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    • 8 hours, 51 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 8 hours, 51 minutes ago
      KarenM6 likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 10 hours, 6 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Very, but more worried about it even making to the FDA and approved there first.
    • 10 hours, 7 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      There are many concerns, one being if I'll still be alive if it's ever offered :)
    • 10 hours, 7 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 10 hours, 8 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 10 hours, 8 minutes ago
      Lawrence S. likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 10 hours, 10 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 10 hours, 10 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      General access to islet transplants is still years away. FDA has to deem it safe. Though, I am excited about the possibility.
    • 10 hours, 10 minutes ago
      Amanda Barras likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      At 78 I don't think islet transplantation will affect my life course. Big pharma sees biological treatments as the path to ever higher profits, not constrained by patent terms the way drugs are. Most diabetics would be better served by an improved standard of care from the ADA and the medical community.
    • 12 hours, 12 minutes ago
      Patricia Dalrymple likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 12 hours, 50 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      If they can transplant them such that we do not need immunosuppresants, we'd be fine. Otherwise, those meds are just one more thing that could become in short supply. But at least we could go through scanners at the airports and travel without huge bags of supplies.
    • 12 hours, 50 minutes ago
      Gerald Oefelein likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 13 hours, 33 minutes ago
      Marty likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 13 hours, 55 minutes ago
      dholl62@gmail.com likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 14 hours, 18 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 14 hours, 19 minutes ago
      Steve Rumble likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      While those items are very much a concern, there are other factors that are more concerning ie immunosuppressant.
    • 14 hours, 19 minutes ago
      atr likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      Severe case of hardening of the “oughteries” here. Ought we be concerned with cost, insurance, coverage, hail storms, earthquakes? ▄█▀█● Why are we not homeschooled to enjoy the progress being made?
    • 14 hours, 34 minutes ago
      Sarah Berry likes your comment at
      How concerned are you about potential barriers to islet cell transplantation, such as cost, access, eligibility, or insurance approval?
      much more concerned about my age (65) than anything else. 😉
    • 15 hours, 35 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Age 73 here. I'm in the same boat. I ogten am considered too old for consideration for "smaller" research projects. But - best of luck to them. I'll be rooting on the sidelines.
    • 15 hours, 36 minutes ago
      Steve Rumble likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I've tried twice and was rejected both times because I control my diabetes as best I can. As others have already stated, if immunosuppressing drugs are involved, count me out. I'm not interested in something worse than what I already have.
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      Not if it requires immunosuppressant drugs. Been there done that time to move on to something much better.
    • 1 day, 6 hours ago
      Gerald Oefelein likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      no immunosuppression needed - 👍 immunosuppression needed - 👎
    • 1 day, 12 hours ago
      Natalie Daley likes your comment at
      How likely is it that you would participate in a clinical trial for islet cell transplantation?
      I answered “Very Unlikely” not because I woud not want to participate but because, at age 75, I think it very unlikely that any researcher would want me in their patient panel.
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    Do you (or your loved one with T1D) take a Vitamin D supplement?

    Home > LC Polls > Do you (or your loved one with T1D) take a Vitamin D supplement?
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    Does your T1D healthcare provider inform you about new devices and therapies available to you?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    21 Comments

    1. Carol Meares

      Almost everyday, occasionally I forget

      5 years ago Log in to Reply
    2. Greg Felton

      Daily during the winter months

      5 years ago Log in to Reply
    3. Annie Wall

      I’m daily because I take calcium chews every day and they include some D as well.

      5 years ago Log in to Reply
    4. Angela Naccari

      I have had a Vitamin D deficiency so I take it twice daily.

      5 years ago Log in to Reply
    5. Amanda Barras

      My hubby is pre-diabetic and takes Vit D as he has a severe deficiency but I the T1 do not.

      5 years ago Log in to Reply
    6. dave hedeen

      from seattle, yes most days. take D when there is no sun

      5 years ago Log in to Reply
    7. Martina Schockemoehle

      funny – I was reminded of my weekly dose a minute before I received this question 😉

      5 years ago Log in to Reply
    8. Marcia Pulleyblank

      During the winter or when it is cloudy and grey, I know I don’t get enough sunlight. I was once tested and found to be seriously deficient. At that point I was waiting to and from work and should have had enough.

      5 years ago Log in to Reply
    9. Anthony Harder

      I take an adult multivitamin daily and figure it has all the vitamin D I need.

      5 years ago Log in to Reply
    10. Amy Nance

      Whenever my level of vit d is checked, it is always at a high normal average, even when I don’t take vit d – I think it’s a function of getting outside regularly and after I was 35, I started using a tanning bed once a week in the winter, for whatever that’s worth

      5 years ago Log in to Reply
    11. Janis Senungetuk

      Yes, I take a 1000 IU capsule every morning.

      5 years ago Log in to Reply
    12. Eve Rabbiner

      MY Vitamin D levels were very low so I am now taking 50,000 units once a week.

      5 years ago Log in to Reply
    13. Becky Hertz

      I did until recently. My kidney function decreased significantly and my nephrologist wanted me to stop all supplements. I was taking 5000 iu daily for many years.

      5 years ago Log in to Reply
    14. KarenM6

      I was Vit D deficient, so initially started with the super high dose (50,000 iu or there abouts) once weekly. After 3 or so months, I transitioned to 1,000 iu daily. Calcium is also an issue for me and the two go together.
      I still occasionally show up as low Vit D even with the supplement and the sunny clime.

      5 years ago Log in to Reply
    15. Ernie Richmann

      Yes- I wanted to take a supplement that matched my high school grade point average.

      2
      5 years ago Log in to Reply
    16. ConnieT1D62

      50,000 mEq weekly when my levels are low. Was on it for several years, then endocrine NP had me stop about 9 months ago because the levels were in range and she didn’t want to overdose.

      5 years ago Log in to Reply
    17. Sahran Holiday

      Primary care found me to be deficient in a routine blood test. Rx supplement; now just an over the counter supplement.

      5 years ago Log in to Reply
    18. Jillmarie61

      I take a prescription dose of Vitamin D once a week.

      5 years ago Log in to Reply
    19. Bonnie Lundblom

      I’ve been taking Vitamin D for many years after my blood test showed my Vit D level was low. My endocrinologist checks it every year, I’m taking 50 mcg (2000 IU) daily.

      5 years ago Log in to Reply
    20. Phyllis Lewis

      When I lived in NY – very little sun – my vitamin D levels were fine. I moved to Florida – the Sunshine state – and developed a vitamin D deficiency. Was on a very high dose (Rx) for quite a while but am now on OTC daily.

      5 years ago Log in to Reply
    21. Cheryl Seibert

      I am T1D and do not take any vitamin supplements. My T2D husband takes Vitamin D supplement due to hyperparathyroidism.

      5 years ago Log in to Reply

    Do you (or your loved one with T1D) take a Vitamin D supplement? Cancel reply

    You must be logged in to post a comment.




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