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    • 5 hours, 39 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 7 hours, 5 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 7 hours, 5 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 7 hours, 6 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 9 hours, 18 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 9 hours, 19 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 9 hours, 20 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 10 hours, 2 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 11 hours, 25 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 13 hours, 22 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 6 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 6 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 6 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 10 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 12 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 13 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 14 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    Does the health care practice you see for your diabetes care have an online portal where you can message your provider?

    Home > LC Polls > Does the health care practice you see for your diabetes care have an online portal where you can message your provider?
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    Do you know the day and year that you received your T1D diagnosis? If you're comfortable, share about your diagnosis in the comments!

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    Samantha Walsh

    Samantha Walsh has lived with type 1 diabetes for over five years since 2017. After her T1D diagnosis, she was eager to give back to the diabetes community. She is the Community and Partner Manager for T1D Exchange and helps to manage the Online Community and recruit for the T1D Exchange Registry. Prior to T1D Exchange, Samantha fundraised at Joslin Diabetes Center. She graduated from the University of Massachusetts with a Bachelors degree in sociology and early childhood education.

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    17 Comments

    1. Trina Blake

      I upload my Tnadem/Dexcom devices (they’re integrated) monthly. I send a message to the Endo practice letting them know the data is there. What I especially appreciate about the portal is that with my monthly data dups, I don’t need in-person appts. Saves me a boatload of time and effort. I’ll get a followup phone call appt on occasion, but then they have to do that so that insurance will continue to cover my insulin.

      2 years ago Log in to Reply
    2. Lawrence S.

      I belong to a hospital network where I have access to all of my doctors through their portal. Occaionally, I message my providers.

      2 years ago Log in to Reply
    3. Jane Cerullo

      I use it I said often but truthfully sometimes a better choice. I get my labs via email from the lab so I always have them to compare to the prior month.

      2 years ago Log in to Reply
    4. Annie Wall

      I use my primary’s and endo’s portals very frequently. I message them whenever I have a question or problem. I can check my labs, my chart, pay my bills, etc. it’s very handy and I don’t have to worry about waiting on hold or waiting for an answer.

      2 years ago Log in to Reply
    5. Marty

      I rarely, if ever, use the portal to message my provider about a health issue, but I often use it to ask for prescription renewals, schedule visits, check labs, and other routine aspects of my health care.

      2 years ago Log in to Reply
    6. Mick Martin

      I have personal Work-Related email addresses for both my endocrinologist and my Diabetes Specialist Nurse (DSN), but I also have access to an online portal where I can check on appointments, blood test results, etc.

      2 years ago Log in to Reply
    7. Bob Durstenfeld

      I answered yes, sometimes, but I get better results sending an email to the front desk staff for things like prescription refills.

      2 years ago Log in to Reply
    8. Ernie Richmann

      I can call or send an email to the office.

      2 years ago Log in to Reply
    9. Pauline M Reynolds

      The nurse practitioner in endocrinoloty is very welcoming toward online messages. She checks my pump history and answers promptly.

      2 years ago Log in to Reply
    10. TEH

      Yes my Endo and GP have portals. I have messaged my GP only. I get the blood test results from my Endo’s portal.

      2 years ago Log in to Reply
    11. KIMBERELY SMITH

      In clinic

      2 years ago Log in to Reply
    12. Janis Senungetuk

      Yes, MyChart. Up until February of this year I used it frequently, to ask my endo what labs were needed before 90 day appointments. I also used it to send my tconnect data just before our appointments in addition to any questions/subjects I wanted to discuss at the appointment. I also used it to ask my Diabetes Educator pump and sensor issues. In February the business side of the healthcare organization began charging for all staff/patient contact that required access to the patient’s chart. Before any messages are sent to staff I’m required to agree to pay appointment charges. Since my use of the on-line message system requires more than a generic answer, even requesting a prescription renewal can be charged an appointment fee. So far, I haven’t been charged.

      2 years ago Log in to Reply
    13. lynda meyer

      I have a personal email for my endo.

      2 years ago Log in to Reply
    14. Antsy

      My last three END’s worked for the same hospital system so all used MyChart/Epic. The middle doc said they preferred communicating via MyChart, it was even on their on-hold announcement repeatedly asking we send a message instead of waiting in their phone queue. But they had signs all over their office stating patients should ask any questions before leaving, so they didn’t have to use MyChart. My other two docs were/are normal about it; they or their MA or RN get back to me quickly. The only thing I don’t like is the system logs me off quickly, and they recently added 2FI, which is good for security but tiresome if you’re logging in over and over.

      2 years ago Log in to Reply
    15. PamK

      I only use it when I feel I have to. I am not comfortable having my medical information online. I feel it is too big a risk, if they get hacked which can happen.

      2 years ago Log in to Reply
    16. KSannie

      My husband and I are using it increasingly because the nurses do not phone us back in a timely manner, but they do respond quickly to the portal questions and messages. Sometimes I have had to walk into the building and ask to see the nurse without an appointment if the question is urgent.

      2 years ago Log in to Reply
    17. Jeff Balbirnie

      Getting into the system, fairly easy. Getting ANY response, even their standard non-responsive generic one(s), almost non existent. A precise, detailed question requires some kin of intelligent, meaningful response. Even acknowledging our messages, would offer some kind of false hope(s).

      2 years ago Log in to Reply

    Does the health care practice you see for your diabetes care have an online portal where you can message your provider? Cancel reply

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