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    • 2 hours, 27 minutes ago
      Ahh Life likes your comment at
      If compensation were offered for research participation, what format would you prefer?
      Unmarked non-sequential bills under the table is preferred. Cash plus free insulin or CGMs would be fine too. Eversense is really missing out on an opportunity by not partnering with trials to offer a free E365 and insertion to get people to try their device.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 13 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 13 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 14 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 16 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 19 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 20 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 21 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 21 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 22 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 22 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 22 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 22 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 22 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 22 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 14 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 14 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 16 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 16 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 20 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 20 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 21 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 21 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    During your last appointment with your T1D health care provider, how many minutes would you estimate you spent with your provider?

    Home > LC Polls > During your last appointment with your T1D health care provider, how many minutes would you estimate you spent with your provider?
    Previous

    During your most recent appointment with your T1D health care provider, how long would you estimate you spent waiting to be seen by a provider? This includes time spent waiting in the waiting room, in the examination room, or elsewhere during the appointment.

    Next

    When treating a low (i.e, less than 70 mg/dl or 3.9 mmol/l) how often do you over treat, resulting in high blood glucose levels?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    18 Comments

    1. Gustavo Avitabile

      I answered more than one hour because it is a group visit and we spend much time looking and commenting each other data. Then there is also room for private questions.

      2
      3 years ago Log in to Reply
      1. Ms Cris

        Gustavo, where do you go to receive treatment, if you don’t mind saying? I would love a similar type of visit.

        3 years ago Log in to Reply
      2. Gustavo Avitabile

        I live in Naples, Italy. I go to the University Polyclinic in the Diabetology unit, a big structure that cares about 5000, mostly T2, patients. A section is dedicated to T1 patients using advanced technology, and here I chose to take part in group visits. All care in Italy is free and managed by our National Health System.

        1
        3 years ago Log in to Reply
      3. Ms Cris

        Maybe I should move to Portugal (from the U.S.), I’d get similar care there. We’ve been discussing it more and more lately. Thank you for replying!

        3 years ago Log in to Reply
    2. Bruce Johnson

      Govt health insurance sets the time that medical professionals are allowed to spend with patients. Basically unqualified people interfering with your healthcare.

      4
      3 years ago Log in to Reply
    3. Ernie Richmann

      I answered 10-19 minutes but If I had additional questions/concerns I am confident my health care provider would have offered more time.

      1
      3 years ago Log in to Reply
    4. Jeanne McMillan-Olson

      My friend and I who both have T1D have gone to the doctor (endo) together since the 1980s. We have been going to this University of Washington endo since 1993. He spends an hour or more with us each visit. He also has T1D. Feels like family.

      5
      3 years ago Log in to Reply
    5. Joan Fray

      Coincidentally, I saw her Yesterday. Every six months, one hour or more. She suggested I nurse exercise mode on my Dexcom from 10 to six, to avoid lows. TI R was 88%. 2% low, which she didn’t like.. …..

      1
      3 years ago Log in to Reply
    6. Tod Herman

      I’ve been seeing my current Endo for a little over two years now. We meet every three months and go over my lab results and the data from my CGM and pump. She’s a fantastic listener and communicates very well as she answers all my questions (I usually come with a small list). She also understands insurance issues and she finds ways to make sure I get the most for my costs. Our meetings generally last more than an hour. On a scale of 1 to 10, she’s a 15!

      My (soon to be wife) also attends and she likes her, too.

      4
      3 years ago Log in to Reply
    7. Sue Martin

      It was via telavisit so….

      3 years ago Log in to Reply
    8. Derek West

      My teleconf visit yesterday was about 15 minutes. Since we both recognized I had no issues it did not need to last longer. If there were issues she would have spent all the time needed.

      3 years ago Log in to Reply
      1. Bea Anderson

        I said 10-19 minutes and always close to 19. Meet every 3 months (Medicare) so we stay current on needs or concern. His relaxed personality and knowledge keep things on point.

        3 years ago Log in to Reply
    9. Karen Mason

      Usually I am not rushed I feel worth the trip to go.

      3 years ago Log in to Reply
    10. Mick Martin

      I stated 30-39 minutes, but it MAY have been marginally longer. A new, to the hospital clinic I was attending, Diabetes Specialist Nurse was involved in my ‘review’ and was ‘learning the ropes’ as to how things were done at this particular clinic. We got involved in a discussion about how diabetes care used to be …. in the days of urine testing, and how we used to have to boil the glass syringe prior to each injection. (I doubt, from her appearance, that she’d have been old enough to remember those days. 😉 )

      3 years ago Log in to Reply
    11. Jillmarie61

      I’ve noticed since the start of Covid, Endos spend less and less time with their patients and appointments are father apart then they should be. I used to see my Endo every four months before Covid. Then it dropped to once every 9 mos and now more than a year. When she asked why I thought my HgA1c was climbing dramatically I told her it’s because my diabetes is not being managed as well by my health care provider, which is true. No changes in my pump settings were kept up with since her CDE, who I was in touch with every 2-3 mos, retired.

      3 years ago Log in to Reply
    12. Beckett Nelson

      11 min. And he wants to pawn me off on someone else for the T1D because seeing him for two things (really just looking at bloodwork and making zero changes) takes too long 🤬

      3 years ago Log in to Reply
    13. Kristen Clifford

      This question has been asked before. Be original!

      3 years ago Log in to Reply
    14. Amanda Barras

      My labs are good, my medication and doses rarely change so it’s in and out with Rx refills and that’s it.

      3 years ago Log in to Reply

    During your last appointment with your T1D health care provider, how many minutes would you estimate you spent with your provider? Cancel reply

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