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    • 26 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 26 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 1 hour, 9 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 1 hour, 31 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 1 hour, 55 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 1 hour, 55 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 1 hour, 55 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 2 hours, 10 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 3 hours, 11 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 3 hours, 12 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 18 hours, 12 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 18 hours, 12 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 18 hours, 13 minutes ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 1 hour ago
      Marthaeg likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 1 hour ago
      kristina blake likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 1 hour ago
      Mike S likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 1 hour ago
      Eve Rabbiner likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 1 hour ago
      Marty likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 1 hour ago
      John Barbuto likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
    • 1 day, 21 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      not for those of moderate income.
    • 1 day, 21 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I am hopeful- it may not be in my lifetime, but they have already made great strides in the research. The autoimmune response and need for immunosuppressants is still a pretty big sticking point.
    • 1 day, 21 hours ago
      Kristi Warmecke likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      But probably not in my lifetime.
    • 1 day, 22 hours ago
      dholl62@gmail.com likes your comment at
      How likely do you think islet cell therapies are to become a viable long-term treatment for T1D?
      I don't see how a cure will be possible without islet cells as they are what produce insulin. Using immunosuppressants or not is what will determine what the first "cure" will be like. If safe immunosuppresants are used, then it is actually a "functional cure". If they can infuse islet cells without needing immunosuppressants nor other meds, then I would call it a "cure".
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    How concerned are you right now about your ability to afford your next order of T1D supplies (insulin, pump/CGM equipment, etc.)?

    Home > LC Polls > How concerned are you right now about your ability to afford your next order of T1D supplies (insulin, pump/CGM equipment, etc.)?
    Previous

    If you wear a CGM, how do you get your supplies?

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    If you have a certified diabetes educator, have they ever informed you about research studies for which you might be eligible?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    16 Comments

    1. Janice B

      Not concerned at this time as I am still working. I am very concerned once I am retired and no longer working.

      5 years ago Log in to Reply
    2. Bonnie Lundblom

      I said “Other” since Medicare Part B along with my Medicare Supplemental insurance cover my insulin, pump and Dexcom CGM supplies. Hoping the increases the Medicare Supplemental plan seems to charge each year stay reasonable and affordable.

      5 years ago Log in to Reply
    3. Sherolyn Newell

      Also still working.

      5 years ago Log in to Reply
    4. Annie Wall

      Not concerned about insulin costs personally because I found a Medicare Part D plan where I pay no copays for insulin or any diabetic supplies. I am concerned for others who have far more out of pocket costs for this essential, lifesaving drug. Shame on this country for allowing that.

      5 years ago Log in to Reply
    5. Gene Maggard

      My Medicare Advantage plan pays everything except for insulin which is still a little high. As long as the Congress doesn’t do anything to change Medicare (for the worse), I’ll be fine.

      5 years ago Log in to Reply
    6. Grey Gray

      Thanks for reminding me to order supplies

      5 years ago Log in to Reply
    7. Thomas Hatton

      I just ordered infusion sets, resivors, and Sensors from minimed and they came within a week, about their usual time.

      5 years ago Log in to Reply
    8. Tina Roberts

      The sensors are a killer.

      5 years ago Log in to Reply
    9. Phyllis Donahue

      Very concerned I stopped using my cgm it was and is too expensive. My insurance does not pay for them.

      5 years ago Log in to Reply
    10. Becky Hertz

      Thankfully I can still afford to pay, however, it does limit other expenses and experiences. Insulin costs are what’s out of control for me. I wish all medicine and equipment for ALL with diabetes was much more affordable.

      5 years ago Log in to Reply
    11. Ahh Life

      The comment by Tina Roberts says it best, “The sensors are a killer.” Both in terms of medical advice (you can’t live without them) and in terms of expense (you can’t afford them without excellent insurance). Doh! (ノ ͡❛ ⏥ ͡❛)ノ (ノ ͡❛ ⏥ ͡❛)ノ (ノ ͡❛ ⏥ ͡❛)ノ

      5 years ago Log in to Reply
    12. Patricia Maddix

      Right now my Medicare and Medicare supplement pays for everything but I am using NovoLog insulin which is covered under part B as it is used in an insulin pump. However I am hoping to try one of the new ultra rapid acting insulin’s and don’t know if Medicare will cover this.

      5 years ago Log in to Reply
    13. Mick Martin

      Not at all concerned, but this is because I live in the UK where ALL of my diabetes supplies are paid for by our NHS (National Health Service). The NHS is financed by direct taxation of all working people that earn over a prescribed amount.

      5 years ago Log in to Reply
    14. Molly Jones

      The insurance with my husband is very good and his job is stable at the this time. I do not pay for diabetic supplies: Dexcom, tandem, insulin. I do not look forward to retirement.

      5 years ago Log in to Reply
    15. Pam Butler

      Getting my supplies has been one of the largest stressor of my life! I can’t afford them often. I was off my pump for several months but on increased prednisone dose for my Lupus, therefore my BS were out of control. I’m a former RN. Now disabled on Medicare that doesn’t cover it all. I don’t qualify for Medicaid because I make too much on SSDI… because I worked throughout my life. A whopping $1262 a month to live on. Medicaid will kick in and help after I meet Spenddown of spending around $2500 every 6 months on medical out if pocket. This is so broken and wrong. My life centers around balancing 3 autoimmune diseases with virtually no money after normal living expenses. I want to fix this broken system. Is there anyone working on this I can join?

      5 years ago Log in to Reply
    16. ConnieT1D62

      With the Medicare Advantage plan I am on it actually got easier and more affordable once I turned 65.

      5 years ago Log in to Reply

    How concerned are you right now about your ability to afford your next order of T1D supplies (insulin, pump/CGM equipment, etc.)? Cancel reply

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