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    • 6 hours, 27 minutes ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 7 hours, 18 minutes ago
      Mick Martin likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 8 hours, 13 minutes ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 8 hours, 56 minutes ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 9 hours, 16 minutes ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 9 hours, 47 minutes ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 9 hours, 52 minutes ago
      KCR likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 10 hours, 46 minutes ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 10 hours, 48 minutes ago
      Chrisanda likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 11 hours, 17 minutes ago
      Gary Rind likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      First of all, I've said it before, and I'll say it again: stop asking questions about family screenings for antibodies!!!! This is seriously like the tenth time this question has come up. There are plenty of other questions about T1D you can ask. Second, there should be another option to the effect of "I have not discussed antibody screenings with my family," which is the category under which I fall.
    • 11 hours, 25 minutes ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 11 hours, 30 minutes ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 22 hours, 46 minutes ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    • 22 hours, 46 minutes ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      JDRF only. I like knowing that my contributions are going specifically to T1D.
    • 22 hours, 46 minutes ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 1 day, 3 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      Switched a long time ago to Tandem/Dexcom from Minimed because of improved and more automated control, and haven't looked back. Still wishing for a cure, but know it's not going to happen for dinosaurs like me. I'll just be glad when young people will will one day experience that magic word: cure. It's too easy to sit around and complain, but it's high time for a cure, and way past time having us depend on treatment that is pretty much a money maker for big Pharma when it seems as if there's a cure waiting in the wings. Filling up landfills with used pump supplies, etc., makes our society look nothing but incompetent and greedy. Sorry to rant.......
    • 1 day, 3 hours ago
      Joindy23 likes your comment at
      The last time you discussed adding a new device or medication to your T1D management routine with your health care provider, who initially suggested trying the new device or medication?
      They do too often. Why I ask? Well because it will help long term.... oh how do you know that it will help? It's a brand new medication, never been used by the D community, except for the shortest term study mandated in order to get it to market, and sell. Long term has never been achieved... its NEW. Let's revisit/wait a couple years... if its MAGIC medicine, sure I'll try it. But unless it's got magic properties, guarantees magic results why would I want it, until it's been used for a decent while??? Oh well... yeah, guess that does makes sense....
    • 1 day, 20 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      Yes and for the last year and a half that is exclusively what I have been offered so I am not getting all the usual checks an in person endo visit requires. ADA and others spent 10-20 years convincing endos they needed to check patients feet and that progress has evaporated.
    • 1 day, 20 hours ago
      Wanacure likes your comment at
      Does your T1D health care provider currently offer the option to have virtual appointments (via phone or video call)?
      I would rather see in person. He checks my feet, BP etc. we have a chance to catch up and for me to ask questions. To me so much better face to face. We did virtual during pandemic.
    • 2 days, 3 hours ago
      Phyllis Biederman likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I’ll occasionally use the holster with clip that came with my pump or a protective case of my own when I’m wearing something without pockets. However I find these quite bulky thus usually just slip my pump in a pocket.
    • 2 days, 3 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Hmmm... I'd almost welcome it, another challenge to enjoy?
    • 2 days, 3 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I am rough on insulin pumps and cracked 2 minimed pump cases. I found the bare T:slim pump too slippery. I use the MEDmax silicone case. I put that in a AGOZ case with a belp clip. But I don't like the clip. It's too sharp and too stif. Looking for a belt for night time use.
    • 2 days, 3 hours ago
      KarenM6 likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      I use the Tandem provided case and added a gorilla glass screen protector. I wear it on my belt in an pouch.
    • 2 days, 6 hours ago
      lis be likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 2 days, 7 hours ago
      Karen Tay likes your comment at
      If you use an insulin pump, do you currently have a protective case on your pump or PDM?
      No. I hate the clip on the case that came with my Tandem pump. I bought a couple of other cases, including Type 1 Tactical, and hate the bulk and the awful clips. I just stick the pump in my pocket and it's fine. At night I do use one of the other cases, from Type 1 Secura, because I can keep it clipped to my undies and easily slide the pump in/out if I have to look at it during the night.
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    Do you currently have an unexpired glucagon kit? If so, what kind?

    Home > LC Polls > Do you currently have an unexpired glucagon kit? If so, what kind?
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    If you use a CGM, on a scale of 1-5, how satisfied are you with the accuracy of your CGM? (1 = least satisfied, 5 = most satisfied)

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    25 Comments

    1. Wanacure

      I’m a little confused. People use nasal glucose and nasal insulin. But my pulmonologist warned me the respiratory system was “not designed” for medical marijuana; it’s all hype. Maybe I should have asked her about cooling and filtering marijuana smoke thru a water pipe, a bong?

      For low bg, I’m trying to think like a pancreas and just use 1 or 2 sugar cubes (4-8 grams sugar) and waiting 15’ to test bg again. I try to catch rising bg with just 1 unit of injected lispro if above 130. This helps me avoid having to take an extra 2 or 3 units later.

      2 years ago Log in to Reply
    2. Lawrence S.

      I answered “no”. But, I recently threw out my old expired glucagon when I got a new prescription of Gvoke hypo-pen.

      2 years ago Log in to Reply
    3. Gary Taylor

      I answered “no” but I do have an expired (2019) glucagon kit, the powder/liquid mix kind. Would it still work if I had to use it? What is the real purpose of “expiration dates”?

      2 years ago Log in to Reply
      1. Stang777

        The only time one was used on me, it was the kind you described and had been expired for over 4 years, may have been 5 years, and it worked great.

        2 years ago Log in to Reply
    4. Kristen Clifford

      I had a glucagon kit a long time ago, which included a syringe filled with liquid and a vial of powder. You had to inject the liquid into the powder, shake it, and then draw it out again. It was given to me in 2008 when I was first diagnosed. I kept it for about three or four years, but I eventually threw it out because I was afraid it was no longer effective.

      2 years ago Log in to Reply
    5. Sherolyn Newell

      I’ve never had a glucagon kit. I’ve had two different Endo’s and neither one ever prescribed one or said I should get one. I’ve always wondered why not, but never think to ask.

      2 years ago Log in to Reply
      1. AnitaS

        If you actually want one, keep a list of concerns the next time you go see your doctor to prevent you from forgetting to ask about any medical concerns.

        2 years ago Log in to Reply
    6. Francisco Varea

      I have two that expired ages ago. I have never used one.

      1
      2 years ago Log in to Reply
    7. Anna Kiff

      I think the last time a glucagon kit was in “my” possession was in the 1970’s as a teenager. Leaving home at 16, I never thought to buy one and even now, here at least in Canada where I currently live .. I’ve so far never had such a bad low that I cannot manage it on my own. Plus you’re looking at an average cost of $150.

      1
      2 years ago Log in to Reply
    8. Ken Raiche

      I’ve had a couple of these over the years and have never used them which becomes a unnecessary expensive. Without a doubt it’s a potentially helpful preventative but with the CGM and pump situation that I’m living with I have opted out.

      1
      2 years ago Log in to Reply
    9. Joan Fray

      Yes! First time in all my years as T1d. My new endo prescribed and Kaiser paid for it. Never gone low enough not to treat it myself though .

      1
      2 years ago Log in to Reply
    10. Louise Robinson

      The Lilly Glugacon pen we have expired in Nov 2018. I haven’t needed glucagon since I began using a pump in 2011. I learned the hard way in 2010 that using an expired glucagon pen will not work as well as one that is not expired. While on vacation in Idaho (I live in Florida), my husband couldn’t wake me on our first morning in Pocatello. He injected me with glucagon (which had worked well in the past) and, although I became conscious and ambulatroy, I was confused and incoherent. He drove me to the nearby hospital. I was admitted because they feared I might have suffered a stroke. After multiple tests, I was discharged the next day after the determination that I had suffered severe hypoglycemia. Luckily, there were no long-lasting effects but we cancelled our vacation. I should toss the expired glucagon pen we have.

      1
      2 years ago Log in to Reply
    11. LizB

      No. When I was first diagnosed in 1987 we got one but never had to use it. It said in the fridge for years. When I moved out on my own I never got one because even though I had some severe lows, at those times I would not have been able to administer the glucagon to myself. Now I know they have the nasal kind that you can leave by your bed, but being on a pump & CGM has prevented those super scary lows. Also, my insurance doesn’t cover ANY of the available glucagon types.

      2 years ago Log in to Reply
    12. Bob Durstenfeld

      I have2 Glucagon dry powder kit, I never used either one. In fact, in 66 years with T1D I have never used Glucagon

      1
      2 years ago Log in to Reply
    13. Marty

      I just got a nasal glucagon kit this week. It cost me more than $500, but I decided it was a good way to spend out my deductible for the year. I haven’t kept glucagon around because I live alone and wouldn’t be able to use the mix-and-inject kind myself. I’ve only had a severe hypo once, decades ago, but I feel that the risk of a severe hypo might be greater if I ever have to use large boluses to bring down high blood sugars associated with an illness like Covid. Hope it never becomes necessary-Knock on wood!!!

      1
      2 years ago Log in to Reply
    14. Andrew Stewart

      I have several Baqsimi nasal spray glucagon kits and keep one in my car, my wife’s car, my softball gear bag and surfing gear bag. It is so easy to use and there were no bad side effects for me the one time I needed to use it. I was fasting for some lab tests and my CGM had me trending low (low 70’s mg/dl) an hour before my lab appointment draw so I used one of my Baqsimi nasal devices to bring me back up to low 100’s mg/dl and the lab was none the wiser and I didn’t violate the fasting order. https://www.baqsimi.com/

      1
      2 years ago Log in to Reply
    15. Jeannie Hickey

      I have expired powder mix, and will use it if needed!

      2 years ago Log in to Reply
    16. Anthony Harder

      I do not use glucagon. All of my contacts don’t like using it. Their choice is to feed me some type of sugar concoction.

      2 years ago Log in to Reply
      1. AnitaS

        If you are unconscious however, feeding a type of sugar isn’t recommended. You can have a different opinion, but inhaled insulin (baqsimi) is so easy to use that I would think your contacts could handle just spraying it up your nose. No need to mix any solutions or need to inject any medicines with a needle

        2 years ago Log in to Reply
    17. Teri Morris

      Price is too prohibitive for this life-saving device which is a real injustice to Type 1s everywhere.

      2
      2 years ago Log in to Reply
    18. George Lovelace

      Have never had nor used Glucagon in 57 years, EMT gave Dextrose.

      2 years ago Log in to Reply
    19. Patricia Dalrymple

      Only time I needed it was at 5:30am an hour before surgery and couldn’t eat or drink. For that reason, I’ve continued to keep an unexpired one around. My Endo asks me if I need one. The alternative was to rush to the hospital and get something intravenously. My husband came up with the idea. I was very proud of him. I needed to be at 140 BG before surgery and hit it exactly on the mark. He gave me the exact amount I needed. Amazing!

      2 years ago Log in to Reply
    20. Sherrie Johnson

      These should be free to Type 1 diabetics lor treated as DME at a reduced rate. It’s outrageous.

      1
      2 years ago Log in to Reply
    21. Cheryl Seibert

      I’ve never used glucagon. May not be the wisest decision, but I was diagnosed long before glucagon was available and I’m still here. Probably a good conversation to revisit with my endo.

      1
      2 years ago Log in to Reply
    22. Stang777

      The first few years of having type 1, I didn’t have one, my endo never mentioned it, and luckily I never needed it. When he retired I went to a new doc who asked right off if I had one and prescribed one for me. It was the Glucagon Kit that needed to be mixed and injected and it sat in the drawer, unneeded so unused for years, but one night while sleeping, I had a seizure and was unconscious so my husband used it on me. It worked great and my husband said it was no big deal to mix it up and inject it. It saved my life and saved valuable time that it would have taken for EMT’s to get here, not to mention saving me the expense of EMTS, as well as the embarrassment and hassle of coming to with EMT’s all around. We had no warning that something like that was going to happen that night, it was totally out of the blue and I am very grateful we had the Glucagon Kit, which we would not have had had I not gone to a new doc, who wasn’t even an endo. I will always be grateful for him.

      The one that was used on me had been expired for about 4 years, but it worked great. I will now keep the expired ones to be used first, but always want an unexpired one on hand just in case the expired one doesn’t work.

      I did get some of the Baqsimi when it first came out, but once I read many reviews since then where it was literally and basically described as having a lit firework shoved up the persons nose, leaving them with a massive headache and burning feeling in their nose that lasted hours, and for some, days, I have gone back to the Glucagon Kit that needs to be mixed. I had no side effects from that, it just worked as intended, and as a plus, it didn’t skyrocket my levels. Because of the experience many others have had, I don’t want Baqsimi to ever be used on me, but until I have a couple Glucagon Kits, I am keeping the ones I have of it, just in case, but once I have a couple of back up Glucagon Kits, those are going into the garbage. Even though a few people have described not having any bad effects from it, there are many more who have had horrible effects from it so I don’t want to find out which group I would be in. Once the premixed ones like Gvoke have been around long enough to have many reviews, if those reviews are good, I will switch to it, but for now, the tried and true Glucagon Kit is what I want to have.

      I hope to never have to have it used on me again, but due to the experience I had, I also hope to never be without one. It was well worth the 35 bucks it cost me, with insurance, and even if one never again gets used, I will spend that 35 bucks every year to have an unexpired one always. I feel it is something I should always have, mostly for when I am sleeping as I do think that is the only time it would ever be needed, but don’t know that, but do know that stuff happens when least expected, so it’s best to be prepared. I view it like insurance, something we hope to never use but something we should all have. It it is better than insurance though, as it is something that can actually save our lives.

      2 years ago Log in to Reply

    Do you currently have an unexpired glucagon kit? If so, what kind? Cancel reply

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