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    • 2 hours, 14 minutes ago
      Lawrence S. likes your comment at
      Has your cost of insulin changed in 2025?
      I started the year paying the $35 Medicare drug cost but then the pharmacy started filling the insulin as Medicare Part B (because it being used in my pump) and I get if for $0.
    • 2 hours, 14 minutes ago
      Lawrence S. likes your comment at
      Has your cost of insulin changed in 2025?
      Medicare cap of $35 a month has been has been wonderful for so many people.
    • 2 hours, 46 minutes ago
      Kathy Hanavan likes your comment at
      Has your cost of insulin changed in 2025?
      I started the year paying the $35 Medicare drug cost but then the pharmacy started filling the insulin as Medicare Part B (because it being used in my pump) and I get if for $0.
    • 3 hours, 8 minutes ago
      Bill Williams likes your comment at
      Has your cost of insulin changed in 2025?
      Medicare cap of $35 a month has been has been wonderful for so many people.
    • 3 hours, 15 minutes ago
      Judith Marged likes your comment at
      Has your cost of insulin changed in 2025?
      I started the year paying the $35 Medicare drug cost but then the pharmacy started filling the insulin as Medicare Part B (because it being used in my pump) and I get if for $0.
    • 3 hours, 15 minutes ago
      Judith Marged likes your comment at
      Has your cost of insulin changed in 2025?
      Medicare cap of $35 a month has been has been wonderful for so many people.
    • 3 hours, 23 minutes ago
      John Barbuto likes your comment at
      Has your cost of insulin changed in 2025?
      Medicare cap of $35 a month has been has been wonderful for so many people.
    • 18 hours, 25 minutes ago
      Dennis Dacey likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 1 hour ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I actually don't care, consequently I don't know either. When I was diagnosed I often didn't have the $18 for a vial of Humulin and used expired insulin others wouldn't. I tracked everything. The math didn't change, old or new. How many do I have total? More than I need and enough to share through my endo's office.
    • 1 day, 1 hour ago
      Katrina Mundinger likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I am working through the end of my 90 day supply of Insulin. It is time to order another batch. Usually 6 vials.
    • 1 day, 1 hour ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Funny you should ask right now. I had to personally buy my first-ever vial in 25 years. Thanks Medicare for all the obstacles you place in the way. Am I grateful for Medicare? Yes, I guess, but I paid in all my life and I’m still paying. But Walgreens can never get the preauth right. They don’t send it to my doc or they send the wrong form. So I had the bright idea to change pharmacy’s, Publix. I went and had a convo with them, explaining I’m on a pump, I mentioned part B, the preauth. No problem. Have your doc send the script. That’s a whole other story. Then I get a call from Publix. We don’t do part B. Wow, wish you had told me. OK, I’m just going back to Walgreens. Except Medicare won’t allow refills without doctor script. So they called my doctor and my doc declined it because they had already approved it for Publix. Now I had sent an email explaining all of this to doc. I called my doc but they don’t answer their phones. Left a detailed message but have no idea whether they got anything. So I asked Walgreens if I could buy a vial. Nope, no script from doc. So I went to Publix, explained it all and they sold me a vial for $29. It was worth it but so frustrating because I can’t get my hands on a script anymore and take it where I dam-well please. Sorry for long post. I’m angry.
    • 1 day, 1 hour ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Oh sometimes I miss the old days of not needing an Rx for insulin in any state. Needles and were restricted due to illegal drug users, but then came disscsions about drug abusers sharing dirty needles. I'm not sure where that ended. Anyway it's extremely abusive for politics and insurance companies controlling diabetic supplies. The disease is a big enough burden.
    • 1 day, 1 hour ago
      TEH likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      I just got my 3 mo supply so I get 6 for 3 mo. I just opened the 1st if the 6
    • 1 day, 2 hours ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      This is one of those questions that makes me wonder what on earth somebody hopes to learn from the answer. T1D Exchange - please explain.
    • 1 day, 2 hours ago
      KSannie likes your comment at
      How many unopened, unexpired insulin pens or vials do you have?
      Medicare is basically not covering Tresiba in 2026 :( so I've been busy stockpiling pens. I have enough Tresiba pens in the fridge to get me through '26 without having to buy any.
    • 1 day, 5 hours ago
      Steve Rumble likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 8 hours ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 1 day, 19 hours ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 20 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 1 day, 20 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 1 day, 20 hours ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 1 day, 22 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 1 day, 22 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 1 day, 22 hours ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 1 day, 23 hours ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
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    Has your main diabetes healthcare provider discussed tips and tricks on how best to prepare yourself and your T1D if you have a cold or get the flu?

    Home > LC Polls > Has your main diabetes healthcare provider discussed tips and tricks on how best to prepare yourself and your T1D if you have a cold or get the flu?
    Previous

    How does drinking caffeinated drinks impact your blood glucose levels? Share more about your experience with caffeine in the comments.

    Next

    If you use a continuous glucose monitor (CGM), have you ever been asked to remove it for a medical procedure? Share more about your experiences and what procedures you had to remove it for in the comments!

    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    24 Comments

    1. Molly Jones

      It was good to be informed that my BG does not always increase due to illness. Sometimes it decreases depending on variables.
      I have two different insulin pump profiles for sickness days.

      1
      2 years ago Log in to Reply
    2. Steven Gill

      I’ve seen a pile of endocrinologists, several educators, and all the doctors in between. Never had any of them discuss anything for sickdays.

      2 years ago Log in to Reply
    3. Trina Blake

      I answered “no”. This – to me – is another example of the narrow approach of Endo’s towards newly Dx’d adults. WHen I was Dx’d (30 years old, so naturally first Dx’d with T2D although I had no risk factors for T2D.) I was given Rx’s for insulin and syringes and sent on my way. I had to use the label to see what the dose and frequency were. After close to 40 years with T1D, I have yet to have a sick day discussion.

      2 years ago Log in to Reply
    4. Jane Cerullo

      I’m an RN so really don’t need any tips. But was never even brought up

      2 years ago Log in to Reply
    5. Mick Martin

      Yes … about 25 years ago!

      2 years ago Log in to Reply
    6. Tom Caesar

      After over 50 years with type 1 I feel as qualified as my current Doctor for treating colds, flu, etc. We’ve discussed covid and treated that, but he feels I’m experienced with simpler maladies.

      1
      2 years ago Log in to Reply
    7. Lawrence S.

      I answered “other.” I’m sure I discussed it about 46 or 47 years ago.

      2 years ago Log in to Reply
      1. Lawrence S.

        I just remembered. I went to the Joslin Clinic at the Deaconess Hospital in Boston, back around 1985. I took a week long course there. One of the subjects was adjusting insulin doses for sick days.

        1
        2 years ago Log in to Reply
    8. KCR

      My main HCP looks more at the “big picture” so I see a CDE when I have concerns like this.

      2 years ago Log in to Reply
    9. Shelly Smith

      I answered “other” because I’d be surprised if my doctors have not talked to me about this, I just don’t remember it!

      2
      2 years ago Log in to Reply
    10. Melinda Lipe

      Ive had T1D for over 50 years. I am so blessed to have been well during this col and flu season.

      2 years ago Log in to Reply
    11. Lindsey Whitnell

      Only at diagnosis

      2 years ago Log in to Reply
    12. Marty

      I got a book when I was first diagnosed that explained what to do on sick days. My current endo has never brought it up but she encourages me to call if I ever need help with anything.

      2 years ago Log in to Reply
    13. Beckett Nelson

      My endocrinologist never has, but I know it’s been discussed with my CDE a couple times over the last 30+ years

      2 years ago Log in to Reply
    14. terrih57@msn.com

      I said No but after 47 years I suspect he knows I understand what I need to do. He always asks if I have any questions ( like he really means it 👍) so I’m comfortable talking if I need help.

      1
      2 years ago Log in to Reply
    15. Anita Stokar

      I don’t think so but a diabetes educator did a few years ago. My current endo has listened to what I had done during my recent covid experience and she was fine with what I had done.

      2 years ago Log in to Reply
    16. Ernie Richmann

      No but I got advice if I got Covid.

      2 years ago Log in to Reply
    17. Donna Condi

      No. 25 plus years and I’ve never had the “sick day” conversation with a provider.

      2 years ago Log in to Reply
    18. Jen Farley

      They just gave me the flu, Covid, pneumonia vaccine. No information on whether I have it.

      2 years ago Log in to Reply
    19. Joan Benedetto

      Yes, ten years ago when our son was diagnosed at 18 months. Sick day protocol was covered during our initial training. It has not come up since.

      2 years ago Log in to Reply
    20. ConnieT1D62

      Way back in the early days of life with T1D my parents were instructed on sick day protocols, and every so often throughout the years with T1D I have had a refresher discussion with a diabetes health care provider. However, not lately as in the past 30 years or so. I am a long time RN, MSN, CDCES with a clinical specialty in diabetes care nursing so I have done a lot of education with others who are learning to live responsibly with their diabetes …. whether they are T1, T2, LADA, or pre-D. As an educator it’s always good to have a discussion to asses what the individual knows and to answer any questions they may have.

      2 years ago Log in to Reply
    21. David Hedeen

      Said no, no discussion, haven’t had flu in 5 years & no covig !

      2 years ago Log in to Reply
    22. Jeff Balbirnie

      Hysterical laughter at the presumption of actual medicine being discussed rather than their exclusive obsession solely with blood sugar and numbers thereof… (sic. for years)

      2 years ago Log in to Reply
    23. George Lovelace

      T1 60 years so what is there to learn?

      2 years ago Log in to Reply

    Has your main diabetes healthcare provider discussed tips and tricks on how best to prepare yourself and your T1D if you have a cold or get the flu? Cancel reply

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