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    • 3 hours, 36 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Moderately. My doctor and pharmacy are awesome, my insurance and durable medical equipment supplier, not so much. The excessive red tape of paper to get DME supplies shipped is almost always a nightmare!
    • 3 hours, 42 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Run, don’t walk from Edgepark! Read my response to Nevin Bowman above! (Hint: the company I was referring to in that post was Edgepark)
    • 3 hours, 42 minutes ago
      KarenM6 likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I once had a supplier withhold old pump supplies while refusing to ship the order for a new pump and I was on a 3-way call with insurance and got to listen to DME lie directly to Insurance about it and then I had the pleasure of interjecting and getting to call them a liar! I would have been more vindicated if it actually accomplished anything, but after I finally got my shipment I fired that DME and never looked back. The red tape that insurance insists on for DME is excessive for chronically ill patients!
    • 3 hours, 51 minutes ago
      kristina blake likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 5 hours, 12 minutes ago
      Patricia Dalrymple likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 6 hours, 23 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Been doing it for so long it's mostly estimation at this point. Every once in a while at home I'll measure out exact portions of rice, pasta, etc to remind myself just how SMALL portions should be as I tend to let them get a little bigger over time. (wishful thinking) Very helpful to have that image in mind at restaurants where portions tend to be way larger than a single serving.
    • 6 hours, 23 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      Yes, for me never weighing or measuring but actively using the Calorie King book and app for several years I have most things memorized or I can make a decent assessment.
    • 6 hours, 24 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 6 hours, 24 minutes ago
      Kathy Hanavan likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 7 hours, 18 minutes ago
      Lawrence S. likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 7 hours, 59 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 7 hours, 59 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 7 hours, 59 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 8 hours, 5 minutes ago
      Amanda Barras likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am worried about the changes to Medicare making no provision for getting an immediate replacement if a pump fails. It sounds like we will have to get these from the suppliers instead of a warranty replacement from Tandem themselves (or whatever brand you use). Pumps will be rented and will have to be returned so they can verify the problem before replacing them, which is ridiculous. Meanwhile, Medicare would not pay for us to get long acting insulin as a temporary replacement for the basal.
    • 8 hours, 12 minutes ago
      Amanda Barras likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      After doing this weighing and measurements you get pretty good at estimating
    • 8 hours, 15 minutes ago
      Derek West likes your comment at
      How often do you guess or estimate carbohydrate amounts rather than calculating precisely?
      I chose "Often". If I eat something packaged with a nutrition label, I'll use the carbs listed on the label. If I eat a plate of food, at home or at a restaurant, I estimate.
    • 10 hours, 48 minutes ago
      Ahh Life likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      So far since Jan 1, ‘26, I’ve spent nearly 30 hours on the phone battling and trying to get Medicare covered diabetes supplies. Called 5 different suppliers t get what I need to use my pump.
    • 10 hours, 49 minutes ago
      Ahh Life likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      You are too modest. That hurdle is on fire and you have to juggle chainsaws as you jump over it. Congratulations and good luck making it over the next one in 90 days.
    • 1 day ago
      KarenM6 likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 1 day, 2 hours ago
      Kristi Warmecke likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      Well, since I'm waiting on pump supplies for 2 months now, my confidence is slipping.
    • 1 day, 2 hours ago
      Laurie B likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 1 day, 2 hours ago
      Kristi Warmecke likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I answered slightly. I'm absolutely certain supplies and medication will be available. However, I'm doubtful they will be affordable. If I can't afford them, I can't access them.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I am confident about access to my medical needs in the immediate future. I am not a fortune teller and have no idea what my access to medical supplies will be like in a year or longer. I don't take my spoiled lifestyle for granted.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I've often said that "hoarding": is a character asset for T1D people. I try to purchase (paying out of pocket) a 60-90 day supply - just in case). I have a new health plan,. effective 1/1/26. AS we know, getting an appt with an HCP isn't easy. They have to be accepting new patients, they have to be in network etc. Once I knew what my new policy would be (nov 2025) I made an appt. The earliest appt I could get was in Sept 2026. Thank goodness for my stash of device supplies. I had to go to Urgent care to get an Rx for insulin (my old HMO plan "doesn't do bridge refills"). So yeah, I worry, and plan for hiccups in the supplies process.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How confident are you about having consistent access to the diabetes supplies and medication you need?
      I answered slightly. I'm absolutely certain supplies and medication will be available. However, I'm doubtful they will be affordable. If I can't afford them, I can't access them.
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    How many times in 2020 did you have an appointment with a certified diabetes educator (CDE)?

    Home > LC Polls > How many times in 2020 did you have an appointment with a certified diabetes educator (CDE)?
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    Has your insulin ever frozen? Tell us how you handled it in the comments!

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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Bob Durstenfeld

      I have not seen a CDE in more than a decade. One use to work in my Endo’s office, but not for a long time.

      5 years ago Log in to Reply
    2. DeAnn Johnson

      The last time I saw a CDE was right after diagnosis . I haven’t seen a CDE in almost 30 years

      5 years ago Log in to Reply
    3. Janis Senungetuk

      This year, four times. Two of the appointments were related to new pump training and downloading a pump management app. When I’ve had specific questions I’ve contacted her thru My Chart and not needed to make an appointment.

      5 years ago Log in to Reply
    4. Amanda Barras

      I never see a CDE. I only see an Endo 1x a year.

      5 years ago Log in to Reply
    5. Mick Martin

      I’ve met up with a CDE 4 times this year … 3 of those times were to do with a new Medtronic pump and CGM, the other occasion was a regular, scheduled appointment.

      5 years ago Log in to Reply
    6. Dave Barden

      Same here only see CDE when starting something new. This year it was the libre2 system which I still evaluating before committing to it. When I asked and pressed I was finally told that the sensors cost $200 each. That’s at least $1200 per 3mo supply. Yes I have insurance but I still want to know what things cost.

      5 years ago Log in to Reply
    7. ConnieT1D62

      None for diabetes education. Met via FaceTime with the regional Tandem pump trainer who is a CDE/CDCES for trouble shooting Q&A for the X2 CIQ. BTW CDEs are now called Certified Diabetes Care and Education Specialists (CDCES). In order to qualify, one must hold a current professional license in one of the following professions: as a RN, RD, MD, DO, Pharmacist, PT, OT, LCSW, PhD Psych, or MS in Exercise Physiology. Those that are certified have a wide range of professional experience from being a newly certified beginner on the diabetes educator spectrum to someone who has been doing diabetes care and education for dozens of years.

      5 years ago Log in to Reply
    8. Ernie Richmann

      Have not seen a diabetes educator personally but an educators does lead a support group I sometimes attend. I asked about it once snd was told that I would mot gain any new knowledge. I have a new endo and he wants me to meet with a diabetes educator so I will.

      5 years ago Log in to Reply
    9. Daniel Bestvater

      I answered N/A. I’m a pharmacist/CDE so I guess I meet with a CDE every day!!

      5 years ago Log in to Reply
    10. Carol Meares

      Met with CDE to discuss Control iQ

      5 years ago Log in to Reply
    11. connie ker

      I ask my questions to the diabetic NP I see twice a year. I can call their office any time I need help, so after 22 years with type 1, I handle issues as best I can on my own. You become your own Dr,, nurse, educator, physical therapist, counselor and dietician living with this disease. No paid time off vacation days for all the work either.

      5 years ago Log in to Reply
    12. Chip Brookes

      I haven’t met with a CDE in years other than a virtual hook up last Spring when I switched to a T:slim. Early on in my career I did meet with a CDE several times. Now I rely on my quarterly endo meetings

      5 years ago Log in to Reply
    13. MARIE PEELER

      We tried a couple of years ago but didn’t find it very helpful, except for one that did pump training. She had a child with diabetes, so she was very real and very helpful but the others seemed too academic, like all they knew came from books… and we all know, diabetes affects everyone differently. You can learn just so much from books, and then it’s ‘on-the-job’ training so to speak.

      5 years ago Log in to Reply
    14. Kristine Warmecke

      I haven’t had an appointment with my CDE in a couple years. I do call or message her a few times a year, though.

      5 years ago Log in to Reply
    15. Steven Gill

      I saw an educator initially 22 years ago, confirmed I understood counting carbs, reading nutritional labels, how to use a measuring cup (she sent me to a diabetic support group but they were to depressing: all the “I’m hungry,” ” I’m tired, ” ” No-one understands… ” Medtronic had me see an educator several times for the 760G closed loop system. Otherwise

      5 years ago Log in to Reply
    16. Sarah Grobe

      Newly diagnosed this year so it for sure has been more than 5 between the initial learning and pump training.

      5 years ago Log in to Reply
    17. Molly Jones

      I haven’t seen one for a while. Not since training for use of Tandem.

      5 years ago Log in to Reply

    How many times in 2020 did you have an appointment with a certified diabetes educator (CDE)? Cancel reply

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