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  • Activity
    • 2 hours, 34 minutes ago
      ConnieT1D62 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 3 hours, 16 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I always bring extra infusion sets and CGM sensors in case of accidental tear out. With Tandem pump, a charger is also essential. I forgot mine in my last weekend away. I use a Dexcom G6, so don't need to finger stick, but always bring my meter & strips just in case, and extra lancets as sometimes my non-diabetic family members like me to check their BG. I always take a vial and syringes in case of pump failure. For overnight trips also bring juice boxes/ glucose tabs and glucagon in case for lows. Hard to travel light as a T1D, especially with those GIANT Dexcom sensor inserters! 🧳🧳🧳
    • 3 hours, 32 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 3 hours, 33 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 3 hours, 49 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 3 hours, 49 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 3 hours, 50 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 3 hours, 51 minutes ago
      KarenM6 likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 5 hours, 11 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 5 hours, 12 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Ughhh the extra CGM sensor is the worst. It takes up an unnecessarily large amount of space.
    • 5 hours, 13 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
    • 5 hours, 14 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 5 hours, 15 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 5 hours, 15 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      A while back I went to the UK for a choir tour. I had just acquired a CGM, a G4 Platinum, specifically as a safety measure for the trip. I don't bring second meter any more, but this was before the Dexcom was trusted for bolusing, so I was still meter-dependent and felt I needed an extra just in case. As it turned out I DID need it, but not for myself. There was another, newly dx'd, T1 on the trip and she lost her meter when she left her bag on the bus or some such. So I was able to come to the rescue. It was possible to buy a replacement of course but European/Brit ones are calibrated in moles rather than mL so that was still a glitch--she used mine for the remainder of the trip.
    • 5 hours, 16 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Just did this and brought almost all of these things. Didn’t think to pack an extra transmitter tho. But, did have 3 ways of administering insulin, plus CGM and regular meter. So, I knew I was good. I choose “loaner pump” too but really it’s an old pump that still works. I actually had to use it the week before my trip for a pump failure emergency, so glad I have it.
    • 5 hours, 17 minutes ago
      Janis Senungetuk likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      It is WAY TOO MUCH stuff to be prepared away from home. Generally, half my suitcase. And even more stuff if it is a two-week trip. You missed snacks and glucose tabs.
    • 8 hours, 13 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Skin prep pads.
    • 8 hours, 13 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Glucose tabs and snacks.
    • 8 hours, 14 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Additional (i.e. beyond what I usually carry with me) glucose tablets and a dose of Baqsimi.
    • 8 hours, 14 minutes ago
      TEH likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I usually take 2-3 times what I think I'll need.
    • 9 hours, 1 minute ago
      Flo Bachrach likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I take twice as much pods, CGM supplies as I know I will need. It is a pain to carry all that junk but necessary. We never know when a pod or sensor will fail. I also take syringes just in case my pump fails which it never has in the almost three decades I have used one. I also carry a few Baqsimi just in case I have a severe low. I carry more insulin than I know I will need since I broke a bottle once when overseas and almost ran out on another foreign trip.
    • 9 hours, 29 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      Having been a Boy Scout when I was young taught me to be prepared for anything. I tend to over pack for everything. So, I pack just about everything listed. However, I never considered taking one of my old insulin pumps. I'll consider it. But for a 7 day trip, I'm not sure. I guess it depend upon where I'm going.
    • 9 hours, 29 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I was in Boston in 2013 when we were all confined to our hotels while they searched for the marathon bomber. I also remember 9/11 when planes were grounded. I never assume I can easily restock supplies and always take at least double the amount I'll need of everything including my backup pump. Fingers crossed that I never need it. I hope I could be one of the ones who share live saving stuff with anyone who gets caught without it.
    • 9 hours, 30 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I agree that it depends on where the trip is. My decision point is how long would it take to get replacement supplies and what are the effects of a delay. I’m MDI Tresiba which lasts >24 hours, which significantly reduces the urgency to replace background insulin. For NYC, I brought nothing extra. For my trip to a third world country- I brought one, and only one, extra of each supply including a CGM receiver. Dexcom wasn’t available where I went and I worried if something happened to my phone, I wouldn’t be able to download the software if I bought a replacement phone.
    • 9 hours, 30 minutes ago
      Jeff Marvel likes your comment at
      If you were to go on a 7-day trip away from home, which of the following supplies would you bring, in addition to what you would normally use in 7 days? Select all that apply to you.
      I'm really surprised at the low percentages of people that take extra supplies. We don't carry an extra pump and haven't used one long enough to have old extras. But even though we are, in general, very light packers, we always make sure we have extra D-supplies, in case a sensor fails or is ripped off, a bottle of insulin gets damaged, etc. But it also depends on WHERE we are going. On an overseas trip of any length we'd always take an extra transmitter. But we'd be unlikely to take one on a domestic trip unless we were going for several weeks. We always take pens even on an overnight trip ever since my husband flew to NYC on a day trip with some buddies, his pump failed, he had not brought pens for back-up and his BG soared! I see the burden of carrying extra supplies as the price to pay for insurance that nothing will actually fail.
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    For how many years have you been going to the health care practice where you currently receive your T1D care?

    Home > LC Polls > For how many years have you been going to the health care practice where you currently receive your T1D care?
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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    34 Comments

    1. Melissa Childers

      I have been seeing the same provider for 20-30 years, but in that time she has been with 3 practice/ hospital systtems, the most recent change about 3 years ago.

      1 year ago Log in to Reply
    2. Ahh Life

      Over 30 years. It is incumbent upon practices or hospitals to accumulate data and improve patients’ experiences.

      Physicians, like patients, come and go. But an organization that generates, accumulates, and aggregates data and continually improves patient outcomes, is an aspired reference group. ᕙ(の_の)ᕗ

      2
      1 year ago Log in to Reply
    3. Lori Lehnen

      I was diagnosed about a year ago but already switched endocrinologists. I believe my current doctor is a good fit and anticipate staying with her for a long time.

      1 year ago Log in to Reply
    4. Steve Rumble

      Not the same physician, but the same practice (an HMO).

      1
      1 year ago Log in to Reply
    5. Greg Felton

      Hmmm…T1 has probably taught me to value routine and consistency, so I have been with my endo practice for 20+ years.

      1 year ago Log in to Reply
    6. Lawrence S.

      I moved here just over 10 years ago. I’ve been going to the same hospital/dr’s office since I moved here. Then the During that time, they have assigned me 4 different practitioners. The first 2 were Endocrinologists (doctors), the last 2 have been ARNP’s. I only saw the 2nd Endo/dr. one time. The vast majority of the time, I have seen the ARNP’s. I felt that the ARNP’s were both better at helping me than the doctors were.

      1 year ago Log in to Reply
    7. Karen Taylor

      I moved 3 1/2 years ago. I’ve had the same Endocrinologist since being here. Prior to my move I wasn’t seeing one even though I had T1D for over 55 years.

      1 year ago Log in to Reply
    8. mojoseje

      I started going to my current practice when I was 18. My doctor has since retired but I continue to see the DA who became more knowledgeable than him in the most recent years. I also took a break in my mid-twenties when my insurance required me to stay in network. That doctor knew so little about diabetes that he was reading how to manage diabetes from a medical volume as I was sitting in the room. He put me on an insulin that made me break out in boils. Horrible experience.

      1 year ago Log in to Reply
    9. Mary Dexter

      Madison has 3 HMOs, two of which are loosely joined. I have been bouncing between them, hoping to find a doctor willing to deal with my reality for the last 18 years. Start a new endocrinologist next week. If this doesn’t work, I may need to go out of Wisconsin. Scoliosis and LADA

      1 year ago Log in to Reply
    10. Kim Davis

      Way back in 1979, my PCP told me to go to several endocrinologists & then determine which one was the best for me. At that time, I knew that a medical center near my home would allow me to see any different specialist that I might need in the future. Also continuity of care would work so they could read the same information in the days before computers!

      1 year ago Log in to Reply
    11. Natalie Daley

      Oregon Health and Science University, OHSU, is, as the name implies, a teaching hospital. I was referred to my current endo by a local doctor over 25 years ago when he said he had no idea how to treat me. My endo is now the head of endocrinology and an excellent doctor.

      1 year ago Log in to Reply
    12. Cheryl Seibert

      My endo is one of the top diabetes endos in the region. I started going to him when I moved to my current city.

      1 year ago Log in to Reply
    13. Karen Mason

      38 years and have moved away and back here finally after retirement. I like the then modern things they did and now still do as advances have been made in caring fir the diabetic.

      1 year ago Log in to Reply
    14. Gary Taylor

      Less than one year because the endo that I saw for 15 years retired.

      1 year ago Log in to Reply
    15. Jane Cerullo

      Have had our ups and downs. Have had to be an advocate for myself. In a good place now

      1 year ago Log in to Reply
    16. Patricia Dalrymple

      Moved or I would still be with my original Endo I took myself to a year after being diagnosed and treated as a T2. I was really LADA T1. Only with this one because convenient. When I retire, I might look for one who is a better communicator.

      1 year ago Log in to Reply
    17. LizB

      Even though I’ve had Type 1 for 35 years I only saw an endo for the first time (since diagnosis) in 2005. I was very happy going to that hospital but in 2021 they went out of network with my insurance I had to go somewhere new. In 2022 they’re back in network but my endo retired! The NP is still there so I will continue to see her. The endo I saw in 2021 is good but I prefer my original practice/location more.

      1 year ago Log in to Reply
    18. Deb Loyola

      Same doctor but he changed clinics so I moved with him. Been seeing him almost 10 years.

      1 year ago Log in to Reply
    19. Louise Robinson

      After having been 13 years with my old endo, I switched to a new one this spring. Last June, I began having issues with my Day 3 insulin absorption. Specifically, the last half of Day 3 yielded higher glucose levels despite using up to 33% more insulin with no appreciable changes in carbohydrate intake or illness or stress. I’ve always rotated my sites among different body areas but have been Type 1 since 1976 and pumping since 2011. My old endo’s case notes were insufficient for Medicare to authorize site changes more frequently than every 3 days, despite repeated attempts. If I were to change earlier than every 3 days, I would run out of cartridges and infusion sets due to Medicare’s “rationing” approach and failure to consider that some sites may need to be changed earlier.. I took to supplementing my pumped insulin with injections during the last half of Day 3. I am currently in the process of trying to get Medicare -approval for site changes every 2.5 days via my new endo. (Believe me, if I could make the site last the full 3 days, I’d be jumping for joy!)

      1
      1 year ago Log in to Reply
      1. Kathleen Juzenas

        I also have problems with the third day of a pump site but it isn’t every time. I sympathize with your frustration and wish you good outcomes in reaching out to Medicare.

        1 year ago Log in to Reply
    20. gary rind

      have been with mine for all 19 years as a T1D. within the last year, I asked him if he planned on retiring anytime soon and he told me that he didn’t! very happy about that.

      1 year ago Log in to Reply
    21. KarenM6

      I’ve been with mine for 26 years of my 50 years of diabetes. (I’m telling everyone about my 50 year anniversary… even strangers in parking lots… I get odd looks sometimes.) ;p
      Although, my doctor is retiring this year, so things are about to change… eep! I have gotten a few names, so I can choose and I anticipate I will get a great new doctor and PA soon. 😀

      6
      1 year ago Log in to Reply
      1. sweet charlie

        See my note to Lynda !!

        1 year ago Log in to Reply
      2. Ahh Life

        50 is a biggie. No matter whether it’s age, marriage longevity, or diagnosis. Celebrate. You’re worth it. \(T∇T )/

        1 year ago Log in to Reply
    22. lynda meyer

      I will be “celebrating” my 69th anniversary on a few days. I have retired 5 endo’s but have been with the same clinic for the past 30 years.

      4
      1 year ago Log in to Reply
      1. sweet charlie

        WOW, Lynda !!! 69 years for me also !!! I just turned 90 years OLD !!!! NO T1D problems !!! I like to say this to make the newbies feel hopeful !!!

        1
        1 year ago Log in to Reply
    23. JoAnn Pinkowitz

      I have been going to my same diabetes specialist for over 42 years. I get excellent care there. He is also my primary doctor so I have one stop shopping. Unfortunately he will be retiring in a year. I will look for a younger doctor in his practice which he stared and hope I get as good care.

      1
      1 year ago Log in to Reply
    24. Kristine Warmecke

      I have been with my current endocrinologist for 32 years now. I’ve had to try other’s due to insurance with different job’s, but I’ve never found another one that I work with so well. I’ve always come back after a visit or two and paid out of pocket if I had too. Before being to see her, I saw the same attending pediatric endocrinologist since 6 months after my diagnosis in Jan. 1982; I only left because they said I was too old to be seen there any more.

      1 year ago Log in to Reply
    25. Kathleen Juzenas

      I think 24 yrs. My first endo unfortunately stopped seeing patients but remains on consult. My new endo as of several years is at same practice. So far so good. The same great nurse practitioner has helped with the transition.

      1 year ago Log in to Reply
      1. Kathleen Juzenas

        Oops! Huge math error. It’s 44 yrs!

        1 year ago Log in to Reply
    26. Cheryl Weaver

      I began seeing my Endo since around 2005, when my primary physician referred me to him for diabetes and thyroid care. He is an excellent Dr. and his staff and nurse practitioners and PAs are awesome. I have been a pump patient since around 2006, and I am going to begin using the t slim x2 pump in just a few days. I’m really looking for a pump that will communicate with my Dexcom 6. I like the fact that my blood sugar is read automatically with that every 5 minutes, and am hoping to have much better control of this monster with this new pump. I’ve had type 1 diabetes since I was 14 years old, and am now 77.

      1 year ago Log in to Reply
    27. M C

      It took a number of years to find the ‘right fit’, and I did this by asking others, I knew to be diabetic, who their endocrinologist was, and whether they liked them or not. Then got a referral, and have been with this same doctor for over 11 years now.

      1 year ago Log in to Reply
    28. Antsy

      My END just left her practice (to do research), so I’m without one until I establish care with my new one in August. I was with this last one for 4 years this time, but she was my 1st END when I was diagnosed in ’93 (so roughly 9yrs overall). In between, I was with my prior doc for 10+ years. My two endocrinologists were pretty great, they just moved on to other things, or out-of-network practices. Hopefully my new one will stay put – and that I like her!

      1 year ago Log in to Reply
    29. PamK

      I recently got a new insurance plan and had to change doctors. So far, I like my new endo and will probably stay with him.

      1 year ago Log in to Reply

    For how many years have you been going to the health care practice where you currently receive your T1D care? Cancel reply

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