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Have you ever used inhaled insulin? Share your experience in the comments!
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I tried it once (before pumping) and absolutely hated it. It gave me no control. I lasted about 10 seconds!
There have been additional information around dosing since this drug launched. Ask your Dr. Why they know about the dosing not being 1:1
It’s a different paradigm to injectable insulin. You have to relearn how and when to dose. (But many people find the results are well worth it.) It is a great idea to use a CGM when you try it in order to adjust more easily.
I thought it was still a confusing option with the lungs involved. Plus, insurance coverage will not cover inhaled insulin yet. To be determined I would guess
Unfortunately it is not available in Canada
Insurance does cover it, not easy, but the company has solutions. Best to contact company directly as it’s a relatively new program.
I loved it for bringing down highs, but not so much for blousing as I had some pretty bad lows right after eating. The dosing is hard to get right too and you cannot get small doses to “sugar surf”.
I am very insulin sensitive and sugar surf. There are ways to use smaller doses off label. Not medical advice but it is a common use.
I.have.never.heard.of.it.until.this.What.is.the.point?
✔️ Acts quickly… no need to wait before eating
✔️ Gets highs down very fast
✔️ Less risk of lows (for some people)
✔️ No needles! (Except for long acting insulin)
It’s not for everyone (especially if you have asthma) but I’ve had good experiences with it.
I have been offered that. I would like to give it a try some time.
I love using inhaled insulin because of how quickly it can normalize a high blood sugar. However, it irritates my lungs so I use it sparingly.
I was in a test program at least 15 years ago, Mankind was the brand used for the test. Insulin Pumpers were picked to participate due to their knowledge and experiences. The test was one month long. We were given two inhaled insulin dose sizes to use in daily. The pump was used as a base line, no correction bolus was given with the pump. It was very difficult to keep your glucose levels at the same level as a functioning pump, because of the limited Inhale sizes. You needed to keep the Inhaled Insulin cool. Of course, prior to and after the test we all had to take breath tests. In my opinion the Inhale Insulin test was a failure. There was some lung discomfort after the test, but it passed. You needed to take large inhales to get the drug down, not good in a restaurant setting. Twice I was approached by the Restaurant Management wanting to know if I was sniffing GLUE!
Embarrassing.
Warm liquid before helped. Tge dose and expense too large.
I haven’t used it yet, but I just asked a few days ago if I could get a prescription for it. I plan to use it only on those days where a high blood sugar will just not come down. My endocrinology physician’s assistant sounded very enthusiastic for me as she doesn’t have anyone else on afrezza. The only other patients who have requested it are smokers or others with lung issues so they can’t use it. I should be getting my lung test within a few weeks. Hopefully it will work out wonderfully.
The insulin made me cough and I never knew how much I inhaled
I couldn’t keep using it
I used Afrezza and Tresiba for about two years! I loved it and had great control. Went on Medicare last year and did not want to deal with all the appeals I figured I would have with getting it covered. So now I use Tandem and Dex. Control has been the same. Afezza was sooo much easier and caused no pain or scar tissue. I wish more people would use it. Maybe the price would go down!
The company offers a cash pay program that overrides any insurances. Contact the company or ask Dr. Who your local rep is.
Just in a study, I was not impressed
I have a type of Asthma caused by allergies. My doctor says I should not use it because of this. I understand that it is MUCH faster acting than injected insulin, which would really help with my highs after meals. Wish I could try it!
I uses rescue inhaler occasionally for seasonal asthma brought on but cold or allergens sometimes, even the Afrezza rarely. Endo checks lung function and still ok.
Using Afrezza as my bolas insulin love fast acting and only stays in my system for an hour
This stuff is Amazing! Most doctors and patients don’t understand the benefits of the MANNKIND Inhaled Insulin until they see the action profile on their own CGM. If this was a liquid… it would very well likely be in every pump today!
I use it almost daily, along with my pump. The Novolog doesn’t keep up with the spike but the Afrezza does. The duration of the very fast usually dove tails nicely with the other.
I absolutely love Afrezza. My A1C was climbing on multiple injections. When it was at 7.9, I talked my doctor into allowing me to try it. Within three months, my A1C dropped to 6.4. It is now almost four years later and my A1C has remained below 7.0 ever since.
Due to allergic reactions to the long-term insulins, I must use a corticosteroid to prevent any bronchial coughs. Doing this, I continue to pass my lung functioning tests and continue to use Afrezza.
I have used Afreeza for years with my pump and also as MDI bolus with tresiba. There is no insulin like it. I wish more people and physicians would open to new ways of management and learn about it for their patients.
Oops didn’t finish. It is just a matter of learning the new dosing. I struggled for many years and nothing compares to the speed of coverage and the short action time which allows for more precise control.
I tried it recently and I liked it it’s just I wish it came in smaller doses four units is still too high for me
I recently tried a freezer for meal bolus. The problem is the smallest dose is four units which translate to 2.5 I still never eat that much at a meal to warrant the use. It did work good when I had a three unit meal but that was unusual It did keep my blood level throughout which was very interesting it did keep my blood level throughout which was very interesting I rejected the prescription as I was not a good candidate for it
Afrezza
It is possible to DYI some smaller dosages. Check out this
https://forum.fudiabetes.org/t/custom-afrezza-doses-making-2u-cartridges/1230/13
I would love to give it a try, but Medicare and asthma preclude me at this time.
I’ve been using it just a little over a year, and love its fast-acting ability for those “we’re eating NOW” moments, when a usual MDI would take too long to counter-act the carbs. I recently had to switch pharmacies, and when I stepped over to the “Consult” window, the Pharmacist said: “I’ve never seen this stuff before.” So I proceeded to educate him on the benefits of Afrezza!
I used Afrezza for a few years and it was great. I would still be using it if I could access it cheaply. Unfortunately I am in Australia and the process has stalled. AMSL signed a deal to distribute it here but I have heard rumors that Novo Nordisk bullied AMSL into burying the product.
The only thing I have tried that can compare to the blazing speed of Afrezza is intramuscular injections. I make heavy use of them.
I really like Afrezza for rapidly correctly high blood sugar.
Have used inhaled insulin only for rescue if my blood sugar is high. I do not feel that this form of insulin works for me as I do not see results when used.