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    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 9 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 14 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 15 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 15 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 16 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 10 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 12 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Have you read a diabetes-related book that really had an impact on you? If so, share your recommendations in the comments!

    Home > LC Polls > Have you read a diabetes-related book that really had an impact on you? If so, share your recommendations in the comments!
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    How involved do you prefer a significant other (either current or hypothetical) to be with your T1D? Select all that apply to you!

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    If you had T1D while in school (excluding college), were you ever picked on or bullied because of having T1D? If so, did it bother you?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    49 Comments

    1. Bob Durstenfeld

      Pumping Insulin

      5 years ago Log in to Reply
    2. Paul Madden

      Bright Spots and Landmines is superb. A good reminder for a veteran like me who is living well after 59 years of diabetes. Thanks Adam Brown.

      5 years ago Log in to Reply
    3. Beth Franz

      Diabetes Solution by Dr Bernstein

      5 years ago Log in to Reply
    4. Rebecca Lambert

      Think Like a Pancreas

      5 years ago Log in to Reply
    5. Kimberly Green

      Diabetes Burnout & Type 1 and pregnancy

      5 years ago Log in to Reply
    6. Nevin Bowman

      The Diabetes Solution by Dr. Bernstein. I only wish I had found it decades earlier than I did.

      5 years ago Log in to Reply
    7. Julie Akawie

      Dr. Bernstein’s Diabetes Solution, by Richard K. Bernstein. Also, Think Like a Pancreas by Gary Scheiner.

      5 years ago Log in to Reply
    8. Kristen Clifford

      Diabetes Burnout: What to Do When You Can’t Take it Anymore. It’s particularly interesting because they give you a quiz at the beginning, which then guides you on how to read the rest of the book

      5 years ago Log in to Reply
    9. Gene Maggard

      I answered “no” but I had liked to read the articles at the end of Diabetes Forecast magazine written by individuals who had interesting diabetes-related stories to tell. Most were very inspiring although some were sad, but all meaningful to someone who shared their common illness.

      5 years ago Log in to Reply
    10. Don Krahmer Jr

      The Human Side of Diabetes: Beyond Doctors, Diets , and Drugs

      5 years ago Log in to Reply
    11. Kathy Hanavan

      Bright Spots and Landmines, Sugar Surfing, Think Like a Pancreas

      5 years ago Log in to Reply
    12. Gerald Oefelein

      Pumping Insulin. This is a pumper’s bible!

      5 years ago Log in to Reply
    13. Clare Fishman

      Think Like a Pancreas by Gary Sheiner helped me get more actively engaged in managing my diabetes instead of sitting back and expecting my endo to do it for me.

      5 years ago Log in to Reply
    14. Franklin Rios

      Dr. Bernstein’s Diabetes Solution: The Complete Guide to Achieving Normal Blood Sugars: A Complete Guide To Achieving Normal Blood Sugars,

      5 years ago Log in to Reply
    15. Henry McNett

      Diabetes Solution by Richard Bernstein. As a physician myself, there is no other way I would manage by DM1.

      5 years ago Log in to Reply
    16. Craig Falk

      Not Dead Yet by Phil Southerland!

      5 years ago Log in to Reply
    17. Pat Reynolds

      John Walsh’s Pumping Insulin.

      5 years ago Log in to Reply
    18. Donna Brownley

      Not a book but, the Juicebox podcast has really impacted me for the better with my management. Scott Benner has interviewed many of the authors of the books that have been commented on for this question!

      5 years ago Log in to Reply
    19. Yaffa Steubinger

      Mastering Diabetes. The two T1 authors helped me lower my insulin usage by eating more carbs, less protein/fat.

      5 years ago Log in to Reply
    20. Amanda Barras

      Diabetes Burnout

      5 years ago Log in to Reply
    21. cynthia jaworski

      Shot: Staying Alive with Diabetes by Amy Ryan Beating The Odds: 64 Years of Diabetes Health by Richard Vaughan (who, I believe, posts here) Anything by Dr. Bernstein

      5 years ago Log in to Reply
    22. Greg Felton

      Cheating Destiny, by James Hirsch, and The Discovery of Insulin, by Michael Bliss. It’s hard to explain why they affected me, but I think both broadened my perspective on the history and impact of T1D, which had only been something I thought about on a personal level. Neither are particularly uplifting, so be warned.

      5 years ago Log in to Reply
    23. Kim Pedraza

      I have read “Think like a Pancreas”. Loved it. Very enlightening. I felt the author wrote the book from my thoughts.

      5 years ago Log in to Reply
    24. PASCAL LEMIEUX

      Dr Bernstein Diabetes Solution.

      5 years ago Log in to Reply
    25. Kris Sykes-David

      Think Like a Pancreas

      5 years ago Log in to Reply
    26. Aimee Martin

      Dr. Bernstein Diabetes Solution

      5 years ago Log in to Reply
    27. Douglas Kosmicki

      The Diabetes Solution By Dr. Richard Bernstein.

      5 years ago Log in to Reply
    28. mary murphy

      There are two fiction books written by K.J. Howe which have a main character who has Type 1 Diabetes. They are espionage adventure stories, intriguing and well written. Thea Paris is the main character and the books are Skyjack and The Freedom Broker. Managing diabetes is always in the background but not directly pushed to the front of the story line. There are not many novels that have characters with a chronic illness.

      5 years ago Log in to Reply
    29. Ernie Richmann

      The Diabetic Athlete by Sheri Colberg and Think Like A Pancreas.

      5 years ago Log in to Reply
    30. Kathleen Amper

      Diabetes solution by dr Richard Bernstein.

      5 years ago Log in to Reply
    31. MARIE PEELER

      Bright Spots and Landmines by Adam Brown. Real life, “this is what I do that works” and “this is what I do that doesn’t work as well” written by an active and engaged person with TI. It was one of the first books that I read.

      5 years ago Log in to Reply
    32. Jordan Mooty

      “Not Dead Yet” by Team Type 1/Team Novo Nordisk Co-Founder Phil Southerland “Diabetes Solution” by The Bern

      5 years ago Log in to Reply
    33. Tracy Jean

      Think Like a Pancreas.

      5 years ago Log in to Reply
    34. Meghan Larson

      Think Like a Pancreas!

      5 years ago Log in to Reply
    35. Randi Niemer

      Bernstein Diabetes Solution

      5 years ago Log in to Reply
    36. Ceolmhor

      “Think Like a Pancreas”, of course. But the first book I read, which came in a very helpful welcome-to-type-1-diabetes kit from JDRF, was Mary Tyler Moore’s autobiography, “Growing Up Again: Life, Loves, and Oh Yeah, Diabetes” (2009). It was extremely helpful to me as a T1D newly diagnosed at age 72.

      5 years ago Log in to Reply
    37. kylekk@gmail.com

      Sugar Surfing

      5 years ago Log in to Reply
    38. connie ker

      I have subscribed to Diabetes Forecast for years published by the ADA. Lots of interesting reading, recipes, life stories, advertisements, new treatment options, and encouragement from the editor.

      5 years ago Log in to Reply
    39. Jena Benoit

      Breakthrough! Tells the story of the discovery of insulin. All should read! https://www.amazon.com/Breakthrough-Elizabeth-Discovery-Insulin-Medical/dp/0312611749/ref=sr_1_3?dchild=1&keywords=breakthrough+diabetes+book&qid=1613162345&sr=8-3

      5 years ago Log in to Reply
    40. Stephen Woodward

      1981, Bernstein Diabetes Solution. Started MDI, despite what my Endo said.

      5 years ago Log in to Reply
    41. Noah terracall

      Dr Bernstein’s – Diabetes Solution

      5 years ago Log in to Reply
    42. Keira Thurheimer

      Sugar Surfing and Think Like a Pancreas

      5 years ago Log in to Reply
    43. Catherine Van Hove

      Dr. Polonski’s book “Diabetes Burnout” is wonderful. Easy to read with lots of workable suggestions of how to overcome roadblocks to taking better care of yourself. Lots of examples from his years of helping people accept and live their disease. Also, how to handle other well-meaning people in your life.

      5 years ago Log in to Reply
    44. Molly Jones

      My first read was the ADA’s Complete Guide to Diabetes, then Think Like a Pancreas, and continually the national online library of medicine, PubMed. ADA helped me understand what was occurring quickly after diagnosis. PubMed and ClinicalTrials both show me the progress that is being made.

      5 years ago Log in to Reply
    45. ConnieT1D62

      I have read most of the books mentioned by others responding to this post, plus many more. Top of the list are books and chapters written by others living with T1D and how they manage and master life with it. However if I had to pick one book that really made an impact on my knowledge and understanding about diabetes it was an easy to read patient teaching manual published by Eli Lilly with a title something like “Insulin: What It Is and How it Works in Your Body”. It was given to me by a very kind and compassionate bedside RN in 1982 when I was hospitalized for a severe bout of near death DKA after a miscarriage. Reading that book changed my life and set me on a path of healing because for the first time in almost 20 years of living with diabetes I finally really understood that insulin is an essential hormone necessary for the life process in the body – that it isn’t a punishment or a drug.

      5 years ago Log in to Reply
    46. Nicholas Argento

      As some one else noted, Cheating Destiny, by James Hirsch, and The Discovery of Insulin, by Michael Bliss were both excellent on the tribulations w modern T1D (first) and the pre-insulin history second. I have a signed copy of Michael Bliss book! There are passages in there that I cannot read without getting choked up: 1) a description of a scene when Dr Allen (who worked out starvation treatment for T1D prior to the discovery of insulin) coming back to his starvation center with the first doses of insulin; 2) Dr Elliot Joslin describing the first patients treated with insulin reminding him of a biblical passage from Ezekiel, Valley of the dry bones. I also loved Breakthrough, the Story of Elizabeth Hayes, as someone else mentioned.

      5 years ago Log in to Reply
    47. Stang777

      I read Think Like a Pancreas shortly after I was diagnosed and it is the only book about diabetes that I have read, and I found it extremely helpful. It is what I learned the most from about how to manage type 1 after I was diagnosed as I didn’t learn much of anything from medical professionals. I credit what I learned from the book for me being able to live and eat normally and still keep my A1c in the non-diabetic range.

      5 years ago Log in to Reply
    48. Germaine Sarda

      Many! Most of them very good. Best (IMO): Bright Spots & Landmines (Adam Brown) A Woman’s Guide to Diabetes (Brandy Barnes, Natalie Strand) Anything by Taking Control of Your Diabetes (Edelman)

      5 years ago Log in to Reply
    49. Tim Shoppa

      Way back in the 1980’s I read one of Dr. Bernstein’s early books from that era. It was the first book I read, that discussed the real life of someone living day-to-day with T1 diabetes, and also introduced me to MDD basal+bolus insulin treatment (a big improvement over my previous twice-a-day R+N regimen that was really wacky and unbalanced in comparison).

      5 years ago Log in to Reply

    Have you read a diabetes-related book that really had an impact on you? If so, share your recommendations in the comments! Cancel reply

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