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    • 10 hours, 49 minutes ago
      lis be likes your comment at
      If your family members are hesitant about screening for T1D-autoantibodies, why is that?
      I'm starting to sound like a broken record but, there appears to be two groups of T1Ds - (1) those with clear genetic links to others in their families with T1D and (2) those who are the one and only T1D in their entire family. I'm clearly in this second group. No one, on both sides of my family, going back to my great-grandparents and their siblings (born in the late 1800s) down to my children and their cousins (literally dozens of them) have either T1D or T2D. Though not entirely pointless, the likelihood of anyone in my family testing positive appears to be no different than the general public. Do we have ANY answers as to why these two groups exist?
    • 14 hours, 25 minutes ago
      Pam Hamilton likes your comment at
      If your family members are hesitant about screening for T1D-autoantibodies, why is that?
      Maybe because we're all tired of answering these questions about antibodies, and we don't want to annoy our families as much as the website annoys us! LOL.
    • 17 hours, 12 minutes ago
      Christine Zinn likes your comment at
      If your family members are hesitant about screening for T1D-autoantibodies, why is that?
      My siblings are all in their 60’s. My son is 35 years old. My D was triggered by a virus and I am the only person in my family tree with T1D. No reason for them to get checked.
    • 17 hours, 13 minutes ago
      Christine Zinn likes your comment at
      If your family members are hesitant about screening for T1D-autoantibodies, why is that?
      My siblings are all >70 yrs old, though my younger sister tested a few years ago. I have no bio kids.
    • 17 hours, 48 minutes ago
      Abigail Elias likes your comment at
      If your family members are hesitant about screening for T1D-autoantibodies, why is that?
      I'm starting to sound like a broken record but, there appears to be two groups of T1Ds - (1) those with clear genetic links to others in their families with T1D and (2) those who are the one and only T1D in their entire family. I'm clearly in this second group. No one, on both sides of my family, going back to my great-grandparents and their siblings (born in the late 1800s) down to my children and their cousins (literally dozens of them) have either T1D or T2D. Though not entirely pointless, the likelihood of anyone in my family testing positive appears to be no different than the general public. Do we have ANY answers as to why these two groups exist?
    • 18 hours, 9 minutes ago
      Lawrence S. likes your comment at
      If your family members are hesitant about screening for T1D-autoantibodies, why is that?
      I'm starting to sound like a broken record but, there appears to be two groups of T1Ds - (1) those with clear genetic links to others in their families with T1D and (2) those who are the one and only T1D in their entire family. I'm clearly in this second group. No one, on both sides of my family, going back to my great-grandparents and their siblings (born in the late 1800s) down to my children and their cousins (literally dozens of them) have either T1D or T2D. Though not entirely pointless, the likelihood of anyone in my family testing positive appears to be no different than the general public. Do we have ANY answers as to why these two groups exist?
    • 1 day, 7 hours ago
      Amanda Barras likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      Their acceptance of "older" volunteers! T1D for 56 years, and currently 78 years old. Research opportunities are typically age restricted at levels well below my current age.
    • 1 day, 10 hours ago
      KarenM6 likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      Great point, not much recognition for those of us that have lived with T1D for a long time.
    • 2 days, 9 hours ago
      Phyllis Biederman likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      Many trials don’t take older people. I’m 71 and get eliminated.
    • 2 days, 9 hours ago
      Phyllis Biederman likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      Great point, not much recognition for those of us that have lived with T1D for a long time.
    • 2 days, 9 hours ago
      Phyllis Biederman likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      I’m going to be 80, and a “healthy” diabetic, yet my age eliminates me from most research. Aren’t they curious how I lived this long?
    • 2 days, 9 hours ago
      Phyllis Biederman likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      Their acceptance of "older" volunteers! T1D for 56 years, and currently 78 years old. Research opportunities are typically age restricted at levels well below my current age.
    • 2 days, 14 hours ago
      eherban1 likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      Many trials don’t take older people. I’m 71 and get eliminated.
    • 2 days, 14 hours ago
      eherban1 likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      I’m going to be 80, and a “healthy” diabetic, yet my age eliminates me from most research. Aren’t they curious how I lived this long?
    • 2 days, 15 hours ago
      Laurie B likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      I’m going to be 80, and a “healthy” diabetic, yet my age eliminates me from most research. Aren’t they curious how I lived this long?
    • 2 days, 15 hours ago
      Laurie B likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      The last clinical trial I participated in was a double failure, so it was all for not. So professionalisem, and error free for me.
    • 2 days, 15 hours ago
      Marty likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      Many trials don’t take older people. I’m 71 and get eliminated.
    • 2 days, 16 hours ago
      KCR likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      Many trials don’t take older people. I’m 71 and get eliminated.
    • 2 days, 17 hours ago
      John Barbuto likes your comment at
      What would make you more likely to participate in diabetes-related research? (Choose all that apply)
      Many trials don’t take older people. I’m 71 and get eliminated.
    • 3 days, 6 hours ago
      kristina blake likes your comment at
      What factors would affect your participation in diabetes-related research?
      I am willing to participate in research, but at 75, I'm usually outside the age requirements.
    • 3 days, 6 hours ago
      kristina blake likes your comment at
      What factors would affect your participation in diabetes-related research?
      I'm close to 80. No researchers are interested people my age so I don't give it much thought.
    • 3 days, 7 hours ago
      KarenM6 likes your comment at
      What factors would affect your participation in diabetes-related research?
      With the comments I see here there should be more research about aging with T1d. Just an idea…
    • 3 days, 10 hours ago
      lis be likes your comment at
      What factors would affect your participation in diabetes-related research?
      With the comments I see here there should be more research about aging with T1d. Just an idea…
    • 3 days, 10 hours ago
      lis be likes your comment at
      What factors would affect your participation in diabetes-related research?
      I do not qualify for most surveys and when I do, they want private information I do not want to give them, because I do not know how secure their computers ate.
    • 3 days, 15 hours ago
      Gerald Oefelein likes your comment at
      What factors would affect your participation in diabetes-related research?
      You get very few opportunities to volunteer when you're over 75.
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    From which healthcare provider do you receive the majority of your diabetes care?

    Home > LC Polls > From which healthcare provider do you receive the majority of your diabetes care?
    Previous

    If you use a CGM, do you look at the Glucose Management Indicator (GMI) available in many CGM reports? If so, how accurate is your GMI compared to your A1c drawn in a lab?

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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    32 Comments

    1. AnitaS

      A physician’s assistant who specializes in diabetes.

      3
      3 years ago Log in to Reply
      1. Gary Taylor

        Same here. There is no endocrinologist in my area.

        3 years ago Log in to Reply
    2. Jane Cerullo

      I answered NP because I usually see my Endo’s NP. This month see the doctor as his NPs keep leaving. I rally liked the NP I had for years but she left after having second baby. Saw her replacement once but he is gone now. Been going to this office for over ten years so too complicated to change now. Truthfully I take care of own diabetes. Need them for scripts mostly and labs.

      4
      3 years ago Log in to Reply
    3. Robin Melen

      I answered endocrinologist, but honestly most of my questions and concerns are answered in my every-other-month calls with my diabetes educator! She’s terrific!

      3 years ago Log in to Reply
    4. GLORIA MILLER

      I marked endo but I mainly go only because my insurance demands twice yearly visits in order to fill my prescriptions. I would not go otherwise since, after 66 years, I feel I can take care of myself regarding diabetes. When I was younger I stopped going to doctors for about ten years and I did just fine.

      2
      3 years ago Log in to Reply
    5. TEH

      My answer is really both. I see my Endo once a year and the other 3 times I see my PA. My Endo knows the physiological and the PA knows how to tweak the pump.

      1
      3 years ago Log in to Reply
    6. Merry Woolsey

      I answered Endo, however, if I don’t have one my primary care provider always “provides”.

      3 years ago Log in to Reply
    7. Steven Gill

      I’ve seen 5 endocrinologists (their specialty is the endocrine system/hormones, not necessarily diabetes) one said I was too old to need insulin and lose more weight. Another just ran tests and sent me on the way, at least the last got me on a pump/CGM. The only efficient one was at those medical trials, he taught me a good bit. For now I’ve been seeing a general practitioner although that may change.

      Am now retired and entering the VA health system, up to what’s required to follow up my care.

      2
      3 years ago Log in to Reply
    8. Liz Avery

      I answered NP as I see the nurse practitioner at my Endocrinologist practice.

      1
      3 years ago Log in to Reply
    9. Marsha Miller

      I see a Nurse Practitioner, but she specializes in Type 1 Diabetes.

      1
      3 years ago Log in to Reply
    10. Georgina Sokol

      Endo, but no longer. I have been TID FOR 58 years, and waiting for his majesty the endo for three hours in the office only to gave him cancel 2 out of 4 appointments a year is ridiculous ver. At this point, there is nothing the endo can tell me. This kast year I had a new pump that turned out to be faulty and was replaced. The whole time, the endo told me it was my imagination. I have had 5 endos in my life and they are not worth the frustration, lack of knowledge and waste of time driving an hour to get there, wait 3 hours to see him and then drive home for an hour. I am sooo disappointed in the general lack of attention and knowledge on the oart of endos concerning T1D’s. I have no faith left and will just rely on my GP for insulin prescriptions and reports to Medicare. My hA1C is consistently around 5.7. I do this myself with great control.

      1
      3 years ago Log in to Reply
    11. Lawrence S.

      I clicked “other” because I’m not sure what the person I see is. I go to the Endocrinology unit of a large hospital for quarterly visits. I always see a person who is an APRN, DNP. I have no idea what APRN means, but I believe the RN part means registered nurse. This hospital does not allow patients to select doctors or practitioners, the patient is assigned their health care providers. (This is a world renowned hospital).

      3 years ago Log in to Reply
      1. Lawrence S.

        Advanced Practice Registered Nurse.

        3 years ago Log in to Reply
      2. Lawrence S.

        A DNP, Doctor of Nursing Practice, is a higher-education degree. Those who earn a DNP have completed the highest level of training in nursing practice. A DNP-prepared nurse has a deep knowledge of evidence-based care and the ability to apply this knowledge in practice. A nurse with a DNP degree can influence healthcare policies, take on administrative roles and provide clinical education for nursing programs. .

        3 years ago Log in to Reply
    12. Lee Johnson

      I have not found a competent endo doc for the last 15 years. Current one has a terrible staff which jeopardizes her reputation!

      3 years ago Log in to Reply
    13. spencercarter1

      Although I see my endo regularly, I also use Your Diabetes Insider consultant Ben Tzeel. He is amazing and provided so much insight. I’ve had T1D for 45 years and thought I knew it all, but once I started working with Ben, I realized I didn’t.

      1
      3 years ago Log in to Reply
    14. Katrina Mundinger

      I’ve been seeing the same endo for almost 30 years. There was one visit I had with a different endo when my insurance changed but then my insurance changed back. My endo is fabulous. He knows the pumps, knows their ins and outs, and ALWAYS talks to me like I’m a person.

      2
      3 years ago Log in to Reply
    15. Eva

      I’m not sure the question really captures all the different types of “diabetes” care that some type 1’s require. In terms of how insulin is absorbed relative to what I eat and how much, my endo provides most information. In terms of exercise, how much cardio and strength training I need for my organs to stay healthy given that I take insulin, my trainer would be the provider of that information. Examining the minerals, vitamins and how my body processes the food that I need (macros, sensitivities etc…) given the exercise that I preform, my functional physician is my go to provider. Each has a role to play in my diabetes care.

      3 years ago Log in to Reply
    16. Tom Rintelmann

      I’ve seen an Endocrinologist off and on my whole adult life but now I see only my knowledgeable Primary Care Physician. I study many aspects of my T1D and only see an Endocrinologist when a specific test needs to be run. My last three A1C tests have been 5.7 to 6.1.
      Tom R

      3 years ago Log in to Reply
    17. Thomas Cline

      I use my GP because I’ve found (from experience) that endo’s seem to be useful only for those who can’t or won’t manage their diabetes well. I get better/more information from the web. If I could find a knowledgeable endo who was a Type I diabetic themselves I might consider it — I truly believe it takes one to know one with this medical problem.

      1
      3 years ago Log in to Reply
    18. Jneticdiabetic

      The majority of my care comes from my certified diabetes educator who n is bc also a nurse practitioner at my local endocrinology office. I’ve found my diabetes nurses are often a bit more tech savvy and better able to give helpful advice on pump/CGM adjustments..

      3 years ago Log in to Reply
    19. Janis Senungetuk

      Since 2006 I’ve been under the care of an endocrinologist. The first one for 10 years until insurance coverage changed. The current one for the past 9 years. For the quarterly Medicare required appointments I alternate between the endo and the diabetes educator. They’re both very knowledgeable about all of the tech devices and treat me as a whole person, not just a disease with a number.

      1
      3 years ago Log in to Reply
    20. fletchina

      I see my endo more than my CDE, but my CDE provides the most valuable care/ recommendations/ suggestions for optimizing my BG control

      3 years ago Log in to Reply
    21. Daniel Bestvater

      My diabetes care has mainly been self inflicted. I’ve been a pharmacist-CDE for about 35 years. In Canada insulin, pumps and most diabetic products are nonprescription so it is very easy to try new insulins, cgms and pumps.

      3 years ago Log in to Reply
    22. Patricia Kilwein

      My Endocrinologist actually has a team. I receive care from Dr, educators, nursed and dietitian. Very awesome care!

      3 years ago Log in to Reply
      1. Patricia Kilwein

        Nurse

        3 years ago Log in to Reply
    23. George Lovelace

      My Endo and I “just click”, I am her “Pump Poster Boy” and she Fine Tunes my Numbers, last A1c’s were 5.4 and 5.6

      1
      3 years ago Log in to Reply
    24. Wanacure

      I don’t actually see her. We have phone appts.

      3 years ago Log in to Reply
    25. Lauren Carey

      I see my assigned endocrinologists PA. He is more knowledgeable and understanding about trying to live a normal life with T1D. The one and only time I actually saw my endo, he tried to make me change everything about myself, instead of working with me. I will keep seeing the PA as long as I can.

      3 years ago Log in to Reply
    26. Liadona

      I was originally diagnosed as T2 because I was over 40 and still produced _some_ insulin. I received care from my GP then. It was, however, a misdiagnosis and I am now properly diagnosed as T1 and receiving care from an Endo.

      3 years ago Log in to Reply
    27. mbulzomi@optonline.net

      I have been using an Endo. for many years, but he has a CDE staff that I see at least 3 hour’s a year. (Medicare)

      3 years ago Log in to Reply
    28. James Cheairs

      I do not use an endo though I am in good shape. I was finally able to find an Internal Medicine MD (with a focus on diabetes) that was willing to be both my PCP and Diabetes doc. I see her annually for T1D and general health. Otherwise we communicate via My Chart. She follows my lead on how to write my prescriptions for pump and insulin supplies which is simply fabulous and has made life easier.

      3 years ago Log in to Reply

    From which healthcare provider do you receive the majority of your diabetes care? Cancel reply

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