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  • Activity
    • 9 hours, 37 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      "It's a forever learning curve" - so very true
    • 9 hours, 44 minutes ago
      KarenM6 likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      I hesitate to bring this up but I am quite sure this happens more than people realize. I use a tubed pump and small amounts of total daily insulin and have checked the tubing for YEARS for bubbles. YES, they are difficult to "notice" unless you have a good light behind the clear tubing because the insulin is also colorless. I detach and check the tubing in the morning and before bedtime if not before the evening meal...I'm talking about significant bubbles----8-10-or12 inches in length can appear and you would NOT notice them unless you were looking. I wonder how many people wonder why their blood sugar is occasionally high and it's being caused by a significant bubble...NO, not the champagne sized version that's often mentioned to "ignore." The pump company I deal with tried to get me to switch to injections instead but I am an EXPERT with the bubble situation. Also, comments over the years that I am probably not filling the reservoir correctly, etc....just plain silly. I am NOT new at this...LOL!!!
    • 10 hours, 9 minutes ago
      KarenM6 likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 14 hours, 46 minutes ago
      Janis Senungetuk likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 14 hours, 46 minutes ago
      Richard Wiener likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 15 hours, 6 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I began playing Pickleball last year in March. When the temperatures started to rise the extra effort my body was experiencing because of the heat got my body hormones out of balance and I began experiencing nausea, higher heart rates and feeling very uncomfortable. I soon realized that I cannot play when is too hot or I’ll end up with ketones. Any new activity when on. Insulin requires adjustments. It’s a forever learning curve. Adding to the heat, last year I was having some absorption problems by the overuse of my abdomen. I have now move the infusion sites to my upper front side and it’s working much better.
    • 15 hours, 6 minutes ago
      Kristine Warmecke likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 15 hours, 7 minutes ago
      Ahh Life likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I answered no, but I do experience nausea and/or vomiting, usually on a daily basis, but this is because I have gastroparesis. I have rarely been able to eat breakfast over the last 20+ years as I end up vomiting it all back up ... try explaining that to ward staff in hospital(s). ;-)
    • 15 hours, 26 minutes ago
      Becky Hertz likes your comment at
      In the past 12 months, have you experienced nausea and/or vomiting as a symptom of high blood glucose levels?
      I said yes to nausea, occurred with a bad pump site insertion and rising BG over the next 4 hours. I picked it up early w CGM notification and realizing that it was very unusual for me to have rising BG at that time of the day (morning) when on Control IQ pump. The severity was delayed because I had given a breakfast meal bolus via the prior site before the change, so BG was rising after 3 hours, and I knew something was not right. I think this is an important clue for pumpers- when I see people get in trouble w bad sites or insertion failures, the thought process usually is- I just put a new site in, it must be ok- or maybe it does not occur to people that the pump site could have failed--when it should be- did the insertion fail? ----If in doubt, pull it out!----- I pulled the site and could see the cannula was bent, so I know what happened and injected w a syringe, put a new site in, and was better in a 3-4 hours.
    • 1 day, 7 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      After 62 years I have skin issues everywhere. I am an avid at rotating every time I change my infusion set. When I was on multiple daily injections, up to 9 per day, I had massive skin hardening. Since on the pump it’s not nearly as bad that’s been 33 years. I take very little insulin my daily basal comes out to 9 units over 24 hours I eat two meals that I count carbs for and try to keep at a minimum of 30-40 per day. Everything is going well. Rotation is key
    • 1 day, 8 hours ago
      Wanacure likes your comment at
      Have you developed lipohypertrophy due to repeated injections/infusions of insulin? Lipohypertrophy is a term to describe hardened lumps of body fat just under the skin that resulted from repeated insulin injections/infusion sites. If so, share how you’ve handled lipohypertrophy in the comments!
      I use a pump and have had issues with insulin absorbtion. It seems I have a lot of them on the side I primarily use for infusion sets. I recently switched to the other side of my abdomen and dropped more than one point on my a1c.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      When I first started with my current Endo we would discuss the released and upcoming products and I would tell her about the 'off-market' applications and devices, we both learned from each other. But she was so good with helping me transition to the Dexcom and then the Tandem after Animas was pulled from the Market. She followed my Dex and even finer tuned my Basals and early this year I got an "unbeleivable" 5.4 A1c and we are both extremely happy!
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      Yes. But then I self-selected when choosing an endocrinology clinic that pursues cutting-edge advances 40 years ago. Cutting-edge is a phrase that is also often called bleeding-edge because it is often experimental, hit or miss on results, and very expensive. I am convinced the “bleeding” refers to $$$.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      Does your T1D healthcare provider suggest new medications or devices that they think would be beneficial to your T1D management during your appointments?
      not anymore, and I am happy about it! Most of the time they were recommending things that had been recently pitched to them by a pharmaceutical salesperson or a durable medical supplier. The doctors would give patients the "free samples" and it was often not the best fit, then after the "free" supply ran out, the prices were exorbitant. Maybe it still happens, but I haven't seen it for a while.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The need for better CGM accuracy is a big consideration for me. Also my control is pretty good right now (a1c in the low 6 range). Although I am tempted by the sleep and exercise modes which would be very helpful since I’m getting back in to exercise. So…I keep sitting on the fence…
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I don’t want to change from the Omnipod Dash to Omnipod 5 because the minimum target blood glucose is level is higher than where I like to keep it. My A1C is currently 5.0.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      For the last 5 years, the highest HbA1C I've had was 5.3. For the last 3 years the high, low, & average have been 5.2, 4.7, & 4.9. I'm not willing to go to an AID that sets a target of 6 to 7.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      I do MDI. For the last 7 years my A1C has averaged around 4.8. I have no reason to believe that a closed loop automated system could do that well.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      There are many reasons, as well as "something else." My arthritic fingers do not serve me well with a cell phone. I have trouble putting the needle covers back on to my insulin pen needles. If I had to take care of all the fine muscle issues associated with setting a pump up, I would probably require assistance. I am also not drawn to the issues I hear about tissue damage at the infusion sites, or knowing whether everything is seated properly and the insulin is actually flowing. Finally, I just have some kind of negative karma with electronics. I have worked as a lab biochemist. Somehow, I find the weaknesses of every machine in the lab. (the ideal industrial beta-tester) Having said that, what I hear about the numbers achieved with the tandem CIQ gives me pause to consider.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Like others, the "closed loop" runs me too high - even the target bg is too high for me. I use the TandemX2 with BIQ integrated wqith my Dexcom G6. I also appreciate - and use - the temp basal function often. I would lose that with CIQ. L:ike Nilla Eckstrom (I think?) I like to be between 80-90, with maybe up to 120 after I eat.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      The constant refilling and site changes...doesn't seem worth it.
    • 1 day, 9 hours ago
      Wanacure likes your comment at
      If you have never used an insulin pump with automated insulin delivery (also known as a hybrid closed-loop pump), what are some of the reasons you’re reluctant, or obstacles you’ve encountered? Please select all that apply.
      Luddites just may be the most comfortable people on earth. 🙃 
    • 1 day, 10 hours ago
      Antsy likes your comment at
      For pump users: In the past 3 months, have you had issues with insulin delivery due to a bent cannula or occlusion?
      Holy cow! 8 to 10” bubbles? There is definitely something wrong if that is happening to you. I occasionally get 1/4” inch 10” is excessive. Have you gone in and shown your pump instructor how you’re doing it so that they can help you figure out the problem?
    • 1 day, 10 hours ago
      Wanacure likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      When I was put on insulin, the first dietitian I payed to see said I could eat whatever I wanted as long as I followed the set number of macros (carbs, protein, fats). The stupid diet had my blood sugars all over the map. She didn't care/listen when I told her milk, bread/pasta made me feel really sick. She said because I was on insulin I need to eat a high carb, low protein and low fat diet. What bad advice! Thankfully, I came to my senses and starting reading the experiences of other T1D's who were following the The Bernstein diet.
    • 1 day, 10 hours ago
      Wanacure likes your comment at
      Aside from the first year after your diagnosis, have you seen a registered dietitian for help managing nutrition and T1D?
      Saw one, recently out of school, when I was first diagnosed ten years ago. She insisted I needed 150 grams of carbs per day minimum and handed me a sheet with meal plans. She explained that I needed those carbs to keep my brain functioning properly. GEEZ. I can only hope she's learned a thing or two since then.
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    For CGM users: How long have you been using a CGM?

    Home > LC Polls > For CGM users: How long have you been using a CGM?
    Previous

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    Sarah Howard

    Sarah Howard (nee Tackett) has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange. Sarah and her husband live in NYC with their cat Gracie. In her spare time, she enjoys doing comedy, taking dance classes, visiting art museums, and exploring different neighborhoods in NYC.

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    30 Comments

    1. Ahh Life

      2006, starting with the hellspawn Medtronic harpoon.

      2
      1 year ago Log in to Reply
      1. ConnieT1D62

        Great description of the barbaric Medtronic harpoon device! I started using CGM back then with Enlite and the harpoon as well. Have been on Dexcom since 2011.

        1 year ago Log in to Reply
    2. mbulzomi@optonline.net

      Started with Medtronic Enlite then switched to Dexcom G5, G6 for a total of 11 years.

      2
      1 year ago Log in to Reply
    3. connie ker

      I waited for the Abbott Freestyle 14 day Libre to come out and was one of the first owners in 2018. Before that it was a 10day sensor . I am still using the same CGM and my fingers thank me each and every day.

      1 year ago Log in to Reply
    4. ELYSSE HELLER

      I am anxiously waiting for Insulet’s Omnipod 5 system to be approved, when it’s approved, I’m in!

      1
      1 year ago Log in to Reply
      1. GLORIA MILLER

        Omnipod 5 got FDA approval January 28, 2022 but it has not be released for the general public yet. Only a select group has received it to date. I’m also eager for the general public to get it. But I also am waiting for the Dxcom G7 to get FDA approval. I want the smaller size of the G7.

        2
        1 year ago Log in to Reply
    5. RoseMary Deininger

      Technology advancements have been great. When will the cure come?

      2
      1 year ago Log in to Reply
    6. Jane Cerullo

      Started with old Medtronic one. Was awful. Thick needle and large shell like device. Then got Dexcom 4-6 over the years. Then insurance would only cover freestyle Libre so have been on FSL 2 Changed insurance but will stay on the FSL. Good and bad with both. FSL3 should be approved soon and will be able to see on Apple Watch. Only thing I really miss.

      1 year ago Log in to Reply
    7. gary rind

      used the Libre 14 day to start but was always for readings to catch up to reality. like the Libre2 much better although the 12 hour warmup drives me crazy. we’ll see what the Libre3 has in store.

      1 year ago Log in to Reply
    8. Lawrence S.

      I answered 15 to 20 years, but I really don’t remember. I wore a Medtronic CGM for many year, several different versions. All of them were inaccurate and not useful to me. I switched to Dexcom G4, then G5 and now G6. All of the Dexcom CGM’s were far superior to the Medtronic CGM’s.

      1
      1 year ago Log in to Reply
    9. Becky Cain

      I started in 2011 with the Dexcom SEVEN and then with G4, G5 and now G6 with the Tslim integration. Wonderful advancements!

      4
      1 year ago Log in to Reply
    10. Natalie Daley

      I’m 75, and I started using a CGM in April because the latest version came out with an alarm system that is programmable and works reliably. My hands have carpal tunnel, and this use air to use. My 85 tea told husband is no help, and while he never was, this can be an issue at my age. I font love being tethered to my illness, but I appreciate the steady reliability.

      1 year ago Log in to Reply
    11. Gary Taylor

      I may be one of the very few who still uses Medtronic sensors. I started using sensors in 2008, initially Medtronic 3-day sensors (stretched to 7) which were fair. Then upgraded to their 7-day Enlite which were awful. Switch to Dexcom G4 for a couple of years. I then went back to Medtronic’s current version. Approved for 7 day use, I try to stretch them out to 10-14 days.

      1
      1 year ago Log in to Reply
      1. TEH

        I have gone down a similar path but I had not switched form Medtronic.

        1 year ago Log in to Reply
      2. LizB

        I have only ever used Medtronic as well, starting as soon as they integrated the receiver into the pump, the 522/722 Paradigm models. Those original sensors worked great for me although insertion was not fun! I always extended them and often got several weeks with great results. The longest I went was 56 days and it was accurate the entire time until it died suddenly. I hated to see it go. Moved to the Enlite when I got a new pump and they sucked. Every single one would only read low no matter what. I tried for months and gave up. I should have gotten a Dexcom then but didn’t, went without a sensor for years. Got the 670 in 2018 (now 770) and the Guardian sensors work great for me.

        1 year ago Log in to Reply
    12. Melinda Lipe

      I started on an Enlite from Medtronic in 2008 when insurance started covering them, but fingersticks were absolutely necessary – sensor was not reliable! 5 years on G5-G6.

      2
      1 year ago Log in to Reply
    13. connie ker

      I waited to order the Abbott Freestyle Libre when the system went to 14 day instead of 10 days before a sensor change needed. I have had this system for 4.5 years and have to keep until 5 years before making any changes with Medicare coverage. I am very pleased with this Abbott system except for the accuracy component. My fingers thank me 10 times every day!!

      2
      1 year ago Log in to Reply
    14. George Lovelace

      2009 Started on Dexcom System 7+ and upgraded G4, G5 and G6. Looking Forward to the G7 to integrate with Tandem X2

      1
      1 year ago Log in to Reply
    15. Mig Vascos

      I don’t know how we were able to survive before CGMs. I began using a Dexcom 7+ in 2/2011. My life and control have been transformed for the better with CGMs and all the apps available these days.

      2
      1 year ago Log in to Reply
    16. Mig Vascos

      I had a horrible experience with the Enlite. The results were all over but never close to reality. It drove me crazy.

      3
      1 year ago Log in to Reply
    17. Jeanne McMillan-Olson

      I first used the Dexcom CGM in a research study at the University of Washington in 2009. It was wonderful but not as accurate as the G6 is now. Tried the Medtronic sensor first but had a hard time putting it in correctly. My insurance would not cover a CGM after the study. Many years later Medicare approved the Freestyle Libre, which was not that accurate for me. Medicare finally approved the Dexcom G6 and I love it. My fingers look like real fingers again! Looking forward to the G7.

      1
      1 year ago Log in to Reply
    18. Keith LeMar

      I started using the Abbott Navigator in 2008. I have also used Medtronic and Dexcom. Currently using the Dexcom G6 with my Tandem X2 pump

      1 year ago Log in to Reply
    19. lis be

      started as soon as my insurance helped lower the price. it’s still about $100 a month though.

      1 year ago Log in to Reply
    20. Marty

      I started with the first Medtronic CGM (known as the “harpoon”) as soon as it was available. I’m not sure when that was exactly. I use a Dexcom G6 now and will upgrade to the G7 as soon as I can.

      2
      1 year ago Log in to Reply
    21. Janis Senungetuk

      I’ve been using Dexcom G5, G6 for not quite 6 years. When I first started using the G5 I really struggled trying to get the transformer to fit correctly. Now with the G6 I have few problems because it’s much easier to insert the sensor/transmitter on my upper arm instead of my abdomen. Using the CGM/Tandem combo with Control-IQ has made a tremendously positive difference in my quality of life. I’m now very concerned that increased DME cost in addition to insurance coverage changes will force me to return to MDI without the use of the CGM.

      1 year ago Log in to Reply
    22. pru barry

      From test tubes and tablets like a mini chem lab, to a Dexcom with a Tandem hanging out in its pretty blue case until I will get the newest version when my warranty runs out. What a trip it’s been! My 15 year old Labradoodle wears a Libre sensor. Are we all tricked out? Can’t say any of this has been a choice, but I’m old and healthy, and loving every minute!

      1 year ago Log in to Reply
    23. Jneticdiabetic

      Off and on for about 14 years I think?? Starting with the early iterations of the Medtronic CGMs then long break, the Dexcom 4, then Medtronic with 670G pump, now Dexcom 6 with Tandem pump.

      2
      1 year ago Log in to Reply
    24. Nicholas Argento

      Not sure how someone could be using more than 20 years. Personal CGM has only been widely available commercially since Spring of 2006. Maybe they were in studies. I started in 8-2006, have been on it continuously since, and am likely only alive today as a result. Before CGM, hypoglycemia was trying to kill me.

      1
      1 year ago Log in to Reply
    25. Bonnie Lundblom

      I’ve been using CGM’s for over 8 years now, all have been Dexcom. I’m really looking forward to the Dexcom 7, but I’m not sure when Medicare will allow the change from 6 to 7.

      1 year ago Log in to Reply
    26. jamesmpii

      Since diagnosis 4 months ago. I have never known T1D life without one.

      1 year ago Log in to Reply

    For CGM users: How long have you been using a CGM? Cancel reply

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