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    • 3 hours, 2 minutes ago
      Jeremy Hanson likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      And sometimes I dream that I’ve run out of insulin and cannot get prescription refilled.
    • 4 hours, 55 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I providee an answer of low BG. But with that said, it is usually a false alarm (compression low from Dexcom sensor) With the stable bedtime BG and a TSlim X2 pump using CIQ and Sleep Mode, I consistently sleep between about 85 and 110 every night. The key to this is going to bed with a stable BG (85-110) and not having any IOB.
    • 4 hours, 59 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      While middle-of-the-nght alerts are frustrating and irritating, I'm no longer terrified of dying from an extreme low in the middle of the night, so technology is still a win for me!
    • 6 hours, 36 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 6 hours, 37 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 6 hours, 38 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 6 hours, 39 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 6 hours, 39 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 6 hours, 48 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 6 hours, 49 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 6 hours, 50 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 6 hours, 51 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 6 hours, 51 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 6 hours, 57 minutes ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Why isn't going to the bathroom not on this list?
    • 7 hours, 1 minute ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 7 hours, 16 minutes ago
      TEH likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 7 hours, 40 minutes ago
      Steven Gill likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My pump, "I need to BG! I need to BG!" Such a cry baby it is!
    • 8 hours, 33 minutes ago
      Robin Melen likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 9 hours, 20 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 9 hours, 22 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 9 hours, 47 minutes ago
      Anneyun likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 10 hours, 29 minutes ago
      Sue Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 11 hours ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 11 hours, 1 minute ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 11 hours, 22 minutes ago
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      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I stopped using those sites and paid more attention to rotation of available ones.
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    How many nights in the past week has T1D disturbed your sleep?

    Home > LC Polls > How many nights in the past week has T1D disturbed your sleep?
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    24 Comments

    1. Ahh Life

      So what else is new? Bells, arrows, screeches, whistles. I do love the Control-IQ, however, in which I am flatline from about 10:30 to 5:30. Pump is still fussy about signals, kinks, blockages, etc ¯_( ͡° ͜ʖ ͡°)_/¯ ¯_( ͡° ͜ʖ ͡°)_/¯

      2 years ago Log in to Reply
    2. HMW

      2 times due to pump alarms (Medtronic 670G): 1 for a lost sensor signal and 1 for a sensor calibration.

      2 years ago Log in to Reply
    3. Peter Richardson

      My dexcom reads super low every night before stopping to read. I think I have heard the term “pressure drop”. It alarms every night. If someone knows how to stop the alarms, please tell me.

      2 years ago Log in to Reply
    4. Rick Martin

      I agree – Control IQ does help flatten my overnight results; however, it sends me notices telling me I was high, or low 2 hours ago so those can come in the middle of the night, the cartridge is below a pre-determined amount, it cannot connect, etc. I wish there was a way to turn off those alerts when sleeping (unless it requires immediate action).

      2 years ago Log in to Reply
    5. Kathy Hanavan

      I agree with Rick and Ahh Life about CIQ. Awesome overnight control, but there are alarms that are not important for which I get woken up which is most annoying night after night. I recently took a pump break and could not help remarking several times a day how great it was to have no alarms.

      2 years ago Log in to Reply
    6. Sherolyn Newell

      I’d say 80% of the time I do not have alarms at night. Then I hit one of the periods when 4 to 5 hours after my last food of the day, I go high at night. I have no idea why this happens. Or why I don’t go low earlier in the evening if my insulin is outpacing my food. When it happens, it lasts for one to two weeks. Once I see the trend, I try to adjust for it.

      2 years ago Log in to Reply
    7. Thomas Hatton

      This is my biggest complaint for the 670G and now my 770G. If my SG IS CONSTANT but at 70 or 80 and the algorithm doesn’t call for basil pulse for over 2 hours, it sends out an alarm to do a blood test. This is a pain! This is unnecessary. Why do I need to be to be awakened for this? Its as if the algorithm doesn’t trust the sensor. I have looked for a way to extend the time or mute this type of alarm but have not been able to find a setting for that. One other frustration I have is more on my side. If I don’t to a blood test before I go to bed then the sensor times out I get an alarm to do a blood test. To fight this I set a alarm on my phone to do a blood test before I go to bed. There should be some overnight blood test warning.

      2 years ago Log in to Reply
    8. Mark Fuller

      I would agree that my Medtronic 670G alarm system regularly asks for a BG in the night. So I wake up and put in the current number showing because I am not going to get up and take a blood sample if all is going well. It is a nuisance.

      2 years ago Log in to Reply
    9. connie ker

      Before the age of being a senior, I could sleep through the night even with LADA. However, now that I am in my 70s, I have to get up for a trip to the ladies room. I scan my Freestyle Libre at that time too, sometimes eat some gumdrops, and hopefully go back to sleep. Giving up caffeine has helped a lot with sleep, so cut off caffeine by noon. Turning off the screens for awhile before bedtime also helps sleep. It is always hard to separate T1D with other factors because everything is connected inside the body, mind, and spirit.

      2 years ago Log in to Reply
    10. Robby Doyle

      I’m so tired of interrupted sleep that I am strongly considering moving away from the Tronic and using the tandem system along with decks calm. I’d love to hear from others as to their experience with tandem

      2 years ago Log in to Reply
    11. Patricia Dalrymple

      Bladder wakes me more than T1D. I do not have a sensor. Changed my mind after reading about TIR getting so good with Censor but now am back to NO if the alarms are going to make me lose sleep. I’ve never had a bad episode during sleep and only about 2 when awake in over 20 years. A1C is 5.9 pre

      2 years ago Log in to Reply
    12. Patricia Dalrymple

      Ugh! Pretty consistently. I get very hot when I go low on my sleep and it wakes me up. Now I’m not sure what I want to do.

      2 years ago Log in to Reply
    13. Thomas Brady

      At my recent visit with my endo, I told her I was fed up with the “Mickey Mouse” alerts from my Tandem Tslim2 with control IQ and ws thinking of taking a “pump-cation”. I get nonsense alarms that are of no use to be aside from waking me up. For example, if my b/s is rises as the result of a meal, and for which I have bolused for, I get an alert and woken up. Then I get another alert five minutes later saying that ControlIQ is adjusting my basil. If I go low, the pump/cgm wakes me up as it is supposed to. I treat the low, but out continues to wake me up as it takes time for the carbs to hit my interstitial fluids. I get continuously awakened until the pump/cgm catches up with reality. I am really fed-up with this cycle, its impact on my sleep cycle and my lifestyle. I have been told that in order to get approval from the FDA the alarms are needed without my ability to control them. My endo told me that she has many patients who are also suffering from “alarm fatigue” and advised me to change my thresholds to at least reduce the impact of the alarms. I see this as lessening the effectiveness of the pump/cgm. Previously. I had a DAD dog who was much more user friendly and could get the upcoming lows far sooner than the pump. Once I treated a low, I only had to give him the command that I was OK and he would then resume watching over me and let me rest. He was smarter and more user friendly than the pump/cgm.

      2 years ago Log in to Reply
    14. Lucia Maya

      I use the tslim and Dexcom and gave CIQ and find in “sleep mode” I rarely get woken up. Reading the comments about being woken up so often from his pump makes me wonder if he knows there are some that can be turned off…and I also keep mine on “vibrate”.

      2 years ago Log in to Reply
    15. Brenda Pronschinske

      Same here. Just about every night there is some type of alarm going off. My poor husband gets so frustrated from these alarms so I discovered if I sleep on my belly and tuck the pump under me I can quiet them and he doesn’t feel/hear the vibration so easily. He works construction which are long/hot days and needs his sleep. I wish I could somehow subdue the alarms. I also get the lost sensor alarms etc. Just frustrating and always hoping for improvements after 46 years of Type 1. We have made great big strides…hope they continue.

      2 years ago Log in to Reply
    16. Linda Murphy

      Last night, already to get snuggly into bed and it started in. I stood there running in place (holding my breasts up because I’d already taken off my bra) to get sugar to drop, not for the first time this week. And I created a nasty little chant to vent my frustration as I did so. And the little bugger kept screaming at me, so I bit it. Duh. Don’t recommend. Now I’m $200 for a Dexcom receiver. But it felt a little good at the time. I am pissed off with this and have been such a good sport for Too Long!!

      2 years ago Log in to Reply
    17. KarenM6

      I silenced all of the alarms except the required ones (low blood and sensor/transmitter expiration). I had a nice alarm just last night for a 33 BS. I suppose keeping one alarm worked in my favor! ;p

      2 years ago Log in to Reply
    18. Joanne Bohm

      I think some need to adjust alarms. I answered 7 days because my alarms and CGM are correct for me and usually I’m grateful for them. But if it’s not a BG issue it’s pain and discomfort from complications after T1D 52 yrs.

      2 years ago Log in to Reply
    19. Carol Meares

      I am working on Ciq trying to trick it lower than the 110 because I got better bg with basil iq. So it is a work in progress. I had a, for me, perfect flattish line last night fluctuating between 87 and 112. I hope I can repeat that. My alarms are set at 80 for low and 120 for high. #ocdt1d

      2 years ago Log in to Reply
    20. Derek West

      I invariably get woken around 4am because my pump wants me to enter a Blood Sugar reading. I just tell it what the CGM says it is and it is happy. I guess i should read the manual and find out why!

      2 years ago Log in to Reply
    21. Steven Gill

      I’m rarely woken at night but I FASTED Friday/Saturday (skip dinner, only rest fruit for glucose levels, than eat dinner Saturday) so I set my alarm for 2AM for safety. BTW lost 12 pounds in 2 weeks although I admittedly watched my diet closer and got called to work Saturday.

      2 years ago Log in to Reply
    22. Sasha Wooldridge

      It’s nice to know that I’m not the only one getting seriously irritated by the alarms, but also disheartening. I have a 670g now. I miss my Dexcom daily. The 670g is not as accurate and seems to be extremely sensitive if the site isn’t perfect. And particularly sensitive to compression. The pump alarms when I near the low threshold every 5 minutes until I’m nowhere near the low threshold. So I could be holding steady at 5 points above and I’d get notified every. 5. minutes. all. night. long. I’ve taken to just turning it off at night when I realize it’s going to be one of THOSE nights. I just need some sleep!

      2 years ago Log in to Reply
    23. Molly Jones

      I have learned to sleep with my pump under a nearby pillow. This doesn’t always work. I often need to stay up a bit late in order to prevent alarms. Tandem control IQ and Dexcom during my sleep mode with vibration still alert me many times during the night for numerous reasons that can’t/don’t need to be dealt with immediately.

      2 years ago Log in to Reply
    24. Susanne Ritchie

      My blood sugars dropped quickly this morning while I was sleeping. I have become very good at snoozing my pump alarm, unfortunately, and by the time I managed to wake myself up to eat some honey, I was at 2.2

      2 years ago Log in to Reply

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