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    • 39 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      same here. I was able to get a neurologist to diagnose it as that.
    • 40 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I have developed this very weird numbness and pain in my left outer thigh which I attribute to neuropathy, although there has been no official diagnosis. Of course, like every good diabetic, I did my own research and found that it is called meralgia paresthetica. It only comes on intermittently and rarely interferes with daily functions. Rest remedies it. Having lived with T1D for 56 years so far, I consider myself to be pretty lucky...so far.
    • 41 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I feel the same way. I'm never sure who to believe or how to get a valid assessment.
    • 42 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 3 hours, 24 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 3 hours, 25 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 6 hours, 15 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 7 hours, 3 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 10 hours, 10 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 10 hours, 11 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 10 hours, 30 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 10 hours, 30 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 10 hours, 43 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 23 hours, 41 minutes ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 23 hours, 42 minutes ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 5 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 7 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 10 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 10 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 10 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 10 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 10 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 7 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
    • 3 days, 10 hours ago
      Lawrence S. likes your comment at
      Have you ever been on a ketogenic or “keto” diet (low carbohydrate, high protein)? Please share more in the comments.
      I’ve been a T1D for about 50 years. After about 10 years I moved towards a more whole food diet with only small amounts of meat. I seem to consume 100-150 grams of carbs per day and try not to eat more than 30-40 grams at a time.
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    Diabetes mellitus includes several types beyond type 1: there’s type 2 diabetes mellitus, gestational diabetes mellitus, latent-autoimmune – and even more! Has anyone in your family been diagnosed with a type of diabetes mellitus other than type 1? Please select all that apply.

    Home > LC Polls > Diabetes mellitus includes several types beyond type 1: there's type 2 diabetes mellitus, gestational diabetes mellitus, latent-autoimmune - and even more! Has anyone in your family been diagnosed with a type of diabetes mellitus other than type 1? Please select all that apply.
    Previous

    How often do you get at least 150 minutes per week of moderate aerobic activity (e.g., brisk walking, swimming, gardening, etc.)?

    Next

    If you use a CGM and share your CGM data with any of your loved ones through an app, for which types of CGM alerts does your network receive notifications? Select all that apply!

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    42 Comments

    1. TEH

      Another option is needed: “NO, no one else in my family has ANY type of diabetes.” This applies to me.

      This leads me to believe it may have been and environmental element that triggered my T1d.

      4
      3 years ago Log in to Reply
      1. Liz Avery

        I agree with an environmental element. My niece is the only family member (gestational) and I am concerned she will be Type 1 or 2 in the next few years.

        3 years ago Log in to Reply
    2. Steven Gill

      Technically guess I’d be LADA, but as the definition goes I’m a TYPE1. The only difference is the slow destruction of BETA cells, the slow decrease in insulin production (honeymoon), like 3 years. A brother was tested for antibodies (negative), with metformin and dietary adjustments his a1C is in the 4 or 5 range (TYPE 2). My maternal grandmother was diabetic, that’s all I know (in the 50’s and 60’s TYPE2 wasn’t as prevalent as now, and I remember she was extremely thin, probably TYPE1?). My paternal grandmother was the perfect TYPE 2: several laps, short and extremely heavy, loved her sweets, and diagnosed in her 60’s. Another younger brother is TYPE1, never tested for antibodies but odds are a “general” TYPE1. However I also have a cousin TYPE1 but she was adopted, although 700 miles apart that made us closer.

      3 years ago Log in to Reply
    3. Ms Cris

      No, no one in my family has experienced any other forms of diabetes mellitus aside from type 1…AND I AM THE ONLY ONE!

      1
      3 years ago Log in to Reply
      1. Eva

        Yes – No body in my family both maternal-side or paternal-side had/has any form of diabetes. I am the first and only.

        1
        3 years ago Log in to Reply
    4. jamesmpii

      Latent-autoimmune – is Type 1.

      1
      3 years ago Log in to Reply
    5. Lisa Anderson

      I am the only one in my family that has any type of diabetes.

      3
      3 years ago Log in to Reply
    6. Ahh Life

      No. I am the sole winner and champeen after 71 years and 50 cousins, siblings, parents, grand parents, aunts, uncles, et al.

      No TKO’s, no knock outs, and still standing.

      8
      3 years ago Log in to Reply
    7. Lawrence S.

      It’s just me … and a first cousin, and her son, a second cousin. I am the only one now.

      3 years ago Log in to Reply
    8. dholl62@gmail.com

      Deceased members of family
      Grandmother type 2
      Mother type 1
      Sister type 2
      2nd sister gestational
      Daughter gestational
      Uncle type 2

      1
      3 years ago Log in to Reply
    9. Lisa Moir

      I was diagnosed with gestational diabetes four years before diagnosed with Type 1. 🤔

      3 years ago Log in to Reply
    10. gary rind

      no one in my family has any type of d. since I was a grownup at diagnosis, my siblings never were tested.

      3 years ago Log in to Reply
    11. eherban1

      I’ve noticed that most of us are either (a) one and only in our families (my case) or (b) multiple cases of T1D in multiple generations. So to answer this question, aside from me, NO ONE has had ANY experience with diabetes, T1D or otherwise.

      3 years ago Log in to Reply
    12. KCR

      My dad was diagnosed with T2 diabetes. In hindsight, based on my own experience as an adult diagnosed later in life with T1, I do wonder whether he was also LADA.

      3 years ago Log in to Reply
    13. Vivian Moon

      I answered Not Sure as there was no option for No One in my family has either been diagnosed before Or after my T1D diagnosis over 50 years ago. I was diagnosed shortly after having mononucleosis.

      3 years ago Log in to Reply
    14. Elissa Macher

      Several other Type 1’s including Grandmother, Granduncles; uncle

      3 years ago Log in to Reply
    15. Louise Robinson

      I answered “Not sure” because my father was diagnosed with diabetes in his early 60’s back in 1953. I do not believe a distinction between diabetes Types was made back then. He injected himself each morning with U40 Protomine Zinc insulin and lived for another 20 years after his diagnosis. Three years after his death, I was diagnosed as a Type 1 while in my late 20’s. Dad might have been either a Type 1 or a Type 2.

      3 years ago Log in to Reply
    16. Олег Савицький

      In my family, in addition to my father (T1D since 1964), two of his children got this disease (T1D) (in 1984 and 1990). Since 1990 – this is me.

      3 years ago Log in to Reply
    17. Barbara Bubar

      My adult daughter was just on the borderline of Type 2 but was successfully able to reverse it with diet, which she has maintained. As her parents we are extremely proud of her.

      1
      3 years ago Log in to Reply
    18. Drina Nicole Jewell

      I have a maternal aunt that had gestational diabetes and my dad was recently diagnosed with type 2 diabetes.

      3 years ago Log in to Reply
    19. Liz Avery

      One of my nieces has had gestational diabetes.

      3 years ago Log in to Reply
    20. Kris Sykes-David

      No one in my family has any type of T1D, I however, have LADA. Next week is my 9 th diaversary, then in February I turn 65. I am grateful for the DOC and all that is available for us these days. Love my Dex and InPen!

      3 years ago Log in to Reply
    21. Bob Durstenfeld

      My dad, two of my brothers and me, my eldest son and his eldest daughter all have monogenic diabetes.

      3 years ago Log in to Reply
    22. Katrina Mundinger

      The only other person in my family who’s even had Type 1 was my paternal grandmother’s brother. However, on my mom’s side, there is a definite history of autoimmune disease: her father had alopecia and she has rheumatoid arthritis.

      3 years ago Log in to Reply
    23. Donald Cragun

      My grandfather on my mother’s side of the family was diagnosed with type 2 five years after I was diagnosed with type 1.

      3 years ago Log in to Reply
    24. Mig Vascos

      i first had gestational diabetes during both of my pregnancies. By the time I was 30, I was erroneously diagnosed at a T2. 3 years later I was finally diagnosed as a T1. Most likely I had LADA, but at the time that knowledge didn’t exist.
      My older sister went through the same process. No one else in my parents’ generation, our children, or grandchildren have had this problem. My sister passed by age 56 because of diabetes complications. I, instead, already turned 83 and have very minimal damage. I’ve always follow a diet and have always exercise.
      Some in the new generations have T2 because of excessive weight and inactivity, so it could have been avoided by having a preventive lifestyle. The type of life we choose determines the outcome of this problem. It’s not easy but doable and rewarding.

      3 years ago Log in to Reply
    25. Chrisanda

      I am the only one in my family with any type of diabetes. I have LADA, diagnosed when I was 40. No history of any type in the family as far back as we can know. So far, none in the next generation either.

      3 years ago Log in to Reply
      1. Ms Cris

        You sound like me. 42 when T1 developed, no one with any form of diabetes before me. so far my kids and niece/nephews have not developed either.

        3 years ago Log in to Reply
    26. Pauline M Reynolds

      You hit the jackpot with me!! I have LADA. Two daughters and a son have Type 2. Many aunts and uncles on my mother’s side have/had Type 2. My nephew and an uncle have/had Type 1.

      3 years ago Log in to Reply
      1. Pauline M Reynolds

        I forgot that niece and her daughter had gestational diabetes.

        3 years ago Log in to Reply
    27. lis be

      I have type 1, sibling has pre -diabetes

      3 years ago Log in to Reply
    28. Janis Senungetuk

      I’m going to guess that my maternal grandfather was LADA. He was dx in his 30’s with diabetes and started daily insulin injections as soon as insulin was available in the Midwest. Type of diabetes was not determined then. My father was dx with Type 2 in his 50’s and took one of the first oral medications until his death at 60 from congestive heart disease.

      3 years ago Log in to Reply
    29. Diana L.

      I developed surgical diabetes after a distal pancreatectomy for a neuroendocrine tumor that removed 80% of my pancreas.
      This category of Type one does not appear anywhere as an option.

      3 years ago Log in to Reply
    30. ConnieT1D62

      My father and his younger sister were dx’d with LADA in their late 30s early 40s. A fist cousin on maternal side was dx’d with LADA in her mid 20s.
      I was dx’d with T1D in late December 1962 at age 8, at which time no known diagnosis of diabetes was on either side of the family.

      3 years ago Log in to Reply
    31. Molly Jones

      No one has diabetes besides my one sibling who has type 2.
      I worry for him as he does not understand it at all and is not interested in taking meds, eating properly, or educating himself even though I mention the consequences of hyperglycemia. I suppose it’s his choice, body and happiness for now.

      3 years ago Log in to Reply
    32. Dennis Dacey

      Two of my brothers were diagnosed with environmental/chemical diabetes – Classification #3 in the ADA Professional guide. Both were called TypeOne and managed diabetes in much the manner I’ve used for over six decades.
      My younger brother had “Agent Orange Diabetes” which also affected 76% of the men he commanded Vietnam affecting him about 12 years later in his military career; he survived another 15 years. My older brother’s diabetes was brought on by radiation and chemo, managing multiple melanoma, at about age 78.

      1
      3 years ago Log in to Reply
    33. Lynn Smith

      I really never knew what type of diabetes my older sister had. I was diagnosed at age 12 after having a bad case of the mumps over a year prior to my diagnosis. My sister was diagnosed as an adult, but I don’t know exactly when. I think she just tried ignoring it for awhile so she may have had it longer than I knew. The thing I remember most is that she was extremely insulin resistant, so that makes me think of type 2. The last I knew she was taking maybe 3 times as much insulin as I do. Just a mystery I will never know the answer to since she passed away in 2020.

      1
      3 years ago Log in to Reply
    34. Mick Martin

      As well as selecting the two options “Yes, someone in my immediate family (my parent, sibling or child) has type 2 diabetes” and “Yes, someone in my extended family (a grandparent, aunt, uncle, or cousin) has type 2 diabetes”, my wife developed gestational diabetes when she was carrying our second son.

      3 years ago Log in to Reply
    35. qachemist

      I am the one with LADA (treated as Type 1), diagnosed at age 65. My cousin (aunt’s daughter) has Type 1.

      3 years ago Log in to Reply
    36. Michael Andrews

      I have Type 1. I was diagnosed 6 years ago, at age 38, after all the standard complications, although I wasn’t aware that they were standard at the time. My wife and I were brand new parents, and I thought all my issues were related to exhaustion and just part of the new parent experience. The weight loss – I lost 35 lbs in 3 months – is what finally made me think something was wrong. Since then, we’ve had 4 more (2 sets of twins), so we now have 5 kids under 7, and my issues definitely weren’t a side effect of parenthood. I am still exhausted, but at least I have energy.

      I had an Aunt (Mom’s sister) who was either pre-diabetic (T2) or T2. She had what we understand was Diabetes related dementia issues near the end of her life – so that was hard.

      I also learned recently that a 2nd cousin, once removed, who is 6, was diagnosed with T1D a year ago. I don’t know how significant this is, but I’ve heard that any family “history” of T1D, no matter how remote, is potentially part of the pre-disposed genetics.

      3 years ago Log in to Reply
    37. M C

      After 2 years of cancer treatment, and then within 5 weeks of losing my Mom, the love of my Dad’s life, after 60+ years of marriage, my Dad was tested positive for Type 1 diabetes (during the typical cancer screening blood tests done once a month). He’d never had abnormal BG numbers prior to this. So, after the age of 80, having never been diabetic (not Type 2 nor 1), he suddenly found himself requiring daily insulin and all the frustrations that go with this condition (particularly facing it for the first time in one’s 80’s).

      3 years ago Log in to Reply
    38. T1D4LongTime

      I also marked “Not Sure”. My paternal grandmother had Type 2 (so my father said). After my diagnosis at age 6, Mom said she had Type 1 (possibly gestational). My father said many years after Grandma died that she was diagnosed in mid-50s. However, she took insulin injections, so I’m really unsure.

      3 years ago Log in to Reply

    Diabetes mellitus includes several types beyond type 1: there's type 2 diabetes mellitus, gestational diabetes mellitus, latent-autoimmune - and even more! Has anyone in your family been diagnosed with a type of diabetes mellitus other than type 1? Please select all that apply. Cancel reply

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