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    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 10 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 10 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 13 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 19 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 19 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 11 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 13 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 13 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 15 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 17 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 18 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 19 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    How concerned are you right now about your ability to afford your next order of T1D supplies (insulin, pump/CGM equipment, etc.)?

    Home > LC Polls > How concerned are you right now about your ability to afford your next order of T1D supplies (insulin, pump/CGM equipment, etc.)?
    Previous

    If you wear a CGM, how do you get your supplies?

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    If you have a certified diabetes educator, have they ever informed you about research studies for which you might be eligible?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    16 Comments

    1. Janice B

      Not concerned at this time as I am still working. I am very concerned once I am retired and no longer working.

      5 years ago Log in to Reply
    2. Bonnie Lundblom

      I said “Other” since Medicare Part B along with my Medicare Supplemental insurance cover my insulin, pump and Dexcom CGM supplies. Hoping the increases the Medicare Supplemental plan seems to charge each year stay reasonable and affordable.

      5 years ago Log in to Reply
    3. Sherolyn Newell

      Also still working.

      5 years ago Log in to Reply
    4. Annie Wall

      Not concerned about insulin costs personally because I found a Medicare Part D plan where I pay no copays for insulin or any diabetic supplies. I am concerned for others who have far more out of pocket costs for this essential, lifesaving drug. Shame on this country for allowing that.

      5 years ago Log in to Reply
    5. Gene Maggard

      My Medicare Advantage plan pays everything except for insulin which is still a little high. As long as the Congress doesn’t do anything to change Medicare (for the worse), I’ll be fine.

      5 years ago Log in to Reply
    6. Grey Gray

      Thanks for reminding me to order supplies

      5 years ago Log in to Reply
    7. Thomas Hatton

      I just ordered infusion sets, resivors, and Sensors from minimed and they came within a week, about their usual time.

      5 years ago Log in to Reply
    8. Tina Roberts

      The sensors are a killer.

      5 years ago Log in to Reply
    9. Phyllis Donahue

      Very concerned I stopped using my cgm it was and is too expensive. My insurance does not pay for them.

      5 years ago Log in to Reply
    10. Becky Hertz

      Thankfully I can still afford to pay, however, it does limit other expenses and experiences. Insulin costs are what’s out of control for me. I wish all medicine and equipment for ALL with diabetes was much more affordable.

      5 years ago Log in to Reply
    11. Ahh Life

      The comment by Tina Roberts says it best, “The sensors are a killer.” Both in terms of medical advice (you can’t live without them) and in terms of expense (you can’t afford them without excellent insurance). Doh! (ノ ͡❛ ⏥ ͡❛)ノ (ノ ͡❛ ⏥ ͡❛)ノ (ノ ͡❛ ⏥ ͡❛)ノ

      5 years ago Log in to Reply
    12. Patricia Maddix

      Right now my Medicare and Medicare supplement pays for everything but I am using NovoLog insulin which is covered under part B as it is used in an insulin pump. However I am hoping to try one of the new ultra rapid acting insulin’s and don’t know if Medicare will cover this.

      5 years ago Log in to Reply
    13. Mick Martin

      Not at all concerned, but this is because I live in the UK where ALL of my diabetes supplies are paid for by our NHS (National Health Service). The NHS is financed by direct taxation of all working people that earn over a prescribed amount.

      5 years ago Log in to Reply
    14. Molly Jones

      The insurance with my husband is very good and his job is stable at the this time. I do not pay for diabetic supplies: Dexcom, tandem, insulin. I do not look forward to retirement.

      5 years ago Log in to Reply
    15. Pam Butler

      Getting my supplies has been one of the largest stressor of my life! I can’t afford them often. I was off my pump for several months but on increased prednisone dose for my Lupus, therefore my BS were out of control. I’m a former RN. Now disabled on Medicare that doesn’t cover it all. I don’t qualify for Medicaid because I make too much on SSDI… because I worked throughout my life. A whopping $1262 a month to live on. Medicaid will kick in and help after I meet Spenddown of spending around $2500 every 6 months on medical out if pocket. This is so broken and wrong. My life centers around balancing 3 autoimmune diseases with virtually no money after normal living expenses. I want to fix this broken system. Is there anyone working on this I can join?

      5 years ago Log in to Reply
    16. ConnieT1D62

      With the Medicare Advantage plan I am on it actually got easier and more affordable once I turned 65.

      5 years ago Log in to Reply

    How concerned are you right now about your ability to afford your next order of T1D supplies (insulin, pump/CGM equipment, etc.)? Cancel reply

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