If you have a certified diabetes educator, have they ever informed you about research studies for which you might be eligible?

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- 4 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
- 4 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Just did what makes sense to me- eating less carbs, watching blood glucose more often and taking corrections as needed. Also some level of activity if possible.
- 5 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Been type 1 since the early 80's learned self management as therapies changed. Unless hospitalized(which I never am anymore) I decide how much insulin to put in my body based on my on going experience with the 1000's of reasons I may need more or less of it. I do love my pump, insulin and CGM so I guess I have to tell the doctor what I do once a year. .. I just keep throwing info and facts he isn't up on till he gets a glazed over look on his face and writes my scripts. I find the most inconvenient part of diabetes is all the people that want to help but don't know much about everyday life with the disease. And NO I do not want to join a discussion group!
- 7 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Many times I have needed to adjust insulin intake amount in order to cope with illness, but only rarely needed outside help. In the early 1970’s I made some mistakes managing influenza. My BG went very high (no meter available for testing at home), and I ended up in the hospital then.
- 8 minutes ago
  
  Janis Senungetuk likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Except for those brand new at this, we all know the drill. We know that we need to be flexible, make adjustments, and pay attention.
- 9 minutes ago
  
  TEH likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  only time that I have been sick was when I got COVID during Jan '22. my sugars were going crazy high and I couldn't understand why but when I tested positive for COVID, in retrospect it made sense.
- 9 minutes ago
  
  TEH likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Except for those brand new at this, we all know the drill. We know that we need to be flexible, make adjustments, and pay attention.
- 16 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 16 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 16 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 16 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 16 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 16 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 16 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 16 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 16 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 16 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 16 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 16 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 16 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 16 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 16 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 16 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 16 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
- 16 minutes ago
  
  Pauline M Reynolds has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  1. Contact primary care physician. 2. Only time I had an intestinal infection, I kept a can of sugar Sprite by my side and drank it according to my BG's.
Clear All

If you have a certified diabetes educator, have they ever informed you about research studies for which you might be eligible?

How concerned are you right now about your ability to afford your next order of T1D supplies (insulin, pump/CGM equipment, etc.)?

Sarah Howard

18 Comments

Becky Hertz

My crater path was not affected by T1D.

2 years ago Log in to Reply
Becky Hertz

Haha, that’s what I get for not paying attention to the question that comes up and it’s not the one I thought it was.

2 years ago Log in to Reply
Bob Durstenfeld

I have only seen a CDE a few times in my 64 years with T1D. I have learned about research opportunities from online sources such as diatribe.

2 years ago Log in to Reply
Janis Senungetuk

Yes, I was told about the Joslin 50 Year Medalist Study when I reached the 50 year mark 16 years ago. I’ve also been informed of local research studies conducted at the University of Wisconsin Hospital and Clinics in Madison, Wisconsin.

2 years ago Log in to Reply
Anthony Harder

I have not been involved with a diabetes educator for many years (55+ Years a diabetic). However my endocrinologist has made me aware of studies.

2 years ago Log in to Reply
Grey Gray

Self managed, self educated. Self pay…The only reason I go to a doctor is for the prescriptions. As someone else said internet searches.

2 years ago Log in to Reply
Kristine Warmecke

My endocrinologist is the head of research so she is usually the one to bring it up with me, not my CDE.

2 years ago Log in to Reply
connie ker

No CDE and don’t hear about them much anymore. When they started to charge for their services, they started to disappear. With T1D you actually live with the disease, become your own teacher and many times become your own Dr, You could probably teach the CDE something they didn’t know about T1D.

2 years ago Log in to Reply
George Lovelace

T1 55+ years, haven’t had a CDE since the 80’s, I find Studies Online.

2 years ago Log in to Reply
Christina Trudo

I’ve seen CDEs frequently over my 59 years of T1. i imagine they have but i don’t recall specific cases so i said “other”

2 years ago Log in to Reply
carol Huhn

My endocrinologist is involved in research so I’m in the loop on opportunities

2 years ago Log in to Reply
Greg Felton

Yes, I have participated in several pharmaceutical or product studies, including a study many years ago where I got to wear an early CGM. My Endo is usually involved in the research at the university so I hear about the opportunities.

2 years ago Log in to Reply
Becky Hertz

I do not have a cde.

2 years ago Log in to Reply
Mick Martin

I selected no as I don’t believe that my endocrinologist is a CDE. He has, however, put my name forward for islet cell transplantation … that was in the days when it was still an experimental procedure, and my name was one of the first 50 or so type 1 patients whose name was put forward to the scientists. (Sadly, the operation never came about as due to it being ‘experimental’ they wanted to be able to ‘show’ how successful such a transplantation could be, and I’d already developed a multitude of diabetes-related complications at that stage so it would have been difficult for the scientists to prove just how effective islet cell transplantation could be.)

2 years ago Log in to Reply
MarkinLA

I serve as a combination diabetes educator and research coordinator and I often will ask patients if they want to take part in a trial where they qualify. Participation is optional.

2 years ago Log in to Reply
Janice B

My first endo was a researcher so he recruited me to be in the inhaled insulin study back in the 90’s. After he retired, I have found the studies that I have been involved in on my own.

2 years ago Log in to Reply
Molly Jones

I chose NA. I don’t think I have a certified diabetes educator, or if I did, it is not in my memory. After ten years of having a independent Endo, I changed both the Endo and my GP to where my Neuro was located, at a University hospital. I often have interns learning during my appointment after me agreeing to it. My BG has been used for research a few times by another doctor and I am constantly asking my doctors of available research I may be available for in different areas of health. When I had the independent Endo it didn’t occur. I also read clinicaltrials website alot.

2 years ago Log in to Reply
Sally Numrich

I am fortunate to live in an area with clinical trials going on all the time. I got notifications from my medical teams and from the different research centers that have my info on file. They call when something comes up that I might qualify for.

2 years ago Log in to Reply