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    • 13 hours, 34 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 13 hours, 35 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am my own advocate. I read about new devices and always investigate side effects of any new medication before starting. I usually bring up but then have good discussion with Endo before making decisions.
    • 13 hours, 36 minutes ago
      ConnieT1D62 likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      With my endo, I usually have to ask. With the Diabetes Educator, she'll make the suggestion first. They're both very aware that I'm dependent on insurance covering the majority of the cost.
    • 14 hours, 50 minutes ago
      Trina Blake likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 14 hours, 55 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      No, I was the one who had diabetes
    • 14 hours, 56 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 14 hours, 56 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      Already married over forty years when I was diagnosed.
    • 14 hours, 56 minutes ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I never knew of anyone who had diabetes, type 1 or 2 before I was married. I became a T1D after I was married.
    • 15 hours ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I answered “no.” I don’t think my girlfriend at diabetes children’s camp when I was 13 counts. While I think there would be a lot I would have in common with a partner with T1D, I wouldn’t want that to be what brought us together, and I don’t think it would keep us together.
    • 15 hours ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      went on one date with a T1D. she had been dx'd as a child (I was dx'd at 43) so she was very old school. she ragged on me during the entire date about my menu choices, my carbs estimation for my shot and she lost her mind when I ordered a Corona! punchline is that my sugar was less than 150 when I went to sleep.
    • 15 hours, 1 minute ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      When I was married, diabetes was not in the picture at all. All I knew was an uncle who died in 1929 because he refused injections. I developed LADA in my 40's, followed by my husband with Type 2, then my two daughters who had PCOS and Type 2, then my son with Type 2. Enough.
    • 15 hours, 1 minute ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I am married to someone with Type 2.
    • 15 hours, 1 minute ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 15 hours, 1 minute ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I dated someone, but I was/am not out of the closet about having T1 so he didn’t know that I have T1
    • 15 hours, 1 minute ago
      beth nelson likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      My husband was diagnosis at age 3 and I was diagnosed at age 4.
    • 15 hours, 22 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 15 hours, 23 minutes ago
      Janis Senungetuk likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 15 hours, 42 minutes ago
      Bonnie Lundblom likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I have been married since 1985. My wife Susan does not have either type 1 or 2 diabetes, but rather type 3 diabetes- spouse or mate of someone with T1D...:) She has been my guardian for night lows, though she has rarely had to intervene since I started CGM in 8-2006.
    • 15 hours, 51 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I may already be on the best medications and devices available to me.
    • 15 hours, 51 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I wouldn't say that my T1D healthcare provider OFTEN suggests medications or devices that they think would be beneficial to my diabetes management, but they do SOMETIMES suggest options available to me. (I was privileged to be the first person, in the area that I live, to be offered CSII (Continuous Subcutaneous Insulin Infusion, or pump technology) to help control my diabetes. This was after my endocrinologist attended a diabetes conference in the United States where a former Miss America, Nicole Johnson, was demonstrating a Medtronic/MiniMed insulin pump. He asked her for more information on how these pumps work, mentioning that I had extreme difficulty in controlling my diabetes, with me spending as much time in hospital as I was at home when I was taking multiple daily injections (MDI). On his return to the UK, he offered me the opportunity to 'trial' the pump, which I accepted. This was in 1989.)
    • 15 hours, 52 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I think my healthcare providers learn about new medications and devices at about the same time that I do. This wasn't the case when I was first diagnosed, pre-internet. Back then, I always looked forward to seeing my CDE because I knew I'd come away with something to make my life easier/better.
    • 15 hours, 52 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I had to answer “other” because I just got a new endo after my other one retired so I’ve only met with him once. Too early to discuss new technology or medications.
    • 15 hours, 52 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Generally, no, my healthcare provider does not suggest new medications or devices. However, it is not often that new meds/devices become available. Most things are dependent upon my quarterly blood tests. Recently, my Endo put me on statin drugs when my bloodwork showed high cholesterol over a six month period. Otherwise, I am usually the one who asks about new devices about which I have heard or read.
    • 15 hours, 52 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I’m almost always more informed of the reported advancements in T1 treatments than my doc. So I usually bounce ideas off the doc for his input.
    • 15 hours, 53 minutes ago
      beth nelson likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      I am on the Dexcom, I’m not on a pump though. I am LADA so I have very high insulin resistance, so I use a lot of insulin & there’s just not a pump that would be efficient for my amount of insulin. I’ve tried to get Afrezza, but every Endoc I bring it up to won’t prescribe it. Even though I bring them evidence that it doesn’t cause lung cancer when you’re not a smoker. So frustrating that we can’t agree on that course of treatment.
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    How many times in 2021 did you get a dilated eye exam (involving eye drops)?

    Home > LC Polls > How many times in 2021 did you get a dilated eye exam (involving eye drops)?
    Previous

    Did you add, remove, or change T1D devices in 2021? Select all that apply.

    Next

    How many times in 2021 did you have an appointment with a Certified Diabetes Care and Education Specialist?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    24 Comments

    1. Wanacure

      Even optometrists can dilate eyes to check for retinopathy. Better control resulted in zero retinopathy for me though it never was much of a problem. You can reverse minor retinopathy.

      1 year ago Log in to Reply
    2. Ahh Life

      This very straightforward numerical question is actually difficult for me. Even though I see a high-priced specialist twice a year and he attempts to dilate both eyes, only one eye cooperates fully. So how do I count the dilated eyes? Divide by ½?

      The left eye has had so many laser treatments, that the elasticity of the pupil cells (cones, I think) is diminished, if not kaput. However, do not under any circumstances let that deter you from having laser treatments if recommended. The handful of floaters will eventually, if you live long enough, diminish your eyesight.

      4
      1 year ago Log in to Reply
    3. TEH

      I have had 4 total eye exams 3 dilated exams in ’21. He took pictures and checks for retinopathy. And measures pressure for glaucoma each time. I hate the eyedrops but want to continue seeing.

      1
      1 year ago Log in to Reply
    4. Marina Kurkov

      I skipped the eye exam because I weighed the good eye exams of many previous years vs close up prolonged maskless contact. There are some eye tests one can do virtually— maybe I’ll try that… no sense in going now with the recent flare-up.

      1 year ago Log in to Reply
      1. Jim Cobbe

        Marina: Why maskless? At my ophthalmologist, all staff and patients are masked all the time — no maskless time at all. You do not want to skip eye exams if you have been diabetic for any substantial length of time.

        8
        1 year ago Log in to Reply
    5. John McHenery

      I had one examination but didn’t need the drops.

      1 year ago Log in to Reply
    6. Gary Taylor

      2x. Once was my regular yearly dilated retina exam and the other was part of the cataract surgery process.

      1 year ago Log in to Reply
    7. Andrew Stewart

      I had three this past year all related to a PVD in my right eye. All is good.

      In posterior vitreous detachment (PVD), the gel that fills the eyeball separates from the retina. It’s a common condition with age. PVD can cause floaters or flashes of light, which often fade over time. PVD isn’t painful or sight-threatening. But you should see an eye specialist right away to make sure you don’t have another retina problem.(https://my.clevelandclinic.org/health/diseases/14413-posterior-vitreous-detachment)

      2
      1 year ago Log in to Reply
    8. gary rind

      had an appointment for my annual exam with my ophthalmologist. guess he’s older than I thought, he fell and hurt his back so badly that he needed surgery so all appointments were canceled.

      1 year ago Log in to Reply
    9. Jane Cerullo

      Having cataract surgery today. Also had retina exam in other eye. Not a fan. But necessary evil.

      2
      1 year ago Log in to Reply
    10. Judith Marged

      Instead of using drops and wasting time for them to dilate the eyes, my ophthalmologist takes photographs of the eye. This makes for a quicker exam time and easier drive home, as my vision is not impaired from the dilation.

      1 year ago Log in to Reply
    11. LizB

      Had my annual eye exam in October after missing last year’s. No change to my eyes, or my eyeglass prescription. 34 years with Type 1 and no issues.

      1 year ago Log in to Reply
    12. Mark Schweim

      My normal annual Diabetic Eye Exams include dilation with the eye drops, but in 2021, every place around here offering the annual Diabetic Eye Exams said that they were unable to dilate the eyes for the exam due to COVID restrictions.

      1 year ago Log in to Reply
    13. Retired and glad

      I lost vision in my left eye in 1993 due to a central retinal vein occlusion. So since that time my right eye is very precious to me and I get it checked every quarter. Sometimes they dilate, sometimes they take pictures. So far, so good!

      1 year ago Log in to Reply
    14. Janis Senungetuk

      Once in February with the retina specialist I’ve had an annual appointment with for over a decade. I was diagnosed with proliferative diabetic retinopathy in my left eye in 1982 .

      1 year ago Log in to Reply
    15. Tina Roberts

      One. So far, no diabetic eye disease. Thank you Jesus. My mother is legally blind from diabetic retinopathy and MACTEL1.

      1 year ago Log in to Reply
    16. M C

      Due to having Diabetic macular edema, I have an exam, on average, once a month with eye dilation, and usually an injection in the eye having the worst of the problem…. Never seems to make much, if any, difference. (Not fun!!!)

      1 year ago Log in to Reply
    17. Christina Trudo

      Yikes!! I get checked twice a year… and your question prompted me to realize I have not been since late 2020. Called and made the appointment immediately.

      1
      1 year ago Log in to Reply
    18. Chrisanda

      I have had a yearly eye exam since I was a child. just because my parents stressed how important they are, even if you have no need for glasses (which I do now!). Once I was diagnosed with diabetes 24 years ago, the doctor automatically added the dilation yearly. So far, all is clear! Yea, and Thank you God!

      1
      1 year ago Log in to Reply
    19. PamK

      I opted for an Optomap photo instead. Had them done 2 times this year, as well as the past few years.

      1 year ago Log in to Reply
    20. Dennis Dacey

      Since my Retinopathy diagnosis in 1966 [began LASER treatments in 1967], I have had at least two dilated exams yearly. now in my later years after so many thousand LASER burns there isn’t any room left for LASER si we now do Avastin injections with dilation three times a year with “routine” dilated exams in-between, so at least one eye dilated for exam six times yearly.
      Although I was told in 1966 to expect total blindness within two years, I see well thanks to the awesome research and experimentation at Joslin, and earlier this year was issued a new motor vehicle operator license good until July 4, 2028.

      4
      1 year ago Log in to Reply
    21. Louise Jesserer

      In 1994, I was diagnosed with diabetic retinopathy. I was treated and have not had any further issues other than a 66 year history of diabetes!!

      1 year ago Log in to Reply
    22. Jillmarie61

      Fortunately, I don’t have diabetic retinopathy. Unfortunately, I was diagnosed with Age-Related Macular Degeneration just over two years ago. It’s the wet kind so it’s treatable. But that means I have to see a Retinologist every 2 months or so and have injections in both eyes to keep the disease at bay. ☹️

      1 year ago Log in to Reply
    23. Cheryl Seibert

      3 times. I’m blind in my left eye (from birth …. NOT T1D related) and am rapidly developing cataracts in my good eye. The doc is closely monitoring the changes in my vision.

      1 year ago Log in to Reply

    How many times in 2021 did you get a dilated eye exam (involving eye drops)? Cancel reply

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