible to remove when trying to separate in order to take a shower. Even my health care provider tried her luck with mine and failed. The times when I would just have to rip the whole thing off for a shower and then put a new one back on afterwards are accumulating. I have started to keep a record of how much insulin is being wasted and how many times it occurs. Called Tamden twice and so far got not much more than a "call us back if it continues".
    • 2 days, 3 hours ago
      Mike S likes your comment at
      Have any of your T1D devices ever been recalled? Share in the comments on what steps you took after learning about the recall.
      I use Omnipod 5 pods and there have been recalls of these pods, however i did not have any of therecalled batches!
    • 2 days, 21 hours ago
      Kathy Hanavan likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      Only can take Zepbound if insurance is willing to cover it because I don’t have a T2 dx required for Monujaro, etc. Zepbound is cost prohibitive and Monujaro is much more affordable, even tho they are the exact same product in different packaging. Before the Zepbound price Increase and/or insurance not covering it at all, I was very successful on it but was only able to take it for 9 months. They need to open these medications for severely insulin resistant T1s like myself.
    • 2 days, 22 hours ago
      Hadley likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 1 hour ago
      Amanda Barras likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It was not hard if one is paying out of pocket, but that's the rub. Medicare won't cover unless your doc goes through a lot of hoops and can document that you also have insulin resistance/Type 2 in addition to Type 1.
    • 3 days, 1 hour ago
      Amanda Barras likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 2 hours ago
      Lawrence S. likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 3 days, 3 hours ago
      TEH likes your comment at
      If you’re using a GLP-1 medication, how easy was it to obtain access?
      It’s extremely easy if you’re a multi-millionaire and can afford $1000+ per month. Normal people, not so much. Medicare won’t cover it. Man insurance plans have stopped covering it. Another scam by BIG pharma to get rich ( check the prices in other countries!).
    • 4 days, 2 hours ago
      Lawrence S. likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      NEVER HAVE AND NEVER WILL. PERIOD.
    • 4 days, 2 hours ago
      Lawrence S. likes your comment at
      If you’re taking a GLP-1 medication, what side effects have you experienced? Select all that apply.
      I have been taking very low dose tirzepetide for about 6 months. Initially, I had some nausea which resolved after about a week. It is an amazing drug for us T1d's. My insulin dose is about 30% less with an increase in TIR and it is just easier to manage. I do not need to lose weight, but my doc who prescribes it a lot said I would not lose much and that is so. I lost about 7 lbs initially, but regained about 4 once the side effects wore off. Food noise is down which I didn't even realize was a particular issue. Paying out of pocket is onerous, but with low dose and a vial, it is not too bad.
    • 4 days, 20 hours ago
      Ahh Life likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      I use a CBD/THC balm for joint and muscle pain.
    • 4 days, 21 hours ago
      atr likes your comment at
      Have you ever tried CBD or marijuana while living with T1D? Share more about your experience and tips.
      I use a CBD/THC balm for joint and muscle pain.
    • 4 days, 23 hours ago
      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Take a deep breath. It is a marathon not a sprint. Get a good healthcare team including an endocrinologist, diabetes care and education specialist, and mental health professionals. Do your own research but use well respected sources.
    • 4 days, 23 hours ago
      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      The curve-balls that life throws at you may seem like the cosmic unfairness of a brain-cancer diagnosis. But T1D is not like that. It's a condition, not a disease so much. But as such the condition will require attention, awareness, tight-rope walking, and the help of others if you fall off the high wire. And, man oh man, is it ever an exciting high-wire act. --〜⁠(⁠꒪⁠꒳⁠꒪⁠)⁠〜--
    • 4 days, 23 hours ago
      lis be likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Educate yourself on this condition from many perspectives. From the professional level, the patients, and many different books of those living with it. Try and keep up to date with changing hypotheses of treatment. Get to know your body and digestion so you can choose the best insulin rates. Keep a daily diet along with activity and stresses to correlate to your blood glucose.
    • 5 days, 3 hours ago
      Lawrence S. likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Keep glucose under control in order to avoid long-term complications. As soon as practical, obtain CGM and insulin pump.
    • 5 days, 3 hours ago
      Lawrence S. likes your comment at
      What is the best advice you would have for someone who is newly diagnosed with type 1?
      Do your best to control your blood sugar but don't aim for perfection. That will never happen.
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    How many times in the past 12 months did you have your A1c measured by a healthcare provider?

    Home > LC Polls > How many times in the past 12 months did you have your A1c measured by a healthcare provider?
    Previous

    If you have ever been prescribed steroids, did they have a noticeable impact on your blood glucose levels? Please share more about your experiences managing T1D while taking steroids in the comments.

    Next

    If you use an insulin pump, does your T1D healthcare provider typically examine your pump sites during your appointments?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. Jen Farley

      Seems like every other time now that they can get it from a from a finger test.

      3 years ago Log in to Reply
    2. Moses Egesa

      I normally have my A1C measured every after 3 months

      1
      3 years ago Log in to Reply
    3. Donald Cragun

      I got 4 A1c tests from my endo, 2 from my family doctor, and 2 from my nephrologist.

      3 years ago Log in to Reply
    4. Jennifer Bounds

      My A1c was checked twice but should’ve been 3 times in the last year. While at my last visit they wouldn’t check A1c bc I preferred washing my hands with soap and water Vs. Using an alcohol swab. I’ve been washing my hand with warm water and soap for this exact test for years and suddenly a change. The interesting thing is 2 different Nurse Practitioners told me that the Clarity App was more accurate in their opinion and that was the result they’re going to use instead. We will see how my next appointment goes.

      3 years ago Log in to Reply
    5. Lawrence S.

      Before each Endo visit, every three months. (4 times).

      1
      3 years ago Log in to Reply
    6. Gerald Oefelein

      Every three months at each endocrinologist visit.

      1
      3 years ago Log in to Reply
    7. Kathy Hanavan

      We are using TIR and other metrics in it’s place as they are more accurate as to my overall management.

      1
      3 years ago Log in to Reply
    8. Eve Rabbiner

      Have all my blood work done beforehand so don’t need to test at office visit.

      1
      3 years ago Log in to Reply
    9. Henry Renn

      Every 3 months

      2
      3 years ago Log in to Reply
    10. Trina Blake

      The past couple years, 3 times. But I upload my pump/Dexcom every month so the Endo practice has a far better idea of how I am managing. We use TIR by and large. They still want the A1C/lab draw. But nothing changes, sometimes I get snarky and think that’s so they can boss me around.

      3 years ago Log in to Reply
    11. Ahh Life

      3. However, the ads on TV are overhyping it. I know advertising is the art of fibbing responsibly, while TIR and other measures are assuming more prominence.

      3
      3 years ago Log in to Reply
    12. Marty

      My primary care doctor orders it once a year. My endo is more interested in my CGM data, which is reviewed every 3 months.

      3
      3 years ago Log in to Reply
    13. Joan Benedetto

      I answered “1” as I’m assuming you mean via blood in office. We download data every other week to Endo, and, also, via Nightscout we can check A1c at anytime.

      3 years ago Log in to Reply
      1. Joan Benedetto

        Not what you asked, but TIR is much more important to us in managing our son’s diabetes.

        3
        3 years ago Log in to Reply
    14. Anthony Harder

      3-4 times. Every time I visit my endocrinologist he has it done.

      1
      3 years ago Log in to Reply
    15. Sue Martin

      I don’t remember actually. I don’t pay attention to my A1C number.

      3 years ago Log in to Reply
    16. Patricia Dalrymple

      I’ve convinced my Endo only need every 4 Months not every 3 because I manage my diabetes well.

      3 years ago Log in to Reply
    17. Jane Cerullo

      See my Endo every three months. Does A1c every visit

      1
      3 years ago Log in to Reply
    18. Ginger Vieira

      Honestly, I’d like to have it done more often but I have to go to an external lab prior to the appointment with my primary care because they aren’t using a quick in-clinic A1c machine. It’s tedious! And my endo is a virtual appointment so that would also require an appointment with a walk-in lab. Annoying. I wish it was easier but I don’t want to leave these two doctors.

      3 years ago Log in to Reply
    19. George Lovelace

      On Medicare it’s generally every 3 mos but since my A1c has been 5.4 to 5.6 she’s getting by with every 4 mos. and I’m Happy!!

      3 years ago Log in to Reply

    How many times in the past 12 months did you have your A1c measured by a healthcare provider? Cancel reply

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