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    • 8 hours, 18 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 9 hours, 45 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 9 hours, 45 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 9 hours, 45 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 11 hours, 58 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 11 hours, 58 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 11 hours, 59 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 12 hours, 41 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 14 hours, 4 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 16 hours, 2 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 7 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 7 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 7 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 7 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 7 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 9 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 9 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 9 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 15 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 16 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 16 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    Does your health insurance offer benefits or cover services that adequately meet your needs?

    Home > LC Polls > Does your health insurance offer benefits or cover services that adequately meet your needs?
    Previous

    On average, how many adjustment boluses would you estimate you manually give yourself in a day? For the purposes of this question, these “adjustment boluses” do not include insulin automatically dosed by an algorithm without user input, and exclude doses given when also bolusing for food.

    Next

    Has a stranger ever approached you to talk about your visible diabetes device(s)?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    36 Comments

    1. Gustavo Avitabile

      Here in Italy, like in most European countries, we have National Health Service, which is free (covered by general taxation) and covers our needs.

      3
      2 years ago Log in to Reply
      1. Lawrence S.

        Hooray for Italy and most European countries. Maybe someday in the distant future, the USA will catch up.

        5
        2 years ago Log in to Reply
      2. Amber Thompson

        Are ALL type 1 diabetes medications and supplies covered? At $0. At what percentage are you taxed?

        2 years ago Log in to Reply
    2. Kathy Hanavan

      For diabetes, yes, but Medicare in their wonderful wisdom, does not cover eye, dental or hearing so those are big expenses for me.

      3
      2 years ago Log in to Reply
      1. Wanacure

        Kathy, you might be interested in a group that’s trying to expand Social Security and improve Medicare: https://pnhp.org/

        2 years ago Log in to Reply
      2. Jian

        Medicare Advantage plans do cover those

        1
        2 years ago Log in to Reply
    3. Bruce Schnitzler

      A combination of Medicare and a supplemental policy.

      2 years ago Log in to Reply
    4. Steve Rumble

      My needs are met through a combination of private health insurance and services provided by the Veterans Administration. The VA is my primary source of T1D supplies but my private insurance provides ophthalmologic care.

      2 years ago Log in to Reply
    5. Sondra Mangan

      Tricare for Life denies inhaled insulin unless injected doesn’t work. I think I could benefit by treating the occasional sticky high with inhaled insulin—but it’s too expensive to pay completely out of pocket.

      3
      2 years ago Log in to Reply
    6. Gary Rind

      Ugh, Express Scripts is my PBM. made me dump FIASP and won’t cover Afrezza.

      1
      2 years ago Log in to Reply
    7. Mick Martin

      As stated by Gustavo Avitabile, most European countries have a National Health Service, which is covered by direct taxation. (I live in the UK, so my ‘insurance’ is our NHS (National Health Service).

      There IS the option to take out your own private insurance, and some people do this as they don’t like NHS ‘queues’, but I’m in no position, financially, to be able to do that.

      2
      2 years ago Log in to Reply
    8. Daniel Bestvater

      I live in Ontario Canada so I have no health insurance. I owned my own business and could not get health insurance due to a pre-existing condition (T1D).
      I have several friends in the same boat. I have spoken to a number of T1D’s that took government jobs just to be covered under their group medical plan. In hindsight this probably would have been a good decision financially!!

      1
      2 years ago Log in to Reply
      1. Lawrence S.

        Hmm. I always thought that Canada had a government health insurance program?

        1
        2 years ago Log in to Reply
    9. Lawrence S.

      I’m retired. Have Medicare and a supplemental from my former employment. However, I have had situation where I could not get the services that I need. Once I went to get a stress test with contrast. When I got to the testing site, they gave me a paper to sign which said that Medicare will probably not cover the cost of this test. They wanted me to pay $1200 up front. i walked out.
      Also, I have to buy my own eye insurance and dental insurance. I have no hearing aid insurance.

      1
      2 years ago Log in to Reply
    10. KIMBERELY SMITH

      Medical and medication Medical Wheelchair also Dietetic Supplies

      2 years ago Log in to Reply
    11. Kris Sykes-David

      I am covered under my husbands federal health insurance and Medicare. Out of pocket costs somewhat inhibit me from trying a pump or Affreza. Like others mentioned, vision and dental are not covered.

      2 years ago Log in to Reply
    12. Wanacure

      In Washington State we elected a very rigorous Insurance Commissioner. See https://www.insurance.wa.gov/
      And Kaiser Permanente, like Mayo & Cleveland Clinics, practices preventive medicine. So I get a discount on hearing aids, etc., BUT there are copays. And I pay for dental insurance, but it’s added to my monthly Advantage plan. I do get free gym membership because patients who exercise cost KP less. Next month I’ll take a free in-person Eccentrics class (see PBS) at Shoreline Senior Center, 20’ bus ride away. SO FIRST ELECT AN INSURANCE COMMISIONER WHO WILL SERVE CONSUMERS, ands who is NOT an insurance company stooge. I’d be much happier, though, with a non-profit health care provider as in Switzerland, or a state run non-profit health care plan: https://pnhp.org/
      And https://www.psara.org/

      1
      2 years ago Log in to Reply
      1. Amber Thompson

        I had Kaiser permanente in GA. They told me that unless I had an upper extremity disability or was an amputee, they do not cover the pens, only the vial. Same with medicare, they only cover the cheapest option, not the option that is best for the patient. Socialized medicine is not the answer to the healthcare issue in the USA.

        2 years ago Log in to Reply
    13. Jane Cerullo

      I feel like I am discriminated against for choosing MDI with an InPen. I must pay co pay for two insulins and the InPen. Insurance charges a huge amount for pen needles. I get them mail order for a lot less. From Diathrive. I don’t understand why Medicare pays for a pump and also the insulin. And not for MDI. When I stop working will probably have to go back to a pump.

      1
      2 years ago Log in to Reply
    14. Pauline M Reynolds

      My only income is Social Security and I belong to an HMO. While my insulin was free with my previous insurance, the HMO is allowed to charge up to $35 a month, and they do. This was quite a shock at first, but I do appreciate the other economies they provide.

      2 years ago Log in to Reply
    15. Sherrie Johnson

      Medicare plus supplement that covers the 20%. Not an inclusive not an advantage plan. So far no problems with all my diabetic supplies or anything else. I pay zero copay and deductibles. Anthem plan f very happy with it.

      2 years ago Log in to Reply
      1. Wanacure

        Aha! Thanks for that info, Sherrie. So you chose Original Medicare & chose a Supplemental PLan? Sounds better than my KP Medicare Advantage Plan. Though it may involve seeing new doctors & much time changing my iPhone’s Contacts list, I’ve made an appt with a. SHIBA counselor to consider Original Medicare with a Supplement. Thanks for sharing. ❤️😎. My KP Endo doc & her team are only available on some days at some times. KP does NOT offer Original Medicare!

        2 years ago Log in to Reply
    16. lis be

      We have to make choices based on what we can afford and what the insurance company covers instead of what will help us achieve the best control. (Bad blood sugar control ultimately cost insurance company and diabetics more money in time as a result) Insurance companies negotiate prices with some companies and not others. It’s hard to anticipate what they will do year to year, which of your doctors will be dropped from coverage. Which medicines will stay the same price. An example- for a decade I was able to afford insulin, syringes and blood test strips, but not a pump (etc). Then the company insurance changed, I had to find all new doctors in-the new network, get new prescriptions filled, and found out that I now could qualify for a pump, but I could not afford the test strips that talked to the pump.
      Now I’m anxiously awaiting the end of my 5 year medtronic 630 warranty so I can see if I qualify for IQ (or any smart pump that will keep my sugars level when I’m sleeping)

      3
      2 years ago Log in to Reply
    17. beth nelson

      It’s a shame that Medicare doesn’t cover any of the emergency hypoglycemia products … if somebody knows different, please tell me how to make this happen! Thank you!

      2 years ago Log in to Reply
      1. Kristine Warmecke

        I just got a new glucagon kit (the type you have to mix) last year, the Medicare covered.

        2 years ago Log in to Reply
    18. Steven Gill

      When I worked and with insurance was costly (stopped using a CGM several years) What I’ve learned since may have been less costly trying other systems, or looking at options.

      2 years ago Log in to Reply
    19. Kristine Warmecke

      Being on Medicare my Novolog should cost $35 per month but since it’s not what is on the formulary I pay $70 per month. All the rest of my DM supplies are $0 as long as I use what they say I can.

      2 years ago Log in to Reply
      1. Amber Thompson

        It is so stupid that insurance makes the medical decisions in this country, not the doctors.

        1
        2 years ago Log in to Reply
      2. Wanacure

        Kristine, are you on Original Medicare with a Supplemental Plan? If so, are their other supplemental plans available? Is Humalog on the formulary? It’s similar to Novolog: fast acting.

        2 years ago Log in to Reply
    20. Janis Senungetuk

      Unfortunately, right now I don’t have health insurance. I’m very hopeful that by the end of October I’ll have completed the process to again have basic coverage.

      2 years ago Log in to Reply
    21. Amber Thompson

      Currently, I am on a plan with Cigna through the healthcare marketplace that covers my Humalog pens, Basaglar pens, and freestyle libre so that I pay $0. But everything else, including endocrinology visits are very very expensive.

      2 years ago Log in to Reply
    22. Anne Mueller

      Sometimes. As a diabetic who uses both a CGM and a pump., I use lots of supplies. My insurance gives me the exact number of supplies I need. With my pump and my insulin it is not as much of a problem because I spent an extended amount of time on prednisone and my doctor changed my prescriptions to have me change my infusion site every 2 days. I built up a supply of more than I needed. But my Dexcom is a whole different story. Dexcom has been good about replacing sensors when they come off early, but there are months when I come uncomfortably close with having to go without for a few days because . . . I don’t know why. They come off early and sometimes Dexcom doesn’t always replace them and the pharmacist Will Not Refill just because I am out of sensors, and even if they did, insurance won’t pay for it. You need to have back ups for all your supplies, including sensors, and it’s insane that you can’t have them. What if you run out on vacation? Too bad for you. You can have your prescription transferred to wherever you are, but after that, your endo or whoever writes your prescriptions will have to write a new one for your regular pharmacy because a prescription can only be transferred once. The whole thing is insane.

      2 years ago Log in to Reply
      1. Wanacure

        Anne, take heart. Doctors. patients, volunteers are uniting & working to eliminate high cost of middlemen, needless paperwork & data entry, and to improve benefits. Here are some links: http://www.pnhp.org/ http://www.psara.org/, http://wholewashington.org/

        Are there similar groups in your state or a local chapter of physicians for a national healthcare plan?

        2 years ago Log in to Reply
    23. Brad Larson

      Just wish they would cover my GLP-1 – Liraglutide

      2 years ago Log in to Reply
    24. T1D4LongTime

      The health insurance coverage is great, but the processes PBMS and Medical Supply places use to provide DME and prescriptions for all diabetics is dangerous. Diabetics use varying amounts of devices and medications and the healthcare industry has a bias that assumes fixed amount of use (3 test strips per day for example or 1 infusion set cartridge every 3 days). This is not the way to manage our disease…. restricted by the number of devices/test strips we can use per day.

      2 years ago Log in to Reply
    25. Jeff Balbirnie

      The insurance system is deliberately hostile toward our usage or being fully and correctly covered. Haphazard, entirely random insulin put in a specific coverage formulary, meters-strips fully covered in one period and refused coverage at some next random period. An openly hostile system against us period.

      2 years ago Log in to Reply

    Does your health insurance offer benefits or cover services that adequately meet your needs? Cancel reply

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