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    • 1 hour, 47 minutes ago
      Jeremy Hanson likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      And sometimes I dream that I’ve run out of insulin and cannot get prescription refilled.
    • 3 hours, 39 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I providee an answer of low BG. But with that said, it is usually a false alarm (compression low from Dexcom sensor) With the stable bedtime BG and a TSlim X2 pump using CIQ and Sleep Mode, I consistently sleep between about 85 and 110 every night. The key to this is going to bed with a stable BG (85-110) and not having any IOB.
    • 3 hours, 43 minutes ago
      ConnieT1D62 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      While middle-of-the-nght alerts are frustrating and irritating, I'm no longer terrified of dying from an extreme low in the middle of the night, so technology is still a win for me!
    • 5 hours, 20 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 5 hours, 21 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 5 hours, 22 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 5 hours, 23 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 5 hours, 23 minutes ago
      Janis Senungetuk likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 5 hours, 32 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 5 hours, 33 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 5 hours, 34 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 5 hours, 35 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 5 hours, 35 minutes ago
      KarenM6 likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yeah. Totally agree! This is totally unnecessary and extremely annoying.
    • 5 hours, 41 minutes ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Why isn't going to the bathroom not on this list?
    • 5 hours, 45 minutes ago
      Wanacure likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 6 hours, 1 minute ago
      TEH likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My most frequent and favorite !!?? alarm at night is the one that tells me I had a high two hours ago! Duh!!!
    • 6 hours, 24 minutes ago
      Steven Gill likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      My pump, "I need to BG! I need to BG!" Such a cry baby it is!
    • 7 hours, 17 minutes ago
      Robin Melen likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 8 hours, 4 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 8 hours, 6 minutes ago
      Mick Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      Yes, I appreciate device improvements but some are just plain annoying and make a difficult journey Worse, not better. And the main complaint is unnecessary alerts the user cannot adjust.
    • 8 hours, 31 minutes ago
      Anneyun likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 9 hours, 13 minutes ago
      Sue Martin likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I wake up with physical effects of lows. Odd thing is that if I am dreaming, I will often have the same effects within my dream. Like I will be on a plane to some exotic location and start searching for snacks! Does this happen to anyone else?
    • 9 hours, 45 minutes ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      I get a notice of high glucose levels that occurred several hours ago!! WHY?
    • 9 hours, 45 minutes ago
      T1diabetic likes your comment at
      When your sleep is disrupted because of T1D, what are the most common causes? Select all that apply to you.
      The same as Carrolyn Barloco. I often get messages in the middle of the night that my blood glucose level was either high or low 2, 3, or 4 hours ago. This is a completely useless piece of information, and absolutely NO REASON to wake me up. This is nothing but an ANNOYING alert. Tandem and Medtronic, if you're listening, please remove this function from your pumps.
    • 10 hours, 6 minutes ago
      Velika Peterson likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I stopped using those sites and paid more attention to rotation of available ones.
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    How concerned are you right now about affording your next order of T1D supplies?

    Home > LC Polls > How concerned are you right now about affording your next order of T1D supplies?
    Previous

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    Do you feel like your close friends have an understanding of your day-to-day T1D management?

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    34 Comments

    1. Ahh Life

      Whether you can afford shoelaces or not, the T1D experience is like an Olympic marathon event.

      And in order to qualify you must win every single 50-yard dash along the way. ─=≡Σ(͡> ʖ ͡<)

      4
      1 year ago Log in to Reply
      1. Joan Fray

        Translation of equation please!

        1
        1 year ago Log in to Reply
      2. Sherrie Johnson

        They have us jumping hoops also

        2
        1 year ago Log in to Reply
      3. Ahh Life

        It’s suppose to be a person dashing away. Guess, the equals sign honks it up
        Sigh!

        1
        1 year ago Log in to Reply
    2. Larry Martin

      Now that I am on Medicare and Medtronic, after a year, has finally got their sensor act together, I am paying nothing. Well the $233 deductible but I spent $9,000 on medical stuff last year. Finally I am getting what every other T1D in the world gets just for being alive.

      1
      1 year ago Log in to Reply
      1. Sherrie Johnson

        Larry try to get on Anthem plan F everything covered if you are on the pump all goes under part B DME no deductsble. Higher premium but no co pays for anything. I’ve been on the plan for 10 years now it’s up to 297 a month

        1 year ago Log in to Reply
    3. Lisa La Nasa

      I was frequently concerned with affording my T1D supplies when I lived in the USA. I left the USA 13 years ago and it’s no longer a worry of mine. Healthcare and the exact same products/medications are much more affordable in other parts of the world.

      1
      1 year ago Log in to Reply
      1. ELYSSE HELLER

        I know, medical care in the USA is just too expensive. Other countries that have national health care provide their citizens with much better healthcare.

        1 year ago Log in to Reply
    4. Joan Fray

      My insurance pays 80%. 20% is nothing compared to what I’d be paying without insurance. Grateful for the insurance .

      2
      1 year ago Log in to Reply
    5. Jane Cerullo

      I said somewhat concerned because had to order my freestyle Libre supplies blind. No one can tell me copay with my new insurance. Never heard such a thing. Was 0 copay on former insurance but they charged a fortune for insulin pens. So I switched but now other things have copays that bad m not used to paying. Will really look into insurance plans next year.

      1 year ago Log in to Reply
      1. ELYSSE HELLER

        I am a federal employee, although now retired due to Covid-19, so I have very good health insurance. I will loose this health insurance when I turn 65 because I am then eligible for Medicare. Very concerned about that.

        2
        1 year ago Log in to Reply
    6. Trena harrow

      Not concerned since my insurance pays 100 percent of my supplies!! I’m very fortunate.

      1 year ago Log in to Reply
    7. Savanna Vance

      Right now, I have Medicaid that covers all of my supplies. But in May, I graduate from graduate school and will be starting a new job. I am worried about what comes next insurance wise.

      1 year ago Log in to Reply
    8. Sherolyn Newell

      I pay 100% until my $3500 deductible and then pay $0. My plan has an HSA, so I save up that first $3500 tax-free the year before.

      1 year ago Log in to Reply
    9. Mick Martin

      I’m not at all concerned as I live in the UK (United Kingdom of Great Britain and Northern Ireland) where ALL of my diabetes supplies are paid for by our NHS (National Health Service), which is funded by direct taxation from all working people.

      1
      1 year ago Log in to Reply
    10. connie ker

      I am thankful not to be concerned about diabetic supplies which come in the mail right to my door. However, when I watch the darkness in our world, I always wonder what is happening to the T1Ds in Ukraine and Afghanistan or to the people in our own country who cannot afford their supplies?

      13
      1 year ago Log in to Reply
    11. Mary Dexter

      The concern is not about the money, but having the prescriptions refilled. As someone diagnosed at age 48, this has been an ongoing battle, mainly because of misinformation and erroneous beliefs held by health care professionals: that T1 equals little kids, that the kind older people is just a matter of diet and exercise and can be reversed. So my CGM paperwork gets ignored and my insulin prescription isn’t renewed unless I spend weeks on the phone.

      3
      1 year ago Log in to Reply
      1. Karen Newe

        The myth that this is a child-only disease is crazy. I hope you at least have a T1 diagnoses. Children with T1 eventually become adults so there’s nothing unusual about an adult with T1.

        1
        1 year ago Log in to Reply
      2. Brett Jorgensen

        So frustrating!

        1
        1 year ago Log in to Reply
      3. LizB

        You should make sure that your doctors have the correct diagnosis in your file. If they have you as a Type 2 it needs to be changed.

        1
        1 year ago Log in to Reply
    12. Karen Maffucci

      Right now my finances are ok. It’s next year when my pension drops by $1500.00 a mth that I’ll have great concern.

      1 year ago Log in to Reply
    13. Janis Senungetuk

      At the moment very concerned. My primary insurance is thru my spouse’s employment. Last month that insurance suddenly doubled the deductible and out-of-pocket and increased the DME co-pay to 30%. The third-party DME supplier was insisting I pay before they would ship. I told them they would have to file claims with both my primary and secondary (Medicare) before payment. I received a call from their billing dept. with the amt. I owed reduced to less than $50 for both pump and CGM supplies. This month I haven’t received notification of monthly CGM shipment and don’t know what to expect with the increased deductible and co-pay. Increased living expenses are very much a concern.

      1
      1 year ago Log in to Reply
    14. Brett Jorgensen

      Fortunately, at this time we are able to pay for what insurance doesn’t cover.

      1 year ago Log in to Reply
    15. pru barry

      Still have my “I Love O’Bama Care” sticker on my 18 year old Mini. Don’t know where I’d be without the insurance, but know it could be improved greatly. Is Big Pharma listening?

      1 year ago Log in to Reply
      1. KarenM6

        “Big Pharma”! Yes. I know what you mean. I bought a bottle of OneTouch Ultra 2 test strips in September (without insurance – long story as to why). It was $40.
        I just went to buy another bottle and it was $172. I had to walk away.
        Big Pharma are just greedy bloodsuckers, IMO.

        1 year ago Log in to Reply
    16. Bonnie Lundblom

      Not concerned this year but my Medicare Supplemental insurance cost goes up every single year; I have to adjust my overall spending to continue with that important and necessary coverage.

      1 year ago Log in to Reply
    17. mbulzomi@optonline.net

      Medicare original, Part “B” for my Insulin Pump/CGM, DEX supplies, including Insulin with nothing out of pocket. Just for some information, an Insulin Pump is considered a Durable Medical Product, along with all the other support equipment.

      1 year ago Log in to Reply
    18. lis be

      i said very concerned, mostly because I need to get to my deductible

      1 year ago Log in to Reply
    19. KarenM6

      Insurance in the US is almost a requirement for Type 1s.
      I also replied to pru barry with this but, I just went to the pharmacy to get a backup OneTouch test strip (not using insurance – long story why). In September 2021, the bottle was $40. On Monday of last week, one bottle was $172. Oy! Guess I need to jump some hoops and hope my insurance will cover two different meters in addition to the CGM.

      More concern at the beginning of the year because my deductible is $6000. The accounting won’t hurt so much after about April or May. =:o ;p

      I have an off-topic question for Dexcom G6 users: Has anyone else had trouble with pain relievers? I only took one Naproxen Sodium (not the allowed two pills) and my G6 is going mad (saying I have a 43 blood sugar when it is really closer to 163.) I know acetaminophen is not recommended either.
      Are there pain relievers that work better than others with the G6?
      I have my endo in a couple of weeks, so I can ask her, too, but wanted to get real-life users answers if at all possible.

      1 year ago Log in to Reply
      1. Karen Maffucci

        I use Arnica. It’s a natural pain reliever. I can’t use acetaminophen due to inaccurate readings. And no NSAIDS due to kidneys

        1 year ago Log in to Reply
      2. KarenM6

        Hi Karen Maffucci!
        Thank you SO much!! (My hip says thank you, too.) I will give it a try.
        😀

        1 year ago Log in to Reply
    20. LizB

      My pump supplies are covered under a special diabetes category, not DME or Pharmacy, so it’s a straight co-pay. My deductible does not come into play with anything diabetes related, unless it causes me to be hospitalized or need any kind of special testing. But the insulin, test strips, pump supplies etc are just co-pays.

      1 year ago Log in to Reply
    21. n6jax@scinternet.net

      Very!!! because have had problems in past so always expect more from UHC..

      1 year ago Log in to Reply
    22. Michelle Saunders

      I’m currently living in a developing country where I can afford the insulin out of pocket and will submit to my insurance for reimbursement. I fear that the locals though can not afford it unless they are part of the countries 1%. Their minimum wage is a range of $1-$1.50. A vial of humalog at the value pharmacy is $55.

      1 year ago Log in to Reply

    How concerned are you right now about affording your next order of T1D supplies? Cancel reply

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