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    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 12 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 19 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 13 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 14 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    How many times in 2020 did you have an appointment with a certified diabetes educator (CDE)?

    Home > LC Polls > How many times in 2020 did you have an appointment with a certified diabetes educator (CDE)?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Bob Durstenfeld

      I have not seen a CDE in more than a decade. One use to work in my Endo’s office, but not for a long time.

      5 years ago Log in to Reply
    2. DeAnn Johnson

      The last time I saw a CDE was right after diagnosis . I haven’t seen a CDE in almost 30 years

      5 years ago Log in to Reply
    3. Janis Senungetuk

      This year, four times. Two of the appointments were related to new pump training and downloading a pump management app. When I’ve had specific questions I’ve contacted her thru My Chart and not needed to make an appointment.

      5 years ago Log in to Reply
    4. Amanda Barras

      I never see a CDE. I only see an Endo 1x a year.

      5 years ago Log in to Reply
    5. Mick Martin

      I’ve met up with a CDE 4 times this year … 3 of those times were to do with a new Medtronic pump and CGM, the other occasion was a regular, scheduled appointment.

      5 years ago Log in to Reply
    6. Dave Barden

      Same here only see CDE when starting something new. This year it was the libre2 system which I still evaluating before committing to it. When I asked and pressed I was finally told that the sensors cost $200 each. That’s at least $1200 per 3mo supply. Yes I have insurance but I still want to know what things cost.

      5 years ago Log in to Reply
    7. ConnieT1D62

      None for diabetes education. Met via FaceTime with the regional Tandem pump trainer who is a CDE/CDCES for trouble shooting Q&A for the X2 CIQ. BTW CDEs are now called Certified Diabetes Care and Education Specialists (CDCES). In order to qualify, one must hold a current professional license in one of the following professions: as a RN, RD, MD, DO, Pharmacist, PT, OT, LCSW, PhD Psych, or MS in Exercise Physiology. Those that are certified have a wide range of professional experience from being a newly certified beginner on the diabetes educator spectrum to someone who has been doing diabetes care and education for dozens of years.

      5 years ago Log in to Reply
    8. Ernie Richmann

      Have not seen a diabetes educator personally but an educators does lead a support group I sometimes attend. I asked about it once snd was told that I would mot gain any new knowledge. I have a new endo and he wants me to meet with a diabetes educator so I will.

      5 years ago Log in to Reply
    9. Daniel Bestvater

      I answered N/A. I’m a pharmacist/CDE so I guess I meet with a CDE every day!!

      5 years ago Log in to Reply
    10. Carol Meares

      Met with CDE to discuss Control iQ

      5 years ago Log in to Reply
    11. connie ker

      I ask my questions to the diabetic NP I see twice a year. I can call their office any time I need help, so after 22 years with type 1, I handle issues as best I can on my own. You become your own Dr,, nurse, educator, physical therapist, counselor and dietician living with this disease. No paid time off vacation days for all the work either.

      5 years ago Log in to Reply
    12. Chip Brookes

      I haven’t met with a CDE in years other than a virtual hook up last Spring when I switched to a T:slim. Early on in my career I did meet with a CDE several times. Now I rely on my quarterly endo meetings

      5 years ago Log in to Reply
    13. MARIE PEELER

      We tried a couple of years ago but didn’t find it very helpful, except for one that did pump training. She had a child with diabetes, so she was very real and very helpful but the others seemed too academic, like all they knew came from books… and we all know, diabetes affects everyone differently. You can learn just so much from books, and then it’s ‘on-the-job’ training so to speak.

      5 years ago Log in to Reply
    14. Kristine Warmecke

      I haven’t had an appointment with my CDE in a couple years. I do call or message her a few times a year, though.

      5 years ago Log in to Reply
    15. Steven Gill

      I saw an educator initially 22 years ago, confirmed I understood counting carbs, reading nutritional labels, how to use a measuring cup (she sent me to a diabetic support group but they were to depressing: all the “I’m hungry,” ” I’m tired, ” ” No-one understands… ” Medtronic had me see an educator several times for the 760G closed loop system. Otherwise

      5 years ago Log in to Reply
    16. Sarah Grobe

      Newly diagnosed this year so it for sure has been more than 5 between the initial learning and pump training.

      5 years ago Log in to Reply
    17. Molly Jones

      I haven’t seen one for a while. Not since training for use of Tandem.

      5 years ago Log in to Reply

    How many times in 2020 did you have an appointment with a certified diabetes educator (CDE)? Cancel reply

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