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    • 4 hours, 49 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 4 hours, 55 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 5 hours, 1 minute ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 1 day, 23 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 23 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 23 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 23 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 1 hour ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 5 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 6 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 7 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 7 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 8 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 8 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 8 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 8 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 8 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 8 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 2 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 2 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 4 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 5 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 5 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    How did you obtain your current ketone strips?

    Home > LC Polls > How did you obtain your current ketone strips?
    Previous

    In addition to T1D, how many other autoimmune diseases do you have?

    Next

    Do you have any programmed diabetes-related “reminders” on your phone or other technology? For example, a reminder to take your long-acting insulin every night at 10 p.m., or a reminder to bolus every day at 1 p.m.?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    17 Comments

    1. Lawrence S.

      I’ve always gotten ketone strips through a prescription. I didn’t know they were sold over the counter.

      3 years ago Log in to Reply
      1. Lori Lehnen

        Opposite here – I’ve always purchased OTC. Didn’t know you could get them through a prescription. Hmm-I’ll have to check if it’s covered by insurance.

        3 years ago Log in to Reply
    2. cynthia jaworski

      never had ketone strips.

      1
      3 years ago Log in to Reply
    3. Jane Cerullo

      Bought OTC but have never used. Don’t go really high often and if I do I bring down quickly

      3 years ago Log in to Reply
    4. KIMBERELY SMITH

      What is ketoes strips

      3 years ago Log in to Reply
      1. Annie Wall

        If your blood sugar sky rockets up, you test for ketones in your urine.
        A ketone test can warn you of a serious diabetes complication called diabetic ketoacidosis, or DKA. An elevated level of this substance in your blood can mean you have very high blood sugar. Too many ketones can trigger DKA, which is a medical emergency.

        3 years ago Log in to Reply
    5. MT

      They expire before I ever needed them and are expensive with insurance so I haven’t purchased them in decades. T1D for 49 years and never had DKA.

      3 years ago Log in to Reply
      1. Bea Anderson

        I’ve never had them recommended by Endo. Never used. I treat highs and lows quickly. What would you do differently? Never hospitalized.

        3 years ago Log in to Reply
    6. Beckett Nelson

      Blood ketone strips through prescription, urine ketostix over the counter

      3 years ago Log in to Reply
    7. Natalie Daley

      My doctor, the head of endocrinology at a major teaching hospital has never prescribed or recommended ketone strips.

      3 years ago Log in to Reply
    8. Mark Schweim

      I had an illness about a decade ago that I bought some strips to test for ketones. They weren’t expensive then and I ended up only using 2 strips from the bottle that contained, if I remember rignt 25 strips.
      Since I didn’t have ketones at the time, whatever it was I spent for those strips was nothing to me but wasted money, but I bought them OTC, then at next appointment, my doctor said if I’d have contacted him, he had a full shelf of ketone strips not being used so he’d have been happy to just give me a bottle of ketone test strips, or write the prescription.
      My doctor said the ketone test strips rarely get used, but were covered by the insurance I had at the time.

      3 years ago Log in to Reply
    9. Joan Benedetto

      We use a blood ketone meter. The strips are covered by insurance.

      3 years ago Log in to Reply
    10. Molly Jones

      I don’t remember if I bought them OTC or with a prescription. It’s been a while, and I don’t know if they are still useable.

      3 years ago Log in to Reply
    11. Becky Hertz

      Normally I wouldn’t have them, but was on Jardiance for about a year. My endo recently sent in a new prescription but I don’t really need them anymore.

      3 years ago Log in to Reply
    12. ConnieT1D62

      OTC purchase, last supply was over 20 years ago and never used them back then. Quite frankly, I don’t see a needful use for them now at this stage in my life. T1D for over 61 years.

      3 years ago Log in to Reply
    13. Jeff Balbirnie

      Acquired-purchased during the “Civil War” (c. 1863) as I recall?! 8~D

      3 years ago Log in to Reply
    14. Heidi Kay Williams

      I wish they’d package ketone strips in packs of 10.

      3 years ago Log in to Reply

    How did you obtain your current ketone strips? Cancel reply

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