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    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 12 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 19 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 13 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 14 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Has your insulin ever frozen? Tell us how you handled it in the comments!

    Home > LC Polls > Has your insulin ever frozen? Tell us how you handled it in the comments!
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    With COVID-19 rates at an all-time high across the country, are you or your loved ones with T1D doing any of the following for your holiday gatherings? Select all that apply.

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    How many times in 2020 did you have an appointment with a certified diabetes educator (CDE)?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    15 Comments

    1. Shannon Barnaby

      In a hotel room refrigerator. I threw it away.

      5 years ago Log in to Reply
    2. Lawrence Stearns

      Tried using it. Blood sugars went out of control. Threw out the remainder.

      5 years ago Log in to Reply
    3. connie ker

      Mail order pharmacies pack insulin in frozen plastic bags to keep it cold, but in winter time that is concerning, but it has never arrived frozen.

      5 years ago Log in to Reply
    4. James Dexter

      I was winter camping and the insulin softpac and 2 vials of insulin liquid froze solid during the night. In the morning I warmed them with body heat and subsequently used them with no ill effects and no apparent change in effectiveness.

      5 years ago Log in to Reply
    5. Eve Rabbiner

      Almost – from a motel in-room fridge. Now I use the fridge to freeze my own ice packs and keep the insulin in an insulated case.

      5 years ago Log in to Reply
    6. Mark Fuller

      I let it thaw back to room temperature. I used it going forward with no issues.

      5 years ago Log in to Reply
    7. carl adams

      The tube on my pump froze and snapped off once.

      5 years ago Log in to Reply
    8. Maureen Helinski

      My husband put a new bottle in the freezer instead of frige. I thawed it out and used it a while.

      5 years ago Log in to Reply
    9. Dennis Dacey

      On a skiing trip, left a imal derivative NPH insulin in luggage in vehicle. It frozen almost solid. Tucked it in armpit until thawed and didn’t have any ill effects.

      5 years ago Log in to Reply
    10. Megen Blackburn

      My insulin froze on a business trip after I placed it in the refrigerator in my hotel room. I was so worried that I ruined it that I went to CVS and paid out of pocket for a whole new bottle.

      5 years ago Log in to Reply
    11. Mara Pentlarge

      I was winter camping and never thought about the possibility of my insulin freezing. When it did, I freaked out, thought about hiking out by myself, then thought better of that idea. I spent the next 24 hours being scared and not eating much carbohydrate. Lots of frozen cheese, vegetable soup before they added pasta, etc.

      5 years ago Log in to Reply
    12. George Lovelace

      I used to Order my Apidra from a Pharmacy in Canada and I’m in Texas. They didn’t “Cold Pack” the shipments so I would try to order after they were coming out of their ‘frozen temps’ but before my temps were going into the 80’s. Not sure it was frozen but the Apidra was almost as solid as a jelly. They replaced it

      5 years ago Log in to Reply
    13. KarenM6

      Never had it freeze like an ice cube. But, I’ve had situations where the refrigerator (small hotel ones) were too cold and I had to replace the ruined vials. The first time it happened, I learned not to trust hotels’ small refrigerators and started testing them with a glass of water. If the water froze, then I was able to tell if the dial was set too high and either get a new frig or reset the dial. The second time it happened, I don’t remember how my “fix” failed… but it did and I had to get another vial. Then, I was in a situation for months where I couldn’t control the refrigerator temp and just hoped for 5 or so months that all would be well. I made it through, sooo… musta been ok or not bad enough to really kill the insulin. These days I have the cooling devices when I travel so that refrigerators aren’t as necessary. And, well, covid put a stop to traveling, too.

      5 years ago Log in to Reply
    14. Lizzi Skywalker

      I was about 10 or 11 when my family and I went on vacation to the wisconsin dells – The Great Wolf Lodge – when we got to the room that we were staying in, I unpacked my insulin and not knowing that the little box in the fridge up top was the freezer section. (Never stayed in a hotel or anything of that sort before) at lunch time time when my insulin was due I got it out of the fridge [freezer] my humalog was frozen. Almost like a slushie consistency. I freaked and stated crying. After I pulled myself together, I realized all I really could do was let it thaw out and hope that it still works. Fortunately it did still work! 🙂 Never put my insulin near the freezer part of the fridge EVER again.

      5 years ago Log in to Reply
    15. Leona Hanson

      We moved to Gunnison on the worst winter they had gotten in years and my insulin froze sitting on the table I ended up throwing it away and asking churches for help to get more insulin they were very nice they knew how cold it was and we lived in a fifth wheel not much money for alot of propane so not much heat so ended up putting the insulin in my clothes so it wouldn’t freeze again

      5 years ago Log in to Reply

    Has your insulin ever frozen? Tell us how you handled it in the comments! Cancel reply

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