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    • 13 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Being on Medicare and required to see my Endo. every three months, my next appointment is made prior to departure from my Endo's office.
    • 14 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      If I were not on Medicare, it would be difficult to get an appointment within 3 months, even in an emergency. In an emergency, they would assign me a nurse practitioner to see. It is possible to contact them through their "portal." Whether I get a timely response depends on whether there is a reliable nurse to respond.
    • 29 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      When I saw my endo a year ago, I wasn't able to make an appointment 6 months later because all available appointments were fully booked. I have to see her CDE who has more availability in order to meet Medicare requirements for quarterly visits. Many, many healthcare providers in my area burned out and quit during Covid. I injured my knee badly last June and can't get a consult with an orthopedic surgeon until May due to the backlog of people needing help. I'm on crutches until then. My sports medicine doctor stopped practicing medicine last month. Our healthcare system is in crisis with no solution in sight.
    • 30 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      On hold or actually talking about the issue and calling back to ensure someone follow's up as everyone seems to be over their head. Honestly, it varies. It can take considerable time just to raise the visibility of an issue, then the follow up can take weeks/months and patience to resolve. Another problem is patients without the cognitive skills for follow-up. These days i doubt anyone pays attention to them.
    • 2 hours, 50 minutes ago
      Wanacure likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I try to make my appointment for my next appointment when I check out. The scheduler always asks maki g it easier to remember. If I was to forget there would be a wait to get back int the rotation.
    • 9 hours, 59 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 10 hours ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 11 hours, 56 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 12 hours, 12 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 23 hours, 23 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 3 hours ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 1 day, 3 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ā€˜delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 1 day, 3 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 1 day, 4 hours ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 1 day, 4 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 1 day, 5 hours ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day, 6 hours ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
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    How many times in 2021 did you get a dilated eye exam (involving eye drops)?

    Home > LC Polls > How many times in 2021 did you get a dilated eye exam (involving eye drops)?
    Previous

    Did you add, remove, or change T1D devices in 2021? Select all that apply.

    Next

    How many times in 2021 did you have an appointment with a Certified Diabetes Care and Education Specialist?

    Sarah Howard

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    24 Comments

    1. Wanacure

      Even optometrists can dilate eyes to check for retinopathy. Better control resulted in zero retinopathy for me though it never was much of a problem. You can reverse minor retinopathy.

      1 year ago Log in to Reply
    2. Ahh Life

      This very straightforward numerical question is actually difficult for me. Even though I see a high-priced specialist twice a year and he attempts to dilate both eyes, only one eye cooperates fully. So how do I count the dilated eyes? Divide by ½?

      The left eye has had so many laser treatments, that the elasticity of the pupil cells (cones, I think) is diminished, if not kaput. However, do not under any circumstances let that deter you from having laser treatments if recommended. The handful of floaters will eventually, if you live long enough, diminish your eyesight.

      4
      1 year ago Log in to Reply
    3. TEH

      I have had 4 total eye exams 3 dilated exams in ’21. He took pictures and checks for retinopathy. And measures pressure for glaucoma each time. I hate the eyedrops but want to continue seeing.

      1
      1 year ago Log in to Reply
    4. Marina Kurkov

      I skipped the eye exam because I weighed the good eye exams of many previous years vs close up prolonged maskless contact. There are some eye tests one can do virtually— maybe I’ll try that… no sense in going now with the recent flare-up.

      1 year ago Log in to Reply
      1. Jim Cobbe

        Marina: Why maskless? At my ophthalmologist, all staff and patients are masked all the time — no maskless time at all. You do not want to skip eye exams if you have been diabetic for any substantial length of time.

        8
        1 year ago Log in to Reply
    5. John McHenery

      I had one examination but didn’t need the drops.

      1 year ago Log in to Reply
    6. Gary Taylor

      2x. Once was my regular yearly dilated retina exam and the other was part of the cataract surgery process.

      1 year ago Log in to Reply
    7. Andrew Stewart

      I had three this past year all related to a PVD in my right eye. All is good.

      In posterior vitreous detachment (PVD), the gel that fills the eyeball separates from the retina. It’s a common condition with age. PVD can cause floaters or flashes of light, which often fade over time. PVD isn’t painful or sight-threatening. But you should see an eye specialist right away to make sure you don’t have another retina problem.(https://my.clevelandclinic.org/health/diseases/14413-posterior-vitreous-detachment)

      2
      1 year ago Log in to Reply
    8. gary rind

      had an appointment for my annual exam with my ophthalmologist. guess he’s older than I thought, he fell and hurt his back so badly that he needed surgery so all appointments were canceled.

      1 year ago Log in to Reply
    9. Jane Cerullo

      Having cataract surgery today. Also had retina exam in other eye. Not a fan. But necessary evil.

      2
      1 year ago Log in to Reply
    10. Judith Marged

      Instead of using drops and wasting time for them to dilate the eyes, my ophthalmologist takes photographs of the eye. This makes for a quicker exam time and easier drive home, as my vision is not impaired from the dilation.

      1 year ago Log in to Reply
    11. LizB

      Had my annual eye exam in October after missing last year’s. No change to my eyes, or my eyeglass prescription. 34 years with Type 1 and no issues.

      1 year ago Log in to Reply
    12. Mark Schweim

      My normal annual Diabetic Eye Exams include dilation with the eye drops, but in 2021, every place around here offering the annual Diabetic Eye Exams said that they were unable to dilate the eyes for the exam due to COVID restrictions.

      1 year ago Log in to Reply
    13. Retired and glad

      I lost vision in my left eye in 1993 due to a central retinal vein occlusion. So since that time my right eye is very precious to me and I get it checked every quarter. Sometimes they dilate, sometimes they take pictures. So far, so good!

      1 year ago Log in to Reply
    14. Janis Senungetuk

      Once in February with the retina specialist I’ve had an annual appointment with for over a decade. I was diagnosed with proliferative diabetic retinopathy in my left eye in 1982 .

      1 year ago Log in to Reply
    15. Tina Roberts

      One. So far, no diabetic eye disease. Thank you Jesus. My mother is legally blind from diabetic retinopathy and MACTEL1.

      1 year ago Log in to Reply
    16. M C

      Due to having Diabetic macular edema, I have an exam, on average, once a month with eye dilation, and usually an injection in the eye having the worst of the problem…. Never seems to make much, if any, difference. (Not fun!!!)

      1 year ago Log in to Reply
    17. Christina Trudo

      Yikes!! I get checked twice a year… and your question prompted me to realize I have not been since late 2020. Called and made the appointment immediately.

      1
      1 year ago Log in to Reply
    18. Chrisanda

      I have had a yearly eye exam since I was a child. just because my parents stressed how important they are, even if you have no need for glasses (which I do now!). Once I was diagnosed with diabetes 24 years ago, the doctor automatically added the dilation yearly. So far, all is clear! Yea, and Thank you God!

      1
      1 year ago Log in to Reply
    19. PamK

      I opted for an Optomap photo instead. Had them done 2 times this year, as well as the past few years.

      1 year ago Log in to Reply
    20. Dennis Dacey

      Since my Retinopathy diagnosis in 1966 [began LASER treatments in 1967], I have had at least two dilated exams yearly. now in my later years after so many thousand LASER burns there isn’t any room left for LASER si we now do Avastin injections with dilation three times a year with “routine” dilated exams in-between, so at least one eye dilated for exam six times yearly.
      Although I was told in 1966 to expect total blindness within two years, I see well thanks to the awesome research and experimentation at Joslin, and earlier this year was issued a new motor vehicle operator license good until July 4, 2028.

      4
      1 year ago Log in to Reply
    21. Louise Jesserer

      In 1994, I was diagnosed with diabetic retinopathy. I was treated and have not had any further issues other than a 66 year history of diabetes!!

      1 year ago Log in to Reply
    22. Jillmarie61

      Fortunately, I don’t have diabetic retinopathy. Unfortunately, I was diagnosed with Age-Related Macular Degeneration just over two years ago. It’s the wet kind so it’s treatable. But that means I have to see a Retinologist every 2 months or so and have injections in both eyes to keep the disease at bay. ā˜¹ļø

      1 year ago Log in to Reply
    23. Cheryl Seibert

      3 times. I’m blind in my left eye (from birth …. NOT T1D related) and am rapidly developing cataracts in my good eye. The doc is closely monitoring the changes in my vision.

      1 year ago Log in to Reply

    How many times in 2021 did you get a dilated eye exam (involving eye drops)? Cancel reply

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