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    • 12 hours, 31 minutes ago
      Greg Felton likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 13 hours, 3 minutes ago
      ConnieT1D62 likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      One time I was explaining that a new pump would be too expensive at the time because my deductible had just started over.. and she asked if I had insurance and I said yes….. then she said “then it should be free with insurance.” 🤦‍♀️ She may know a little about the challenges of living with diabetes, but she knows nothing about how insurance works or how costly T1D supplies are.
    • 13 hours, 21 minutes ago
      Steve Rumble likes your comment at
      If you have T1D, have you ever dated or married someone who also has T1D?
      I fell in love with an insulin-dependent Type 2 20 years ago. There’s something terribly romantic about taking Lantus together at the end of the day.
    • 13 hours, 52 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I am an RN. Been going to same doctor for about ten years. Took me six years to train him. I am very well read when it comes to my LADA. He trusts my judgement and gives me excellent parameters to make decisions. Recently had a bad case of Covid. Insulin needs changed dramatically. Getting back to normal but he made sure I had scripts to cover my ups and downs with insulin needs.
    • 13 hours, 53 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Mine acknowledges the struggles and challenges that go along with managing T1D in my daily life. She gives suggestions as to what may or may not help and has often asked me I how I handle situations so she can give suggestions to other T1D patient's.
    • 13 hours, 54 minutes ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 14 hours, 19 minutes ago
      Jubin Veera likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      The hard spots are fairly frequent with the pump infusion sets. Especially if I go past 3 days which I try to avoid! I don’t think I ever got one from injections. I try heat and massaging to treat them and they normally go away after a day or so. Once I had a large area that I had to treat with antibiotics.
    • 14 hours, 21 minutes ago
      Magnus Hiis likes your comment at
      Have you experienced any symptoms of physical sexual dysfunction as a result of having diabetes, or having diabetes-related complications?
      I’m 79. My last orgasm was springtime about 3 or 4 years ago. When I complained of ED, my PCP Rxd 3 to 5 (60-100 mg) sildenafil tablets by mouth about one hour prior to sexual activity. This alone hasn’t worked to bring me up to former sexual capacity that I had 10 years years ago. I’m still considering consulting finding a doctor who’ll prescribe a safe but effective way of administering testosterone or an anabolic steroid in a dose low enough to avoid causing cardiovascular problems but high enough to restore normal ability that I had up to my sixties. My present doctors say it can’t be done, but there are doctors who advertise otherwise. Analogs of the hormone insulin can be delivered in small safe doses, why not testosterone?
    • 1 day, 6 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      We are all so very different, and trying to say that all of us with T1 understand what it's like for another who has the same hill to climb is unproductive. Having a health care provider with T1 may often be helpful just because there's apt to be more knowledge about the specifics. How we respond to the disease is such a personal matter, that I really don't think there are any guaranteed benefits beyond the grasp of the factual. Finding a doc with the same general attitude about the disease does feel good, and sometimes that's all I hope for after working hard to make peace with the disease for 70 years. Asking my doc to "get it" used to be almost my mantra, but I've come to realize that the ones who don't just see us as unruly childrenchildren
    • 1 day, 6 hours ago
      Becky Hertz likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Both my endocrinologist and my nurse practitioner are great. They compliment me on the way I take care of my life and health and make aure I get all the supplies I need managing all the paperwork Medicare and insurance requires. My nurse practitioner who works with me on managing the pump has her own opinion about the pump settings based on her technical knowledge which is different than what I do with my settings based on living with them. She has thru the years learned to respect what I do and is surprised with how my settings work. So we are now at peace. Both very supportive.
    • 1 day, 9 hours ago
      pru barry likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 9 hours ago
      mojoseje likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I said yes but that refers to my nurse practitioner who sees me every other visit, if not more often. The doctor may know how hard I try but perhaps takes my efforts for granted.
    • 1 day, 11 hours ago
      Anneyun likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      How can someone without the disease really understand what it is to live with it? I have never had a doctor with T1D in 60 years.
    • 1 day, 12 hours ago
      Bruce Schnitzler likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 12 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My endo is young, very empathetic, thorough, always asks for my input, and does research. I am blessed too. have him, and the one before for over 25 yrs.
    • 1 day, 12 hours ago
      Kristine Warmecke likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      Yes. However, for those of you who assert, "It takes one to know one," the same might be said of age. Geriatrics is a marvelous array of marvels.
    • 1 day, 12 hours ago
      lis be likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      None of my endocrinologists or NPs have had T1D but I always discuss my challenges and they are incredibly helpful. What I always find astonishing is they are constantly amazed at how well I’m doing even when i don’t think I’m doing that well because most of their patients have nowhere near the A1c’s I’m able to achieve. And just hovers in the 6’s!
    • 1 day, 13 hours ago
      Daniel Bestvater likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 13 hours ago
      TEH likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      I have no clue what my T1D health care provider understands about my daily challenges and I don’t know about his daily challenges either. Not sure why I should care as long as I have access to information how to best take care of myself.
    • 1 day, 14 hours ago
      Jeff Marvel likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 1 day, 14 hours ago
      Richard Wiener likes your comment at
      Do you feel that your T1D healthcare provider understands the daily challenges and work that goes into living with T1D?
      My provider does not have T1. Only someone with it can truly understand the various daily challenges and worth it takes to manage this.
    • 2 days, 5 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Hi Connie, I still have my glass syringe and show it off occasionally. We boiled the needle and syringe every morning and sharpened the needle with a file. I was diagnosed at age 6 in 1963. Life is so different now! Then, my diet was extremely limited as was my exercise. Now, I am very active and eat pretty much as I please. I maintain an A1C in the low 6s (6.2 was my last).
    • 2 days, 5 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Connie and Beth, I was diagnosed in Nov 1962, age 10. During the early years I developed lumps and indentations on my upper thighs from my injections. In fact, I was able t o spot other t1 kids in my junior high school based upon the lumps in their upper arms.. (I eventually met up with them and learned that I was correct.) By the time I reached my twenties, these indentations had more or less disappeared, but I still have remnants of the lumps. I wish I could say that the layers of tissue now deposited on my legs disguises them, but they don't. I think the changes in insulin have been responsible for this improvement: the isolation and purification of animal insulins were refined, and then the various human clones were game changers in many ways.
    • 2 days, 5 hours ago
      sweetcharlie likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      Yes in my upper arms when I was a petite and skinny child in the 1960s with T1D. In those days we used glass syringes with stainless steel 1/2 inch long heavy gauge needles. My mother would jab me in the upper arms, it hurt like the dickens, and I developed several hard nodules. I was diagnosed at age 8 in December 1962 and after the initial two months of her jabbing me in the upper arms, I took over giving my own "shots" and started self injecting via site rotation in my thighs for several years. Eventually the lipohypertrophy in my upper arms resolved and I never injected there again until many years later as an adult on MDI using disposable syringes with very short and fine gauge needle tips. Periodically I would give my tired pin cushion thighs a rest and take a break for a few months or a couple of years and rotate injections in my abdomen or upper arms. Have been using a pump for over 20 years now and rarely use MDI unless I am taking a pump break for a short period of time. Happily, I no longer have lumpy sites.
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    Do you currently have an unexpired glucagon kit? If so, what kind?

    Home > LC Polls > Do you currently have an unexpired glucagon kit? If so, what kind?
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    Have you ever used inhaled insulin? Share your experience in the comments!

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    If you use a CGM, on a scale of 1-5, how satisfied are you with the accuracy of your CGM? (1 = least satisfied, 5 = most satisfied)

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    25 Comments

    1. Wanacure

      I’m a little confused. People use nasal glucose and nasal insulin. But my pulmonologist warned me the respiratory system was “not designed” for medical marijuana; it’s all hype. Maybe I should have asked her about cooling and filtering marijuana smoke thru a water pipe, a bong?

      For low bg, I’m trying to think like a pancreas and just use 1 or 2 sugar cubes (4-8 grams sugar) and waiting 15’ to test bg again. I try to catch rising bg with just 1 unit of injected lispro if above 130. This helps me avoid having to take an extra 2 or 3 units later.

      1 year ago Log in to Reply
    2. Lawrence S.

      I answered “no”. But, I recently threw out my old expired glucagon when I got a new prescription of Gvoke hypo-pen.

      1 year ago Log in to Reply
    3. Gary Taylor

      I answered “no” but I do have an expired (2019) glucagon kit, the powder/liquid mix kind. Would it still work if I had to use it? What is the real purpose of “expiration dates”?

      1 year ago Log in to Reply
      1. Stang777

        The only time one was used on me, it was the kind you described and had been expired for over 4 years, may have been 5 years, and it worked great.

        1 year ago Log in to Reply
    4. Kristen Clifford

      I had a glucagon kit a long time ago, which included a syringe filled with liquid and a vial of powder. You had to inject the liquid into the powder, shake it, and then draw it out again. It was given to me in 2008 when I was first diagnosed. I kept it for about three or four years, but I eventually threw it out because I was afraid it was no longer effective.

      1 year ago Log in to Reply
    5. Sherolyn Newell

      I’ve never had a glucagon kit. I’ve had two different Endo’s and neither one ever prescribed one or said I should get one. I’ve always wondered why not, but never think to ask.

      1 year ago Log in to Reply
      1. AnitaS

        If you actually want one, keep a list of concerns the next time you go see your doctor to prevent you from forgetting to ask about any medical concerns.

        1 year ago Log in to Reply
    6. Francisco Varea

      I have two that expired ages ago. I have never used one.

      1
      1 year ago Log in to Reply
    7. Anna Kiff

      I think the last time a glucagon kit was in “my” possession was in the 1970’s as a teenager. Leaving home at 16, I never thought to buy one and even now, here at least in Canada where I currently live .. I’ve so far never had such a bad low that I cannot manage it on my own. Plus you’re looking at an average cost of $150.

      1
      1 year ago Log in to Reply
    8. Ken Raiche

      I’ve had a couple of these over the years and have never used them which becomes a unnecessary expensive. Without a doubt it’s a potentially helpful preventative but with the CGM and pump situation that I’m living with I have opted out.

      1
      1 year ago Log in to Reply
    9. Joan Fray

      Yes! First time in all my years as T1d. My new endo prescribed and Kaiser paid for it. Never gone low enough not to treat it myself though .

      1
      1 year ago Log in to Reply
    10. Louise Robinson

      The Lilly Glugacon pen we have expired in Nov 2018. I haven’t needed glucagon since I began using a pump in 2011. I learned the hard way in 2010 that using an expired glucagon pen will not work as well as one that is not expired. While on vacation in Idaho (I live in Florida), my husband couldn’t wake me on our first morning in Pocatello. He injected me with glucagon (which had worked well in the past) and, although I became conscious and ambulatroy, I was confused and incoherent. He drove me to the nearby hospital. I was admitted because they feared I might have suffered a stroke. After multiple tests, I was discharged the next day after the determination that I had suffered severe hypoglycemia. Luckily, there were no long-lasting effects but we cancelled our vacation. I should toss the expired glucagon pen we have.

      1
      1 year ago Log in to Reply
    11. LizB

      No. When I was first diagnosed in 1987 we got one but never had to use it. It said in the fridge for years. When I moved out on my own I never got one because even though I had some severe lows, at those times I would not have been able to administer the glucagon to myself. Now I know they have the nasal kind that you can leave by your bed, but being on a pump & CGM has prevented those super scary lows. Also, my insurance doesn’t cover ANY of the available glucagon types.

      1 year ago Log in to Reply
    12. Bob Durstenfeld

      I have2 Glucagon dry powder kit, I never used either one. In fact, in 66 years with T1D I have never used Glucagon

      1
      1 year ago Log in to Reply
    13. Marty

      I just got a nasal glucagon kit this week. It cost me more than $500, but I decided it was a good way to spend out my deductible for the year. I haven’t kept glucagon around because I live alone and wouldn’t be able to use the mix-and-inject kind myself. I’ve only had a severe hypo once, decades ago, but I feel that the risk of a severe hypo might be greater if I ever have to use large boluses to bring down high blood sugars associated with an illness like Covid. Hope it never becomes necessary-Knock on wood!!!

      1
      1 year ago Log in to Reply
    14. Andrew Stewart

      I have several Baqsimi nasal spray glucagon kits and keep one in my car, my wife’s car, my softball gear bag and surfing gear bag. It is so easy to use and there were no bad side effects for me the one time I needed to use it. I was fasting for some lab tests and my CGM had me trending low (low 70’s mg/dl) an hour before my lab appointment draw so I used one of my Baqsimi nasal devices to bring me back up to low 100’s mg/dl and the lab was none the wiser and I didn’t violate the fasting order. https://www.baqsimi.com/

      1
      1 year ago Log in to Reply
    15. Jeannie Hickey

      I have expired powder mix, and will use it if needed!

      1 year ago Log in to Reply
    16. Anthony Harder

      I do not use glucagon. All of my contacts don’t like using it. Their choice is to feed me some type of sugar concoction.

      1 year ago Log in to Reply
      1. AnitaS

        If you are unconscious however, feeding a type of sugar isn’t recommended. You can have a different opinion, but inhaled insulin (baqsimi) is so easy to use that I would think your contacts could handle just spraying it up your nose. No need to mix any solutions or need to inject any medicines with a needle

        1 year ago Log in to Reply
    17. Teri Morris

      Price is too prohibitive for this life-saving device which is a real injustice to Type 1s everywhere.

      2
      1 year ago Log in to Reply
    18. George Lovelace

      Have never had nor used Glucagon in 57 years, EMT gave Dextrose.

      1 year ago Log in to Reply
    19. Patricia Dalrymple

      Only time I needed it was at 5:30am an hour before surgery and couldn’t eat or drink. For that reason, I’ve continued to keep an unexpired one around. My Endo asks me if I need one. The alternative was to rush to the hospital and get something intravenously. My husband came up with the idea. I was very proud of him. I needed to be at 140 BG before surgery and hit it exactly on the mark. He gave me the exact amount I needed. Amazing!

      1 year ago Log in to Reply
    20. Sherrie Johnson

      These should be free to Type 1 diabetics lor treated as DME at a reduced rate. It’s outrageous.

      1
      1 year ago Log in to Reply
    21. Cheryl Seibert

      I’ve never used glucagon. May not be the wisest decision, but I was diagnosed long before glucagon was available and I’m still here. Probably a good conversation to revisit with my endo.

      1
      1 year ago Log in to Reply
    22. Stang777

      The first few years of having type 1, I didn’t have one, my endo never mentioned it, and luckily I never needed it. When he retired I went to a new doc who asked right off if I had one and prescribed one for me. It was the Glucagon Kit that needed to be mixed and injected and it sat in the drawer, unneeded so unused for years, but one night while sleeping, I had a seizure and was unconscious so my husband used it on me. It worked great and my husband said it was no big deal to mix it up and inject it. It saved my life and saved valuable time that it would have taken for EMT’s to get here, not to mention saving me the expense of EMTS, as well as the embarrassment and hassle of coming to with EMT’s all around. We had no warning that something like that was going to happen that night, it was totally out of the blue and I am very grateful we had the Glucagon Kit, which we would not have had had I not gone to a new doc, who wasn’t even an endo. I will always be grateful for him.

      The one that was used on me had been expired for about 4 years, but it worked great. I will now keep the expired ones to be used first, but always want an unexpired one on hand just in case the expired one doesn’t work.

      I did get some of the Baqsimi when it first came out, but once I read many reviews since then where it was literally and basically described as having a lit firework shoved up the persons nose, leaving them with a massive headache and burning feeling in their nose that lasted hours, and for some, days, I have gone back to the Glucagon Kit that needs to be mixed. I had no side effects from that, it just worked as intended, and as a plus, it didn’t skyrocket my levels. Because of the experience many others have had, I don’t want Baqsimi to ever be used on me, but until I have a couple Glucagon Kits, I am keeping the ones I have of it, just in case, but once I have a couple of back up Glucagon Kits, those are going into the garbage. Even though a few people have described not having any bad effects from it, there are many more who have had horrible effects from it so I don’t want to find out which group I would be in. Once the premixed ones like Gvoke have been around long enough to have many reviews, if those reviews are good, I will switch to it, but for now, the tried and true Glucagon Kit is what I want to have.

      I hope to never have to have it used on me again, but due to the experience I had, I also hope to never be without one. It was well worth the 35 bucks it cost me, with insurance, and even if one never again gets used, I will spend that 35 bucks every year to have an unexpired one always. I feel it is something I should always have, mostly for when I am sleeping as I do think that is the only time it would ever be needed, but don’t know that, but do know that stuff happens when least expected, so it’s best to be prepared. I view it like insurance, something we hope to never use but something we should all have. It it is better than insurance though, as it is something that can actually save our lives.

      1 year ago Log in to Reply

    Do you currently have an unexpired glucagon kit? If so, what kind? Cancel reply

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