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    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Every 9 days I have to have to change an infusion set after one day use to switch the sensor to the other side - come on deccom you can do better
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 9 hours ago
      lis be likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change infusion sites every other day rather than every 4th day. I’ve been doing this for years after I started to see my insulin requirements increase dramatically on the 3rd day. It’s not really “earlier than recommended” since my endo agrees with this schedule and writes my prescriptions to accommodate it.
    • 1 day, 9 hours ago
      Ahh Life likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I usually extend them rather than cut their longevity short. I am insulin resistant and if I don't refill pump at day 2 I can't get to day 3-4. So, I usually use it a day longer than instructed due to the refill. And before moving to G7 I would restart my CGM and get an average of 14 days with some rare, 21 day uses in the mix. Sadly, Dexcom has figured out how to make more money off us by forcing a restart every 10 days with a transmitter built in.
    • 1 day, 12 hours ago
      Molly Jones likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 15 hours ago
      Lawrence S. likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 16 hours ago
      Daniel Bestvater likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 17 hours ago
      dholl62@gmail.com likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      I change my infusion site early if it's ripped off (obviously) or if I'm running high for no reason I can detect. Changing the site can sometimes help. I only change my CGM early if 1) it's going haywire with my numbers (reading high or low without cause) or 2) sometimes it's just convienant due to scheduling. But that's usually one day early.
    • 1 day, 17 hours ago
      TEH likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Sites on my legs seem to get irritated with resultant higher glucoses by day 2, so I often change out these sites every 2 rather than 3 days.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 1 day, 18 hours ago
      atr likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 1 day, 18 hours ago
      atr likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 1 day, 18 hours ago
      Chrisanda likes your comment at
      How often do you change infusion or sensor sites earlier than recommended?
      Starting in 1996, my midriff has received more pounding than the Gaza strip. Both look similar. Consequently, I change frequently, every 2.5 days or so. Whatever the landscape will tolerate. 📄🖍️o(≧o≦)o🧸
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 10 hours ago
      Ahh Life likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Assuming I would live long enough to complete it — I’m going to be 80, but I’m a healthy, active T1D.
    • 2 days, 12 hours ago
      Mary Thomson likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      I answered "maybe" because I am house bound and can do survey's online, but not in person. Also, I am 86 and not eligible for most research.
    • 2 days, 12 hours ago
      TEH likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 14 hours ago
      Kristi Warmecke likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      I don't have problems reading published results. I'm more concerned with information that doesn't get published or is just left out.
    • 2 days, 16 hours ago
      lis be likes your comment at
      If research results were shared directly with participants in plain language summaries, how valuable would that be to you?
      Why would you want to restrict plain language disclosure to participants? How about plain language for everybody?
    • 2 days, 17 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      Yes. At my age (according to the social security life expectancy table) I have 8.6 years left. Whew! Thank heavens for that point-six. 🍄🦋
    • 2 days, 17 hours ago
      Sarah Berry likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
    • 2 days, 18 hours ago
      Laurie B likes your comment at
      Would you be willing to participate in long-term research (1 year or longer)?
      All depends on location and age requirements
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    Do you (or your loved one with T1D) have thyroid issues in addition to T1D?

    Home > LC Polls > Do you (or your loved one with T1D) have thyroid issues in addition to T1D?
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    Does your dentist usually ask about or discuss your diabetes with you?

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    How many of the following relatives in your life have had T1D? Select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    22 Comments

    1. Chip Brookes

      Taking synthroid due to other medication that affects the thyroid. I expect to stop using that med. My thyroid should return to normal.

      5 years ago Log in to Reply
    2. Jneticdiabetic

      My mother and I both have T1D and Hashimoto’s thyroiditis.

      5 years ago Log in to Reply
    3. Amanda Barras

      Hypothyroidism since age 17.

      5 years ago Log in to Reply
    4. connie ker

      None of the 3 T1Ds in my family have or had thyroid problems. However, I know that is one of the lab tests done frequently.

      5 years ago Log in to Reply
    5. Sharon Beckman

      Hashimoto’s 15 years prior to being diagnosed TD1

      5 years ago Log in to Reply
    6. Janet Wilson

      My son (our only T1) does NOT have thyroid issues. I DO. I’m NOT T1. I answered “NO” because I am not T1.

      5 years ago Log in to Reply
    7. Janet Wilson

      Side note: I highly dislike this question/answer format compared to the old format. This method is definitely NOT as good as the prior. :'(

      5 years ago Log in to Reply
    8. James Merrick

      Had both for 40 years. A lot has changed since my first diagnosis. Just happy to be alive.

      5 years ago Log in to Reply
    9. Sondra Kirby

      I was diagnosed with hyperthyroidism in my mid 20s and had a radioactive iodine treatment. Now hypothyroidism. I was diagnosed with T1D in my early 30s.

      5 years ago Log in to Reply
    10. Thomas Hatton

      I had Hyperthyroidism and I have a malignant nodule on my thyroid. I treated my hyperthyroidism without radiotherapy and it has gone into remission. My Endo verifyed it was malignant and checks the nodule every 6 months with a sonogram. And I agree with Sondra. This is much harder to use. We lost the feature to comment on other posts. My passwors wassuposed to port, but it took me 3 tries to reset it. This was because the password rules weren’t prominently displayed on the password reset page. Im sure others agree. The number of posts has dropped significantly, only 9 other comments at the time of this post. This is a case of newer not being better.

      5 years ago Log in to Reply
    11. Thomas Hatton

      Sorry, it was Jannet, not Saundra. We also lost the ability to edit our posted comments. 😒

      5 years ago Log in to Reply
    12. Jana Foley

      I do not suffer from hyperthyroidism. I also dislike the limiting features of this new question and answer page. Not only can we not reply directly to other people’s comments, we also cannot correct our own if we need to.

      5 years ago Log in to Reply
    13. Caroline Kwiatkowski

      Dx with Grave’s Disease at age 15. Had surgery then radioactive iodine one year later. Dx T1D at 40.

      5 years ago Log in to Reply
    14. Janis Senungetuk

      Yes, low thyroid dx in 2004. T1D dx in 1955. I wish to add my thoughts on the new combined website. The opening page is visually very difficult to follow. I’m hit with too many sections calling for my attention without a navigation guide. Simplify. Rethink User Experience (UX). The ability to personalize my answers is the reason I’ve continued to respond to the questions. The new format makes that more difficult. Placement for my response should be directly after answering the question. The new format didn’t transfer my profile photo or password. Asking me to login before answering a question should not be necessary , since you sent me the email. It’s definitely time for a response from TID Exchange. It’s definitely time for a response from TID Exchange.

      5 years ago Log in to Reply
    15. sara falconer

      Dxed t1d 1974. Dxed graves 1981. Treated with medication for year and it went into remission. It came back in 2002. Medication remission medication remission… finally had radio active iodine in 2013…. now hypo thyroid. F’n auto immune disorders

      5 years ago Log in to Reply
    16. Patty Harris

      This new format is NOT user friendly in my opinion. Please find something easier to use.

      5 years ago Log in to Reply
    17. Nicole Duggins

      My thyroid blood test shows slightly overactive, but I don’t have any issues from it.

      5 years ago Log in to Reply
    18. Ann Taylor

      I was dx with low thyroid when I was about 26 and then dx with T1D when I was 62 I also do not like having to put in my password every time so this is the 1st time I’ve answered a question since the change. Also there is too much stuff before answering the question

      5 years ago Log in to Reply
    19. Molly Jones

      I have acquired hypothyroidism. Diagnosed in my early twenties. Everyone family member on my mothers side of the family has had thyroid issues: her parents, her siblings, my maternal cousins, my sibling, ….

      5 years ago Log in to Reply
    20. kilupx

      I have had hypothyroid for 31 years and type 1 for 5. I take Synthroid and have never had problems. I couldn’t agree more with comments about new format being user unfriendly. I tried to like them but was unable to on my phone. Why can’t a redesigned website keep the interactive features of the previous one?

      5 years ago Log in to Reply
    21. Sally Numrich

      No one has thyroid issues. I am tested each year but still working well.

      5 years ago Log in to Reply
    22. Debbie Kolterman

      I was diagnosed with T1D and Hashimotos syndrome within a year or two of each other. I then was diagnosed with thyroid cancer and had a thyroidectomy in 1995.

      5 years ago Log in to Reply

    Do you (or your loved one with T1D) have thyroid issues in addition to T1D? Cancel reply

    You must be logged in to post a comment.




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