Subscribe Now

[hb-subscribe]

Trending News

T1D Exchange T1D Exchange T1D Exchange
  • Activity
    • 1 hour, 17 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 11 hours, 59 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 13 hours, 26 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 13 hours, 26 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 13 hours, 26 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 15 hours, 39 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 39 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 15 hours, 40 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 16 hours, 22 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 17 hours, 45 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 43 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 17 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 19 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    Clear All
Pages
    • T1D Exchange T1D Exchange T1D Exchange
    • Articles
    • Community
      • About
      • Insights
      • T1D Screening
        • T1D Screening How-To
        • T1D Screening Results
        • T1D Screening Resources
      • Donate
      • Join the Community
    • Quality Improvement
      • About
      • Collaborative
        • Leadership
        • Committees
      • Centers
      • Meet the Experts
      • Learning Sessions
      • Resources
        • Change Packages
        • Sick Day Guide
        • FOH Screener
      • Portal
      • Health Equity
        • Heal Advisors
    • Registry
      • About
      • Recruit for the Registry
    • Research
      • About
      • Publications
      • COVID-19 Research
      • Our Initiatives
    • Partnerships
      • About
      • Previous Work
      • Academic Partnerships
      • Industry Partnerships
    • About
      • Team
      • Board of Directors
      • Culture & Careers
      • Annual Report
    • Join / Login
    • Search
    • Donate

    How did you schedule your next appointment with your main T1D health care provider?

    Home > LC Polls > How did you schedule your next appointment with your main T1D health care provider?
    Previous

    Do you keep a written or digital log of past injection/pump sites on your body to ensure regular site rotation?

    Next

    How much did you spend out-of-pocket on all of your diabetes medications and supplies between October through December 2021?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

    Related Stories

    Advocacy

    Blue Circle Health: A Free Virtual Program Expanding Support for Adults Living with Type 1 Diabetes 

    Michael Howerton, 4 days ago 4 min read  
    News

    Thyroid Eye Disease (TED): What You Need to Know 

    Jewels Doskicz, 6 days ago 4 min read  
    News

    Immunosuppressants in T1D Research: Expert Opinions from Diabetes Pharmacist Diana Isaacs 

    Jewels Doskicz, 1 week ago 5 min read  
    2025 Learning Session

    The 2025 T1DX-QI Learning Session: Driving Better Diabetes Care 

    Sarah Howard, 3 weeks ago 7 min read  
    Lifestyle

    Barriers to Care in Aging: Voices from the T1D Community 

    Jewels Doskicz, 3 weeks ago 7 min read  
    Lifestyle

    When T1D Becomes a Calling: Stories From our Team 

    Jewels Doskicz, 4 weeks ago 11 min read  

    26 Comments

    1. LizB

      I scheduled it at the end of my previous appointment.

      4 years ago Log in to Reply
    2. Cindy DeLano

      At a virtual visit

      4 years ago Log in to Reply
    3. AnitaS

      I usually schedule right at the clinic, but since I did a phone appointment this last time (this was my first visit not done in-office) , I made my next appointment over the phone

      4 years ago Log in to Reply
    4. Barbara Bubar

      Arranged at the end of the current appointment.

      4 years ago Log in to Reply
    5. Lisa Moir

      It’s always scheduled as I leave my current appointment.

      2
      4 years ago Log in to Reply
    6. Jane Cerullo

      Set next appointment at checkout. Also for in office labs

      4 years ago Log in to Reply
    7. Becky Cain

      At the end of my appointment yesterday.

      4 years ago Log in to Reply
    8. Mick Martin

      Snail mail, though I am informed that a new appointment will be made for me at the current appointment and will be mailed out to me.

      4 years ago Log in to Reply
    9. Gerald Oefelein

      I schedule my next appointment at the conclusion of each visit.

      1
      4 years ago Log in to Reply
      1. RegMunro

        So do I!

        4 years ago Log in to Reply
    10. ELYSSE HELLER

      Well, all of my medical appointments have been cancelled/rescheduled due to the Covid surge.

      4 years ago Log in to Reply
    11. Anthony Angel

      I always schedule at the time of the current visit. My appointment for this month was made about 6 months ago.

      1
      4 years ago Log in to Reply
    12. Bonatay

      I use to schedule my next appt at the time of an in-office visit. Now with telemedicine appts, after my first visit, someone called me afterward to schedule my next visit. Since then I have had to call to schedule an appt. No one calls me so I have fallen behind in my visits last year.

      4 years ago Log in to Reply
    13. cynthia jaworski

      I make a phone call when it is time for me to make an appointment. 6 month time frame, unless I feel I need it sooner.

      4 years ago Log in to Reply
    14. Tina Roberts

      Through the My Chart app.

      4 years ago Log in to Reply
    15. Mig Vascos

      I scheduled for in person since for the last 2 years all I’ve had are tele health appointments, but I’m not sure is going to happen or it’s going to be changed again. It’s not the same.

      4 years ago Log in to Reply
    16. Beckett Nelson

      My next appointment is in person, which will be the first in person visit since COVID started…assuming that’s not changed with numbers going up

      4 years ago Log in to Reply
    17. Kathryn Keller

      I scheduled an appointment through my chart app. I should have scheduled a long time ago. Made appointment in December and can’t get in till May….thankfully, I don’t feel like there is an urgent need to see the endo

      4 years ago Log in to Reply
    18. Chrisanda

      My NP always schedules the next appointment and lab work with me at the conclusion of my current appointment. My endo likes to see me and do lab work 3-4 times a year. They’ve had in-person visits since last year.

      4 years ago Log in to Reply
    19. Patricia Dalrymple

      Scheduled all in person, even through pandemic, but I had to cancel. My husband got COVID through a volunteer job, and I have to wait until he tests negative, then I can test (because it doesn’t make sense any other way). I can meet virtually but without labs, what’s the point? And I won’t go to the lab possibly positive. Then have to find a test site and wait about 5 days for results.

      4 years ago Log in to Reply
    20. Anthony Harder

      I typically schedule my next appointment at the conclusion of my current appointment. However, I have no issue changing my appointment or even scheduling an appointment via online patient portal.

      4 years ago Log in to Reply
    21. Antsy

      I try to schedule my next visit while waiting to be called for that day’s visit. Parking is REALLY expensive there, and when my appt is over, I want to get out of the parking garage ASAP, not get back in line to schedule another one. I avoid making visits over the phone as the wait to talk to a live person is lengthy. Sadly, this endocrinology dept prohibits patients from making appts online.

      4 years ago Log in to Reply
    22. mbulzomi@optonline.net

      I’m a Maxicare original program (77 Years Old). After my appointment my ENDO. automatically reschedules because of Medicare’s three-month requirements. Easy a simple.

      4 years ago Log in to Reply
    23. Brad Larson

      Switched from Kaiser to Blue Shield. Found a GP, but their medical group (LL) is not taking anymore endocrinology appointments. I must look elsewhere. The GP is presently writing script for CGM and insulin, but is not familiar with the products

      4 years ago Log in to Reply
    24. Leona Hanson

      I see the doctor 2 times a year now and according to the insurance have to have 2 in person visits a year the rest can be on the portal

      4 years ago Log in to Reply
    25. Patricia H

      My provider automatically has me scheduled following our visit; every 3 months.

      4 years ago Log in to Reply

    How did you schedule your next appointment with your main T1D health care provider? Cancel reply

    You must be logged in to post a comment.




    101 Federal Street, Suite 440
    Boston, MA 02110
    Phone: 617-892-6100
    Email: admin@t1dexchange.org

    Privacy Policy

    Terms of Use

    Follow Us

    • facebook
    • twitter
    • linkedin
    • instagram

    © 2024 T1D Exchange.
    All Rights Reserved.

    © 2023 T1D Exchange. All Rights Reserved.
    • Login
    • Register

    Forgot Password

    Registration confirmation will be emailed to you.

    Skip Next Finish

    Account successfully created.

    Please check your inbox and verify your email in the next 24 hours.

    Your Account Type

    Please select all that apply.

    I have type 1 diabetes

    I'm a parent/guardian of a person with type 1 diabetes

    I'm interested in the diabetes community or industry

    Select Topics

    We will customize your stories feed based on what you select here.

    [userselectcat]

    We're preparing your personalized page.

    This will only take a second...

    Search and filter

    [searchandfilter slug="sort-filter-post"]