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    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 7 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 7 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 9 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 13 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 15 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 15 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 16 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 16 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 8 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 10 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 12 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 13 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 15 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Have you had any issues obtaining life insurance because of T1D?

    Home > LC Polls > Have you had any issues obtaining life insurance because of T1D?
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    If you have never participated in a T1D research study, what stops you from participating? Select all that apply to you.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    24 Comments

    1. Anthony Harder

      My parents bought a life insurance policy for me as an infant before being diagnosed with T1D. I have never purchased life insurance individually because of the extremely high cost, proof of eligibility, and low benefit. I have purchased life insurance through employers, but extending it has the same issues as individual purchase.

      3
      5 years ago Log in to Reply
    2. Philip Bunsick

      I am not able to get life insurance on my own. I have high blood pressure also but for some reason the industry seems to think I am going to drop dead tomorrow. The only life insurance I am able to get is Group insurance or if I am luck to be able to get guaranteed issue – which I found and took advantage of for a small amount of coverage.

      5 years ago Log in to Reply
    3. Henry Renn

      In early 1980s had offer of group insurance for diabetics. Disqualified bc I was diagnosed before age 5. Missed cut off by 5 months. I’m still here. Dropped individual $10K policy that had been converted from group life after retirement. Increase in rates showed that company was encouraging people to drop it. Holding down funeral costs by choosing cremation & burial in church memorial garden.

      5 years ago Log in to Reply
    4. Kristine Warmecke

      I was lucky, my parents bought life insurance for myself & my brother before either of us were diagnosed. Thankful for this, as my brother was diagnose at 7 months old.

      5 years ago Log in to Reply
    5. connie ker

      Fortunately, I had life insurance before diagnosis and so does my son who is an adult now with T1D. He has very low premiums because he was young and healthy when his policies were purchased. My husband bought 2 policies rated up because of his T1D and the premiums ballooned higher and higher each year that he lived. We managed to keep those policies, but they became cost prohibitive as he aged into his 80s. I had trouble getting health insurance and was on the state high risk plan which was replaced with OBamaCare. Thankfully, the doors opened up that year and I could get onto Medicare with a supplement and RX plan. Who knows what to expect forthcoming.

      1
      5 years ago Log in to Reply
    6. Greg Felton

      I am lucky to get basic life insurance for myself through my employer’s benefit package, but I can’t “enhance” the policy without “evidence of insurability” (the insurer’s term) and T1 disqualifies me.

      5 years ago Log in to Reply
    7. Jimmy Boling

      Was able to purchase but was rated.

      5 years ago Log in to Reply
    8. Joan Fray

      Tried to get it when Our son was born, for myself, but t1d at age 12 made it way too expensive. We bought land in California instead. He will be well fixed when we die

      2
      5 years ago Log in to Reply
    9. Megan W

      I only have term life through my employer. I can increase it by 10k every year without having to do the evidence of insurability, so I do that as it isn’t too expensive. Otherwise, it is much too cost prohibitive or I won’t be approved to have a policy on my own. I prefer to save through other avenues because of that.

      5 years ago Log in to Reply
    10. Nicholas Argento

      Expense was a major issue. I was rated at 400% even with good control and no meaningful complications, many years ago. I got it with multiple small policies over time, some as term which did not require medical screening, but have now let them all lapse, because their cost was going up too much based on my age, and my kids are grown, etc. No longer worth it.

      1
      5 years ago Log in to Reply
    11. Derek West

      I did not have an issue obtaining life insurance but I did have to pay a higher premium because of T1d

      1
      5 years ago Log in to Reply
    12. Alison Neumann

      My mortgage company denied life insurance for me, but accepted for my healthy husband. Instead we went to our independent insurance agent who found a great life insurance option for me, although it is about $100 more per year than my husband, but I’m happy with the coverage.

      1
      5 years ago Log in to Reply
    13. Bob Durstenfeld

      The only way I could get life insurance that was not tied to an employer was on a chance employment that offered a roll over policy upon leavjng.

      5 years ago Log in to Reply
    14. Alyne Branson

      I have term life but it is more expensive than my husband’s and he has more family history or problems. All I have against me it the T1D.

      1
      5 years ago Log in to Reply
    15. Steve Rumble

      Years ago I was charged a higher premium for whole life. I subsequently cancelled that policy and obtained term life through my Federal employment. That policy got more expensive as I aged, but I had less need of the insurance once my kids were grown and let it revert to 25% (free) once I retired,

      1
      5 years ago Log in to Reply
    16. Jerome McClellan

      I have term but pay 3X what my wife’s premium is. Both the same age. Fortunately the policy has been the same price for 20 years and we’ll probably drop it in 4 years once my son’s out of college.

      5 years ago Log in to Reply
    17. Lynda Covello

      I find that insurance companies do not distinguish between Type 1 and 2, with the result that the larger and generally older Type 2 population obscures the Type 1 data and skews the ratings so that Type 1 is penalized with unfairly inflated premium rates — as far as i am aware, this hasn’t changed since 1983, when i first applied, at the 10-year mark of living with Type 1.

      1
      5 years ago Log in to Reply
    18. Ken Raiche

      No problem what so ever just super expensive.

      5 years ago Log in to Reply
    19. KarenM6

      I’ve been flat denied life insurance a couple of times. I didn’t even get a chance to be offered super expensive life insurance!

      5 years ago Log in to Reply
    20. Julie Akawie

      Like many have already said, my parents purchased LI for me as a child, which I’m certain has a TINY payout. I also get guaranteed coverage from my employer, but will never apply for any additional coverage that requires a statement of fitness. The actuaries do not seem to care that my A1c is below 6%, or that my weight is stable, or that people diagnosed before the age of 5 statistically have a lower rate of kidney failure or other life-threatening complications. Sigh. Now that my kids are older, it’s less of a concern, but I’m still a bit cranky about it all.

      5 years ago Log in to Reply
    21. Cheryl Seibert

      Yes, I am unable to get an affordable individual life insurance policy. However, I always have taken out supplemental life policies through my employer. At exit from the company, they are normally convertible to private policies without re-enrollment questions about health conditions.

      5 years ago Log in to Reply
    22. Ginger Vieira

      Insurance companies treat T1Ds like we’re a walking death sentence. They’re basing this on extremely outdated data about the longevity of people with T1D and it’s really, really wrong!

      1
      5 years ago Log in to Reply
    23. Sally Numrich

      It has always been an issue. Anyone with diabetes or cancer is done. I can now only get it through work.

      5 years ago Log in to Reply
    24. NAK Marshall

      I was able to get it during the one time my school district (I was a teacher) offered it from a company that had no medical questions. I had researched and researched and no company would do it and they absolutely did not care how well controlled I was and had no side effects although I’d been Type 1 already for 35 years. so I was lucky.

      5 years ago Log in to Reply

    Have you had any issues obtaining life insurance because of T1D? Cancel reply

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