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    • 4 hours, 31 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      It is not often that I get into discussions with people about Type 1 and type 2 diabetes. But, when I do, most people don't know that there is a difference. Those that are aware that there is a difference between type 1 and type 2 diabetes, don't know what the differences are. Generally, unless the person has the disease, is a close family member, or works in the medical profession, there is no understanding of the disease.
    • 4 hours, 31 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 4 hours, 32 minutes ago
      Kate Kuhn likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 5 hours, 46 minutes ago
      Neha Shah likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 9 hours, 19 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience people have heard of Type 2 Diabetes so if I say Type 1 that makes sense in that if there is a Type 2 there must be a Type 1 also. That is the extent of their understanding. In healthcare there is a bigger failure where "diabetes" or "type 2 diabetes" is used as a shorthand of a set of conditions often seen together. See any research paper by any cardiologist ever. This lack of precision leads to incorrect risk evaluations and incorrect treatment of people with diabetes caused by other factors including autoimmune aka Type 1.
    • 9 hours, 20 minutes ago
      lis be likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 12 hours, 44 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      I have, and I do show calcium build up and hardening of the arteries. No action has been taken yet at this time. However, I am taking Repatha for better control of my cholesterol and it has been working great.
    • 12 hours, 45 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 12 hours, 45 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Thank you. Your write up is concise, cogent, and convincing. 🎀
    • 12 hours, 45 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      After 16 stents and a new aortic valve, I've had every scan imaginable and she just keeps on tickin'.
    • 12 hours, 46 minutes ago
      KCR likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Just googled it and most insurance plans including basic Medicare do not cover it. Said cost ranges $100-400 with out-of-pocket being $100-150 (although I don’t understand that if not covered by insurance).
    • 13 hours, 10 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 13 hours, 10 minutes ago
      Patricia Dalrymple likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      What? We’re now advertising in this space? Delete this post!
    • 13 hours, 59 minutes ago
      Lynn Smith likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 16 hours, 55 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      This is a good question! but it does lead to so many other questions.
    • 16 hours, 55 minutes ago
      Lawrence S. likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 17 hours, 3 minutes ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      T1D & T2D are meaningless acronyms for most, nearly all, nondiabetics. Juvenile diabetes vs diabetes is the closest known pairing and that's still few.
    • 17 hours, 3 minutes ago
      Lawrence S. likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 17 hours, 6 minutes ago
      Mike S likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 17 hours, 8 minutes ago
      Lauren T likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 17 hours, 9 minutes ago
      Meerkat likes your comment at
      How often do people confuse type 1 and type 2 diabetes in your experience?
      In my experience the average person does not know the difference. It does not help that the commercials on TV just say diabetes and do not differentiate.
    • 1 day, 12 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, I had one done and the results were very high in the upper 400s. I have my wonderful cardiologist to thank for recommending it as even after a normal stress test that was still somewhat suspicious. He thought further testing was advisable due to my 65 years of diabetes. The complaints that I had been having for years were not terribly specific, but just overall being way more exhausted than I thought I should be for my age and a bit of shortness of breath, but no chest pain. My doctors had been just saying that I was probably out of shape and that was what was causing the symptoms but this doctor really was proactive. This test shows calcium buildup, of course, in the arteries which is somewhat different than fatty plaque buildup in the arteries that can only be seen at the Cath Lab. My next step was to go to the Cath Lab where they found four major blockages in my heart and thank goodness we found them. I eventually ended up having four stents put in during two additional procedures. The last one was very stubborn because of the amount of calcium and I had to go to the university of Washington where they were able to do a procedure to drill the calcium out of the artery before they could get in there to place the stent. Heart disease is a very real concern for those of us with long-term diabetes, and although I am a retired dietitian and have always eaten an excellent diet with yearly lipid panel results looking excellent this still happened. The procedure took less than an hour and they do put an iodine die in your vein to make everything easier to see. My Medicare Advantage Plan paid for it except for my copayment which I believe was around $300 which is similar to what I have to pay for things like an MRI. The doctor does have to justify this test by certain symptoms and other previous test results.
    • 1 day, 12 hours ago
      lis be likes your comment at
      Have you had a Coronary Artery Calcium (CAC) Scan? (The American Diabetes Association suggests this imaging tool, depending on age and years with T1D, to assess heart risk by measuring calcium buildup in your arteries.)
      Yes, and even with low cholesterol levels all my life, CT Scan show extensive calcified coronary artery disease.
    • 1 day, 14 hours ago
      Carrolyn likes your comment at
      On average, how often do you adjust insulin based on CGM trend arrows rather than your current glucose number alone?
      If the mystery train is your favorite form of conveyance, then you’re gonna love T1D. You may choose to be in a universe that is spiritually arid. Or you may choose to live in the harsh realities of reality. Up & down arrows and double arrows? I Love ‘em. Can and do take action immediately. 🙇‍♀️ 🙇‍♀️
    • 1 day, 14 hours ago
      Marty likes your comment at
      If you could reimagine your diabetes technology, what’s the one thing you would change?
      The technology is remarkable — and I’m thankful for it. Having managed T1D for a very long time, it's improved my A1C. But as we age with T1D, usability becomes critical. Larger fonts, easier interfaces, simpler navigation, and design for arthritic hands will matter more and more. We also urgently need better training in hospitals and care facilities. Too often staff are unfamiliar with pumps and CGMs, and patients are forced to disconnect from the very tools that keep them safe. With the nationwide shortage of endocrinologists, we cannot rely on specialists to fix these gaps — frontline medical staff need better training and support. Tech innovation must include accessibility and real-world medical training.
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    Have you been diagnosed with any of the following diabetes complications? Please select all that apply to you.

    Home > LC Polls > Have you been diagnosed with any of the following diabetes complications? Please select all that apply to you.
    Previous

    When you are in a situation where people are asked to silence their devices (e.g., in a theater, during an important meeting or ceremony, etc.), do you take any steps to ensure that your T1D devices do not alarm? Select all that apply.

    Next

    If you use an insulin pump or CGM, has anyone ever mistaken your device(s) for any of the following? Select all that apply!

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    35 Comments

    1. Trina Blake

      I was born with plycyctic kidneys. Being Dxd with T1D at age 30 didn’t help. My kidney function has worsened, but impacted my life in any real way. I knew at age 15, I would not do dialysis, and when I turned 18 my father (a civil judge – and yes he was a civil nice guy) drafted an advanced care directive for me (this was in 1970 – probably one of the first). I was away at university 000 miles away, and my parents weren’t close enough to advocate for me and my wishes. I am so very grateful. I carried copies of that document everywhere. Turns out, they had asked physician friends who said they wouldn’t do dialysis if they were in my position. I believe that made it easier on my parents to accept my adamant refusal.

      1
      3 years ago Log in to Reply
    2. Becky Hertz

      Frozen (adhesive capsules) shoulders, hips, trigger finger.

      3 years ago Log in to Reply
      1. Jana Venditte

        Wow…lots of those.

        3 years ago Log in to Reply
    3. JuJuB

      Does “peripheral retinopathy” — treated with laser and now a non-issue — count?

      3 years ago Log in to Reply
      1. JuJuB

        Oh! Now that I’ve read the previous comments, also frozen shoulder/adhesive capsulitis which, according to my endo, affects diabetic WOMEN at an alarmingly higher rate than any other population.

        2
        3 years ago Log in to Reply
    4. Jana Venditte

      With controlled blood glucose levels any complications have resolved.

      3 years ago Log in to Reply
    5. Katrina Mundinger

      Cataracts diagnosed a year after T1D. Had surgery for it.

      Also frozen shoulder(s), trigger finger/Dupuytren’s contracture…

      2
      3 years ago Log in to Reply
    6. Lawrence S.

      I have a host of diabetes related diseases and complications. I have frozen shoulders, celiac disease, gastroparesis, something called pemphigoid which causes blisters inside my mouth, tears in my retina which were repaired with laser, hypothyroid. Now, high cholesterol, although I eat a very low fat and cholesterol diet. I have cataracts. But, they may or may not be directly related to my diabetes (just had cataract surgery, last week). I also have respiratory issues, including asthma. Again, I don’t know the relationship to diabetes. And, it goes on and on …

      3 years ago Log in to Reply
      1. Sue Martin

        I hope you heal quickly from your cataract surgery.

        2
        3 years ago Log in to Reply
    7. Cristina Jorge Schwarz

      I have been diagnosed with a few listed, but they are attributes to my other autoimmune diseases, which came about the same time as my T1D, about 6 years ago.

      1
      3 years ago Log in to Reply
    8. Jneticdiabetic

      Frozen shoulder

      1
      3 years ago Log in to Reply
    9. Marty

      My last endo believed some people were genetically predisposed to complications and some weren’t and, luckily, I wasn’t. I had frozen should a few years after I was diagnosed. I currently have trigger finger-not bad enough to treat- and mild neuropathy in my feet-loss of sensitivity to vibration. I feel lucky.

      3 years ago Log in to Reply
    10. Ahh Life

      “Your foolish questions which don’t have no brains.” Is a famous line from Kipling’s Captain courageous.

      Without assuming a persona that makes Grumpy Cat seem genial . . . but a lot of comorbidities and conditions arise because of age as well as long-term T1D. You reach a point where preparation forgoes itself. Acceptance, coping, and managing become paramount.

      Or, for those of you more religiously rather than scientifically inclined: “and we all do fade as a leaf; and our iniquities, like the wind, have taken us away.”

      3
      3 years ago Log in to Reply
      1. KarenM6

        Hi Ahh Life –
        The last “religious” quote… it’s beautiful… where is it from, if I may ask?
        Thank you!

        3 years ago Log in to Reply
      2. Ahh Life

        KarenM6 — KJV Isaiah 64:6

        1
        3 years ago Log in to Reply
      3. KarenM6

        Thank you, Ahh Life!! 🙂

        3 years ago Log in to Reply
    11. John McHenery

      I have had cataracts in both eyes and was told diabetes was probably a causative factor. Both treated successfully. Not bad after 53 years T1.

      3 years ago Log in to Reply
    12. Mary Coleman

      Frozen shoulder (in each one, resolved after PT), high blood pressure.

      3 years ago Log in to Reply
      1. Daniel Bestvater

        Both shoulder’s frozen about 10 years ago. They never really recovered and the last few years knees & hips seem to be trying to freeze. Seen several different specialists and they have all said it is some sort of connective tissue disorder. Maybe due to T1D and maybe not. Also I have had “delayed” gastric emptying for ~5 years. They say maybe from T1D and maybe not, seems like gastroparesis to me!
        T1D 45 years, A1c’s around 6 and 60 years of age.

        3 years ago Log in to Reply
    13. Anneyun

      Both shoulders frozen for 6 years but they eventually unfroze. Many trigger fingers and I had the surgery on them all.

      3 years ago Log in to Reply
    14. Steve Rumble

      I have been diagnosed with level 1 neuropathy (micro aneurisms) which have required no treatment. The original diagnosis occurred in the late 1980s and has remained relatively constant since that time.

      3 years ago Log in to Reply
      1. Steve Rumble

        Retinopathy, not neuropathy!

        3 years ago Log in to Reply
    15. lis be

      also, trigger finger

      1
      3 years ago Log in to Reply
    16. AnitaS

      I should have read others’ comments first as I put “no complications”, but I have had trigger finger and frozen shoulder and those didn’t even come to mind when I first read the question. Trigger finger required surgery and frozen should resolved on its own after a few years.

      3 years ago Log in to Reply
    17. KarenM6

      Bad hip & knees (knees maybe because of age?), trigger fingers and thumbs (all the treatments possible for that), carpal tunnel, cataracts (no surgery yet), one point away from having glaucoma, DR (both eyes), Low (and deficient) calcium and D3 levels… probably more, but that’s what I’m remembering right now.
      If bad memory is a diabetes “thing”, I have it!

      1
      3 years ago Log in to Reply
    18. dave hedeen

      Hope cataracts would be included with diab eye problems?

      3 years ago Log in to Reply
    19. Carol Meares

      Mild cardiovascular, gum recession and dry mouth.

      3 years ago Log in to Reply
    20. Sandy Norman

      Frozen shoulder both of them 20-22 years ago- had 2 surgeries and has never bothered me since.

      3 years ago Log in to Reply
    21. Molly Jones

      I had gastroparesis before the onset of diabetes, then frozen shoulder about seven years after.

      3 years ago Log in to Reply
    22. PatC

      Diabetic Neuropathy wasn’t listed for some reason, but it was the diagnosis for the pain in my hands.

      3 years ago Log in to Reply
    23. ConnieT1D62

      I have lived a very full and active life with T1D since the age of 8 years. As an older adult approaching age 70 I have neuropathic and osteopenic joints in my hands, fingers, feet and toes. And another challenge not listed above: Cardiac autonomic neuropathy – slow heart pump function. Have a pacemaker to keep my heart rhythm in sync. Also have chronic dental issues, resolved background retinopathy and lower than normal kidney function. Other than that I am a lot healthier than a lot other Baby Boomers my age who don’t live with TID.

      1
      3 years ago Log in to Reply
    24. PamK

      I chose “None…” but some people tell me that my hypoglycemia unawareness is a complication. Not everyone thinks it is though, so I am not sure.

      2 years ago Log in to Reply
    25. mbulzomi@optonline.net

      No matter how well you keep your numbers in check, the Eyes always suffer. Every six or so weeks I get a shot of Eylea in both eyes. (57 years of the disease, five insulin pumps, been on a CGMS for over 11 years. Both eyes’ cataracts operations performed (Over 20 years ago). Both cataract lens growth removed via leaser (Most people do not know this happens, a film the grows under the lens and my cause your sight to change. surgery in the left, I went blind in the eye because the small veins started to bleed, over 350 quaternizations performed, Thank God my insurances cover(ed) most of the medical procedures.

      2 years ago Log in to Reply
    26. eherban1

      This question really should be banded (in 10 year bands- E.g. for those with t1D 10 years or less…, for those with t1D more than 10 years but less than 20…,) by duration of the individual’s t1D experience. I didn’t have any complications for the first 30 years, then things started showing up.

      2 years ago Log in to Reply
    27. Trish Hubler

      I was diagnosed with retinopathy but that has resolved following being placed on an insulin pump and CGM over 15 yrs ago. Currently I have some neuropathy in my feet but nothing serious as of yet.

      2 years ago Log in to Reply

    Have you been diagnosed with any of the following diabetes complications? Please select all that apply to you. Cancel reply

    You must be logged in to post a comment.




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