For how many years have you been going to the health care practice where you currently receive your T1D care?

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- 4 hours, 40 minutes ago
  
  AnitaS likes your comment at
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  Only "illness" that makes it really difficult to control my blood sugar is getting steroid injections into my cervical spine or fingers. I leave my basal rate on my pump at 250% and need much higher bolus doses and many "extra" doses if my blood sugar remains really high. I tell the MD's that it turns my insulin into tap water and try to avoid it, experience with having gotten these injections over the past few years has helped, but having blood sugars of 400-500 despite much higher basal and bolus dosing is so frustrating!
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 4 hours, 41 minutes ago
  
  AnitaS has commented in the same post you commented in :
  When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
  When I had surgery last year and couldn't exercise for a few months, my time-in-range was very good. I was shocked but I shouldn't have been as exercise is one of the things that make my diabetes harder to keep under control. During recovery, I didn't have the ups-n-downs in blood sugar that I usually have when I exercise.
- 5 hours, 47 minutes ago
  
  Randell Cole has commented in the same post you commented in :
  Mark Cuban’s Cost Plus Drugs Tests New Insulin Program
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- 5 hours, 47 minutes ago
  
  Randell Cole has commented in the same post you commented in :
  Mark Cuban’s Cost Plus Drugs Tests New Insulin Program
  How can I get on the Mark Cuban test program ?
- 5 hours, 47 minutes ago
  
  Randell Cole has commented in the same post you commented in :
  Mark Cuban’s Cost Plus Drugs Tests New Insulin Program
  How can I get on the Mark Cuban test program ?
- 5 hours, 47 minutes ago
  
  Randell Cole has commented in the same post you commented in :
  Mark Cuban’s Cost Plus Drugs Tests New Insulin Program
  How can I get on the Mark Cuban test program ?
Clear All

For how many years have you been going to the health care practice where you currently receive your T1D care?

Did you (or does your child with T1D) go to diabetes camp? Share your experience in the comments!

Sarah Howard

34 Comments

Melissa Childers

I have been seeing the same provider for 20-30 years, but in that time she has been with 3 practice/ hospital systtems, the most recent change about 3 years ago.

9 months ago Log in to Reply
Ahh Life

Over 30 years. It is incumbent upon practices or hospitals to accumulate data and improve patients’ experiences.

Physicians, like patients, come and go. But an organization that generates, accumulates, and aggregates data and continually improves patient outcomes, is an aspired reference group. ᕙ(の_の)ᕗ

2

9 months ago Log in to Reply
Lori Lehnen

I was diagnosed about a year ago but already switched endocrinologists. I believe my current doctor is a good fit and anticipate staying with her for a long time.

9 months ago Log in to Reply
Steve Rumble

Not the same physician, but the same practice (an HMO).

1

9 months ago Log in to Reply
Greg Felton

Hmmm…T1 has probably taught me to value routine and consistency, so I have been with my endo practice for 20+ years.

9 months ago Log in to Reply
Lawrence S.

I moved here just over 10 years ago. I’ve been going to the same hospital/dr’s office since I moved here. Then the During that time, they have assigned me 4 different practitioners. The first 2 were Endocrinologists (doctors), the last 2 have been ARNP’s. I only saw the 2nd Endo/dr. one time. The vast majority of the time, I have seen the ARNP’s. I felt that the ARNP’s were both better at helping me than the doctors were.

9 months ago Log in to Reply
Karen Taylor

I moved 3 1/2 years ago. I’ve had the same Endocrinologist since being here. Prior to my move I wasn’t seeing one even though I had T1D for over 55 years.

9 months ago Log in to Reply
mojoseje

I started going to my current practice when I was 18. My doctor has since retired but I continue to see the DA who became more knowledgeable than him in the most recent years. I also took a break in my mid-twenties when my insurance required me to stay in network. That doctor knew so little about diabetes that he was reading how to manage diabetes from a medical volume as I was sitting in the room. He put me on an insulin that made me break out in boils. Horrible experience.

9 months ago Log in to Reply
Mary Dexter

Madison has 3 HMOs, two of which are loosely joined. I have been bouncing between them, hoping to find a doctor willing to deal with my reality for the last 18 years. Start a new endocrinologist next week. If this doesn’t work, I may need to go out of Wisconsin. Scoliosis and LADA

9 months ago Log in to Reply
Kim Davis

Way back in 1979, my PCP told me to go to several endocrinologists & then determine which one was the best for me. At that time, I knew that a medical center near my home would allow me to see any different specialist that I might need in the future. Also continuity of care would work so they could read the same information in the days before computers!

9 months ago Log in to Reply
Natalie Daley

Oregon Health and Science University, OHSU, is, as the name implies, a teaching hospital. I was referred to my current endo by a local doctor over 25 years ago when he said he had no idea how to treat me. My endo is now the head of endocrinology and an excellent doctor.

9 months ago Log in to Reply
Cheryl Seibert

My endo is one of the top diabetes endos in the region. I started going to him when I moved to my current city.

9 months ago Log in to Reply
Karen Mason

38 years and have moved away and back here finally after retirement. I like the then modern things they did and now still do as advances have been made in caring fir the diabetic.

9 months ago Log in to Reply
Gary Taylor

Less than one year because the endo that I saw for 15 years retired.

9 months ago Log in to Reply
Jane Cerullo

Have had our ups and downs. Have had to be an advocate for myself. In a good place now

9 months ago Log in to Reply
Patricia Dalrymple

Moved or I would still be with my original Endo I took myself to a year after being diagnosed and treated as a T2. I was really LADA T1. Only with this one because convenient. When I retire, I might look for one who is a better communicator.

9 months ago Log in to Reply
LizB

Even though I’ve had Type 1 for 35 years I only saw an endo for the first time (since diagnosis) in 2005. I was very happy going to that hospital but in 2021 they went out of network with my insurance I had to go somewhere new. In 2022 they’re back in network but my endo retired! The NP is still there so I will continue to see her. The endo I saw in 2021 is good but I prefer my original practice/location more.

9 months ago Log in to Reply
Deb Loyola

Same doctor but he changed clinics so I moved with him. Been seeing him almost 10 years.

9 months ago Log in to Reply
Louise Robinson

After having been 13 years with my old endo, I switched to a new one this spring. Last June, I began having issues with my Day 3 insulin absorption. Specifically, the last half of Day 3 yielded higher glucose levels despite using up to 33% more insulin with no appreciable changes in carbohydrate intake or illness or stress. I’ve always rotated my sites among different body areas but have been Type 1 since 1976 and pumping since 2011. My old endo’s case notes were insufficient for Medicare to authorize site changes more frequently than every 3 days, despite repeated attempts. If I were to change earlier than every 3 days, I would run out of cartridges and infusion sets due to Medicare’s “rationing” approach and failure to consider that some sites may need to be changed earlier.. I took to supplementing my pumped insulin with injections during the last half of Day 3. I am currently in the process of trying to get Medicare -approval for site changes every 2.5 days via my new endo. (Believe me, if I could make the site last the full 3 days, I’d be jumping for joy!)

1

9 months ago Log in to Reply
1. Kathleen Juzenas
  
  I also have problems with the third day of a pump site but it isn’t every time. I sympathize with your frustration and wish you good outcomes in reaching out to Medicare.
  
  9 months ago Log in to Reply
gary rind

have been with mine for all 19 years as a T1D. within the last year, I asked him if he planned on retiring anytime soon and he told me that he didn’t! very happy about that.

9 months ago Log in to Reply
KarenM6

I’ve been with mine for 26 years of my 50 years of diabetes. (I’m telling everyone about my 50 year anniversary… even strangers in parking lots… I get odd looks sometimes.) ;p
Although, my doctor is retiring this year, so things are about to change… eep! I have gotten a few names, so I can choose and I anticipate I will get a great new doctor and PA soon. 😀

6

9 months ago Log in to Reply
1. sweet charlie
  
  See my note to Lynda !!
  
  9 months ago Log in to Reply
2. Ahh Life
  
  50 is a biggie. No matter whether it’s age, marriage longevity, or diagnosis. Celebrate. You’re worth it. ＼（Ｔ∇Ｔ）／
  
  9 months ago Log in to Reply
lynda meyer

I will be “celebrating” my 69th anniversary on a few days. I have retired 5 endo’s but have been with the same clinic for the past 30 years.

4

9 months ago Log in to Reply
1. sweet charlie
  
  WOW, Lynda !!! 69 years for me also !!! I just turned 90 years OLD !!!! NO T1D problems !!! I like to say this to make the newbies feel hopeful !!!
  
  1
  
  9 months ago Log in to Reply
JoAnn Pinkowitz

I have been going to my same diabetes specialist for over 42 years. I get excellent care there. He is also my primary doctor so I have one stop shopping. Unfortunately he will be retiring in a year. I will look for a younger doctor in his practice which he stared and hope I get as good care.

1

9 months ago Log in to Reply
Kristine Warmecke

I have been with my current endocrinologist for 32 years now. I’ve had to try other’s due to insurance with different job’s, but I’ve never found another one that I work with so well. I’ve always come back after a visit or two and paid out of pocket if I had too. Before being to see her, I saw the same attending pediatric endocrinologist since 6 months after my diagnosis in Jan. 1982; I only left because they said I was too old to be seen there any more.

9 months ago Log in to Reply
Kathleen Juzenas

I think 24 yrs. My first endo unfortunately stopped seeing patients but remains on consult. My new endo as of several years is at same practice. So far so good. The same great nurse practitioner has helped with the transition.

9 months ago Log in to Reply
1. Kathleen Juzenas
  
  Oops! Huge math error. It’s 44 yrs!
  
  9 months ago Log in to Reply
Cheryl Weaver

I began seeing my Endo since around 2005, when my primary physician referred me to him for diabetes and thyroid care. He is an excellent Dr. and his staff and nurse practitioners and PAs are awesome. I have been a pump patient since around 2006, and I am going to begin using the t slim x2 pump in just a few days. I’m really looking for a pump that will communicate with my Dexcom 6. I like the fact that my blood sugar is read automatically with that every 5 minutes, and am hoping to have much better control of this monster with this new pump. I’ve had type 1 diabetes since I was 14 years old, and am now 77.

9 months ago Log in to Reply
M C

It took a number of years to find the ‘right fit’, and I did this by asking others, I knew to be diabetic, who their endocrinologist was, and whether they liked them or not. Then got a referral, and have been with this same doctor for over 11 years now.

9 months ago Log in to Reply
Antsy

My END just left her practice (to do research), so I’m without one until I establish care with my new one in August. I was with this last one for 4 years this time, but she was my 1st END when I was diagnosed in ’93 (so roughly 9yrs overall). In between, I was with my prior doc for 10+ years. My two endocrinologists were pretty great, they just moved on to other things, or out-of-network practices. Hopefully my new one will stay put – and that I like her!

9 months ago Log in to Reply
PamK

I recently got a new insurance plan and had to change doctors. So far, I like my new endo and will probably stay with him.

9 months ago Log in to Reply