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    • 17 hours, 31 minutes ago
      Anita Stokar likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Hard to truly say without details. I said likely not, but really this is such an open ended question that has too many possibilities to answer.
    • 17 hours, 36 minutes ago
      Anita Stokar likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I use omnipod and dexcom G7. At 70 years old, I am fortunate to get the full 80 hours with each Omnipod which translates into three pump changes every 10 days. This works very well with the 10 day G7. I am also able to build up extra pods. I also use an open source AID algorithm so do not have to worry about having both CGM and pump on the same side of the body.
    • 17 hours, 43 minutes ago
      Anita Stokar likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      It depends on the travel distance. The longer the distance the more important the reimbursement it is the total deal. If it's across the street keep the money. If it's across the country we need to talk.
    • 2 days, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 2 days, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 12 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 2 days, 12 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 2 days, 14 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 18 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 18 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 19 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 2 days, 20 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 2 days, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 20 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 21 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 21 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 3 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 12 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 3 days, 15 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 3 days, 15 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 16 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 3 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 3 days, 18 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
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    Has your main diabetes healthcare provider discussed tips and tricks on how best to prepare yourself and your T1D if you have a cold or get the flu?

    Home > LC Polls > Has your main diabetes healthcare provider discussed tips and tricks on how best to prepare yourself and your T1D if you have a cold or get the flu?
    Previous

    How does drinking caffeinated drinks impact your blood glucose levels? Share more about your experience with caffeine in the comments.

    Next

    If you use a continuous glucose monitor (CGM), have you ever been asked to remove it for a medical procedure? Share more about your experiences and what procedures you had to remove it for in the comments!

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    24 Comments

    1. Molly Jones

      It was good to be informed that my BG does not always increase due to illness. Sometimes it decreases depending on variables.
      I have two different insulin pump profiles for sickness days.

      1
      2 years ago Log in to Reply
    2. Steven Gill

      I’ve seen a pile of endocrinologists, several educators, and all the doctors in between. Never had any of them discuss anything for sickdays.

      2 years ago Log in to Reply
    3. Trina Blake

      I answered “no”. This – to me – is another example of the narrow approach of Endo’s towards newly Dx’d adults. WHen I was Dx’d (30 years old, so naturally first Dx’d with T2D although I had no risk factors for T2D.) I was given Rx’s for insulin and syringes and sent on my way. I had to use the label to see what the dose and frequency were. After close to 40 years with T1D, I have yet to have a sick day discussion.

      2 years ago Log in to Reply
    4. Jane Cerullo

      I’m an RN so really don’t need any tips. But was never even brought up

      2 years ago Log in to Reply
    5. Mick Martin

      Yes … about 25 years ago!

      2 years ago Log in to Reply
    6. Tom Caesar

      After over 50 years with type 1 I feel as qualified as my current Doctor for treating colds, flu, etc. We’ve discussed covid and treated that, but he feels I’m experienced with simpler maladies.

      1
      2 years ago Log in to Reply
    7. Lawrence S.

      I answered “other.” I’m sure I discussed it about 46 or 47 years ago.

      2 years ago Log in to Reply
      1. Lawrence S.

        I just remembered. I went to the Joslin Clinic at the Deaconess Hospital in Boston, back around 1985. I took a week long course there. One of the subjects was adjusting insulin doses for sick days.

        1
        2 years ago Log in to Reply
    8. KCR

      My main HCP looks more at the “big picture” so I see a CDE when I have concerns like this.

      2 years ago Log in to Reply
    9. Shelly Smith

      I answered “other” because I’d be surprised if my doctors have not talked to me about this, I just don’t remember it!

      2
      2 years ago Log in to Reply
    10. Melinda Lipe

      Ive had T1D for over 50 years. I am so blessed to have been well during this col and flu season.

      2 years ago Log in to Reply
    11. Lindsey Whitnell

      Only at diagnosis

      2 years ago Log in to Reply
    12. Marty

      I got a book when I was first diagnosed that explained what to do on sick days. My current endo has never brought it up but she encourages me to call if I ever need help with anything.

      2 years ago Log in to Reply
    13. Beckett Nelson

      My endocrinologist never has, but I know it’s been discussed with my CDE a couple times over the last 30+ years

      2 years ago Log in to Reply
    14. terrih57@msn.com

      I said No but after 47 years I suspect he knows I understand what I need to do. He always asks if I have any questions ( like he really means it 👍) so I’m comfortable talking if I need help.

      1
      2 years ago Log in to Reply
    15. Anita Stokar

      I don’t think so but a diabetes educator did a few years ago. My current endo has listened to what I had done during my recent covid experience and she was fine with what I had done.

      2 years ago Log in to Reply
    16. Ernie Richmann

      No but I got advice if I got Covid.

      2 years ago Log in to Reply
    17. Donna Condi

      No. 25 plus years and I’ve never had the “sick day” conversation with a provider.

      2 years ago Log in to Reply
    18. Jen Farley

      They just gave me the flu, Covid, pneumonia vaccine. No information on whether I have it.

      2 years ago Log in to Reply
    19. Joan Benedetto

      Yes, ten years ago when our son was diagnosed at 18 months. Sick day protocol was covered during our initial training. It has not come up since.

      2 years ago Log in to Reply
    20. ConnieT1D62

      Way back in the early days of life with T1D my parents were instructed on sick day protocols, and every so often throughout the years with T1D I have had a refresher discussion with a diabetes health care provider. However, not lately as in the past 30 years or so. I am a long time RN, MSN, CDCES with a clinical specialty in diabetes care nursing so I have done a lot of education with others who are learning to live responsibly with their diabetes …. whether they are T1, T2, LADA, or pre-D. As an educator it’s always good to have a discussion to asses what the individual knows and to answer any questions they may have.

      2 years ago Log in to Reply
    21. David Hedeen

      Said no, no discussion, haven’t had flu in 5 years & no covig !

      2 years ago Log in to Reply
    22. Jeff Balbirnie

      Hysterical laughter at the presumption of actual medicine being discussed rather than their exclusive obsession solely with blood sugar and numbers thereof… (sic. for years)

      2 years ago Log in to Reply
    23. George Lovelace

      T1 60 years so what is there to learn?

      2 years ago Log in to Reply

    Has your main diabetes healthcare provider discussed tips and tricks on how best to prepare yourself and your T1D if you have a cold or get the flu? Cancel reply

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