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    • 21 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      same here. I was able to get a neurologist to diagnose it as that.
    • 22 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I have developed this very weird numbness and pain in my left outer thigh which I attribute to neuropathy, although there has been no official diagnosis. Of course, like every good diabetic, I did my own research and found that it is called meralgia paresthetica. It only comes on intermittently and rarely interferes with daily functions. Rest remedies it. Having lived with T1D for 56 years so far, I consider myself to be pretty lucky...so far.
    • 23 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I feel the same way. I'm never sure who to believe or how to get a valid assessment.
    • 23 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 3 hours, 6 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 3 hours, 7 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 5 hours, 56 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 6 hours, 44 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 9 hours, 51 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 9 hours, 52 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 10 hours, 11 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 10 hours, 12 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 10 hours, 25 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 23 hours, 22 minutes ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 23 hours, 23 minutes ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 7 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 10 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 10 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 10 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 10 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 10 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 7 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
    • 3 days, 9 hours ago
      Lawrence S. likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      I’ve been a T1D for about 50 years. After about 10 years I moved towards a more whole food diet with only small amounts of meat. I seem to consume 100-150 grams of carbs per day and try not to eat more than 30-40 grams at a time.
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    Do you approach strangers in public who have visible diabetes devices?

    Home > LC Polls > Do you approach strangers in public who have visible diabetes devices?
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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    18 Comments

    1. Steven Gill

      I’ve had people comment on my tubing or even medical alert bracelet.

      1 year ago Log in to Reply
    2. stillarobyn

      I’ve never not made a comment about it while out in public. It’s nice to recognize your people.

      3
      1 year ago Log in to Reply
    3. Lawrence S.

      I was stuck between, “Yes, every chance I get,” and
      “Yes, sometimes, depending on the exact situation.” I take every opportunity to introduce myself to every T1D I see, but sometimes the situation does not allow it.
      I’ve always had a feeling of loneliness about my diabetes, because so few people know or care anything about it. If I get a chance to talk with someone, or even help someone possibly having a low blood glucose (which happened years ago about 2 or 3 times), I take advantage of the opportunity. And who know, maybe have a new friend.

      3
      1 year ago Log in to Reply
    4. Sherolyn Newell

      I have to say I don’t know. I’ve never noticed anyone with visible devices. I have had people approach me a couple times.

      1
      1 year ago Log in to Reply
    5. Jane Cerullo

      I have not approached anyone. Probably because lack of opportunity. Have not seen many devices on people. On the other hand, have had people approach me about Dexcom CGM. Happy to educate.

      2
      1 year ago Log in to Reply
    6. Nicholas Argento

      I don’t usually approach but if I see someone w a diabetes device and they seem open to it, I smile give a thumbs up and point to mine. We are a community…:)

      5
      1 year ago Log in to Reply
    7. Janice B

      I have only done it a couple of times. It is not something that I think is appropriate in most situations.

      1
      1 year ago Log in to Reply
    8. cynthia jaworski

      “every chance I get” applies only to devices. (When I have noticed liposystrophy, or other physical things, etc, in the past, I said nothing, although there was often an opportunity to get acquainted later.

      1 year ago Log in to Reply
    9. Anita Stokar

      I put “yes, but depending on the situation”, but it is extremely rare

      2
      1 year ago Log in to Reply
    10. Janis Senungetuk

      I have when it didn’t seem too intrusive, such as waiting in the grocery check-out line or at the airport during a lay over. I’ve met some nice people that way.

      2
      1 year ago Log in to Reply
    11. Ahh Life

      I’ll talk to anyone anywhere. Most people with medical devices are pretty friendly in grocery stores. gas stations, and drug stores. 😉

      The only really ugly ones are the political wacko’s with huge chips on their shoulders. They are far from nice to talk to. 🔇

      2
      1 year ago Log in to Reply
    12. kilupx

      I may just be very unobservant but I have never noticed someone using diabetic devices in public. How I wish I could, since I don’t know anyone else with T1D and would love the opportunity to connect.

      3
      1 year ago Log in to Reply
    13. Becky Hertz

      I don’t necessarily approach strangers, but if I catch their eye I’ll give a nod to my pump or CGM.

      1 year ago Log in to Reply
    14. Trina Blake

      I’m with Nick Argento. I try to get their attention to the facat my “accessories” are like theirs. Usually a conversation starts and we both like the fact that there are members of our “tribe” all over the place.

      2
      1 year ago Log in to Reply
      1. Kathy Hanavan

        Yes, connecting with strangers with T1d almost always means they are no longer strangers. Nice way to connect.

        1 year ago Log in to Reply
    15. William Rone

      If I have reason to look at my pump in the proximity of another pump wearing person, I will comment on how often I view my pump.

      1 year ago Log in to Reply
    16. LizB

      I live in NYC, a massive city, and have yet to see a visible piece of diabetes tech on anyone. Some people do everything they can to hide it. In cooler weather clothes can cover it all up. Maybe I should pay more attention to random people next summer!

      1 year ago Log in to Reply
    17. KarenM6

      I don’t tend to approach people. But, I was just approached last night in the airport!

      1 year ago Log in to Reply

    Do you approach strangers in public who have visible diabetes devices? Cancel reply

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