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  • Activity
    • 16 hours, 56 minutes ago
      KarenM6 likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 16 hours, 57 minutes ago
      KarenM6 likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I use a CGM and STILL check an average of 7 times per day with BG meter because despite the advertising claims, I have yet to find a CGM that is consistently accurate enough to rely on for various tasks including meal Bolus dose calculations. Currently using Dexcom G6 with tSlim Control IQ, along with Dario BG meter I trust more than Dexcom.
    • 21 hours, 18 minutes ago
      Mick Martin likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 21 hours, 19 minutes ago
      Mick Martin likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I use a CGM and STILL check an average of 7 times per day with BG meter because despite the advertising claims, I have yet to find a CGM that is consistently accurate enough to rely on for various tasks including meal Bolus dose calculations. Currently using Dexcom G6 with tSlim Control IQ, along with Dario BG meter I trust more than Dexcom.
    • 21 hours, 36 minutes ago
      Trina Blake likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I am curious. Do you routinely check the control glucose solution to be sure the meter is accurate?
    • 22 hours, 24 minutes ago
      Barbara Bubar likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 22 hours, 37 minutes ago
      Barbara Bubar likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I use a CGM and STILL check an average of 7 times per day with BG meter because despite the advertising claims, I have yet to find a CGM that is consistently accurate enough to rely on for various tasks including meal Bolus dose calculations. Currently using Dexcom G6 with tSlim Control IQ, along with Dario BG meter I trust more than Dexcom.
    • 22 hours, 45 minutes ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      My infusion site stopped working well. Most of my problems going high are due to problems with infusion set. Another problem is my slow processing of my dinner. If I bolus too fast I go low, if I wait a bit I go high. It’s a nightmare
    • 22 hours, 46 minutes ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      Yesterday I walked 30 miles. At about 10 miles I went 200 something. I took 20g of carbs at about 120 to prevent going low and ended up at 200 even though I continued to walk. Took a correction and my bg dropped more than I wanted. It is a trick to manage bg during long endurance events. My endocrinologist suggested a profile for me which I was trying for the first time. I will be walking for 24 continuous hours hoping for about 70 miles. The event is outrun 24 at Chapin Forest in Kirtland Ohio.
    • 22 hours, 47 minutes ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      I answered 4 , I had steroid in my infusion yesterday.
    • 22 hours, 50 minutes ago
      Marthaeg likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 23 hours, 13 minutes ago
      Mike S likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 23 hours, 17 minutes ago
      KCR likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 23 hours, 18 minutes ago
      Jeff Marvel likes your comment at
      If you do NOT use a CGM, on average how many times per day do you check your blood glucose levels?
      I answered N/A, like most of us here(apparently) I have a CGM. But for the record, I haven't quite cut the cord on finger sticks. Routinely I do one first thing in the a.m., just to check that my f-s and CGM numbers reasonably match up. That time of day seems to be when they're most likely to have drifted apart--yay Dawn Phenomenon. Dexcom much better than Medtronic Guardian 3 on this but still a bit of a problem. And the first 24-36 hrs of a new sensor, especially if I haven't been able to do a "pre-soak," may get me up to 3-4 finger sticks depending on how erratic it's being. Might be a natural follow in this series to do a Q of the Day on how many fingersticks people do who ARE using a CGM.
    • 1 day ago
      ConnieT1D62 likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      I use a CGM and my BG went over 180 seven times. Not unusual for BG go to 200+ after eating, then comes down. Yesterday and today my average BG was 150.
    • 1 day, 17 hours ago
      KarenM6 likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      I answered 4 , I had steroid in my infusion yesterday.
    • 1 day, 17 hours ago
      KarenM6 likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      My infusion site stopped working well. Most of my problems going high are due to problems with infusion set. Another problem is my slow processing of my dinner. If I bolus too fast I go low, if I wait a bit I go high. It’s a nightmare
    • 1 day, 18 hours ago
      Lindsey Whitnell likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      My "high" alarm is 130. When I hit that I consider: when I ate; could I have screwed up the bolus; what am I doing or will be doing; when I'll eat next. Rarely go over 150-160, by reacting and preventing highs found I actually use less insulin than just correct when it peaks....could never do this without a CGM I'm comfortable with, although with pens and an unmoving basel more fun (can't make fast adjustments for food, stress, heat, or activity). So the past several days zero over 180, just a few over 150.
    • 1 day, 20 hours ago
      Janis Senungetuk likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      Yesterday I walked 30 miles. At about 10 miles I went 200 something. I took 20g of carbs at about 120 to prevent going low and ended up at 200 even though I continued to walk. Took a correction and my bg dropped more than I wanted. It is a trick to manage bg during long endurance events. My endocrinologist suggested a profile for me which I was trying for the first time. I will be walking for 24 continuous hours hoping for about 70 miles. The event is outrun 24 at Chapin Forest in Kirtland Ohio.
    • 1 day, 20 hours ago
      Bruce Schnitzler likes your comment at
      In the past 24 hours, how many times has your blood glucose risen above 180 mg/dL (10.0 mmol/L)? (For this question, we are looking at separate periods of hyperglycemia, rather than consecutive glucose readings above 180 mg/dL.)
      Yesterday I walked 30 miles. At about 10 miles I went 200 something. I took 20g of carbs at about 120 to prevent going low and ended up at 200 even though I continued to walk. Took a correction and my bg dropped more than I wanted. It is a trick to manage bg during long endurance events. My endocrinologist suggested a profile for me which I was trying for the first time. I will be walking for 24 continuous hours hoping for about 70 miles. The event is outrun 24 at Chapin Forest in Kirtland Ohio.
    • 1 day, 23 hours ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      I had the same thing happen. I usually go below about 3 times but yesterday not at all. Amazing!
    • 1 day, 23 hours ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      With Tandem CIQ, I get <2% in hypo range, rare at night, and when I do it is usually my fault- over bolusing for food, or exercise. Love this system
    • 1 day, 23 hours ago
      Lawrence S. likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      It's been an unusual 24 hours for me and I haven't gone below 70 at all. (If I'd a been asked last week, totally different answer!) :p But, I'm doing really great today. So... Yay! :D
    • 2 days, 9 hours ago
      ConnieT1D62 likes your comment at
      The food we choose to eat as people with T1D is so personal, and each food impacts every person differently. What foods do you prefer to eat for your first meal of the day? Share what works for you in the comments!
      I follow my wife’s old adage, “Eat breakfast like a king, lunch like a queen, and dinner like a pauper.” And in a very king-like fashion and since I am retired, I do it most mornings in a very leisurely 3 or 4 fashion. The best breakfasts, by far, are those you have with delightful conversationalists with people of wide-ranging interests. I start with 2 or 3 cups of strong, dark-roast black coffee, nursed liked an expensive cocktail rather than gulped. Then come berries—raspberries, black berries, blue berries, and a complete box of strawberries, followed by protein potions of turkey peperoni slices or an egg or two. The cereal consumed is a mix of three-Uncle Sam’s mixed with Grape Nuts mixed with All Bran. Either milk or yogurt is used to top the cereal. I know not the calories, but the carbs I can count down to the first decimal point. And decidedly, the meal’s main attributes are the time spent and the conversations.
    • 2 days, 10 hours ago
      ConnieT1D62 likes your comment at
      In the past 24 hours, how many times has your blood glucose gone below 70 mg/dL (3.9 mmol/L)? For this question, we are looking at separate periods of hypoglycemia, rather than consecutive glucose readings below 70 mg/dL.)
      With Tandem CIQ, I get <2% in hypo range, rare at night, and when I do it is usually my fault- over bolusing for food, or exercise. Love this system
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    Have you ever had an islet cell transplant or a pancreas transplant?

    Home > LC Polls > Have you ever had an islet cell transplant or a pancreas transplant?
    Previous

    How many of the following relatives in your life have had T1D? Select all that apply.

    Next

    Have you ever participated in a T1D clinical trial? Tell us about it in the comments!

    Sarah Howard
    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    15 Comments

    1. Bob Durstenfeld

      I would if I were a good candidate and did not need the NASTY immunosuppressive drugs.

      2 years ago Log in to Reply
    2. Nevin Bowman

      Never had an option.

      2 years ago Log in to Reply
    3. rick phillips

      Sign me up twice

      2 years ago Log in to Reply
    4. Franklin Rios

      Is it possibe?

      2 years ago Log in to Reply
    5. Becky Buchanan

      I was approved for one. It was at Jackson Memorial Hospital in Miami Florida. I lived over 1400 miles away. The distance concerned me as well as paying for the anti-rejection medication. They said at that point the drug companies were paying for them but they didn’t know how long it would continue for. Those two things made me decide to not pursue it.

      2 years ago Log in to Reply
    6. Linda Murphy

      So that’s what they mean by a transplant, just the cells, not the entire pancreas?

      2 years ago Log in to Reply
    7. GLORIA MILLER

      I went down for the screening in Miami around 2012 to have the islet cell transplants. Unfortunately, I have a certain type of antibody in my body that disqualified me from getting the transplant. They said they thought since I only birthed one child that I would not have the antibody but I did. I was very disappointed. This particular type of antibody would have made it more likely I would have rejected the transplant.

      2 years ago Log in to Reply
    8. connie ker

      I live in a smaller city so these new trials are done in large teaching hospitals in large cities or connected with medical schools.

      2 years ago Log in to Reply
    9. Ahh Life

      We have transplant specialists in our area. The long-term statistics are not yet at 100%. Advanced age mitigates against it. Anti-rejection medications are clouded somewhat by the virus age. All in all, if you are in the right circumstances, go for it. Otherwise, maybe not.

      2 years ago Log in to Reply
    10. Kristine Warmecke

      Back in the late ’90s I signed up to be on the list for an islet cell transplant at the University I’ve always gone to for endocrinology, the early day of the research. I do have a friend I met because of Moyamoya that has had a pancreas and kidney transplant. She’s doing wonderful now, after a couple of scares.

      2 years ago Log in to Reply
    11. Jana Foley

      I have not and at this time I don’t believe I would. Transplant means a different kind of maintenance for the rest of my life and I am not sure I’m up for it.

      2 years ago Log in to Reply
    12. Amanda Barras

      I contacted staff about the islet transplant and found I was about 20 lbs over weight and wouldn’t qualify.

      2 years ago Log in to Reply
    13. Janis Senungetuk

      Seriously considered applying for the Edmonton Procedure clinical study that was conducted thru Northwestern University in Evanston, IL. My daughter and her family live there. Although my endo thought I met all of the study requirements I decided that the need to continue taking anti-rejection drugs wasn’t a positive exchange.

      2 years ago Log in to Reply
    14. Bill Marston

      The Q wasn’t “would you or have you CONSIDERED a transplant”. It was “Have you ever had an islet cell transplant or a pancreas transplant?” I have – I received the human islet cell transplant at Univ of Pennsylvania, one of some 35 international centers, back in 2002. I recall that there were 350 of us in that phase. I tolerated the immunosuppressants as did 7 others but I heard 1 dropped out very quickly. Doses were adjusted regularly/frequently based on blood studies. **IT WAS AMAZING** One overnight, infused cells into portal vein of liver, discharged with the Rx and a halved insulin which then was ZERO insulin in a matter of days!!! I bought a Chunky chocolate-raisin-nut candy which had been my favorite b4 becoming diabetic. HEAVEN. After a year or two, gradually, cells became less effective so per their protocols I got a 2nd dose (first dose had been @the minimum in the range of thousands of cells per Kg of body weight). So, back to being non-diabetic again!! This time less than a year, taking insulin again and eventually I retired from being a subject. I have been continuing as the Type 1 Diabetic that I really am since 2006. I would absolutely do it again except for my age, cancer history, CKD et al (AKA I got older). … and OF COURSE medical science learned from our participation – which, alone, for me was nearly enough reason to have done it all.

      2 years ago Log in to Reply
    15. Sally Numrich

      No, but I did take part in the Viactye stem cell study in San Diego to test device and procedure safety standards. I didn’t get enough cells to make insulin although I was tested every month to see if I was producing insulin. I do feel the cure will be in stem cell research but it is a long way off. Probably won’t see it in my life time but if I don’t age out, I will continue to volunteer for studies,

      2 years ago Log in to Reply

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