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  • Activity
    • 4 hours, 25 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      Before the onslaught of Type 2 Diabetes, I, as a T1D, could get an appointment almost anytime I needed one. Now, I cannot get an appointment within 3 months, which is the time within I must see rhe doctor for Medicare benefits. My doctor cancelled 2 (half ) of my sppointments last year. Caused ma a lot of problems. I live in Florida, a place where modern medicine does not seem to have reached yet.
    • 4 hours, 26 minutes ago
      Greg Felton likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      I routinely see my Endo every three months. At the end of my appointment I schedule the next quarterly meeting date. But if I ever have to reschedule it, then it takes anywhere from two to four weeks to find a time that works for us.
    • 6 hours, 22 minutes ago
      Mike S likes your comment at
      If you were to request the next available appointment with your T1D healthcare provider, when do you estimate the next available appointment would be?
      It all depends on the urgency of my needs. I’ve gotten in the next day before, but those days may be gone! It also depends on who I see. But these days, even the PA is often booked. Of course, cancellations happen, so that can be a factor as well.
    • 6 hours, 38 minutes ago
      Jeff Marvel likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 17 hours, 49 minutes ago
      Gerald Oefelein likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 21 hours, 37 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of the 3-4 hours is way ting on a phone
    • 21 hours, 40 minutes ago
      Wanacure likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 22 minutes ago
      Wanacure likes your comment at
      When you experience an illness that makes your blood glucose levels more difficult to manage (whether because you are unable to eat, the stress of being sick, or any other reason), what resources do you refer to for help managing your blood glucose levels while sick? Please select all that apply to you.
      The resources I use in managing my glucose levels once sick is my own personal experience after living with t1d for 46 years
    • 22 hours, 22 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Switching to Medicare has created (seemingly) endless hours and day making this transition with all things diabetes related. We’re still in the midst of making this ‘delightful’ change. This week we learned that Medicare covers Either CGM stuff OR glucose test strips. Thank goodness that God is sovereign over all these details. He helps me walk through these challenges without despair.
    • 22 hours, 24 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The last 3 months have been filled with frustrating phone calls now that I switched back to traditional Medicare from a Medicare Advantage plan. I have been fighting to get strips authorized in addition to CGM- they did not authorize them because I had no proof that I had a meter!! Crazy making! I had to write an appeal letter in order to get them, but finally got it worked out. I also had some pump replacement issues, trouble getting insulin, etc.
    • 22 hours, 29 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 22 hours, 30 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Much too much time! Part of it, I know, is my own fault, for not keeping anxiety at bay when I have to sort out which plan will work best, annually. But it is something I dread, every single year. When I call to get some help understanding, the people are almost always very nice, but I have had times when the information was incorrect or not explained clearly. I usually commiserate with the person on the phone for having such an annoying system, and agreement seems to rule the day. But I never chose to make sorting out insurance management a career!
    • 22 hours, 31 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I selected 6 hours. So far, I have spent 6 weeks trying to get a new pump. I decided to look for a new pump in mid-December as my 770G warranty expired on January 3. I wanted to go hoseless with the Omnipod and the Dexcom 6. I contacted Dexcom and they sent me to the medical distribution company ASPN, and they could do the Omnipod but only with pharmacy part D with the Dexcom 6 sensor on DME My part D pharmacy plan had Omnipod as tier 6. $155.56 co pay and $150/month. The omnypod is not available as DME. I called INSULET the mfgr of omnipod. They told me they only supply via pharmacy plan to get more T2d's to sign up. Verses 100% DME coverage, part D coverage that was a non-starter. I contacted another supply company CCSmed. They could do both Dexcom 6 and tslim x2. Ineeded a Endo visit to get the notes and Rx. I had my Endo visit on Jan 20. Still waiting for CVSmed. Been waiting for 5 weeks now. Just called CCSmed and they got the endo notes and Rx but Medicare wanted to know who paid for my 770G 4 years ago. Fortunately, that was private/company. My new pump should now ship tomorrow. Finally.
    • 22 hours, 32 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      The beginning of the year is always a bit iffy when you're on Medicare. Even though I've already paid my annual deductible, my pharmacy can't see that, so I must wait until it shows up on my Medicare account before I order new insulin. I always try to have plenty of insulin on hand at the end of December so it's not an issue. The organization I get my pump equipment from has a lot they must do because of Medicare, as well, and that can get time consuming. All-in-all, I'm lucky to have the time, energy and patience to deal with it, and I know up front these time-consuming moments are to be expected. If I wasn't retired, it'd be more of an issue.
    • 22 hours, 32 minutes ago
      August Rossano likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 23 hours, 8 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I’m a reasonably satisfied MDI user with Lantus and Fiasp. I’ve looked into getting a pump but honestly, until I find one that does everything I want, I’ll probably hold off. My wish list for a pump: 1) no tubes 2) works well with Fiasp 3) controls that allow me to stay at my target of 70-90 mg/dl all night long.
    • 23 hours, 19 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      MDI for the past 60 years and do not see any alternative that I would prefer. The needles for my pens are so thin and sharp that they are painless (a far cry from the lancets I once used). chiefly, I am glad not to have to deal with setting up a pump and. Although I love my libre, I am not good candidate for having devices affixed to me. If my insulin delivery got interrupted they way i have interrupted my cgm service, I would have been in trouble. Furthermore, I have a track record of having both mechanicall and electronic things malfunction. (Seriously, I sometimes act as a beta-tester for technology folks. Maybe I push to many buttons?)
    • 23 hours, 31 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      I've had Tandem x2 and Dexcom since September. Previously on Medtronic for around 15 years. Grew to HATE the sensors and switched before the warranty on my last Medtronic was up. So far, I absolutely LOVE the Tandem and the Dexcom. I'm disappointed, however, in the amount of waste and plastic that this pair creates. Of course there will always be plastic waste from any pumps/sensors, but the amount of non-reusable stuff for insertions is ghastly.
    • 23 hours, 32 minutes ago
      Wanacure likes your comment at
      On a scale of 1-5, how satisfied are you with your current insulin delivery method (pump, pens, syringes, inhaler, etc.)? 5 = the most satisfied, 1 = the least satisfied
      Have your doctor prescribe the syringes with .5 unit increments instead of the 1 unit syringes. Not quite a .1 unit which you are hoping for, but .5 is better than 1 unit increments.
    • 1 day ago
      Ahh Life likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      ConnieT1D62 likes your comment at
      In your own words, how would you describe the feeling of a severe low?
      Nothing short of terrifying. I often go into seizures, having no idea where I am, who anybody, or even if I’m alive or dead. I’ll feel like I’m falling or hurtling toward something. At home I feel like my house is tilting. Im leaving a lot out but these are some of the scariest things.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      Most of Europe has the right idea! Is it a good health system for you overall? The US may be too large to implement a national system, but that doesn't hold states back (as long as there is federal money to help).
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I answered "No time," but I live in France, where we have a single provider. I receive a prescription from my doctor and go to the pharmacy monthly to have it filled. (Pump peripherals are provided by a separate supplier.) "Appeals" do not exist here since the doctor will only prescribe medicines that are reimbursed. And no, I have never needed a treatment that wasn't covered.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      I said 8+ and the reason, as for so many others, can be summed up in a phrase: transitioning to Medicare.
    • 1 day, 2 hours ago
      Modee likes your comment at
      Over the past 3 months, how much time would you estimate you have spent working through T1D prescription-related issues with pharmacies, insurance companies, durable medical equipment distributors, T1D device companies, health care providers, etc.?
      PUMP USERS: Just in case nobody has told you, if you use a pump, Insulin is considered durable medical equipment, which can save a lot of money, even with the new price cap
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    Do you think your (or your child’s) performance in school was affected by T1D?

    Home > LC Polls > Do you think your (or your child’s) performance in school was affected by T1D?
    Previous

    If you have T1D, have any of your family members listed below also had T1D? Select all that apply.

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    Before you were diagnosed with T1D, do you remember noticing hair loss as a symptom?

    Sarah Howard

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    17 Comments

    1. Rafaela

      Yes, during college. That was when I stopped getting the early warnings of low blood sugars. My doctor thought at the time I needed Dilantin for the seizures that were accompanying the extended lows. I ended up withdrawing one quarter, returning home and made all Cs. This was during the 1980s and the information available now was not out there.

      1
      2 years ago Log in to Reply
    2. Patricia Dalrymple

      No, I am LADA but it sure impacted my work before I was diagnosed.

      1
      2 years ago Log in to Reply
    3. Stephen Woodward

      Any parent who thinks that T1D does not affect their child schooling is missing something. Although many kids say no, after 51 good T1D years, it does. However, it may not negatively impact things, overcoming the challenges is overcome by the knowledge and awareness of the T1D in the school environment. This comes from years as a teacher and student.

      2
      2 years ago Log in to Reply
    4. Bob Durstenfeld

      I think that it made me more mature and more curious.

      3
      2 years ago Log in to Reply
    5. Steve Rumble

      I was diagnosed with T1D in my early 20s and it did not affect my performance in college.

      2 years ago Log in to Reply
    6. connie ker

      T1D affects every aspect of your life no matter where, when, or why. It is an unrelenting 24/7/365 job with no time off, no vacations, and no paid leave. Yes, it affects physical, mental, and emotional health.

      1
      2 years ago Log in to Reply
    7. casey shane

      I was diagnosed at 24. All my schooling had been finished 2 years earlier. I’m really not sure where or how it would have changed schooling for me other then it would have had an impact somewheres same answer if the question was about summer camp, I did not have to manage camp and t1 at the same time. Great question

      1
      2 years ago Log in to Reply
    8. ConnieT1D62

      Not sure. I was diagnosed in the 3rd grade at age 8 in December 1962. Up to that point I had always been a bright, curious, industrious and creative student. In the quarter prior to being dx’d my report card indicated “Lack of application” and I remember my mother freaking out and blaming it on my father and their recent divorce.

      During the three week inpatient hospital stay learning to live with diabetes, I missed out on learning foundational math concepts and applications beyond addition and subtraction. As a result, as a child, adolescent, and teen I struggled with advanced math concepts and interpreting equation symbols of multiplication, division, fractions, and algebra. As I matured I seemed to have chronic difficulties staying focused – was called a “day dreamer”, and did extremely well in most subjects, but lousy in math. It wasn’t that I didn’t like it, I just couldn’t fully engage with it. I struggled with it in college undergrad and graduate school years as well.

      It wasn’t until I was in my mid-forties that I was diagnosed with ADD, inattentive type. So did it and does it have anything to do with TID? Don’t know – maybe yes, maybe no. If anything living with TID has made me more curious, determined and resourceful.

      2 years ago Log in to Reply
    9. Ken Raiche

      I guess like anything in life it comes down to the individual and how you cope with it. My life has been a really mixed bag and I can say for sure if diabetes had anything to do with it the outcome. I’ll I can say is I’m truly happy to be alive and kicking.

      2 years ago Log in to Reply
    10. Janis Senungetuk

      Yes, I was in the third grade when dx. in 1955. I know that life on a continuous roller-coaster of unpredictable highs and lows impacted my physical and mental health on a daily basis. From the time of my dx. until high school graduation in 1964 I was hospitalized at least a month every year with attempts to stabilize glucose levels. In college I delt with severe lows from NPH with urine testing as my only guide. My graduate school studies were hit the hardest when first macula edema and then diabetic retinopathy distorted my vision to the point where I could no longer produce my Master of Fine Arts thesis work. I had to reapply, get approval for an altered focus and add an additional year of studio studies to successfully produce a new thesis exhibition.

      2 years ago Log in to Reply
    11. M C

      Save for periodic doctor’s appointments, it really had no impact.

      2 years ago Log in to Reply
    12. Richard Vaughn

      My performance in school, 1945-1957, was very much affected by my T1D.

      2 years ago Log in to Reply
    13. Cheryl Seibert

      My schools years were in the 60s and 70s (all with T1D). I was valedictorian of my class and had straight As all through school so No, my performance was not affected. This was before the days of snacks, drinks and ‘disability’ exceptions in the schools.

      2
      2 years ago Log in to Reply
    14. Sydney Bush

      I was diagnosed in 1952, when I was 16 months old. Home BG testing was not available until I was in my early 30’s, so having hypoglycemic episodes during class time and especially during tests was inevitable in the 50’s through 70’s from grade school through college. I can remember sweating profusely in the middle of a college midterm, and popping several Livesavers, but doing rather poorly on that particular exam! No special compensations were made back then for those with T1D!

      2 years ago Log in to Reply
    15. Ahh Life

      No. In spite of what several have said (both teachers & learners). I know and knew no other life. So you simply do what is required from kindergarten on. I probably over-consumed candy bars, carbs, or whatever to maintain equanimity. But I simply do not recall any test affected by BG. Maybe it’s alzheimer’s? (╥︣﹏᷅╥)

      2 years ago Log in to Reply
    16. Jneticdiabetic

      I was diagnosed as a freshman in college. One of my early T1D symptoms was falling asleep in my biology lecture after lunch. I loved science, and couldn’t understand why. Tried eating candy to keep myself awake. High BGs made me sleepy. After diagnosis, keeping BGs stable during 3hr labs with NPH insulin on board and no food allowed were the biggest challenge. Overall, I did well in school before and after diagnosis, but I’m my blood sugar swings affected a test or lab report from time to time. As others have said, I think my T1D has made me tougher and a better problem solver.

      2 years ago Log in to Reply
    17. Wanacure

      It was the stress of trying to get straight A’s in classes like Algebra and Latin that contributed to getting Type 1 at age 15. I had an older first cousin who’d been diagnosed before me, so my mother immediately took me to a doctor just days after I was getting up to pee at night. And that strange breath odor that coincided with the urine smell: ketones. Up to age 12 I guzzled candy and pop, so my pancreas was probably worn out. I was also probably exposed to radiation from Hanford before and at age 3, because my Dad was stationed at that port during WWII. When I was 3 after (another?) radioactive plume of smoke was released, we moved to Seattle. Actually I did very well in school after my mother got me into high school Honors classes (college prep for high IQ test scorers). After being diagnosed, I took more control of my life, gained confidence, took up training with a barbell and dumbbells at home, made some very close friends. But college was another story interrupted with emotional problems that interfered with my Type 1. With help from a specialized diabetes clinic and later a shrink, I finally “grow up” enough to get jobs, finish my bachelors degree and go to graduate school, etc. Yes, I remember Clinitest tablets and urine tests and Tes Tape and boiling a syringe and taking one daily beef/pork NPH dose.

      2 years ago Log in to Reply

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