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    • 1 hour, 55 minutes ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I’m either too old or live too far away. I’m 72 and live in Arizona
    • 1 hour, 55 minutes ago
      Gerald Oefelein likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Quite a few opportunities I would have considered I aged out.
    • 2 hours, 37 minutes ago
      KSannie likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Requests for my personal information that I don't want to share online.
    • 3 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 3 hours ago
      kristina blake likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 hours, 6 minutes ago
      Ahh Life likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      I was declined because they only accepted diabetics with an ac1 of 7 or above.
    • 3 hours, 22 minutes ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      Unfortunately, I neither have the time or financial resources to travel out of state.
    • 3 hours, 22 minutes ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 3 hours, 23 minutes ago
      Lawrence S. likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      It was to test one of the new CGMs that measures ketones in addition to blood sugar. I live in Houston and the research was in Austin. Would have involved many trips to Austin that basically would have spent the promised stipend. In addition, they were going to raise and lower my BS to see if the CGM would measure the ketones correctly. That sure didn't sound enjoyable so I passed.
    • 4 hours, 14 minutes ago
      Beckett Nelson likes your comment at
      Have you ever declined a research opportunity? If so, what was the primary reason?
      While I'm not sure if I had a significant chance of being selected, I declined to further pursue the potential for being considered for the Vertex islet cell study, due to it preventing me from donating blood products for at least the duration of the trial. I'm a passionate platelet donor, and I am okay with living with diabetes in order to be able to continue doing so regularly.
    • 17 hours, 59 minutes ago
      Bruce Schnitzler likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
    • 19 hours, 50 minutes ago
      Ahh Life likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds matter to a surprising degree. The zip code you live in is better predictor of your heart disease risk than your LDL cholesterol level.
    • 22 hours, 32 minutes ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Backgrounds don’t matter, but ages and races should be considered as those would be factors that could affect outcomes of study. Not diversity for diversity sake, but testing to make sure therapies can work on everyone.
    • 22 hours, 34 minutes ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 22 hours, 34 minutes ago
      TEH likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      Even though we are all one in the human race, we all have a unique physiology. The more people with diverse genders, ages, and races will be the most informative.
    • 1 day, 1 hour ago
      Laurie B likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      It depends on the research. Some research questions deal with youth and T1D. More needs to be done with aging populations with T1D, and LADA. Most all the research should have diversity of gender and race unless the question is involved with a particular race or gender. But what is the control? The question of inclusion of diversity should always be a part of the development of the study and its what is desired in its findings.
    • 1 day, 1 hour ago
      Marty likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      I put 5-10, but don't really know. I have auto-generation and install updates to both DIY Trio and Loop each week, that takes minimal time. I participate in four different on-line groups (FUD [daily], BeyondT1 [once in awhile], LoopZulipChat [on Loop development/questions], and Trio Discord [development/questions on Trio]. I also look through Facebook groups every once in awhile for Loop and Trio. Then there's the before meal/snack dosing of insulin (requires carb counting/estimating and carb entry) and then correction dosing as needed. When I think of question appropriate for my Endo, I write it down so I don't forget. I get the added bonus of dealing with EPI (roughly 30% of T1s have it/get it) which necessitates determining my fat intake and treatment with enzyme pills so I can digest food (mostly fats, but also protein and carbs). There's a lot to it that gets "normalized" in my routine...most of the time! Once in awhile, my mind "forgets" one or the other briefly.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      That’s a tricky question, somewhere between always and sometimes. After about 50 years of T1D I think I run on autopilot. But having said that everything one eats or if you move around or sit around must be taken into account. Even with CIQ I need to run different basal programs…..inactive to highly active….or am I eating larger quantities of carbohydrates…many variables that we automatically adjust for.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 1 day, 3 hours ago
      Lawrence S. likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 1 day, 4 hours ago
      Kathy Hanavan likes your comment at
      How important is it to you that research studies include participants who reflect diverse ages, races, and backgrounds?
      A civilization that does not care about others isn’t truly civilized.
    • 1 day, 19 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      This is so true! I left out the time going to get meds, pods, and CGMs. It doesn't amount to much when spread out weekly. Takes about 1/2 hr to get to pharmacy, 1/2 hour back, 1-3 hrs waiting at the pharmacy or correcting their misinterpretation of a script (seriously?). Then there's the Endo visits (waiting time, actual talking with doc, blood work, etc.) that's between 1 and 4 times a year. Then there's the need to get BG meter supplies; I've reduced this to once a year, thanks to CGM, but Walgreens always charges me $3.81 and then cuts me a check 6 months later to reimburse it because...I don't know why, neither do they! Then there's the additional time it takes to change a pod every 3+8hours and the CGM every 10.5 days (wouldn't it be great if they could synch these up?!
    • 1 day, 19 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      The hours really add up if I include all of the time I spend trying to wrangle the health care system-making doctors’ appointments, sitting in waiting rooms, dealing with insurance, sourcing, ordering and tracking supplies, etc. On the day I was diagnosed, I remember anticipating how much time and energy I’d have to devote to the “healthcare” system for the rest of my life. This caused me more distress than the prospect of coping with the disease itself.
    • 1 day, 19 hours ago
      atr likes your comment at
      On average, how many hours per week do you spend actively thinking about or managing diabetes tasks?
      Actively thinking about things is only during pump,CGM changes, meals, activities. Which is not many hours in a day. However, it is always running in the back of mind.
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    Do you have hypoglycemia unawareness?

    Home > LC Polls > Do you have hypoglycemia unawareness?
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    Did you have any diabetes-related achievements or milestones in 2021? Share what you’re proud of in the comments!

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    Did you add, remove, or change T1D devices in 2021? Select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    29 Comments

    1. Ernie Richmann

      I have awareness for very low bg levels- 40-50 range.

      4 years ago Log in to Reply
    2. Steve Rumble

      My family members frequently detect my hypoglycemia before I do.

      3
      4 years ago Log in to Reply
    3. Rebecca Lambert

      I don’t feel low until very low (under 50) unless it is a rapid descent and the I feel the fast drop a little.

      2
      4 years ago Log in to Reply
    4. Beth F

      Sometimes – only when I’m lying down reading/sleeping. 58 seems to be magic number where I get restless, heart ‘thumpy’, and feel hot. I have it set at 60 at night to try to fix before the symptoms kick in. Doesn’t happen too often luckily.

      4 years ago Log in to Reply
    5. Daniel Bestvater

      My Dexcom G6 has saved me many times from more severe episodes of hypoglycemia.

      4 years ago Log in to Reply
    6. TEH

      As others have said, I don’t feel it until about 50. The sensation is never the same each time. CGM has been a tremendous help. I have a dropping alarm at 85. Most times (except while driving) I watch the trend at that time. Then at 70 take action and eat somthing.

      4 years ago Log in to Reply
    7. Annie Wall

      I used to have hypoglycemic unawareness but answered no because my cgm lets me know when I’m on my way down so I’m able to treat right away.

      4 years ago Log in to Reply
    8. Kim Murphy

      I am not aware it is low at any point. If I did not have the Dexcom I probably wouldn’t be alive. A few times my Dex com has not read correctly and my husband has to call paramedics. Before Dex Com I had paramedics at my house at least twice a month, because it would drop at night while I was asleep so my husband didn’t notice.

      1
      4 years ago Log in to Reply
      1. AnitaS

        I had a diabetic relative and her husband awoke many times each night and just touched his wife’s arm to check for clamminess. She didn’t have a CGM. I am sure both you and your husband are very thankful for your CGM

        4 years ago Log in to Reply
    9. Kathy Morison

      The only time I experienced hypoglycemia unawareness was while using Humalog insulin.

      1
      4 years ago Log in to Reply
      1. Wanacure

        So, Kathy, are you using beef pork insulin? Or?

        4 years ago Log in to Reply
    10. Jim Cobbe

      Like Rebecca, the speed of change definitely affects my awareness of what is happening; more likely to notice what is going on if the blood sugars are going down fast. On the other hand, the almost total unawareness I had about a decade ago has largely disappeared; but my wife still detects many episodes that don’t exist — but the false positives both she and the dog register are a small price to pay for their help in other ways (this is not a trained dog, but she clearly detects deep lows, but also sometimes gets my wife unnecessarily).

      1
      4 years ago Log in to Reply
    11. Janis Senungetuk

      Yes, over the last decade I lost awareness of lows and highs. Both my spouse and cat are often aware before the CGM extreme alarm sounds.

      1
      4 years ago Log in to Reply
    12. Sue Martin

      My awareness symptoms have changed over the last 37 years so I was very glad when my doctor suggested DexCom. It was version 3 at that point. Each version has had improved features. It really gives me and my husband peace of mind, especially overnight. I have my low alarm set to 90 so that I have time to correct before it gets too low.

      4 years ago Log in to Reply
    13. Lawrence S.

      I used to have hypoglycemia unawareness for many years. Over the past 10 years I seem to be becoming more aware. The only difference that I can think of is that I am retired, and seem to be more aware. When I was working, I was too busy to think about how I felt. Also, I still have unawareness when my blood sugars drop quickly.

      4 years ago Log in to Reply
    14. MarionBarker

      I used to have hypoglycaemic unawareness. Once I got a CGM and could prevent most lows, my awareness returned. It got even better once I started using a hybrid closed loop. (T1D for 42 years. )

      4
      4 years ago Log in to Reply
      1. AnitaS

        Same here. My awareness is much better with a CGM but I still have some unawareness.

        4 years ago Log in to Reply
    15. Kristine Warmecke

      I didn’t think I had hypoglycemia unawareness, until my endocrinologist suggested I test for a research study on hypoglycemia unawareness. I failed it miserably. Yep at 20, I was ready to go for a walk, no symptoms what so ever.

      1
      4 years ago Log in to Reply
    16. Bob Durstenfeld

      This is why I have LOVED having CGM alarms. Especially the predictive ones.

      2
      4 years ago Log in to Reply
    17. LizB

      Have not felt lows for a long time, 20+ years, (34 years with Type 1). This year I have really been paying attention to TIR and am more obsessive about checking my CGM. Several times this year I felt lows when I was in the 50s, but other times felt nothing when my numbers were even lower. I have not been able to figure out why.

      1
      4 years ago Log in to Reply
      1. AnitaS

        That has happened to me. I am not sure, but sometimes I think it has something to do with how fast the sugar level is declining.

        1
        4 years ago Log in to Reply
    18. Nicholas Argento

      I said yes sometimes, but actually the correct answer was not a choice- I had it severely, pre CGM use because I got low a lot at night, but it has resolved by avoiding or minimizing hypoglycemia since starting the Dexcom CGM in 8-2006.

      1
      4 years ago Log in to Reply
    19. Chrisanda

      I answered the question about me physically, not with my CGM. Obviously the G-6 lets me know when I’m going down. Physically, I don’t feel any symptoms until I’m in the mid 50s. Then I get a weird feeling and a bit of shakiness. I recognize it for what it is.

      4 years ago Log in to Reply
    20. Marsha Miller

      I did have this until the cgm. Now I have more awareness.

      1
      4 years ago Log in to Reply
    21. HMW

      I used to for several years before I got the Medtronic 670G closed loop system

      4 years ago Log in to Reply
    22. Maurine Bowser

      Depends upon which blood glucose level defines unawareness. Without the DexCom 6, I knew I was in trouble at 60 so I was aware I was low. But at 60 I think that meant I was unaware I was going below 70. G6 does tell me at 70 I am going down. So if the G6 alarms before I feel it, then yes I have hypoglycemic unawareness.

      4 years ago Log in to Reply
    23. AnitaS

      I am more aware now than I used to be before having a CGM. Before my CGM, there used to be times that I felt a little shaky and would test only to find out my sugar level was in the high 20’s or low 30’s. No wonder I was feeling a little bit off! Now my CGM notifies me when I am getting below 85 so I can usually correct that impending low blood sugar before it happens. I sometimes still get those low sugar symptoms but far less often and usually before the sugar level is way too low.

      4 years ago Log in to Reply
    24. Patricia Kilwein

      The majority of times I know I’m having trouble is when my cgm alarms me.

      4 years ago Log in to Reply
    25. PamK

      I was diagnosed with hypo unawareness @6 years ago. Since getting my blood sugars back into normal range, I find that I am recognizing I am low more often. I still get some surprise alarms though, so I guess I’m not completely back to normal.

      4 years ago Log in to Reply

    Do you have hypoglycemia unawareness? Cancel reply

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