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    • 1 hour, 2 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 16 hours, 25 minutes ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 16 hours, 27 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 16 hours, 28 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 16 hours, 29 minutes ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 16 hours, 37 minutes ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 18 hours, 29 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
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    • 18 hours, 30 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 18 hours, 32 minutes ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 22 hours, 33 minutes ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 1 hour ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I only knew a little . That is why I give grace to others who do not know anything or have misconceptions.
    • 1 day, 1 hour ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 1 hour ago
      KCR likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 2 hours ago
      Gary R. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 2 hours ago
      eherban1 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 14 hours ago
      NANCY NECIA likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 16 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I won't use the word "diabetic" as a noun. It's as simple as that, an adjective, yes. I didn't refer to a good friend with MS as a "sclerotic". When I was working with first responders, I tried to remember to say "schizophrenia is involved", or "there's alcoholism at play here".
    • 1 day, 16 hours ago
      Anita Stokar likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
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    Do you think your diabetes healthcare provider uses language that is clear and easy to understand?

    Home > LC Polls > Do you think your diabetes healthcare provider uses language that is clear and easy to understand?
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    If you wear a CGM, at what BG number is your “high” alert set? If you use multiple alert schedules, select the number that is your “high” alert at 12 p.m. in your time zone.

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    How satisfied are you with your current T1D therapy regimen?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    11 Comments

    1. connie ker

      WOW, 98% of diabetic patients think well of their healthcare provider. Sometimes, the healthcare providers learn from their patients too. So I always go to appointments with a list of questions seeking more knowledge. Sometimes they don’t have the answers, sometimes they do, but I appreciate the time they spend with me.

      5 years ago Log in to Reply
    2. Thomas Hatton

      I do the same, Connie! To the question of the day, if I hear something I don’t understand, I ask. No stupid questions, only more knowledge…

      5 years ago Log in to Reply
    3. Beth Franz

      I have an NP mainly for yearly bloodwork and prescription requests. I research and own everything I do for T1. I feel like half the time she doesn’t know what I’m talking about!

      5 years ago Log in to Reply
    4. Ernie Richmann

      I answered yes. I also ask questions or restate the information in my own words to confirm understanding. I read for more information and a greater understanding. I have few trusted resources that I often rely on for accurate information.

      5 years ago Log in to Reply
    5. Christina Trudo

      I have come to believe that most providers tailor their language to the (perceived) understanding of the patient. I worked in hospitals for many years so I think I have a vocabulary that may be beyond my actual understanding at times. Providers may assume I have more knowledge than I do. I need to be careful not to nod and bluff my way through things I don’t understand so well. Often I don’t realize that I don’t understand until after the appointment.

      5 years ago Log in to Reply
    6. Leona Hanson

      Yes my PCP explain everything so I understand and yes he is also learning about my pump which is a ++for both of us

      5 years ago Log in to Reply
    7. Becky Hertz

      My previous endo was great! Sally (for me) she retired. I haven’t met my new endo yet so don’t know how communication will be.

      5 years ago Log in to Reply
    8. Patricia Dalrymple

      Yes, in fact they talk down to me a little. I asked to speak to a nutritionist who said she wanted me to come to a group meeting. I told her no. By the end of our convo she agreed and said I could probably teach the class. When it means saving your own life, you tend to learn quick.

      5 years ago Log in to Reply
    9. Pat Reynolds

      I think it depends on what “your healthcare provider” means. I have had doctors who are abysmal, but swiftly move on: I work with teams who treat me as a co-researcher. But outside the teams I control (control as in, I can move on) I find that too many providers of information are failing. Some by _not_ catering to those with a higher comprehension level. Others by not getting communication basics right. Today, for example, I have been trying to find advice on diet for a blind pre-diabetic (equivalent of what I can find online, let alone tailored to their other health issues which mean that my usual go-to recommendations for non-spiking snacks are ruled out. What this person needs is a dietician who understands blindness, not me.

      5 years ago Log in to Reply
    10. Sealani Weiner

      My doc is a type 1 – he actually told me about this fabulous website – and he is so responsive. Whether its in person, or I pose a question or concern in the patient portal, he always gives me excellent direction. In addition, I have to say that even at times when I was down on myself for a too high A1c, he was kind and supportive. And he has been a cheerleader since it has been going down, down, down since I changed how and what I eat nearly two years ago. My last two visits, for the first time in my diabetic life (20+ years), my A1c was 7. (That may not be low for many of you, but consider that it was 13 before I got diagnosed.)

      5 years ago Log in to Reply
    11. Sally Numrich

      I never have any issues with communication with my medical team. If I don’t understand something, I just ask.

      5 years ago Log in to Reply

    Do you think your diabetes healthcare provider uses language that is clear and easy to understand? Cancel reply

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