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    • 7 hours, 40 minutes ago
      ConnieT1D62 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I usually bolus for breakfast right at the time I start eating. But I prefer to bolus 15 minutes before. Better results. But I always forget.
    • 9 hours, 37 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 9 hours, 39 minutes ago
      KarenM6 likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I am able to pr bolus for Breakfast and dinner as I am at home. I never know when I am going to eat at work so bolus is at start of meal.
    • 12 hours, 30 minutes ago
      Mick Martin likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      Question is misleading until type of insulin is understood. I said 15 because I use Fiasp insulin.
    • 12 hours, 46 minutes ago
      Kris Sykes-David likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 13 hours, 43 minutes ago
      Ernie Richmann likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      I said 15-30, but it may have been more than 30. I wasn't watching the clock this morning. I just checked my pump bolus history. It was about 30 minutes. I need to bolus early in the morning because my blood sugars shoot up high after breakfast. Bolusing sooner seems to help keep my BG from going off the charts. But, if I bolus too soon, I have serious low BG's. It's all an art ... and luck.
    • 14 hours, 4 minutes ago
      Robin Melen likes your comment at
      When did you bolus for your most recent meal? If you bolused multiple times for your last meal, please select all that apply.
      My most recent meal was breakfast and, during the work week, I am far better at bolusing ahead of time. The rest of my meals in the day though end up receiving the bolus as I start eating or part at the start and more later on (depending on what I am eating and whether I know how much I'll eat.)
    • 1 day, 8 hours ago
      KarenM6 likes your comment at
      Of the people in your life, who (if anyone) makes you feel judged or criticized for your T1D management (for example, what foods you eat, where or when you check your blood glucose, etc.)? Select all that apply to you.
      Insulin, meters, diabetic tech are not magic wands. Its usage does not guarantee only "positive" results. Negative events can and do occur, period. Non -D- typically (incorrectly) equate negative events as being total user failure, severe user errors. As diabetics we get blamed, despite having made zero mistakes on our part. We make seriously educated best guesses, despite that truth, we can and do fail anyway sometimes! Outsiders falsely need to believe inulin, our tech are complete-total cures, rather than tiny bandages at best. When confronted for using (sic. my) "drugs" in public, no matter how invisibly done... it is their self righteousness , poor assessment which is the issue. I gladly squash such insects...
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      The more important question is 'how well does the clip work'. For me, the Medtronic clip worked very well, but the Tandem clip is quite ineffective and the pump falls off my belt during things like yard work or other bending movements.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I answered never. I always use a clip -- I wear my t:slim x2 on my belt -- but not the Tandem clip. I use the black t:Holster Rotating Belt Clip. Very pleased.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      If you use an insulin pump that comes with a clip, how often do you have your pump clip attached to your pump?
      I am rough on pumps and use a Tandem X2 but dont use the Tandem clip/holster. I use a neoprene case and a pouch with a metal clip. Thenmetal clip is uncomfortable while I sleep. Looking for a different solution for wearing my pump at night.
    • 2 days, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I answered that nobody wants to be screened, but I was answering based on my immediate family. I did let my deceased type-1 diabetic cousin's 35 year old son know he can be tested for his likelihood of becoming type-1 diabetic. He said he may be tested as he was always curious if he had a chance.
    • 2 days, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have T1, and when my oldest grandson got T1, the other 3 grandkids got screened. The grandson who's the brother of the one with T1, showed a strong possibility of being a future T1 diabetic. It sadly came true about a year later.
    • 2 days, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I have LADA, and the idea of screening has not come up, either by me or my adult children. I guess I need to present the opportunity to them so they can make the decision.
    • 2 days, 10 hours ago
      Wanacure likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 2 days, 14 hours ago
      Samantha Walsh likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 9 hours ago
      KarenM6 likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 11 hours ago
      Katie Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 11 hours ago
      Kate Kuhn likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 12 hours ago
      Karen DeVeaux likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      I was born in 1939 and had many childhood illnesses. Three different kinds of measles and tonsils removed before I was 5 years old, then mumps and chickenpox when I was 5. While recovering from the mumps and chickenpox, I began showing the symptoms of very high blood sugar. Three doctors examined me and they were not able to make a diagnosis. I had lost much weight, and I had stopped eating. I did not have an appetite. It was almost impossible for me to walk. A fourth doctor had my blood tested and he made the diagnosis. While receiving pork insulin I finally began to recover a few days after my sixth birthday. I did not have ant relatives with diabetes. I think the childhood diseases caused internal damage and that was the cause of my diabetes. At the present time there are still no type one diabetics among my relatives. I do not believe it is necessary for my children and grandchildren to be screened for T1D autoantibodies.
    • 3 days, 12 hours ago
      Kelly-Dayne likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 13 hours ago
      William Bennett likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      Hi Kristen, thanks so much for your feedback. We do plan to continue questions and education on T1D screening. The constantly evolving clinical trials and FDA-approved therapies that offer the potential to intervene, delay —— and hopefully some day prevent —— T1D are only effective if children are being screened for the earliest stages of T1D. Without screening, we cannot delay or prevent T1D. We do offer "No, my family members have no been screened" as an option. We appreciate your passion as a person affected by T1D and hope you enjoy our other daily questions. All the best, The T1D Exchange team
    • 3 days, 14 hours ago
      Jneticdiabetic likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I have led a team for the JDRF OneWalk annually since the late 1990's. We have been able to raise a lot of funds for JDRF...and I have enjoyed doing it. Good cause!
    • 3 days, 14 hours ago
      Lawrence S. likes your comment at
      If you or someone in your family has T1D, have other members of your family been screened for T1D autoantibodies? If not, do you think your family would be willing to be screened for T1D autoantibodies?
      my siblings & parents are older (like me) and they've never expressed any interest in getting tested. my nieces and nephews have never said anything either
    • 4 days, 1 hour ago
      Karen Newe likes your comment at
      Have you ever participated in a charity fundraising event that benefitted a diabetes organization (i.e., a walk, marathon, gala, etc.)?
      I participated in several ADA walks not long after being Dx with T1D. As Ahh Life points out large $ are rased, but where do they go? I stopped supporting ADA for that reason. I think JDF is much more open on where the funding goes.
    Clear All
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    Have you ever been told your A1c is too low?

    Home > LC Polls > Have you ever been told your A1c is too low?
    Previous

    If you were diagnosed with T1D as an adult, for how long did you notice symptoms of T1D before getting a proper diagnosis?

    Next

    If you wear a CGM, at what BG number is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at 12 p.m. in your time zone.

    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Manager of Marketing at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    24 Comments

    1. Kristen Hamilton

      No, but at my last appt. my endo said my 6.1 was low enough. I told him I disagreed.

      3 years ago Log in to Reply
    2. Rebecca Lambert

      I had a nurse at the endocrinologist office tell me 5.8 was too low. The doctor told me I was doing a great job at the same appointment. I believe it was because the CGM verified my good A1C wasn’t the result of a lot of lows but instead steady, controlled numbers.

      3 years ago Log in to Reply
    3. Mary Ann Sayers

      I’ve been told I drive my pump like I have a “lead foot”. Told to ease up on my corrections.

      3 years ago Log in to Reply
    4. connie ker

      My T1D husband was told to run higher as his mobility required a walker, and he was one who preferred an A1C on the ragged edge of LOW. Older adults with this disease have to make changes as they grow elderly. For one thing you don’t need as much insulin and the other topic is safety concerns of low blood sugars. We also learned that Beta Blockers cause extreme lows called “masked lows”. Many cardiologists don’t know that fact and looked at me like “who are you”?

      3 years ago Log in to Reply
    5. Kathy Hanavan

      When I developed heart disease, my endo and cardiologist told me that they did not want me running in the low 6’s due to the higher risk of hypos with heart disease. Since then, I have come up to the mid 6’s with < 2% lows on CGM. I am fine with this.

      3 years ago Log in to Reply
    6. Sherolyn Newell

      Not in so many words, but she did say 5.8 might mean I was having a lot of lows. She seemed like she thought it was too low. Usually, I am 6.1 to 6.3 and she seems happy with that. Personally, I couldn’t believe it was 5.8. I try to keep track in my head and that three months seemed like I had a lot of highs.

      3 years ago Log in to Reply
    7. Steve Rumble

      I was told that 5.9 was too low for a person of my age (73)

      3 years ago Log in to Reply
    8. Julie Akawie

      When I recorded an A1c of 5.4% my endo said, “That’s lower than mine!” I responded saying, “You might want to see a doctor about that.” Ultimately, my goal is to get down to 4.8%, which is what a non-diabetic A1c looks like. I doubt I’ll ever get there b/c I’m just not THAT disciplined, so I’m happy with anything below 6% these days.

      3 years ago Log in to Reply
    9. Amanda Barras

      With hard work and a lot of insulin O got my A1c down to 5.3 while pregnant. My maternal fetal specialist was happy as she was monitoring me closely knew I wasn’t having crazy lows. But as soon as I had my son and returned to my regular Endo she balked at my 5.3 and said it needed to be higher. I just brushed her off. It went back into the 6s postpartum anyway.

      3 years ago Log in to Reply
    10. Nevin Bowman

      Yes, with very few lows and no critical lows. I don’t think most endocrinologists are used to seeing people who take their diabetes seriously.

      3 years ago Log in to Reply
    11. Elizabeth T.

      I take my diabetes management very seriously but the lowest A1c I’ve had since diagnosis was 6.3. However I am always under 7 so am happy with that. I try not to obsess over numbers but with T1D that’s hard!

      3 years ago Log in to Reply
    12. Ken Raiche

      I’ve been told on numerous occasions to bring my levels up. Over the last 5 years my results hover between 5.6 to 6.4 and as my endocrinologist suspects that I’m experiencing too many lows. In actual fact I do have the odd low but my levels seem to be much more streamlined due to my pump and CGM.

      3 years ago Log in to Reply
    13. Clare Fishman

      In early 2012 before I had a Dexcom I finally had decided to take control of my diabetes and actually pay attention to what I was doing, eating, and how much insulin I was taking and keeping impeccable notes of my blood sugars. I went for my semi-annual endo appointment and my A1C came back as 6.1 after having hovered in the mid 7’s for decades. My endo – an old senior endo at the Joslin ordered me to do a sensor study with the horrible Medtronic iPro device because he thought there was no chance of me having a 6.1 without significant hypos. The study data was not particularly useful, but there weren’t any hypos so he just left me alone. Now with Dexcom data to back me up, my new endo is fine with whatever number that shows up. She and I both prefer time in range as an indicator of blood sugar management.

      3 years ago Log in to Reply
    14. Tina Roberts

      I wish! Haha

      3 years ago Log in to Reply
    15. William Bennett

      This is kind of an artifact of the pre-CGM era. A1C is an AVERAGE, not a mean, and the theory was that you could only get below ~6.5 by having hypos dragging down the number. Especially true back in the bad old R/NPH days. So yeah, when I’d get below 6.5 I’d get yelled at. 6.5-7.0 was acceptable. With CGM you have better information to control what you’re doing and a 24/7 curve that shows how many lows you’re actually having. So it’s less of a thing now, though there are still old-school medicos out there.

      3 years ago Log in to Reply
    16. kristina blake

      for decades I had tight D mgt. After moving to a new city and a new health plan and thus new Endo’s I was told “…it is impossible for someone like you to have such good labs…” (and I am quoting here – I will never forget that offensive statement). At that time my A1C was 5.7. After promising to bring my Mensa card to the next appt, I whipped out my reports from my Dexcom. That HMO plan didn’t cover Dexcom – the look on that Endork’s face was worth paying out of pocket. Anyway, I asked to be assigned to someone else.

      3 years ago Log in to Reply
    17. Michelle Saunders

      I’ve been told it was to high. It was. I am of the view that each person is different, and so long as they have data to show they aren’t having to many hypos, and working with their medical team they are fine. I’m starting to see in online support groups shaming people for a1c’s being to low or to high. If it’s in the range that you and your medical team decide is good for you then go for it, but don’t make other feel like poop because they may shoot for a higher or lower number.

      3 years ago Log in to Reply
    18. Patricia Dalrymple

      Told I shouldn’t be any lower than 6.4 because of it being an average, it must mean I have a lot of lows. Not on CGM but after seeing my labs and telling me “normal” people would kill for my reports, they have left me alone. I do have lows but we are working on those.

      3 years ago Log in to Reply
    19. Robby Doyle

      Getting ready to switch from Metronic guardian sensor to decks calm. Hoping my A-1 C will move back to the low sixes

      3 years ago Log in to Reply
    20. Robby Doyle

      DexCom!!

      3 years ago Log in to Reply
    21. Nicholas Argento

      The issue with having a low A1c indicating too many lows is potentially valid in those with T1D BUT 1) not with use of modern CGM, which picks up lows 2) does not apply to those on hybrid closed loop pump 3) does not apply if the A1c underestimates average blood glucose, which is common in the population and would be consistent in the same person one time to the next 4) needs to be individualized, as with all rec’s in those w T1D—– It is true that reducing mean blood glucose below a certain level (in the 135 range which correlates with an A1c of 6.5 in the population) provides little additional benefit in reducing long term complications but is often associated with an increase in time spent below range, that is , hypoglycemia, which is not a normal state. That (more hypo’s) may do more harm than good even in worsening complications- —————and can be dangerous in the short term for obvious reasons.

      3 years ago Log in to Reply
    22. Donald Cragun

      When I first went on a pump (before CGM was readily available to users), I had one A1c of 4.6 and my endo said I had to wear a CGM for a week so he could show me how dangerous it was to be that low. The CGM he gave me didn’t show me any readings, but the readings were available when I returned to the endo (and I was doing ~20 finger sticks/day). During that entire week, the CGM said my BG was always between 70 and 110 (i.e., no lows and no highs). He never told me I shouldn’t have a low A1c again!

      3 years ago Log in to Reply
    23. Paul Madden

      I have never been told it is too low even though it is often in or close to the normal blood sugar range. Throughout my 59+ years living with diabetes I have been blessed with skilled Endos and Diabetes Educators. Rather what they do ask me is if I have had any extremes of high of low blood sugars that have been difficult for me and have I needed assistance from others.

      3 years ago Log in to Reply
    24. Philip Vachon

      I haven’t been told too low, but said I didn’t need to try so hard. last was 5.1.

      3 years ago Log in to Reply

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