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    • 8 hours, 8 minutes ago
      Tracy Jean likes your comment at
      Do you feel like diabetes-related decisions take more time and energy than other people realize?
      Most people think you wear a pump and it does everything. They have no idea about pre-bolus for food and adjustments, site changes or any of the other issues and decisions and actions we make every day.
    • 16 hours, 52 minutes ago
      Laurie B likes your comment at
      Do you feel T1D has made you more adaptable to change, in general?
      It's a difficult hypothetical to answer. I was very adaptable when I was young. I still am adaptable. However, we have to be adaptable to live with this disease.
    • 17 hours, 5 minutes ago
      Danielle Eastman likes your comment at
      Do you feel T1D has made you more adaptable to change, in general?
      It's a difficult hypothetical to answer. I was very adaptable when I was young. I still am adaptable. However, we have to be adaptable to live with this disease.
    • 17 hours, 6 minutes ago
      Danielle Eastman likes your comment at
      Do you feel T1D has made you more adaptable to change, in general?
      I think it's actually made me go the opposite way - I really don't like change and cling to my routines 😂
    • 19 hours, 40 minutes ago
      lis be likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      A choice that was not available but one that is really needed is: " Aging with Type 1".
    • 20 hours, 19 minutes ago
      Ahh Life likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      A choice that was not available but one that is really needed is: " Aging with Type 1".
    • 20 hours, 19 minutes ago
      Ahh Life likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      For me, a “cruise director” for long-term Type 1 diabetes or chronic illness would be most beneficial — someone who looks at the whole person. General practitioners are increasingly rare, and specialists tend to work in silos, often without coordinating care, considering overlapping conditions, or cross-checking medications and prognoses. What’s needed is a knowledgeable care coordinator who understands long-term Type 1 diabetes, can help interpret conflicting specialist advice, guide patients toward the right specialist for specific symptoms (for example, whether migrating burning pain is diabetes-related or not), and maintain referral lists of providers who already understand how long-term diabetes affects their specialty.
    • 1 day, 8 hours ago
      Ahh Life likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      Funny you should ask, and I'm with Amanda Barras - dealing with the US insurance and networks system. I switched health plans, effective 1/1/26. My old plan stopped processing Rx's two weeks before (Rx's for pump and CGM supplies). With the network system in US healthcare, I can't see a doctor until September. Since I have different coverage for my supplies (including insulin) I need new Rx's. Having to check in often to see if their are open appointments from cancellations, and trying to see if a Zoom care or Urgent care will provide "bridge refills". My old health plan will not issue bridge refills. I 'spose it isn't strictly a T1D issue - but it's one that unites all of us with chronic medical conditions (and chronic poor medical service)
    • 1 day, 8 hours ago
      Ahh Life likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      Dealing with insurance coverage and getting claims approved due to coordination of benefits issues. We should not have to hold the hands of insurance and billing specialists in order for them to do their job so our medical bills get paid. Correctly. I have thought about going to school for medical billing jay to have more inside knowledge of how things work so I can articulate the problems more effectively and get resolution quicker.
    • 1 day, 12 hours ago
      Marty likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      Funny you should ask, and I'm with Amanda Barras - dealing with the US insurance and networks system. I switched health plans, effective 1/1/26. My old plan stopped processing Rx's two weeks before (Rx's for pump and CGM supplies). With the network system in US healthcare, I can't see a doctor until September. Since I have different coverage for my supplies (including insulin) I need new Rx's. Having to check in often to see if their are open appointments from cancellations, and trying to see if a Zoom care or Urgent care will provide "bridge refills". My old health plan will not issue bridge refills. I 'spose it isn't strictly a T1D issue - but it's one that unites all of us with chronic medical conditions (and chronic poor medical service)
    • 1 day, 12 hours ago
      Daniel Bestvater likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      Something better AND less expensive- ideally a cure!
    • 1 day, 13 hours ago
      Tracy Jean likes your comment at
      What part of managing T1D takes the most mental energy for you right now?
      Frustration (with insurance, living in Minneapolis, and general stress) that makes me want to eat all the carbs. :)
    • 1 day, 16 hours ago
      Steve Rumble likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      Something better AND less expensive- ideally a cure!
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      What kind of diabetes-related support would be most helpful to you right now?
      I'll take all the support I can get. Good knowledgeable support that you cannot get from reading a book.
    • 2 days, 4 hours ago
      Bruce Schnitzler likes your comment at
      When you plan to be physically active, how much mental effort does T1D usually add before you start?
      Breakfast is my main meal of the day, so aerobics in a warm pool, weight lifting with ten lb hand weights, and taking my over- loved dog for walks follows. I’ve had the same routine for 15 years, the joys of retirement. I’m going to be 80.
    • 2 days, 17 hours ago
      Deborah Wright likes your comment at
      When you plan to be physically active, how much mental effort does T1D usually add before you start?
      All depends on the type of activity and the duration of the activity.
    • 2 days, 17 hours ago
      atr likes your comment at
      When you plan to be physically active, how much mental effort does T1D usually add before you start?
      At 67, my exercise is usually consistently 30 minutes of yoga as soon as I wake up (no thought necessary to T1D - dawn effect makes sure I don’t go low and breakfast right after takes care of any slight high; walking - just take tablets with me if I go low; I used to do some biking but haven’t in a while; YouTube standing exercises for those over 50 - usually go low but eat something after. No real surprises anywhere that tablets won’t handle.
    • 2 days, 17 hours ago
      Lawrence S. likes your comment at
      Has diabetes technology increased or decreased your mental load?
      That is hard to say. It is definitely more of a hassle to keep my sugar under control now with technology as I look at my sugar levels more often and make more decisions about how many carbs I am eating and wondering if my pump settings are correct. But I have less stress about having a low blood sugar,
    • 2 days, 17 hours ago
      Lawrence S. likes your comment at
      Has diabetes technology increased or decreased your mental load?
      Control IQ has been a big boon for daily management. CGM too, my fingers had grown tired of being poked.
    • 2 days, 17 hours ago
      Lawrence S. likes your comment at
      Has diabetes technology increased or decreased your mental load?
      I don't think pumps fail periodically. I find a pump way more reliable than a CGM. Realistically though, yes they are a big investment if you get the kind where you have it for years under warranty. With other pumps like an Ipod or the new Twiist, you can try them out for a while under pharmacy benefits and discontinue them if you don't like them.
    • 2 days, 17 hours ago
      Lawrence S. likes your comment at
      Has diabetes technology increased or decreased your mental load?
      It was working wonderfully for several years, but then in the last six months, my Medtronic 780+ G4 guardian sensors have failed so often that I now have so much trouble that I often wonder if it’s worth it. But then I remember how up and down my blood sugars were when I was taking injections for 50 years and I give my head a shake..
    • 2 days, 17 hours ago
      Lawrence S. likes your comment at
      Has diabetes technology increased or decreased your mental load?
      I went from using two kinds of insulin, taking a BG reading (poking myself) 10-12 times a day, to using one kind of insulin, building a DIY app about monthly, monitoring my watch/phone/app frequently. Is that a time improvement? I think so. Is it a reduced mental load? I'm not sure. Is it more simple or better mentally? Yes, greatly! Is it an improvement in my lifestyle? Definitely! Is it a simple answer? Definitely not! Is it improvement medically? Definitely better control, better #s, but what I've done is trade one mental load for another. Do I still worry, yes, but it's a reduced amount. Do I still wish T1 had never entered by life? Yes. I'd be a fool not to wish it had never entered by life, but that's wishful thinking. It's here; I and my wife still have to deal with it; I have to think about what my plans are for the next couple of hours and respond or risk going low, or high, or staying the same. Does it impact my life, still a definite yes.
    • 3 days, 2 hours ago
      Sandy Norman likes your comment at
      Has diabetes technology increased or decreased your mental load?
      I went from using two kinds of insulin, taking a BG reading (poking myself) 10-12 times a day, to using one kind of insulin, building a DIY app about monthly, monitoring my watch/phone/app frequently. Is that a time improvement? I think so. Is it a reduced mental load? I'm not sure. Is it more simple or better mentally? Yes, greatly! Is it an improvement in my lifestyle? Definitely! Is it a simple answer? Definitely not! Is it improvement medically? Definitely better control, better #s, but what I've done is trade one mental load for another. Do I still worry, yes, but it's a reduced amount. Do I still wish T1 had never entered by life? Yes. I'd be a fool not to wish it had never entered by life, but that's wishful thinking. It's here; I and my wife still have to deal with it; I have to think about what my plans are for the next couple of hours and respond or risk going low, or high, or staying the same. Does it impact my life, still a definite yes.
    • 3 days, 6 hours ago
      KCR likes your comment at
      Has diabetes technology increased or decreased your mental load?
      Having been diagnosed in my 70’s 3 years ago, I have always used a CGM. I now have a Smart Pen and Apple Watch. As a retired nurse, I’m grateful for the relative simplicity of this technology as compared to what I saw during my career. Still wish this disease wasn’t mine, but it’s in good control and I plan to keep it that way. T1 still takes up space in my life, but so would any chronic condition.
    • 3 days, 6 hours ago
      KCR likes your comment at
      Has diabetes technology increased or decreased your mental load?
      My CGM replaced pondering about where it may is bg with knowing where it is. Though I spend considerably more time reviewing and dealing with my bg that is preferable to not knowing and wondering.
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    If you have never participated in a T1D research study, what stops you from participating? Select all that apply to you.

    Home > LC Polls > If you have never participated in a T1D research study, what stops you from participating? Select all that apply to you.
    Previous

    Have you had any issues obtaining life insurance because of T1D?

    Next

    In the past 5 years, have you participated in any T1D research studies? If so, what types of research have you been part of? Select all that apply, including if multiple statements apply to one study.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    7 Comments

    1. Anne Blayney

      Most trials seem to take place in other countries. I’ve never had the opportunity to participate in one in Canada.

      5 years ago Log in to Reply
    2. Yaffa Steubinger

      I tried to participate in a recent study of T1 diabetics and exercise but they didn’t like my EKG. Doctor doesn’t have a problem with it (I have occasional fast heartbeats but it’s never bothered me and I’m a fitness instructor.). I’m willing to participate in other studies.

      5 years ago Log in to Reply
    3. lis be

      I wanted to sign up for a couple in the last few years, filled out the forms, then got to the page that said privacy could not be guaranteed. I’m sure this is differs depending on the study

      5 years ago Log in to Reply
      1. Sue Herflicker

        same here! I fill out all the forms and then I read that part and say forget it!

        5 years ago Log in to Reply
    4. Steve Rumble

      In the late 1980s I participated in a study at NIH regarding a drug that could address problems diabetics have with deterioration of capillaries in the eyes.

      5 years ago Log in to Reply
    5. Cheryl Seibert

      I participated more than 5 years ago, but not in the past 5 years. I have had multiple opportunities where I could participate remotely, however I am primary caregiver for an elderly relative that does not live in the same town, so my time and availability is very limited. Cost would be a concern as I am also retired. I missed the opportunity on many studies posted through T1D Exchange due to my inability to commit to a set date and time with care of my relative.

      5 years ago Log in to Reply
    6. Sally Numrich

      NA- I participate in many trials.

      5 years ago Log in to Reply

    If you have never participated in a T1D research study, what stops you from participating? Select all that apply to you. Cancel reply

    You must be logged in to post a comment.




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