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    • 6 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 1 hour, 7 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 1 hour, 7 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 16 hours, 7 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 16 hours, 8 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 16 hours, 8 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 21 hours, 55 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 21 hours, 55 minutes ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 22 hours, 55 minutes ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 23 hours, 6 minutes ago
      kristina blake likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 23 hours, 14 minutes ago
      Mike S likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 23 hours, 34 minutes ago
      Eve Rabbiner likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 23 hours, 37 minutes ago
      Marty likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 23 hours, 49 minutes ago
      John Barbuto likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 19 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 1 day, 19 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 19 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 20 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 20 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 21 hours ago
      Bruce Schnitzler likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 22 hours ago
      Steve Rumble likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I think that a functional cure is the most viable scenario as far as a "cure" is concerned. It seems like the most progress is being made with islet cell therapies.
    • 1 day, 22 hours ago
      Natalie Daley likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
    • 1 day, 22 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 22 hours ago
      Marty likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 22 hours ago
      Kathy Hanavan likes your comment at
      If islet cell transplantation is proven safe and effective, how likely would you be to consider it a treatment option?
      Very likely provided immunosuppressants aren't required. Also younger people should receive the treatment first.
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    How many times in 2020 did you have an appointment with a certified diabetes educator (CDE)?

    Home > LC Polls > How many times in 2020 did you have an appointment with a certified diabetes educator (CDE)?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Bob Durstenfeld

      I have not seen a CDE in more than a decade. One use to work in my Endo’s office, but not for a long time.

      5 years ago Log in to Reply
    2. DeAnn Johnson

      The last time I saw a CDE was right after diagnosis . I haven’t seen a CDE in almost 30 years

      5 years ago Log in to Reply
    3. Janis Senungetuk

      This year, four times. Two of the appointments were related to new pump training and downloading a pump management app. When I’ve had specific questions I’ve contacted her thru My Chart and not needed to make an appointment.

      5 years ago Log in to Reply
    4. Amanda Barras

      I never see a CDE. I only see an Endo 1x a year.

      5 years ago Log in to Reply
    5. Mick Martin

      I’ve met up with a CDE 4 times this year … 3 of those times were to do with a new Medtronic pump and CGM, the other occasion was a regular, scheduled appointment.

      5 years ago Log in to Reply
    6. Dave Barden

      Same here only see CDE when starting something new. This year it was the libre2 system which I still evaluating before committing to it. When I asked and pressed I was finally told that the sensors cost $200 each. That’s at least $1200 per 3mo supply. Yes I have insurance but I still want to know what things cost.

      5 years ago Log in to Reply
    7. ConnieT1D62

      None for diabetes education. Met via FaceTime with the regional Tandem pump trainer who is a CDE/CDCES for trouble shooting Q&A for the X2 CIQ. BTW CDEs are now called Certified Diabetes Care and Education Specialists (CDCES). In order to qualify, one must hold a current professional license in one of the following professions: as a RN, RD, MD, DO, Pharmacist, PT, OT, LCSW, PhD Psych, or MS in Exercise Physiology. Those that are certified have a wide range of professional experience from being a newly certified beginner on the diabetes educator spectrum to someone who has been doing diabetes care and education for dozens of years.

      5 years ago Log in to Reply
    8. Ernie Richmann

      Have not seen a diabetes educator personally but an educators does lead a support group I sometimes attend. I asked about it once snd was told that I would mot gain any new knowledge. I have a new endo and he wants me to meet with a diabetes educator so I will.

      5 years ago Log in to Reply
    9. Daniel Bestvater

      I answered N/A. I’m a pharmacist/CDE so I guess I meet with a CDE every day!!

      5 years ago Log in to Reply
    10. Carol Meares

      Met with CDE to discuss Control iQ

      5 years ago Log in to Reply
    11. connie ker

      I ask my questions to the diabetic NP I see twice a year. I can call their office any time I need help, so after 22 years with type 1, I handle issues as best I can on my own. You become your own Dr,, nurse, educator, physical therapist, counselor and dietician living with this disease. No paid time off vacation days for all the work either.

      5 years ago Log in to Reply
    12. Chip Brookes

      I haven’t met with a CDE in years other than a virtual hook up last Spring when I switched to a T:slim. Early on in my career I did meet with a CDE several times. Now I rely on my quarterly endo meetings

      5 years ago Log in to Reply
    13. MARIE PEELER

      We tried a couple of years ago but didn’t find it very helpful, except for one that did pump training. She had a child with diabetes, so she was very real and very helpful but the others seemed too academic, like all they knew came from books… and we all know, diabetes affects everyone differently. You can learn just so much from books, and then it’s ‘on-the-job’ training so to speak.

      5 years ago Log in to Reply
    14. Kristine Warmecke

      I haven’t had an appointment with my CDE in a couple years. I do call or message her a few times a year, though.

      5 years ago Log in to Reply
    15. Steven Gill

      I saw an educator initially 22 years ago, confirmed I understood counting carbs, reading nutritional labels, how to use a measuring cup (she sent me to a diabetic support group but they were to depressing: all the “I’m hungry,” ” I’m tired, ” ” No-one understands… ” Medtronic had me see an educator several times for the 760G closed loop system. Otherwise

      5 years ago Log in to Reply
    16. Sarah Grobe

      Newly diagnosed this year so it for sure has been more than 5 between the initial learning and pump training.

      5 years ago Log in to Reply
    17. Molly Jones

      I haven’t seen one for a while. Not since training for use of Tandem.

      5 years ago Log in to Reply

    How many times in 2020 did you have an appointment with a certified diabetes educator (CDE)? Cancel reply

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