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  • Activity
    • 13 hours, 23 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 13 hours, 24 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 13 hours, 26 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 14 hours, 39 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 14 hours, 45 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 14 hours, 45 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 14 hours, 45 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 14 hours, 45 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 14 hours, 49 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 14 hours, 50 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 14 hours, 50 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 14 hours, 50 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 14 hours, 50 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 14 hours, 51 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 14 hours, 51 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 15 hours, 11 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 15 hours, 12 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 15 hours, 32 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 15 hours, 41 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 15 hours, 41 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 15 hours, 41 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 15 hours, 41 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 15 hours, 41 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 15 hours, 42 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 15 hours, 42 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    How many times in 2021 did you have an appointment with a Certified Diabetes Care and Education Specialist?

    Home > LC Polls > How many times in 2021 did you have an appointment with a Certified Diabetes Care and Education Specialist?
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    How do you manage your stress levels? Select all that apply.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    32 Comments

    1. Britni

      5 or more in 2021. Normally only 2/year, but I needed some extra help in January/February.

      1
      1 year ago Log in to Reply
    2. Mick Martin

      3 scheduled appointments, but I was in hospital for several months with COVID-19 so I did see a CDE several more times.

      1 year ago Log in to Reply
    3. connie ker

      If a nurse practition counts, that is who I see when they travel to my hometown. I had 3 appointments this year with this traveling NP and RN which saves me driving alone to and from a larger city an hour away. I appreciate them making the trips instead of me making the trips out of town.

      1 year ago Log in to Reply
    4. Clare Fishman

      I find I mostly end up educating the educators. I haven’t seen a CDE or whatever the name was changed to in many years.

      3
      1 year ago Log in to Reply
      1. cynthia jaworski

        me too.

        1 year ago Log in to Reply
      2. ConnieT1D62

        The call themselves Certified Diabetes Care and Education Specialists (CDCES) now. It’s a fancy title to give HCPs with specialized training credibility to take on the role of teaching people with diabetes and related comorbid conditions self-care skills to live well and healthfully with diabetes. I find that many of the CDCES, (formally known as CDEs) have good intentions, but are pretty clueless when it comes down to really knowing and understanding what it is like to live with T1D unless they actually have it and live with it themselves.

        1
        1 year ago Log in to Reply
    5. Lawrence S.

      It’s been many years since I’ve seen a Certified Diabetes Care Education Specialist. I honestly don’t remember the last time, maybe 20+ years.

      1 year ago Log in to Reply
      1. Patricia Kilwein

        Speedy recovery!

        1 year ago Log in to Reply
    6. jlagueux

      Only once, and that was when I was about to start on my pump. I don’t have a need for an cde. I have an amazing Dr, who I met with monthly this year until she left for maternity leave. And she is very responsive to email. I miss her terribly, and can’t wait for her to get back. I am really struggling right now and can’t get in to see the NP I was assigned to, and she’s not responding to my emails. Im so lost. Sry, that was a total vent!!!

      1 year ago Log in to Reply
    7. Patricia Kilwein

      I put 4 because I got a new insulin pump.

      1 year ago Log in to Reply
    8. Kathleen Juzenas

      Once. Normally it would be twice but “second” appointment has been put off until 1/4/22 because of the holidays.

      1 year ago Log in to Reply
    9. Sarah Berry

      I put zero, but I always see a diabetes nurse before the endocrinologist sees me at each appointment.

      1 year ago Log in to Reply
    10. Bob Durstenfeld

      I saw my endo four times, three time on Telehealth, but I have never seen a Certified Diabetes Specialist in 65 years of T1D

      1
      1 year ago Log in to Reply
    11. kflying1@yahoo.com

      I haven’t found a diabetes specialist, or an endocrinologist practice, that has a clue about the reality of being a diabetic.

      2
      1 year ago Log in to Reply
    12. Kristine Warmecke

      Zero, however I have emailed and spoken on the phone with her several times. When I was unsure of what to do next. She’s become more a sounding board for me, at the moment. I’m sure that will change in the future, again.

      1 year ago Log in to Reply
    13. kflying1@yahoo.com

      Zero – those folk don’t seem to be available in Portland, Oregon.

      1 year ago Log in to Reply
    14. Janis Senungetuk

      Twice this year. I also have contact with her via MyChart if I have specific pump/CGM questions. My 90 day appointments now rotate between my endo and CDCES.

      1 year ago Log in to Reply
    15. Mark Schweim

      I said ONE because until latest appointment I had been told my endocrinologist had NO CDE’s to work with me, but last Endo appointment, my Endo had to be out of town so transferred my appointment to his CDE, which I think I may prefer over her boss because the Endo tells me what he thinks I should do while his CDE is also an Insulin Pump USER and she actually takes the time to go into more details on why she and he think such changes might help and also wants MY input on personal experiences that might say “What I’ve been doing myself is likely better” and after discussion is more willing to admit “EVERYBODY with T1D has MORE EXPERIENCE with their own condition than any Doctor they’ve been seeing ever could, so the Doctor can ONLY make recommendations, but if the patient has differing opinions, the Doctor needs to take those patient opinions into consideration and maybe the patient actually knows more than the Doctor concerning the discussed topic or treatment option.”

      1
      1 year ago Log in to Reply
    16. Pauline M Reynolds

      I put 0, because I do not know if the PA or the NP I saw were CDE’s.

      1 year ago Log in to Reply
    17. GiGi

      I’ve never been to one.

      1 year ago Log in to Reply
    18. Christina Trudo

      2020 and 21 were both zero, where most of the past few decades it’s been once or twice generally, occasionally more.

      1 year ago Log in to Reply
      1. Christina Trudo

        No wait- i had one phone appt this year, modify my result to 1!

        1 year ago Log in to Reply
    19. LizB

      Zero. I’ve seen my new endo three times. My insurance just put my old endo back in network (and the hospital she works in) and there is a NP/CDE who works with my old endo, and is who I’ve seen way more times than the endo. I’m trying to make an appointment with her for Spring 2022.

      1 year ago Log in to Reply
    20. Becky Hertz

      4 this year, 3 with nutritionist and one with nurse. Usually my answer would be 0.

      1 year ago Log in to Reply
    21. ConnieT1D62

      None in 2021. Although the NP I see is a long-time CDE, she no longer serves that function because she is a full-fledged Endocrine prescribing provider in the practice she works for. I am fortunate that I am a RN, CDCES and when in need, I consult HCP friends and colleagues in the professional business of diabetes care and education – most of whom are also T1.

      1 year ago Log in to Reply
    22. Ahh Life

      Zero. But my late mother-in-law was a CDE. She also had a PhD in pharmacy. Talked with her many times over the 50 or so years I knew her. She was never judgmental and always eager to learn. Perhaps she was simply glad to have so many sons-in-law and daughters-in-law. ( ͡❛ ω ͡❛) ( ͡❛ ω ͡❛)

      1 year ago Log in to Reply
    23. Lucia Maya

      I rarely have appointments with either my CDCES OR my endo. I email with one of them when I need RX refills, and had a brief trial with Victoza this year that I discussed with the endo. But I always find I know more than they about the day to day decisions and choices I need to make. I’d love to have a T1D good friend or practitioner I could run things by when I need, but I use the various online groups as needed…

      1 year ago Log in to Reply
    24. Linda Zottoli

      I don’t have a regular CDCES. My current doctor (of I guess 22 years of so) has relationships with some that he has referred me to on occasion. I did like and find helpful one very logical non-diabetic one, who helped me with a particular problem once, but, except for that, the only one I have found helpful has been the long-term diabetic one, who has since moved on.

      1 year ago Log in to Reply
    25. Kim Davis

      2

      1 year ago Log in to Reply
    26. David Smith

      Shoot. I answered 4, but after reading some comments, it’s clear I was assuming my Endo and her PA are CDCESs, but now I’m not so sure. Honestly, I’m not even sure what a CDCES does. Time to hit Google search! Happy New Year, y’all!

      1 year ago Log in to Reply
      1. ELYSSE HELLER

        My endocrinologist always pushes me to make an appointment with her CDES but I’ve done that and found that I didn’t learn much. I think it might help if the CDES was also a TID. I have been a TID for many, many years and I don’t really need to be told to count my carbs, limit my portions, and check my blood sugars.

        1 year ago Log in to Reply
    27. KCR

      Generally I obtain a referral from my HCP to a CDE in January every year. In 2021, I also consulted with a specialist diabetes education clinic to work on specific issues (sick day plan, reducing post-meal spikes, adjusting overnight basal rate). This was a big help and an excellent investment in my self-care.

      1 year ago Log in to Reply

    How many times in 2021 did you have an appointment with a Certified Diabetes Care and Education Specialist? Cancel reply

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