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    • 7 hours, 10 minutes ago
      Cecilia Yamamoto likes your comment at
      At T1D Exchange, we work to improve the lives of people with T1D through research. If you could ask a T1D scientist anything about research, what questions would you want answered? Share in the comments, and your question may be featured in an upcoming article!
      Why aren't there more studies on heart disease risk with only T1Ds? I have read peer reviewed medical articles that confirm that T1Ds were not studied exclusively in statin research. We were advised to be treated with statins even if our cholesterol was excellent and there were no other risk factors. I suffered from elevated A1c, weight gain, insulin resistance, extremely low cholesterol which led to vitamin D deficiency which caused respiratory problems and inability to exercise or enjoy leisure activities due to breathlessness and muscle pain. Doctors believed that any symptoms reported by patients were due to the "Nocebo effect" despite my improvement when I didn't take statins for six months when I forgot to refill my prescription! I suffered these side effects from 2002-2016 when I finally found a doctor who took me seriously. We need to be treated as individuals with T1D, not treated based on studies on the majority of T2 studies.
    • 8 hours, 17 minutes ago
      Lenora Ventura likes your comment at
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes, my dad had T1. My diagnosi made him and my mom so sad. I tried hard to make it no big deal so they wouldn’t worry.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
    • 8 hours, 17 minutes ago
      Lenora Ventura has commented in the same post you commented in :
      At the time of your T1D diagnosis, did you already personally know anyone who had T1D?
      Yes. My dad also diagnosed when he was 9, his baby sister diagnosed w/ in 6 months of his diagnosis when she was 5, and his older brother who was diagnosed @ 33.
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    How many times in 2021 did you have an appointment with a Certified Diabetes Care and Education Specialist?

    Home > LC Polls > How many times in 2021 did you have an appointment with a Certified Diabetes Care and Education Specialist?
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    32 Comments

    1. Britni

      5 or more in 2021. Normally only 2/year, but I needed some extra help in January/February.

      1
      1 year ago Log in to Reply
    2. Mick Martin

      3 scheduled appointments, but I was in hospital for several months with COVID-19 so I did see a CDE several more times.

      1 year ago Log in to Reply
    3. connie ker

      If a nurse practition counts, that is who I see when they travel to my hometown. I had 3 appointments this year with this traveling NP and RN which saves me driving alone to and from a larger city an hour away. I appreciate them making the trips instead of me making the trips out of town.

      1 year ago Log in to Reply
    4. Clare Fishman

      I find I mostly end up educating the educators. I haven’t seen a CDE or whatever the name was changed to in many years.

      3
      1 year ago Log in to Reply
      1. cynthia jaworski

        me too.

        1 year ago Log in to Reply
      2. ConnieT1D62

        The call themselves Certified Diabetes Care and Education Specialists (CDCES) now. It’s a fancy title to give HCPs with specialized training credibility to take on the role of teaching people with diabetes and related comorbid conditions self-care skills to live well and healthfully with diabetes. I find that many of the CDCES, (formally known as CDEs) have good intentions, but are pretty clueless when it comes down to really knowing and understanding what it is like to live with T1D unless they actually have it and live with it themselves.

        1
        1 year ago Log in to Reply
    5. Lawrence S.

      It’s been many years since I’ve seen a Certified Diabetes Care Education Specialist. I honestly don’t remember the last time, maybe 20+ years.

      1 year ago Log in to Reply
      1. Patricia Kilwein

        Speedy recovery!

        1 year ago Log in to Reply
    6. jlagueux

      Only once, and that was when I was about to start on my pump. I don’t have a need for an cde. I have an amazing Dr, who I met with monthly this year until she left for maternity leave. And she is very responsive to email. I miss her terribly, and can’t wait for her to get back. I am really struggling right now and can’t get in to see the NP I was assigned to, and she’s not responding to my emails. Im so lost. Sry, that was a total vent!!!

      1 year ago Log in to Reply
    7. Patricia Kilwein

      I put 4 because I got a new insulin pump.

      1 year ago Log in to Reply
    8. Kathleen Juzenas

      Once. Normally it would be twice but ā€œsecondā€ appointment has been put off until 1/4/22 because of the holidays.

      1 year ago Log in to Reply
    9. Sarah Berry

      I put zero, but I always see a diabetes nurse before the endocrinologist sees me at each appointment.

      1 year ago Log in to Reply
    10. Bob Durstenfeld

      I saw my endo four times, three time on Telehealth, but I have never seen a Certified Diabetes Specialist in 65 years of T1D

      1
      1 year ago Log in to Reply
    11. kflying1@yahoo.com

      I haven’t found a diabetes specialist, or an endocrinologist practice, that has a clue about the reality of being a diabetic.

      2
      1 year ago Log in to Reply
    12. Kristine Warmecke

      Zero, however I have emailed and spoken on the phone with her several times. When I was unsure of what to do next. She’s become more a sounding board for me, at the moment. I’m sure that will change in the future, again.

      1 year ago Log in to Reply
    13. kflying1@yahoo.com

      Zero – those folk don’t seem to be available in Portland, Oregon.

      1 year ago Log in to Reply
    14. Janis Senungetuk

      Twice this year. I also have contact with her via MyChart if I have specific pump/CGM questions. My 90 day appointments now rotate between my endo and CDCES.

      1 year ago Log in to Reply
    15. Mark Schweim

      I said ONE because until latest appointment I had been told my endocrinologist had NO CDE’s to work with me, but last Endo appointment, my Endo had to be out of town so transferred my appointment to his CDE, which I think I may prefer over her boss because the Endo tells me what he thinks I should do while his CDE is also an Insulin Pump USER and she actually takes the time to go into more details on why she and he think such changes might help and also wants MY input on personal experiences that might say “What I’ve been doing myself is likely better” and after discussion is more willing to admit “EVERYBODY with T1D has MORE EXPERIENCE with their own condition than any Doctor they’ve been seeing ever could, so the Doctor can ONLY make recommendations, but if the patient has differing opinions, the Doctor needs to take those patient opinions into consideration and maybe the patient actually knows more than the Doctor concerning the discussed topic or treatment option.”

      1
      1 year ago Log in to Reply
    16. Pauline M Reynolds

      I put 0, because I do not know if the PA or the NP I saw were CDE’s.

      1 year ago Log in to Reply
    17. GiGi

      I’ve never been to one.

      1 year ago Log in to Reply
    18. Christina Trudo

      2020 and 21 were both zero, where most of the past few decades it’s been once or twice generally, occasionally more.

      1 year ago Log in to Reply
      1. Christina Trudo

        No wait- i had one phone appt this year, modify my result to 1!

        1 year ago Log in to Reply
    19. LizB

      Zero. I’ve seen my new endo three times. My insurance just put my old endo back in network (and the hospital she works in) and there is a NP/CDE who works with my old endo, and is who I’ve seen way more times than the endo. I’m trying to make an appointment with her for Spring 2022.

      1 year ago Log in to Reply
    20. Becky Hertz

      4 this year, 3 with nutritionist and one with nurse. Usually my answer would be 0.

      1 year ago Log in to Reply
    21. ConnieT1D62

      None in 2021. Although the NP I see is a long-time CDE, she no longer serves that function because she is a full-fledged Endocrine prescribing provider in the practice she works for. I am fortunate that I am a RN, CDCES and when in need, I consult HCP friends and colleagues in the professional business of diabetes care and education – most of whom are also T1.

      1 year ago Log in to Reply
    22. Ahh Life

      Zero. But my late mother-in-law was a CDE. She also had a PhD in pharmacy. Talked with her many times over the 50 or so years I knew her. She was never judgmental and always eager to learn. Perhaps she was simply glad to have so many sons-in-law and daughters-in-law. ( Ķ”ā›ā€ÆĻ‰ Ķ”ā›) ( Ķ”ā›ā€ÆĻ‰ Ķ”ā›)

      1 year ago Log in to Reply
    23. Lucia Maya

      I rarely have appointments with either my CDCES OR my endo. I email with one of them when I need RX refills, and had a brief trial with Victoza this year that I discussed with the endo. But I always find I know more than they about the day to day decisions and choices I need to make. I’d love to have a T1D good friend or practitioner I could run things by when I need, but I use the various online groups as needed…

      1 year ago Log in to Reply
    24. Linda Zottoli

      I don’t have a regular CDCES. My current doctor (of I guess 22 years of so) has relationships with some that he has referred me to on occasion. I did like and find helpful one very logical non-diabetic one, who helped me with a particular problem once, but, except for that, the only one I have found helpful has been the long-term diabetic one, who has since moved on.

      1 year ago Log in to Reply
    25. Kim Davis

      2

      1 year ago Log in to Reply
    26. David Smith

      Shoot. I answered 4, but after reading some comments, it’s clear I was assuming my Endo and her PA are CDCESs, but now I’m not so sure. Honestly, I’m not even sure what a CDCES does. Time to hit Google search! Happy New Year, y’all!

      1 year ago Log in to Reply
      1. ELYSSE HELLER

        My endocrinologist always pushes me to make an appointment with her CDES but I’ve done that and found that I didn’t learn much. I think it might help if the CDES was also a TID. I have been a TID for many, many years and I don’t really need to be told to count my carbs, limit my portions, and check my blood sugars.

        1 year ago Log in to Reply
    27. KCR

      Generally I obtain a referral from my HCP to a CDE in January every year. In 2021, I also consulted with a specialist diabetes education clinic to work on specific issues (sick day plan, reducing post-meal spikes, adjusting overnight basal rate). This was a big help and an excellent investment in my self-care.

      1 year ago Log in to Reply

    How many times in 2021 did you have an appointment with a Certified Diabetes Care and Education Specialist? Cancel reply

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