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    • 59 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 12 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 14 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 19 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 20 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 21 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 21 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 15 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 20 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    When you are in a situation where people are asked to silence their devices (e.g., in a theater, during an important meeting or ceremony, etc.), do you take any steps to ensure that your T1D devices do not alarm? Select all that apply.

    Home > LC Polls > When you are in a situation where people are asked to silence their devices (e.g., in a theater, during an important meeting or ceremony, etc.), do you take any steps to ensure that your T1D devices do not alarm? Select all that apply.
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    47 Comments

    1. Ginger Vieira

      I’m still using the Libre 14-day because it CANNOT ALARM! All those alarms give me anxiety after two pregnancies. There are certainly times when I wish my CGM could alarm, but I make do. Yes, I scan my Libre a lot, but I enjoy the peace and quiet, too. No alarm fatigue for me.

      1
      3 years ago Log in to Reply
      1. Lori Lehnen

        Interesting. Thank you for sharing.

        3 years ago Log in to Reply
      2. Mitch Chernoff

        I now use the Libre 2, but with a reader rather than my phone. Unlike the phone app the Libre 2 reader has an option to turn off all alarms.

        3 years ago Log in to Reply
    2. Nevin Bowman

      My pump and phone are always on vibrate.

      1
      3 years ago Log in to Reply
    3. Kathy Hanavan

      My alarms are already on vibrate, so unless it is an urgent low (unlikely to happen), nobody else knows about my alarms.

      3 years ago Log in to Reply
    4. Grey Gray

      I normally keep my alarms on vibrate at all times. Should something stupid happen and my pump actually does put out an audible alarm. Answer it as fast as possible and hope it interrupts things less than the baby crying that someone else should have left at home.

      4
      3 years ago Log in to Reply
      1. ELYSSE HELLER

        I LOVED YOUR COMMENT!

        3 years ago Log in to Reply
    5. Phyllis Biederman

      All my alarms are already set to vibrate.

      1
      3 years ago Log in to Reply
    6. Jane Cerullo

      The only alarm I have on is high alert which never happens. Also if under 60 the alarm will sound. But I have numbers on my applewatch so I keep an eye on numbers.

      3 years ago Log in to Reply
    7. Sherolyn Newell

      I haven’t really felt the need to turn off or silence alarms. I keep an eye on the CGM though to try and head them off. There are a couple places I can think of that I would.

      1
      3 years ago Log in to Reply
    8. KCR

      I put my phone in silent mode and keep it in my purse to muffle any CGM alarms and rely on my watch (Bluejay GTS) to check BG levels.

      3 years ago Log in to Reply
    9. KIMBERELY SMITH

      I keep it on

      1
      3 years ago Log in to Reply
    10. Annie Wall

      I chose “do something else”. All my pump alarms are on vibrate except for the Dexcom’s urgent low. I never turn my phone off but always turn off my phone ringer and I put my phone on do not disturb.

      1
      3 years ago Log in to Reply
    11. ELYSSE HELLER

      If anybody was to moan about my alarm alerting me that I was heading into a possibly dangerous medical event I would tell them “Oh, I am SO SORRY that my disease is annoying you”.

      2
      3 years ago Log in to Reply
    12. mlettinga

      I always have my sounds set to vibrate. I turn my I-watch to theater mode.

      1
      3 years ago Log in to Reply
      1. Anneyun

        Me too.

        3 years ago Log in to Reply
      2. KarenM6

        There’s a “theater mode” on an I-watch?! =:0 How cool!! I don’t have an I-watch, but maybe they’ll lead the way for other devices. 🙂

        3 years ago Log in to Reply
    13. Scott Rudolph

      All my sounds come into my hearing aids, so no one else ever hears them.

      2
      3 years ago Log in to Reply
      1. Janis Senungetuk

        Wish I could do that! Do you control sound levels thru a phone app? When purchased 2 yrs ago, told phone would stream calls thru aids, not happening.

        3 years ago Log in to Reply
    14. Lawrence S.

      I am rarely, if ever, in situations where I need to silence my devices. I could see myself turning the volume down on my phone. However, I doubt I’d do anything with my pump. I guess it would depend upon the circumstances.

      1
      3 years ago Log in to Reply
    15. terrih57@msn.com

      I don’t go to many events where devices need to be silenced but I don’t normally change anything. Always thinking everything is in good control. Lol. Occasionally I have had it beep but I have it set to low volume and just a single beep so it’s never been an issue

      3 years ago Log in to Reply
    16. Marty

      I seriously annoyed the person sitting next to me at an opera by glancing too frequently at my lighted watch face to check my BG. When I explained to my brother why I wanted to switch seats with him at the break, he commented (loudly) that the guy might prefer having to step aside for the paramedics when they had to rescue me from passing out from a low BG. It did kind of spoil the event for me, but I’m not sure what else I could of done after a brisk walk up a hill to get to the opera house after eating an unfamiliar meal at an unusual time.

      4
      3 years ago Log in to Reply
    17. AnitaS

      I may change my CGM low alert. I usually have it at 85 but I will lower it to 70, or even 60 if I know I have already taken steps to avoid a low if needed

      3 years ago Log in to Reply
      1. AnitaS

        I very rarely feel a vibration from the vibrate mode so I don’t typically use that setting.

        1
        3 years ago Log in to Reply
    18. Yousif Devlin

      Alarms already reduced to the most important ones like going low. All the ones that rise or high reminders are already off on my pump. Watch and phone are already linked to cgm, so vibrate is all I need.

      0
      3 years ago Log in to Reply
    19. Mary Halverson

      I turned off my phone at a funeral I recently attended, and had taken steps to make sure my bg would be good for that hour. At an opera, I would turn it to vibrate.

      2
      3 years ago Log in to Reply
    20. Jen Farley

      Sometimes I do notify them that due to a medical condition I am unable to silence my devices. If I get a – then you must leave – I will silence what I can and excuse myself before any noise is made. I have noticed with my most recent Tandem pump replacement you can turn all alerts to vibrate. Not sure if it works like that but I do what I can to fix anything that may sound an alarm.

      2
      3 years ago Log in to Reply
    21. Becky Hertz

      I have an iPhone and Apple Watch. I get a vibratory alert from my watch before my Dex or pump goes off so am able to silence any alarms that might happen.

      3 years ago Log in to Reply
    22. Jodi Greenfield

      My cgm does not have an alarm feature. My pump has no way to silence or turn off all alarms, so I put my pump control device in my purse and be prepared to respond as fast as I can.

      1
      3 years ago Log in to Reply
    23. Amanda Barras

      None/Something else.
      I always have mine silenced because I don’t mind a vibrate, but I hate hearing it scream all the time. So, unless it’s a critical low alarm, I am always set to vibrate for everything.

      1
      3 years ago Log in to Reply
    24. cynthia jaworski

      I am glad to turn my phone completely off. However, my cgm only alerts me through its scanner (libre), and that is left on.

      3 years ago Log in to Reply
    25. Yaffa Steubinger

      Dexcom G7 has a silence feature that I use. It allows me not to receive any alarms but I’ve got my Apple watch to periodically check to be sure blood sugar is in range.

      1
      3 years ago Log in to Reply
    26. Janis Senungetuk

      I’ve only experienced one time when there was a complaint…and it was during a medical appointment. The followup appointment after cataract surgery my CGM (Dexcom) kept warning of a low trend. I ate a couple gummies to avert the low, but by the time I was in the exam room, 40 minutes later than scheduled, I started getting severe low alarms. The staff member who had just started the vision test was extremely annoyed by the sound. He told me to turn it off and take it off. I explained what the alarm was, that I wasn’t going to remove it, and that I needed to very briefly reach my purse, where I had more gummies, to treat the low. He stormed out of the exam room. I sat there for maybe 10 minutes eating my supply of fast acting carbs before another staff person popped their head in the door to ask if I needed any assistance. By then the alarms had stopped and my glucose level was quickly raising from all of the carbs. I let her know that I was OK, that the exam could continue. The guy who had been so annoyed returned, rushed through the vision test and told me to go back to the waiting room. Five minutes later I finished the appointment by speaking with the surgeon. I mentioned to her that a staff member had been very annoyed by my CGM alarm. She was aware of that, no apology. Fortunately, that was the second of my two cataract surgeries and I’ve had no reason to need her services again.

      1
      3 years ago Log in to Reply
      1. Lawrence S.

        That employee was WAY out of line. That is NOT patient care. He should have been fired for his extremely rude behavior. I’m glad it didn’t happen to me. I don’t think I would have been so diplomatic. I hope you find a different Ophthalmologist.

        2
        3 years ago Log in to Reply
    27. PatC

      I put my phone into Airplane Mode and leave my pump alone. If it sounds off, I step out and take care of myself.

      3 years ago Log in to Reply
    28. KarenM6

      My old system, I would do anything and everything possible to avoid a low and turned all high alarms off. The plays I go see are in a small-ish venue and it would disturb the whole theatre if anything beeped or blurped or vibrated.
      I have no idea (yet) how to turn things off on my new system… and being the complicated device that it is, there’s likely something I would miss. So, I haven’t been to a play recently.
      I did not do anything when I had jury duty. I figured that it was better that I beep aloud there so that any trials could stop for me. But, I didn’t even make it into a courtroom, let alone on a jury panel.

      In the past, I would also change my CGM (if necessary) and pump early to make sure there were no “you’re almost done with X” beeps.

      Like others, I have alarm fatigue!

      1
      3 years ago Log in to Reply
      1. Lawrence S.

        Yes, KarenM6, I too have alarm fatigue.
        I was deleted from being called to jury duty many years ago because I am a T1D. I have not heard from a jury duty call since the 1980’s.

        1
        3 years ago Log in to Reply
    29. Donna Condi

      I will eat a glucotab to avoid a low.

      3 years ago Log in to Reply
    30. Laura G

      I’m a professional orchestra musician, and loud alarms are absolutely not acceptable. I’ve done all of these strategies to avoid alarms, I’ve been successful so far, but it feels unnecessarily stressful and risky. I can always find a way to cope with or work around a low BG discreetly, but I could get fired from a job I really love for a single loud alarm. I keep hoping that pump manufacturers will let users sign a form to release them from liability and be given opt-in access to an “All-Silent-Mode” setting for work that would override every alarm. I understand this isn’t for everyone, but I’m probably not the only PWD with professional obligations who would be very grateful for this option.

      4
      3 years ago Log in to Reply
    31. PamK

      I chose “None” because I normally have my alerts/alarms set to vibrate, so no change is needed. I only set my phone to “airplane mode” when in this type of situation.

      3 years ago Log in to Reply
    32. Cristina Jorge Schwarz

      I notify the theatre at least a week in advance of my situation – including the pump screen occasionally being on. Under the ADA, they have to allow me some reasonable accommodation. They’ve always been understanding.

      3 years ago Log in to Reply
    33. Melinda Lipe

      I keep all alarms on vibrate due to my job as a nurse, so I do not have to silence anything.

      3 years ago Log in to Reply
    34. Jeff Balbirnie

      Summoned to local jury duty, I am literally unable to silence the CGM re lows. Called the courts ADA (American Disabilities Act) clerk what the judge required for diabetes tech? She had no idea what it was, why I could not turn off the alarm, entirely clueless. Sigh…. Contempt of Court for Severe Hypoglycemia Unawareness has a nice ring to it don’t you think???

      3 years ago Log in to Reply
      1. Marty

        I was once dismissed from jury duty when I explained about having jelly beans with me to treat possible lows because “No food is allowed in court”.

        3 years ago Log in to Reply
    35. mbulzomi@optonline.net

      As checked off, I turnoff my phone, however I always keep my “T” Slim pump alerts on. Thats tough “Do Do” if my beep bothers them!!!

      3 years ago Log in to Reply
    36. ChrisW

      On my phone I quit the dexcom app when I need to silence alerts.

      3 years ago Log in to Reply
    37. Kim Murphy

      I turn my blue tooth off because there is no way to silence some of the Dexcom and Omnipod 5 alerts. I just have to hope I don’t have any lows below 40 while my Bluetooth is off.

      3 years ago Log in to Reply

    When you are in a situation where people are asked to silence their devices (e.g., in a theater, during an important meeting or ceremony, etc.), do you take any steps to ensure that your T1D devices do not alarm? Select all that apply. Cancel reply

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