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    • 4 hours ago
      Laurie B likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 4 hours, 22 minutes ago
      ChrisW likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      MDI and since FIASP is now covered under Medicare I wanted to try the inPen. They wanted over $600 for it so I said no thanks!
    • 5 hours, 11 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Wish cost did not have to come into play but unfortunately it does.
    • 5 hours, 11 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      It isn’t that I can’t afford devices or meds, it’s more that I feel pharma is jacking up prices to see what the market will bare without conscience. Free enterprise does not work in most of the life sustaining medical community, particularly in the US.
    • 5 hours, 11 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      I guess it more an insurance restriction than a cost problem. But I don't want to be charged full price for a new pump.
    • 5 hours, 11 minutes ago
      Lawrence S. likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Having to wait for the warrantee period to run out before switching pump manufacturers is the biggest restraint. I had to wait to switch from Minimed 770 to T:slim X2 several months. I am now considering going back to Minimed because of the improvements in their sensor and the problems Tandem is having with infusion set manufacturing. So I have to wait a year.
    • 5 hours, 39 minutes ago
      Steve Rumble likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 5 hours, 43 minutes ago
      Kathy Hanavan likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 5 hours, 44 minutes ago
      Marty likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 6 hours, 31 minutes ago
      TEH likes your comment at
      How often does cost influence your decision to try a new device or therapy?
      Insurance influences my decision to try a new device more than cost.
    • 23 hours, 37 minutes ago
      ChrisW likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I turned down a CGM study because the sponsors, a manufacturer, claimed the data would belong to them exclusively. While I may grant use of the data, its mine thank you!
    • 1 day, 4 hours ago
      Natalie Daley likes your comment at
      How confident do you feel understanding informed consent documents for research studies?
      My fear and concern with those who answer "very confident" and are non-lawyers is that you may be unaware of what Facebook, Google, Amazon, Nvidia, Apple, Microsoft, et al do with your data. As the old saying goes about the capitalist, "Here. Take it. How much money will you give me for this rope you are going to hang me by?"
    • 2 days, 5 hours ago
      Anita Stokar likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 2 days, 16 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      My only fatigue is figuring out where to put my next pump site since pumping 28 years now
    • 2 days, 16 hours ago
      kilupx likes your comment at
      How often do you experience device fatigue (feeling tired of wearing or managing devices)?
      I get itchy rashes from the tandem canula adhesive, so that makes it more of a burden. I dislike having to report to dexcom when their devices fail. and i do feel tired of wearing a device when i see the double down or double up arrow.. they cause a lot of panic and over compensation (on my part). I'd say.. I'm weary, and honestly feel a little judged, every time I hear a beep or see a high or low number. but that's not the device's fault. I'm happy to use the devices though, they keep me closer to ok! especially during sleep.
    • 2 days, 23 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 2 days, 23 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Probably just 1 hr most days. But better questions are: (1) how many times per day & (2) how taxing/draining is it?
    • 2 days, 23 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I'm not sure this is something that can be quantified in hours per week? 5 minutes here, 10 minutes there multiple times throughout every day, it adds up. But I don't keep track...it's just life
    • 2 days, 23 hours ago
      lis be likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      For the last 52 years living with T1, my diabetes care is always on the forefront of everything I do.
    • 3 days, 4 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 3 days, 4 hours ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 3 days, 5 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 3 days, 5 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 days, 5 hours ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 3 days, 5 hours ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
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    During your last appointment with your T1D health care provider, how many minutes would you estimate you spent with your provider?

    Home > LC Polls > During your last appointment with your T1D health care provider, how many minutes would you estimate you spent with your provider?
    Previous

    During your most recent appointment with your T1D health care provider, how long would you estimate you spent waiting to be seen by a provider? This includes time spent waiting in the waiting room, in the examination room, or elsewhere during the appointment.

    Next

    When treating a low (i.e, less than 70 mg/dl or 3.9 mmol/l) how often do you over treat, resulting in high blood glucose levels?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    18 Comments

    1. Gustavo Avitabile

      I answered more than one hour because it is a group visit and we spend much time looking and commenting each other data. Then there is also room for private questions.

      2
      3 years ago Log in to Reply
      1. Ms Cris

        Gustavo, where do you go to receive treatment, if you don’t mind saying? I would love a similar type of visit.

        3 years ago Log in to Reply
      2. Gustavo Avitabile

        I live in Naples, Italy. I go to the University Polyclinic in the Diabetology unit, a big structure that cares about 5000, mostly T2, patients. A section is dedicated to T1 patients using advanced technology, and here I chose to take part in group visits. All care in Italy is free and managed by our National Health System.

        1
        3 years ago Log in to Reply
      3. Ms Cris

        Maybe I should move to Portugal (from the U.S.), I’d get similar care there. We’ve been discussing it more and more lately. Thank you for replying!

        3 years ago Log in to Reply
    2. Bruce Johnson

      Govt health insurance sets the time that medical professionals are allowed to spend with patients. Basically unqualified people interfering with your healthcare.

      4
      3 years ago Log in to Reply
    3. Ernie Richmann

      I answered 10-19 minutes but If I had additional questions/concerns I am confident my health care provider would have offered more time.

      1
      3 years ago Log in to Reply
    4. Jeanne McMillan-Olson

      My friend and I who both have T1D have gone to the doctor (endo) together since the 1980s. We have been going to this University of Washington endo since 1993. He spends an hour or more with us each visit. He also has T1D. Feels like family.

      5
      3 years ago Log in to Reply
    5. Joan Fray

      Coincidentally, I saw her Yesterday. Every six months, one hour or more. She suggested I nurse exercise mode on my Dexcom from 10 to six, to avoid lows. TI R was 88%. 2% low, which she didn’t like.. …..

      1
      3 years ago Log in to Reply
    6. Tod Herman

      I’ve been seeing my current Endo for a little over two years now. We meet every three months and go over my lab results and the data from my CGM and pump. She’s a fantastic listener and communicates very well as she answers all my questions (I usually come with a small list). She also understands insurance issues and she finds ways to make sure I get the most for my costs. Our meetings generally last more than an hour. On a scale of 1 to 10, she’s a 15!

      My (soon to be wife) also attends and she likes her, too.

      4
      3 years ago Log in to Reply
    7. Sue Martin

      It was via telavisit so….

      3 years ago Log in to Reply
    8. Derek West

      My teleconf visit yesterday was about 15 minutes. Since we both recognized I had no issues it did not need to last longer. If there were issues she would have spent all the time needed.

      3 years ago Log in to Reply
      1. Bea Anderson

        I said 10-19 minutes and always close to 19. Meet every 3 months (Medicare) so we stay current on needs or concern. His relaxed personality and knowledge keep things on point.

        3 years ago Log in to Reply
    9. Karen Mason

      Usually I am not rushed I feel worth the trip to go.

      3 years ago Log in to Reply
    10. Mick Martin

      I stated 30-39 minutes, but it MAY have been marginally longer. A new, to the hospital clinic I was attending, Diabetes Specialist Nurse was involved in my ‘review’ and was ‘learning the ropes’ as to how things were done at this particular clinic. We got involved in a discussion about how diabetes care used to be …. in the days of urine testing, and how we used to have to boil the glass syringe prior to each injection. (I doubt, from her appearance, that she’d have been old enough to remember those days. 😉 )

      3 years ago Log in to Reply
    11. Jillmarie61

      I’ve noticed since the start of Covid, Endos spend less and less time with their patients and appointments are father apart then they should be. I used to see my Endo every four months before Covid. Then it dropped to once every 9 mos and now more than a year. When she asked why I thought my HgA1c was climbing dramatically I told her it’s because my diabetes is not being managed as well by my health care provider, which is true. No changes in my pump settings were kept up with since her CDE, who I was in touch with every 2-3 mos, retired.

      3 years ago Log in to Reply
    12. Beckett Nelson

      11 min. And he wants to pawn me off on someone else for the T1D because seeing him for two things (really just looking at bloodwork and making zero changes) takes too long 🤬

      3 years ago Log in to Reply
    13. Kristen Clifford

      This question has been asked before. Be original!

      3 years ago Log in to Reply
    14. Amanda Barras

      My labs are good, my medication and doses rarely change so it’s in and out with Rx refills and that’s it.

      3 years ago Log in to Reply

    During your last appointment with your T1D health care provider, how many minutes would you estimate you spent with your provider? Cancel reply

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