Samantha Walsh
Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.
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Have you participated in a diabetes-related clinical trial this year? Cancel reply
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I tried, but did not qualify for one.
Remotely thru the University of Michigan. Hypoglycemia and tips to help prevent them. Sharing CGM results thru clarity.
This year
Age 77. Considered too old for all the trials I’ve seen.
tried to qualify for the Vertex trial that didn’t require immunosuppressant drugs but my A1C was too low
Mine was too low as well. And they wanted lots of hypos which required medical intervention. I haven’t had that happen in 7 years.
knock wood, never have had a hypo that required medical intervention.
other trials for Vertex required having hypos that needed outside intervention but this one didn’t.
Same here. They only want to help those unwilling to help themselves 😳
Same here! But I had a lovely chat with one of the nurses who does the screening. Even that was an interesting process. (Here in Canada, there are fewer trials available so this was my first opportunity.)
same here. I didn’t qualify because my A1c was reasonable.
University of Michigan and Boston Hospital. Shared CGM values, took lengthy surveys, gave permission for A1c tests, etc
How do you participate in diabetes related clinical trails?
try the all of us research program
I want too.
Michigan studies. And Eli Lily dementia study. However, in the Lily study you had to remember at least 2 of the 10 things they mentioned at the start of a conversation. I could only remember 1.
Now, what was I talking about? 😴🤔
I participated in 2 clinical trials this year. One was at Mass General called T1D Beacon was a study of bone health in people with T1D over age 50. It involves 2 visits over 2 years with blood draw, ct scan, and surveys. The aim is to develop preventive measures and treatment to improve bone health in people with T1D who have a 2 to 7 fold increased risk for broken bones. The second study was the Joslin Heart & Kidney study to further understand connections between changes in cardiovascular system and early kidney disease in people with T1D. This one involved ct scan and mri of heart and kidney, blood tests, urine tests and ekg.
Too old for most, but I did share cgm results with U of Michigan.
did Michigan as well
I’ve applied to several but wasn’t selected. Guess at 77, I’m now too old.
I know and I’m only 3 years short of you {never mind my height 🙂 } 60 yrs T1, I’m a Survivor
39 years in DCCT/EDIC
We just did TrialNet for our youngest. Waiting for results!
I have not this year but have participated in several over the years. Unfortunately, there are few trials for seniors with T1D. Most have an age cut off of 65. Otherwise, I would participate in more.
Not a clinical trial as such, but have participated in numerous surveys and questionnaires from multiple university studies
PERL fenofibrate study conducted by Joslin Diabetes Center and others. Study hopes to determine if fenofibrates slow progression of kidney disease in Type 1 diabetics.
No because my A1c was too low 😡
Other – I tried, but did not get through the qualification round for any of them (3 total tries).
Would love to participate but I don’t usually qualify for 1 of 2 reasons.
1) I’m on AFREZZA.
2) my A1c is too good.
I am in EDICT the longterm epidimological follow up to DCCT.
CGM with 15 day life.
EDIC study for years, which studies how the large organs are affected by diabetes.
I have only participated in the multiple surveys for diabetes this year but keep me eye on clinicaltirals.gov and my doctors are aware of my desire for this body to be useful for science and inform me when they know of a good trial.
I’ve applied but I’m always too old (68) and I was diagnosed with LADA so no one wants to deal with that quirk. I would think that diagnosis of LADA at age 65 (with normal BG up to that time) would interest someone.
I have filled out many questionnaires but not sure I am meeting requirements. Would like to contribute anyway I can.
It was for a Dexcom sensor and a meter trial.
Nope, but keep looking forward to qualifying
I haven’t, but my doctor said she would let me know when a glucagon pump clinical trial is started in my area.