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    • 3 hours, 34 minutes ago
      AnitaS likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      Only "illness" that makes it really difficult to control my blood sugar is getting steroid injections into my cervical spine or fingers. I leave my basal rate on my pump at 250% and need much higher bolus doses and many "extra" doses if my blood sugar remains really high. I tell the MD's that it turns my insulin into tap water and try to avoid it, experience with having gotten these injections over the past few years has helped, but having blood sugars of 400-500 despite much higher basal and bolus dosing is so frustrating!
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
    • 3 hours, 35 minutes ago
      AnitaS has commented in the same post you commented in :
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
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      Randell Cole has commented in the same post you commented in :
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    How long did T1D still feel new to you after your diagnosis?

    Home > LC Polls > How long did T1D still feel new to you after your diagnosis?
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    39 Comments

    1. Janis Senungetuk

      Guess I really don’t know how to answer your question. I’ve lived with T1 for soon to be 66 years.When I was dx at 8, I didn’t know anyone besides my grandfather who had diabetes. In the 1950’s personal information was not openly discussed. There were many changes to my life right after diagnosis, but throughout my life there have continually been “new” things that have required me to continue learning and adapting. Neither life or diabetes is static.

      2 years ago Log in to Reply
    2. Ahh Life

      70 years. Something new or different each year. Smart pens? Gastroparesis? Some unknow-yet-to-be-identified comorbidity? Who knew one condition, T1D, could have such a wealth of opportunities? šŸ™ˆ šŸ™ˆ šŸ™ˆ

      2 years ago Log in to Reply
    3. Stacey Rose

      Difficult for me to answer this question too. I have had T1D for 43 years, dxd at age 10. My maternal aunt and uncle both had T1D dxd in their 20s, so it wasn’t a completely foreign concept to my family. I have now have 3 kids of my own and one of them has T1D as well – dxd at age 5.

      2 years ago Log in to Reply
    4. Nevin Bowman

      I answered other. Most of the time I feel normal, but there are always those days/events that remind me I am a T1 diabetic, and I don’t ever see that changing in my life time.

      2 years ago Log in to Reply
    5. MARIE PEELER

      My husband came to T1D after his pancreas gave out two and half years ago (in his 60’s). When I asked him this question, he said immediately said “About a year and a half” and noted that for the first year, his prevailing thought was “Ok, I can wait this out” like it was going to go away. Now at two and a half years, he gets that it is just a part of his daily life and always will be. He’s grateful that if he has to have T1, it’s at this point in time when the tools and technology exists to better manage it.

      2 years ago Log in to Reply
    6. HMW

      I was diagnosed 32 years ago at age 7. I said it took less than 1 year because i had to tell my friends/classmates and teachers about it and at first some were nervous about it being contagious.. After a while they didn’t treat me any differently. My parents were very supportive and I had a routine with fingersticks and insulin twice a day and eating every 2 to 4 hours. I just got to eat snacks or candy in class sometimes.

      2 years ago Log in to Reply
    7. connie ker

      jUST WHEN YOU THINK YOU HAVE THIS T1D FIGURED OUT, IT CAN CHANGE BECAUSE YOUR BODY AND HORMONES CHANGE. NOW THAT I AM A SENIOR, I AM IN THE SAME ROUTINE, BUT THE NUMBERS ARE NEW EVERY MORNING, AND YOU MAKE ADJUSTMENTS EACH AND EVERY NEW TEST OR NOW SCAN THE SENSOR.

      2 years ago Log in to Reply
    8. Rose Lentzke

      Since I was 4 when I was diagnosed, it just became my new way of life. I do remember it was not fun!

      2 years ago Log in to Reply
    9. Ernie Richmann

      I am constantly learning. Something new on a regular basis. I would say every morning is a new day.

      2 years ago Log in to Reply
    10. Richard Vaughn

      I was diagnosed in 1945, when I was 6 years old. I cannot remember how long it seemed new to me.

      2 years ago Log in to Reply
    11. Ken Raiche

      Fortunately for me my older brother had had T1D for 6 years before I was diagnosed with the disease. So I was brought up in a diabetes environment which made the transition that much easier for me.

      2 years ago Log in to Reply
    12. Marie Seymour-Green

      I selected other because I was diagnosed 51 years ago. It pretty quickly became normal the new for my parents and me, but I was always “othered” in school – especially grade school. Really – it only served to piss me off, but it also caused some kids to try to bully or tease me because they thought I was getting special treatment. They soon learned that I would turn it around on them either verbally or physically – if necessary. Ahhh, the 1970s when no holds were barred on the playground – at least where I grew up. It was eat or be eaten on the east side of Flint, Michigan. lol.

      2 years ago Log in to Reply
    13. Denise Miller-Dolan

      I had to choose ā€œotherā€ as I was diagnosed at 2 yrs, so I have no memory of life before or after diagnosis

      2 years ago Log in to Reply
    14. David Smith

      I was diagnosed in 1994. I don’t remember how long it felt “new”, but I do remember a brief period of thinking I could wean myself from dependence on insulin through diet and exercise. After a couple of months, once it was apparent that wasn’t going to happen, I was able to accept it, despite the fact that with T1D I had to abandon a seagoing career. Oddly enough, I never felt bitter about that.

      2 years ago Log in to Reply
    15. George Lovelace

      57 years ago, though I was 15 at the time of Dx, my father was a LADA T1 so I grew up watching him inject every day. I was brother 4 of 5 and I drew the D card but each day is different

      2 years ago Log in to Reply
    16. William Bennett

      Well, let’s see. I’m sitting down right now to change infusion sets while I think. šŸ¤” 2021 – 1983 = 38 years. So yeah, that’s how long it still feels new to me.

      2 years ago Log in to Reply
    17. John Henninger

      Well, such an odd question. On my checkin sheet at the doctors appointment it stated “Diabetic for 40 years.” I always find it funny to read. But in answer to your question it was never “new.” It was a “Whamo” and still Whams me everyday as I deal with management of T1D. Must be doing something right after 40 years. But “New” is not a word I would use.

      2 years ago Log in to Reply
    18. Tod Herman

      I find this to be a strange question. “New” is not a feeling that I ever had after being diagnosed with it in 1980. Rather, it had been a drastic change in my life as a senior in high school. From that day forward I have just had to adapt.

      2 years ago Log in to Reply
    19. ConnieT1D62

      It was so long ago that I don’t remember. I was 8 years old. I suppose it took a few months to get used to the new way of being and living everyday life differently. My whole extended family along with social acquaintances and school friends had to adapt and accept that Connie had “juvenile diabetes” so it was a learning experience for all of us. It didn’t take very long for it to become a “new normal” and life went on as before.

      2 years ago Log in to Reply
    20. Conniekaycox

      Pancreas failed at 49 for me. Less then a year ago. Most definitely not accustomed to living this way yet. Fear i never will be.

      2 years ago Log in to Reply
    21. Jeanne McMillan-Olson

      I don’t remember as I was 9 years old and it was 65 years ago. It is a strange question. I became used to having it and taking care of myself, but it took many years as decent blood glucose testing didn’t become standard for many years. I eally appreciate cgm and pump technology probably more than most people. I became an RD and certified diabetes educator in order to know as much as I could as most doctors don’t have the training they need. I participate in research when possible at the UW in Seattle.

      2 years ago Log in to Reply
    22. Carol Meares

      ā€œNewā€ā€oldā€ ā€œalienā€ I acquired diabetes as an adult. I feel like some alien entered my body. I robotically do the actions. It all feels new, old, alien. Too many years. A different day, I might have given a different answer:)

      2 years ago Log in to Reply
    23. Lynn Green

      I don’t remember. Its too long from diagnosis at age 15.

      2 years ago Log in to Reply
    24. Kristine Warmecke

      I was diagnosed at 11 years, so 39 years now, but I had been living with it, via my younger brother, for 9 years already.

      2 years ago Log in to Reply
    25. Germaine Sarda

      I was 8 years old and fell into a diabetic coma before I was diagnosed. I only remember feeling so much better after getting insulin. Decades later I still wonder what it would feel like to be diabetes free.

      2 years ago Log in to Reply
    26. Patricia Dalrymple

      I wasn’t typed correctly for a couple of years. Was type 2 until they figured out the drugs weren’t working. Then it took a few more years before I felt I was ready for a pump. Since the pump in 2007, I feel pretty experienced and as comfortable as someone can with a mechanical device attached to their body. But there is always something to learn.

      2 years ago Log in to Reply
    27. Abigail Elias

      I was basically on my own to manage my T1D after the month or so of daily morning calls to my pediatrician that followed my discharge from my initial hospital stay. So eating and injection routines were set and quickly became old. I don’t consider daily and hourly adjustments, or all the changes in technologies since diagnosis as making my T1D new; just different and usually better tools for the same old, same old routines.

      2 years ago Log in to Reply
    28. Becky Hertz

      Probably only about a week. It got incorporated into my daily routine pretty quickly. With no technology when I was diagnosed, there wasn’t much to get used to.

      2 years ago Log in to Reply
    29. Molly Jones

      My body, it’s conditions and T1D still feel new to me in some aspects constantly. (Unless in an alternate reality, my body came with a user manual or spoke to me about the problems occurring and the actual cause.) My mechanical memory of using the devices is ingrained, but problems arise so often with me trying to understand why my BG varies independent of stress I am unaware of, autoimmune inheritance, how conditions I have are related if at all, what causes my insulin sensitivity to change, and the list goes on.

      2 years ago Log in to Reply
    30. Sarah Grobe

      I am 7 months in and while it feels new because I am still experimenting and learning, I feel well managed. I got a CGM within a month and my pump the soonest I could which was 6 months. The technology has been great and I don’t feel it to be a huge burden.

      2 years ago Log in to Reply
    31. Donald Cragun

      Having been diagnosed more than more than 50 years ago, I don’t remember when it stopped feeling new.

      2 years ago Log in to Reply
    32. joan Fray

      Good God, it was so long ago I have no memory of it. 1962.

      2 years ago Log in to Reply
    33. Melinda Lipe

      I remember everything changing so fast, at least a year. Frequent hospitalizations from lows, I was only 9 so it took a while to recognize them early enough to treat.

      2 years ago Log in to Reply
    34. Lorri McLuckie

      I don’t think that as a 10 year old, 55 years ago that I could process those kinds of feelings. It was all so overwhelming and scary, but as to how long it felt new, I really don’t know.

      2 years ago Log in to Reply
    35. Julie Akawie

      I was three years old at the time, and my first memories were in the hospital after diagnosis. I wasn’t old enough to process feelings of “new” vs. “familiar.”

      2 years ago Log in to Reply
    36. Megan L

      I was a young three year old. I don’t remember life without it.

      2 years ago Log in to Reply
    37. Britni Steingard

      Other because I was 6 years old and I don’t remember

      2 years ago Log in to Reply
    38. Sue Herflicker

      Diabetes has never felt new to me. My brother was diagnosed at 4 years old, he is 55 now….(I was 9 at the time) I raised 2 sons with T1d so when I was diagnosed 3 years ago it just felt like another day!

      2 years ago Log in to Reply
    39. Cheryl Seibert

      I was diagnosed at age 6 in 1966 just before Christmas. I only remember it feeling “this is new” during my hospitalization. I never minded the shots or the urine tests much even with site reactions (hives, itching, swelling) with the Beef insulin. Mother’s motto was “Hooray! You don’t have leukemia! It happened…. life goes on. This is treatable.”. I live by that motto.

      2 years ago Log in to Reply

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