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    • 14 hours, 24 minutes ago
      Greg Felton likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 14 hours, 56 minutes ago
      ConnieT1D62 likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      One time I was explaining that a new pump would be too expensive at the time because my deductible had just started over.. and she asked if I had insurance and I said yes….. then she said “then it should be free with insurance.” 🤦‍♀️ She may know a little about the challenges of living with diabetes, but she knows nothing about how insurance works or how costly T1D supplies are.
    • 15 hours, 14 minutes ago
      Steve Rumble likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 15 hours, 45 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I am an RN. Been going to same doctor for about ten years. Took me six years to train him. I am very well read when it comes to my LADA. He trusts my judgement and gives me excellent parameters to make decisions. Recently had a bad case of Covid. Insulin needs changed dramatically. Getting back to normal but he made sure I had scripts to cover my ups and downs with insulin needs.
    • 15 hours, 46 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Mine acknowledges the struggles and challenges that go along with managing T1D in my daily life. She gives suggestions as to what may or may not help and has often asked me I how I handle situations so she can give suggestions to other T1D patient's.
    • 15 hours, 47 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 16 hours, 12 minutes ago
      Jubin Veera likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      The hard spots are fairly frequent with the pump infusion sets. Especially if I go past 3 days which I try to avoid! I don’t think I ever got one from injections. I try heat and massaging to treat them and they normally go away after a day or so. Once I had a large area that I had to treat with antibiotics.
    • 16 hours, 14 minutes ago
      Magnus Hiis likes your comment at
      Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes, or having diabetes-related complications?
      I’m 79. My last orgasm was springtime about 3 or 4 years ago. When I complained of ED, my PCP Rxd 3 to 5 (60-100 mg) sildenafil tablets by mouth about one hour prior to sexual activity. This alone hasn’t worked to bring me up to former sexual capacity that I had 10 years years ago. I’m still considering consulting finding a doctor who’ll prescribe a safe but effective way of administering testosterone or an anabolic steroid in a dose low enough to avoid causing cardiovascular problems but high enough to restore normal ability that I had up to my sixties. My present doctors say it can’t be done, but there are doctors who advertise otherwise. Analogs of the hormone insulin can be delivered in small safe doses, why not testosterone?
    • 1 day, 8 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      We are all so very different, and trying to say that all of us with T1 understand what it's like for another who has the same hill to climb is unproductive. Having a health care provider with T1 may often be helpful just because there's apt to be more knowledge about the specifics. How we respond to the disease is such a personal matter, that I really don't think there are any guaranteed benefits beyond the grasp of the factual. Finding a doc with the same general attitude about the disease does feel good, and sometimes that's all I hope for after working hard to make peace with the disease for 70 years. Asking my doc to "get it" used to be almost my mantra, but I've come to realize that the ones who don't just see us as unruly childrenchildren
    • 1 day, 8 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Both my endocrinologist and my nurse practitioner are great. They compliment me on the way I take care of my life and health and make aure I get all the supplies I need managing all the paperwork Medicare and insurance requires. My nurse practitioner who works with me on managing the pump has her own opinion about the pump settings based on her technical knowledge which is different than what I do with my settings based on living with them. She has thru the years learned to respect what I do and is surprised with how my settings work. So we are now at peace. Both very supportive.
    • 1 day, 11 hours ago
      pru barry likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 11 hours ago
      mojoseje likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I said yes but that refers to my nurse practitioner who sees me every other visit, if not more often. The doctor may know how hard I try but perhaps takes my efforts for granted.
    • 1 day, 13 hours ago
      Anneyun likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      How can someone without the disease really understand what it is to live with it? I have never had a doctor with T1D in 60 years.
    • 1 day, 14 hours ago
      Bruce Schnitzler likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 14 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My endo is young, very empathetic, thorough, always asks for my input, and does research. I am blessed too. have him, and the one before for over 25 yrs.
    • 1 day, 14 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 14 hours ago
      lis be likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 1 day, 15 hours ago
      Daniel Bestvater likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      TEH likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I have no clue what my T1D health care provider understands about my daily challenges and I don’t know about his daily challenges either. Not sure why I should care as long as I have access to information how to best take care of myself.
    • 1 day, 16 hours ago
      Jeff Marvel likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 16 hours ago
      Richard Wiener likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 2 days, 7 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Hi Connie, I still have my glass syringe and show it off occasionally. We boiled the needle and syringe every morning and sharpened the needle with a file. I was diagnosed at age 6 in 1963. Life is so different now! Then, my diet was extremely limited as was my exercise. Now, I am very active and eat pretty much as I please. I maintain an A1C in the low 6s (6.2 was my last).
    • 2 days, 7 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Connie and Beth, I was diagnosed in Nov 1962, age 10. During the early years I developed lumps and indentations on my upper thighs from my injections. In fact, I was able t o spot other t1 kids in my junior high school based upon the lumps in their upper arms.. (I eventually met up with them and learned that I was correct.) By the time I reached my twenties, these indentations had more or less disappeared, but I still have remnants of the lumps. I wish I could say that the layers of tissue now deposited on my legs disguises them, but they don't. I think the changes in insulin have been responsible for this improvement: the isolation and purification of animal insulins were refined, and then the various human clones were game changers in many ways.
    • 2 days, 7 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Yes in my upper arms when I was a petite and skinny child in the 1960s with T1D. In those days we used glass syringes with stainless steel 1/2 inch long heavy gauge needles. My mother would jab me in the upper arms, it hurt like the dickens, and I developed several hard nodules. I was diagnosed at age 8 in December 1962 and after the initial two months of her jabbing me in the upper arms, I took over giving my own "shots" and started self injecting via site rotation in my thighs for several years. Eventually the lipohypertrophy in my upper arms resolved and I never injected there again until many years later as an adult on MDI using disposable syringes with very short and fine gauge needle tips. Periodically I would give my tired pin cushion thighs a rest and take a break for a few months or a couple of years and rotate injections in my abdomen or upper arms. Have been using a pump for over 20 years now and rarely use MDI unless I am taking a pump break for a short period of time. Happily, I no longer have lumpy sites.
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    How involved do you prefer a significant other (either current or hypothetical) to be with your T1D? Select all that apply to you!

    Home > LC Polls > How involved do you prefer a significant other (either current or hypothetical) to be with your T1D? Select all that apply to you!
    Previous

    If you have T1D, have you ever dated or married someone who also has T1D? Tell us your T1D love stories in the comments!

    Next

    Have you read a diabetes-related book that really had an impact on you? If so, share your recommendations in the comments!

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    15 Comments

    1. Steven Gill

      Hypothetical… (almost live alone with 2 rescues: a PIT and a cat) My nephews and nieces near me know how to test my glucose and give injections. They also know whatever’s available I can eat, I’ll ask the recipe “in conversation.” But even with a “significant other” I’d be afraid they’d get bored or overwhelmed because I’m always reading. I can’t let someone else manage this because this puppy just got housetrained, who knows what she’ll get into so I’d think there be minimal actual medical backup from a “partner.” Maybe goal setting (meals, gardening, outside activity), and of course if the goals are TOO dissimilar might just be the pack and myself again LOL? The curse of being single, happy, too busy to worry?

      2 years ago Log in to Reply
    2. Molly Jones

      My husband has been with me for more than two decades and before my T1D. He sometimes came to Endo visits, and learned a bit of the basics in the beginning. I try to show him once a year how to use my tandem and dexcom in case it is necessary due to seizure activity. (I can start random actions for no reason until I am back to normal and have previously pulled on my pump.) I don’t find dealing with T1D greatly difficult but my family all support me. He is now informed of low/high BG through dexcom sharing and will call or come to help. He will recognize a low if it is around or below 40mg/dl or 2.2

      2 years ago Log in to Reply
    3. Greg Felton

      My wife can sense my lows before the CGM and is helpful in that way. But she doesn’t care to hear me talk about diabetes or know much about the daily struggles.

      2 years ago Log in to Reply
    4. Bill Williams

      My fiancé is an insulin-dependent Type 2 and an RN. It doesn’t get much better than that.

      2 years ago Log in to Reply
    5. connie ker

      My husband was one of the longest living T1D diabetics in the country and passed when he was 84 years old. When I became a T1D later in life with LADA, he is the one who diagnosed me with his meter. He was my mentor until I could give myself the injections. We helped each other and did T1D together. When our youngest son was diagnosed the endo Dr. said I’m not surprised with his genetic code. So I am alone now missing all of our days walking the stores, eating the same foods, and on the exact same schedule. This year of Covid has difficult for everyone, so I cannot complain.

      2 years ago Log in to Reply
    6. Maureen Helinski

      My husband had to help with glucagon a couple of times but basically is no help. He doesn’t understand.

      2 years ago Log in to Reply
    7. Annie Wall

      My husband knows my lows before Dexcom does! He is very knowledgeable about my T1D but wouldn’t know how to insert my sensors or use my InPen or my Lantus pen. But he longer has to wake me up low blood sugars in the middle of the night as Dexcom takes care of that! He wouldn’t know a high blood sugar though. I can’t even describe how it feels and my behavior doesn’t give anyone a clue!

      2 years ago Log in to Reply
    8. Carol Meares

      He most always carries glucose tabs or snacks. He is extremely patient and understanding. He does not micromanage me at all. He puts up with my frustrations and ups and downs. He’s an angel about that. With his knowledge now, he would not be able to care for my diabetes on his own. It is just not his strong suit. He does help me on occasion with CGM insertions in difficult places. He researches low carb fun foods I can eat. He’s quite an angel:) I am very fortunate.

      2 years ago Log in to Reply
    9. Steve Rumble

      My wife was also T1D so we followed essentially the same schedules, diets, etc.

      2 years ago Log in to Reply
    10. Pat Reynolds

      What I would _prefer_ is no assisttance because I need no assistance with my type 1 diabetes! But I appreciate that when my partner cooks, they carb count (and also bring me cutlery with my food). When I cook, I just bring cutlery.

      2 years ago Log in to Reply
    11. kathy scott

      My husband of 37 years is a very knowledgeable scientist who’s goal in life seems to be fixing problems. While usually quite helpful, it often feels judgemental and that I don’t know what I’m doing (T1D 51 years). Having more emotional support would be lovely!

      2 years ago Log in to Reply
    12. Sally Numrich

      My husband knows the basics and was very helpful with lows before it became not necessary with CGM & pump. Also very into new research, as I do many. Not a lot of nuts and bolts like pre-bolus, counting carbs, when to exercise etc. You know the details that I never really talk about. I keep most of my diabetes stuff to myself, not a lot of detail sharing. Just basic stuff.

      2 years ago Log in to Reply
    13. Molly Jones

      I misread the question as asking what my current partner is as opposed to my perfect partner would be. My answers would have been: They could manage my T1D almost as well as I do Other: They can tell when I’m low/high and help WHEN NECESSARY We discuss OUR feelings around T1D, and WE are emotionally supportive

      2 years ago Log in to Reply
    14. Germaine Sarda

      My husband is my partner with T1. Until he came along (in my 40s), the only other person who was interested in understanding how to manage it was my mom.

      2 years ago Log in to Reply
    15. kilupx

      The question is poorly worded. I would PREFER a spouse who showed a little more interest in how to manage my diabetes, so if I ever became incapacitated I would have a helper. Instead I happen to have a loving spouse who thinks he’s supportive but actually closes his ears if I try to explain why I’m having trouble regulating my blood sugar. He has no interest in the mechanics of treating the disease. He says my numbers are fine and that I make myself tense. He simply doesn’t understand how much work goes into getting those numbers. Years ago my endo had me bring him in for glucagon training. Forget it. He refused to pay attention and we could see he would never be a help to me. I told him he should call 911 and tell them to bring glucagon. Thank God for CGM, so I never get dangerously low.

      2 years ago Log in to Reply

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