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    • 1 hour, 14 minutes ago
      Beckett Nelson likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 2 hours, 39 minutes ago
      John Barbuto likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      I have been using a insulin smart pen for the last 2 years; I find that it meets my current needs to ensure good management and results
    • 3 hours, 22 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 3 hours, 23 minutes ago
      Lawrence S. likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      My first reaction was Very Satisfied but there is always room for improvement. I’d like a pump design that wasn’t meant to be worn on a belt just for men. To wear a dress, I have to only get those with pockets (and on both sides because opposite sides cause the CGM to lose contact) and put a button whole in each. The clip shows horribly on blouses worn out. I’ve tried the leg attachments and they never stay secure. I’m not big enough to wear it in my bra. All minor inconveniences. I’d like one that doesn’t keep alarming 20 minutes after I’ve eaten, although I get it that it is there to save my life. Again minor. Ask about CGMs (probably tomorrow’s question): lately I’ve had trouble removing the sensor from my arm without actually ripping off a strip of skin or very bad bruising. I’ve read about using baby oil for removal. That does help. I’m a rip it off fast person, but that didn’t work so well.
    • 3 hours, 56 minutes ago
      Gerald Oefelein likes your comment at
      How satisfied are you with your current insulin pump brand/model?
      Somewhat satisfied with TSlimX2. Not because of pump shortcomings, but because of the sheer insanity of trying to get routine supplies through the American health care system. My current situation, to wit: "I am experiencing extreme frustration with Medicare that, 1) has an inoperable website, and 2) has an inoperable AI phone answering service. Consequently, I can no longer acquire needed supplies to operate the tSlimX2, particularly the T:Lock TruSteel 8mm 32.” This situation has persisted for 2 months. 😬
    • 15 hours, 46 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 15 hours, 46 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 17 hours, 1 minute ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 20 hours, 34 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 20 hours, 35 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 23 hours, 59 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 23 hours, 59 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 23 hours, 59 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 1 day ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 1 day ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 1 day ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 1 day, 1 hour ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      T1D & T2D are meaningless acronyms for most, nearly all, nondiabetics. Juvenile diabetes vs diabetes is the closest known pairing and that's still few.
    • 1 day, 4 hours ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 4 hours ago
      Mike S likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 4 hours ago
      Lauren T likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 4 hours ago
      Meerkat likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
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    How concerned are you right now about your ability to afford your next order of T1D supplies (insulin, pump/CGM equipment, etc.)?

    Home > LC Polls > How concerned are you right now about your ability to afford your next order of T1D supplies (insulin, pump/CGM equipment, etc.)?
    Previous

    If you wear a CGM, how do you get your supplies?

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    If you have a certified diabetes educator, have they ever informed you about research studies for which you might be eligible?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    16 Comments

    1. Janice B

      Not concerned at this time as I am still working. I am very concerned once I am retired and no longer working.

      5 years ago Log in to Reply
    2. Bonnie Lundblom

      I said “Other” since Medicare Part B along with my Medicare Supplemental insurance cover my insulin, pump and Dexcom CGM supplies. Hoping the increases the Medicare Supplemental plan seems to charge each year stay reasonable and affordable.

      5 years ago Log in to Reply
    3. Sherolyn Newell

      Also still working.

      5 years ago Log in to Reply
    4. Annie Wall

      Not concerned about insulin costs personally because I found a Medicare Part D plan where I pay no copays for insulin or any diabetic supplies. I am concerned for others who have far more out of pocket costs for this essential, lifesaving drug. Shame on this country for allowing that.

      5 years ago Log in to Reply
    5. Gene Maggard

      My Medicare Advantage plan pays everything except for insulin which is still a little high. As long as the Congress doesn’t do anything to change Medicare (for the worse), I’ll be fine.

      5 years ago Log in to Reply
    6. Grey Gray

      Thanks for reminding me to order supplies

      5 years ago Log in to Reply
    7. Thomas Hatton

      I just ordered infusion sets, resivors, and Sensors from minimed and they came within a week, about their usual time.

      5 years ago Log in to Reply
    8. Tina Roberts

      The sensors are a killer.

      5 years ago Log in to Reply
    9. Phyllis Donahue

      Very concerned I stopped using my cgm it was and is too expensive. My insurance does not pay for them.

      5 years ago Log in to Reply
    10. Becky Hertz

      Thankfully I can still afford to pay, however, it does limit other expenses and experiences. Insulin costs are what’s out of control for me. I wish all medicine and equipment for ALL with diabetes was much more affordable.

      5 years ago Log in to Reply
    11. Ahh Life

      The comment by Tina Roberts says it best, “The sensors are a killer.” Both in terms of medical advice (you can’t live without them) and in terms of expense (you can’t afford them without excellent insurance). Doh! (ノ ͡❛ ⏥ ͡❛)ノ (ノ ͡❛ ⏥ ͡❛)ノ (ノ ͡❛ ⏥ ͡❛)ノ

      5 years ago Log in to Reply
    12. Patricia Maddix

      Right now my Medicare and Medicare supplement pays for everything but I am using NovoLog insulin which is covered under part B as it is used in an insulin pump. However I am hoping to try one of the new ultra rapid acting insulin’s and don’t know if Medicare will cover this.

      5 years ago Log in to Reply
    13. Mick Martin

      Not at all concerned, but this is because I live in the UK where ALL of my diabetes supplies are paid for by our NHS (National Health Service). The NHS is financed by direct taxation of all working people that earn over a prescribed amount.

      5 years ago Log in to Reply
    14. Molly Jones

      The insurance with my husband is very good and his job is stable at the this time. I do not pay for diabetic supplies: Dexcom, tandem, insulin. I do not look forward to retirement.

      5 years ago Log in to Reply
    15. Pam Butler

      Getting my supplies has been one of the largest stressor of my life! I can’t afford them often. I was off my pump for several months but on increased prednisone dose for my Lupus, therefore my BS were out of control. I’m a former RN. Now disabled on Medicare that doesn’t cover it all. I don’t qualify for Medicaid because I make too much on SSDI… because I worked throughout my life. A whopping $1262 a month to live on. Medicaid will kick in and help after I meet Spenddown of spending around $2500 every 6 months on medical out if pocket. This is so broken and wrong. My life centers around balancing 3 autoimmune diseases with virtually no money after normal living expenses. I want to fix this broken system. Is there anyone working on this I can join?

      5 years ago Log in to Reply
    16. ConnieT1D62

      With the Medicare Advantage plan I am on it actually got easier and more affordable once I turned 65.

      5 years ago Log in to Reply

    How concerned are you right now about your ability to afford your next order of T1D supplies (insulin, pump/CGM equipment, etc.)? Cancel reply

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