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    • 12 hours, 18 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 12 hours, 20 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 12 hours, 21 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 12 hours, 22 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 12 hours, 30 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 14 hours, 22 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 14 hours, 23 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 14 hours, 25 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 18 hours, 25 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 20 hours, 28 minutes ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 21 hours, 10 minutes ago
      Anita Stokar likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 21 hours, 13 minutes ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 37 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 21 hours, 38 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 21 hours, 38 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 21 hours, 39 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 21 hours, 39 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 21 hours, 42 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 21 hours, 44 minutes ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 21 hours, 46 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Ironically, I was a 10 year old "before" my diagnosis. BUT, one day I was over my friend's house (on what they call a playdate in today's parlance) and we went to the pharmacy to by candy. I remember vividly a video playing on a loop on a little TV on the counter describing what diabetes was and insulin injections every day. I remember thinking to myself that those poor people must feel like pin cushions. Fast forward to two days after my 11th birthday and my doctor telling me that I had diabetes. I remember my mother being fully unaware of what it entailed. I remember telling her that it's ok, all I need to do is take shots every day. She looked at me puzzled, like how do you know this? The doctor was also a little perplexed but added, it's a little more than that, but correct. Then he explained it based on his two-three hours of training in medical school. It's funny how prompts trigger strange memories.
    • 21 hours, 47 minutes ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 21 hours, 59 minutes ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 12 minutes ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 28 minutes ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 10 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    Have you read a diabetes-related book that really had an impact on you? If so, share your recommendations in the comments!

    Home > LC Polls > Have you read a diabetes-related book that really had an impact on you? If so, share your recommendations in the comments!
    Previous

    How involved do you prefer a significant other (either current or hypothetical) to be with your T1D? Select all that apply to you!

    Next

    If you had T1D while in school (excluding college), were you ever picked on or bullied because of having T1D? If so, did it bother you?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    49 Comments

    1. Bob Durstenfeld

      Pumping Insulin

      5 years ago Log in to Reply
    2. Paul Madden

      Bright Spots and Landmines is superb. A good reminder for a veteran like me who is living well after 59 years of diabetes. Thanks Adam Brown.

      5 years ago Log in to Reply
    3. Beth Franz

      Diabetes Solution by Dr Bernstein

      5 years ago Log in to Reply
    4. Rebecca Lambert

      Think Like a Pancreas

      5 years ago Log in to Reply
    5. Kimberly Green

      Diabetes Burnout & Type 1 and pregnancy

      5 years ago Log in to Reply
    6. Nevin Bowman

      The Diabetes Solution by Dr. Bernstein. I only wish I had found it decades earlier than I did.

      5 years ago Log in to Reply
    7. Julie Akawie

      Dr. Bernstein’s Diabetes Solution, by Richard K. Bernstein. Also, Think Like a Pancreas by Gary Scheiner.

      5 years ago Log in to Reply
    8. Kristen Clifford

      Diabetes Burnout: What to Do When You Can’t Take it Anymore. It’s particularly interesting because they give you a quiz at the beginning, which then guides you on how to read the rest of the book

      5 years ago Log in to Reply
    9. Gene Maggard

      I answered “no” but I had liked to read the articles at the end of Diabetes Forecast magazine written by individuals who had interesting diabetes-related stories to tell. Most were very inspiring although some were sad, but all meaningful to someone who shared their common illness.

      5 years ago Log in to Reply
    10. Don Krahmer Jr

      The Human Side of Diabetes: Beyond Doctors, Diets , and Drugs

      5 years ago Log in to Reply
    11. Kathy Hanavan

      Bright Spots and Landmines, Sugar Surfing, Think Like a Pancreas

      5 years ago Log in to Reply
    12. Gerald Oefelein

      Pumping Insulin. This is a pumper’s bible!

      5 years ago Log in to Reply
    13. Clare Fishman

      Think Like a Pancreas by Gary Sheiner helped me get more actively engaged in managing my diabetes instead of sitting back and expecting my endo to do it for me.

      5 years ago Log in to Reply
    14. Franklin Rios

      Dr. Bernstein’s Diabetes Solution: The Complete Guide to Achieving Normal Blood Sugars: A Complete Guide To Achieving Normal Blood Sugars,

      5 years ago Log in to Reply
    15. Henry McNett

      Diabetes Solution by Richard Bernstein. As a physician myself, there is no other way I would manage by DM1.

      5 years ago Log in to Reply
    16. Craig Falk

      Not Dead Yet by Phil Southerland!

      5 years ago Log in to Reply
    17. Pat Reynolds

      John Walsh’s Pumping Insulin.

      5 years ago Log in to Reply
    18. Donna Brownley

      Not a book but, the Juicebox podcast has really impacted me for the better with my management. Scott Benner has interviewed many of the authors of the books that have been commented on for this question!

      5 years ago Log in to Reply
    19. Yaffa Steubinger

      Mastering Diabetes. The two T1 authors helped me lower my insulin usage by eating more carbs, less protein/fat.

      5 years ago Log in to Reply
    20. Amanda Barras

      Diabetes Burnout

      5 years ago Log in to Reply
    21. cynthia jaworski

      Shot: Staying Alive with Diabetes by Amy Ryan Beating The Odds: 64 Years of Diabetes Health by Richard Vaughan (who, I believe, posts here) Anything by Dr. Bernstein

      5 years ago Log in to Reply
    22. Greg Felton

      Cheating Destiny, by James Hirsch, and The Discovery of Insulin, by Michael Bliss. It’s hard to explain why they affected me, but I think both broadened my perspective on the history and impact of T1D, which had only been something I thought about on a personal level. Neither are particularly uplifting, so be warned.

      5 years ago Log in to Reply
    23. Kim Pedraza

      I have read “Think like a Pancreas”. Loved it. Very enlightening. I felt the author wrote the book from my thoughts.

      5 years ago Log in to Reply
    24. PASCAL LEMIEUX

      Dr Bernstein Diabetes Solution.

      5 years ago Log in to Reply
    25. Kris Sykes-David

      Think Like a Pancreas

      5 years ago Log in to Reply
    26. Aimee Martin

      Dr. Bernstein Diabetes Solution

      5 years ago Log in to Reply
    27. Douglas Kosmicki

      The Diabetes Solution By Dr. Richard Bernstein.

      5 years ago Log in to Reply
    28. mary murphy

      There are two fiction books written by K.J. Howe which have a main character who has Type 1 Diabetes. They are espionage adventure stories, intriguing and well written. Thea Paris is the main character and the books are Skyjack and The Freedom Broker. Managing diabetes is always in the background but not directly pushed to the front of the story line. There are not many novels that have characters with a chronic illness.

      5 years ago Log in to Reply
    29. Ernie Richmann

      The Diabetic Athlete by Sheri Colberg and Think Like A Pancreas.

      5 years ago Log in to Reply
    30. Kathleen Amper

      Diabetes solution by dr Richard Bernstein.

      5 years ago Log in to Reply
    31. MARIE PEELER

      Bright Spots and Landmines by Adam Brown. Real life, “this is what I do that works” and “this is what I do that doesn’t work as well” written by an active and engaged person with TI. It was one of the first books that I read.

      5 years ago Log in to Reply
    32. Jordan Mooty

      “Not Dead Yet” by Team Type 1/Team Novo Nordisk Co-Founder Phil Southerland “Diabetes Solution” by The Bern

      5 years ago Log in to Reply
    33. Tracy Jean

      Think Like a Pancreas.

      5 years ago Log in to Reply
    34. Meghan Larson

      Think Like a Pancreas!

      5 years ago Log in to Reply
    35. Randi Niemer

      Bernstein Diabetes Solution

      5 years ago Log in to Reply
    36. Ceolmhor

      “Think Like a Pancreas”, of course. But the first book I read, which came in a very helpful welcome-to-type-1-diabetes kit from JDRF, was Mary Tyler Moore’s autobiography, “Growing Up Again: Life, Loves, and Oh Yeah, Diabetes” (2009). It was extremely helpful to me as a T1D newly diagnosed at age 72.

      5 years ago Log in to Reply
    37. kylekk@gmail.com

      Sugar Surfing

      5 years ago Log in to Reply
    38. connie ker

      I have subscribed to Diabetes Forecast for years published by the ADA. Lots of interesting reading, recipes, life stories, advertisements, new treatment options, and encouragement from the editor.

      5 years ago Log in to Reply
    39. Jena Benoit

      Breakthrough! Tells the story of the discovery of insulin. All should read! https://www.amazon.com/Breakthrough-Elizabeth-Discovery-Insulin-Medical/dp/0312611749/ref=sr_1_3?dchild=1&keywords=breakthrough+diabetes+book&qid=1613162345&sr=8-3

      5 years ago Log in to Reply
    40. Stephen Woodward

      1981, Bernstein Diabetes Solution. Started MDI, despite what my Endo said.

      5 years ago Log in to Reply
    41. Noah terracall

      Dr Bernstein’s – Diabetes Solution

      5 years ago Log in to Reply
    42. Keira Thurheimer

      Sugar Surfing and Think Like a Pancreas

      5 years ago Log in to Reply
    43. Catherine Van Hove

      Dr. Polonski’s book “Diabetes Burnout” is wonderful. Easy to read with lots of workable suggestions of how to overcome roadblocks to taking better care of yourself. Lots of examples from his years of helping people accept and live their disease. Also, how to handle other well-meaning people in your life.

      5 years ago Log in to Reply
    44. Molly Jones

      My first read was the ADA’s Complete Guide to Diabetes, then Think Like a Pancreas, and continually the national online library of medicine, PubMed. ADA helped me understand what was occurring quickly after diagnosis. PubMed and ClinicalTrials both show me the progress that is being made.

      5 years ago Log in to Reply
    45. ConnieT1D62

      I have read most of the books mentioned by others responding to this post, plus many more. Top of the list are books and chapters written by others living with T1D and how they manage and master life with it. However if I had to pick one book that really made an impact on my knowledge and understanding about diabetes it was an easy to read patient teaching manual published by Eli Lilly with a title something like “Insulin: What It Is and How it Works in Your Body”. It was given to me by a very kind and compassionate bedside RN in 1982 when I was hospitalized for a severe bout of near death DKA after a miscarriage. Reading that book changed my life and set me on a path of healing because for the first time in almost 20 years of living with diabetes I finally really understood that insulin is an essential hormone necessary for the life process in the body – that it isn’t a punishment or a drug.

      5 years ago Log in to Reply
    46. Nicholas Argento

      As some one else noted, Cheating Destiny, by James Hirsch, and The Discovery of Insulin, by Michael Bliss were both excellent on the tribulations w modern T1D (first) and the pre-insulin history second. I have a signed copy of Michael Bliss book! There are passages in there that I cannot read without getting choked up: 1) a description of a scene when Dr Allen (who worked out starvation treatment for T1D prior to the discovery of insulin) coming back to his starvation center with the first doses of insulin; 2) Dr Elliot Joslin describing the first patients treated with insulin reminding him of a biblical passage from Ezekiel, Valley of the dry bones. I also loved Breakthrough, the Story of Elizabeth Hayes, as someone else mentioned.

      5 years ago Log in to Reply
    47. Stang777

      I read Think Like a Pancreas shortly after I was diagnosed and it is the only book about diabetes that I have read, and I found it extremely helpful. It is what I learned the most from about how to manage type 1 after I was diagnosed as I didn’t learn much of anything from medical professionals. I credit what I learned from the book for me being able to live and eat normally and still keep my A1c in the non-diabetic range.

      5 years ago Log in to Reply
    48. Germaine Sarda

      Many! Most of them very good. Best (IMO): Bright Spots & Landmines (Adam Brown) A Woman’s Guide to Diabetes (Brandy Barnes, Natalie Strand) Anything by Taking Control of Your Diabetes (Edelman)

      5 years ago Log in to Reply
    49. Tim Shoppa

      Way back in the 1980’s I read one of Dr. Bernstein’s early books from that era. It was the first book I read, that discussed the real life of someone living day-to-day with T1 diabetes, and also introduced me to MDD basal+bolus insulin treatment (a big improvement over my previous twice-a-day R+N regimen that was really wacky and unbalanced in comparison).

      5 years ago Log in to Reply

    Have you read a diabetes-related book that really had an impact on you? If so, share your recommendations in the comments! Cancel reply

    You must be logged in to post a comment.




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