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    • 4 hours, 15 minutes ago
      Lenora Ventura likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 5 hours, 50 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      same here. I was able to get a neurologist to diagnose it as that.
    • 5 hours, 51 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I have developed this very weird numbness and pain in my left outer thigh which I attribute to neuropathy, although there has been no official diagnosis. Of course, like every good diabetic, I did my own research and found that it is called meralgia paresthetica. It only comes on intermittently and rarely interferes with daily functions. Rest remedies it. Having lived with T1D for 56 years so far, I consider myself to be pretty lucky...so far.
    • 5 hours, 52 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I feel the same way. I'm never sure who to believe or how to get a valid assessment.
    • 5 hours, 52 minutes ago
      KarenM6 likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 8 hours, 35 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      Gastroparesis
    • 8 hours, 36 minutes ago
      Lawrence S. likes your comment at
      Do you live with diabetes-related neuropathy?
      In late summer of 2017 I lost all feeling in both lower extremities to my hips and both upper extremities to my shoulders. It was not all diabetic related though. Lowered the drug in my chemo regimen but didn't reverse by next treatment, so that drug was stopped. Slowly I regained feeling in my arms and legs; left with no sensation in hands & feet up to ankles & wrist. I'm thankful that my oncologist realized that it wasn't just a diabetic thing.
    • 11 hours, 25 minutes ago
      Sandra Rosborough likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 12 hours, 13 minutes ago
      KSannie likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 21 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      My feet were killing me when I started taking insulin. Saw on another website that alpha lipoic acid (ALA) was good for neuropathy. Once I started taking it, the pain was gone within a week! Still using it 20 years later, still pain free
    • 15 hours, 21 minutes ago
      Lee Tincher likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 40 minutes ago
      magoo likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 41 minutes ago
      Mike S likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 15 hours, 54 minutes ago
      Dennis Dacey likes your comment at
      Do you live with diabetes-related neuropathy?
      I’ve been T1D for 60 years. There have been slight indications of neuropathy for a number of years. However it is not severe. Whenever I go to orthopedics, I try to stop at endocrinology first and get an accurate assessment of my current neuropathy. Whenever a non-endocrinologist doctor reads I’m T1D every problem I’m having is caused by T1D. Then the root, non-diabetic, issue is never addressed.
    • 1 day, 4 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      I spend a bit of time in my garden, yardwork , the animal shelter. Days I'm not with the Shelter my herd gets walked.
    • 1 day, 4 hours ago
      ConnieT1D62 likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      avid cyclist for many years now ........... OK ..... add in resident year around maintenance yard work
    • 1 day, 10 hours ago
      Lawrence S. likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Walking and hiking.
    • 1 day, 12 hours ago
      Steven Gill likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Try pausing insulin on your pump if you are below 150mg/dl.
    • 1 day, 15 hours ago
      Daniel Bestvater likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 15 hours ago
      Dennis Dacey likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 15 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Good old WALKING!
    • 1 day, 15 hours ago
      KCR likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 1 day, 15 hours ago
      TEH likes your comment at
      What types of exercise do you participate in regularly? Select all that apply.
      Really struggle with bouncing blood sugars and so I don’t exercise. I know this is a bad thing but really end up with so much bouncing hard to figure it out.
    • 2 days, 12 hours ago
      Bonnie Lundblom likes your comment at
      What event(s) prompt you to calibrate your CGM? Select all that apply.
      I always do 3 successive finger sticks about 1 day after applying a new G7 sensor. I'm amazed at how much variability there is among sensors. Some are spot on, and remain so during the entire 10 days, while the worst I saw was off 100 mg/dl at the start (reading half of the actual level) (I demanded -- and got -- a replacement for that outlier, since I did't want to have to trust it for days and go through piles of strips just to see if it was as bad as it seemed). I generally also do another batch of 3 tests several days later, just to check. I care about accuracy. I've found that it is essential to do multiple sequential finger sticks to get an accurate number from strips, since they too are far more variable than I am comfortable with. If the variability in strips is too great, I do 4 tests rather than 3, and throw out one, averaging the rest. I love my CGM, but it doesn't completely replace strips.
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    Before you were diagnosed with T1D, do you remember noticing hair loss as a symptom?

    Home > LC Polls > Before you were diagnosed with T1D, do you remember noticing hair loss as a symptom?
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    Do you think your (or your child’s) performance in school was affected by T1D?

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    If you were about to eat a medium-sized red apple and were unable to measure the exact size of the apple or look up the carb count, for how many grams of carbs would you realistically bolus?

    Sarah Howard

    Sarah Howard has dedicated her career to supporting the T1D community ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    20 Comments

    1. Ruth Chapman

      Not before diagnosis, but I have experienced hair loss since. Fortunately I have a lot of thick hair, so it’s not noticeable to others

      4 years ago Log in to Reply
    2. Becky Hertz

      I was 14 at diagnosis. I’m sure I would have noticed if I lost hair then.

      1
      4 years ago Log in to Reply
    3. Deborah Wright

      Not before but lots right after.

      4 years ago Log in to Reply
      1. Annie Wall

        I’m the same as you, Deborah. My symptoms were unexplained weight loss, unquenchable thirst, and constant unrination. It was after I started on insulin that my hair came out. My hairdresser noticed it too, but only after I was diagnosed, not before. It stopped after a few months and wasn’t a big deal because I happen to have a lot of hair. But it was unnerving! I’m relieved to hear that others mightr have experienced it as well.

        4 years ago Log in to Reply
    4. Greg Felton

      I was too young and don’t recall, but my mother has since said that she noticed I was suffering from hair loss, in addition to lots of other symptoms

      4 years ago Log in to Reply
    5. Retired and glad

      I was older when I received my T1D diagnosis and, like other men, already was experiencing male pattern baldness, so it’s hard to say if either the diabetes itself or the insulin caused any further hair loss.

      4 years ago Log in to Reply
    6. Steve Rumble

      I have not experienced any hair loss attributable to my T1D.

      4 years ago Log in to Reply
    7. Donna Condi

      No, hair loss was not a symptom. Two weeks before I was diagnosed I had just gotten new contact lenses. And two weeks later when the new lenses weren’t working for me anymore I went to my optometrist who suggested I see my physician for a diagnosis because he thought I might have diabetes.

      4 years ago Log in to Reply
    8. Don P

      diagnosed as a very young child, now after 65+ a few yrs hair loss has not been noted even with typical male normal balding areas. Fortunate indeed.

      1
      4 years ago Log in to Reply
    9. Amanda Barras

      I was too young. Barely 4. But I know I was skin and bones, would pee all the time from ketones, and had sleep walking/running. I think my mom mentioned hair loss too. But, not 100% sure on that.

      4 years ago Log in to Reply
    10. Janis Senungetuk

      I was dx. at 8, don’t know if that was something my mother mentioned to the pediatrician.

      4 years ago Log in to Reply
    11. ConnieT1D62

      I was 8 years old at diagnosis. I do not recall hair loss before being diagnosed. In my youth I had lightweight long hair with a natural waviness – not thick, not thin.

      4 years ago Log in to Reply
    12. connie ker

      Since I was going through menopause when diagnosed with LADA, I was going through a lot of body changes. Yes, hair loss has been an issue in my senior years with no hormone replacement.

      4 years ago Log in to Reply
    13. Grey Gray

      Diagnosed at 17. Bad keto like others. After starting beef/pork insulin, My hairline receded a bit.. thought I’d be bald by 25. I am 54 now hairline is still in the same place. Never knew about diabetic hair loss. If it is the insulin why doesn’t it continue? Maybe it was the KETO.

      4 years ago Log in to Reply
    14. Molly Jones

      It is possible, but not definite. My hair is fine and scar tissue had built up from intracranial monitorings.

      4 years ago Log in to Reply
    15. Carol Meares

      I was dx’d as an adult. I don’t remember noticing hair loss as there were so many other more pressing issues at the time. I have had significant thinning since, however, so I keep hair very short.

      4 years ago Log in to Reply
    16. dmomC

      Absolutely! My daughter was diagnosed at 11. She had beautiful, thick, curly hair to her waist. About 6 months prior to dx I noticed increasing amounts of hair in her brush after the nightly brushing. I actually mentioned it to her PCP during a checkup 4 months prior to dx. By the time she was dxd, she no longer had thick hair & it was horribly brittle. 3 weeks after dx we cut it to her shoulders to get rid of the dead ends.

      4 years ago Log in to Reply
    17. Cheryl Seibert

      My hair lightened from very dark brown to nearly blond in 12 months. It also lost all it’s waves and thickness of the hair shaft. No loss of hair, just a change in the characteristics of my hair.

      4 years ago Log in to Reply
    18. ellencherry

      I did notice hair loss before my DX, but I was also diagnosed with Hashimoto’s which has the same symptom. The hair loss got pretty bad until a few months after starting treatment. My hair is now growing back.

      4 years ago Log in to Reply
    19. Germaine Sarda

      I was 8 and ended up in a DKA coma. When I came out of it I remember one of the nurses crying as she brushed my hair. I asked her if she was okay and she said she was thinking about something sad. In my adult years, my mom told me the nurse apologized to her for crying. It was because my hair was falling out in clumps. I remember my hair growing back, but it didn’t seem to affect me for some reason other than I would joke that my shadow looked like Alfalfa’s from the Little Rascals since my hair stood straight up. I thought it was hilarious.

      4 years ago Log in to Reply

    Before you were diagnosed with T1D, do you remember noticing hair loss as a symptom? Cancel reply

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