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      Bonnie Lundblom likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
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      Possess a Class A driver's license. Would allow u to drive a bus.
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      YES, DONATE PLASMA for the production of IGG. My wife is immune compromised with CVID. I was extremely disappointed when the technical support nurse basically said No you’re on insulin and it’s not filtered out during the washing process.
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      Have you ever been told you couldn’t physically do something because you live with diabetes?
      I was diagnosed with t1 41 years ago. I was told to NOT have children. But I did not listen and had two healthy children.
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      Have you ever been told you couldn’t physically do something because you live with diabetes?
      I was diagnosed with t1 41 years ago. I was told to NOT have children. But I did not listen and had two healthy children.
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      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Maybe not a physical restriction, but decades ago I was told I was ineligible to get a pilot’s license.
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      John Barbuto likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
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      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Maybe not a physical restriction, but decades ago I was told I was ineligible to get a pilot’s license.
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      TEH likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Maybe not a physical restriction, but decades ago I was told I was ineligible to get a pilot’s license.
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      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Maybe not a physical restriction, but decades ago I was told I was ineligible to get a pilot’s license.
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      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Yes. It had to do with a job that required me to drive delivery vans to clean and park them on the company's lot.
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      Lawrence S. likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
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      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      Being at high risk for dementia (both genetic and behavioral) and at an advanced age while still making very complex decisions about pump, CGM, and data issues Phew! What a premise! Is the optimal strategy for T1D management most likely to be MDI by caregivers in assisted living?
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      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      Being at high risk for dementia (both genetic and behavioral) and at an advanced age while still making very complex decisions about pump, CGM, and data issues Phew! What a premise! Is the optimal strategy for T1D management most likely to be MDI by caregivers in assisted living?
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      It's rare I have questions, but if I do, I send a message to my Endocrinologist, and she responds quickly.
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      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
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      When I come up with a question between visits, I usually just do some research.
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    At what age were you diagnosed with T1D?

    Home > LC Polls > At what age were you diagnosed with T1D?
    Previous

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of July through the end of September 2023?

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    Which healthcare provider have you used in the past 12 months for your non-diabetes health needs? (Please do not include your diabetes care providers in your responses.) Select all that apply.

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    23 Comments

    1. Jane Cerullo

      Misdiagnosed as DM2 for a few years. New Endo was amazed that I didn’t know I was LADA T1D

      2
      2 years ago Log in to Reply
    2. KIMBERELY SMITH

      AT AGE OF 58

      2
      2 years ago Log in to Reply
      1. Kris Sykes-David

        I was 55, almost ten years ago. 😔

        1
        2 years ago Log in to Reply
    3. Yaffa Steubinger

      Diagnosed at 66 making T1 my fourth autoimmune disease. Ah, the ‘gift’ that keeps on giving.

      4
      2 years ago Log in to Reply
    4. Don P

      the label T1 has many sub categories of which require different control methods. ie .. as a JD I’m completely different than a LADA

      2
      2 years ago Log in to Reply
      1. Mark Schweim

        T1 is T1… JD means Juvenile Diabetes, which is what T1 USED TO be called. I was diagnosed at 24 years young, and at that time, the Hospital put on my diagnosis that I had “T1D, formerly called JD (Juvenile Diabetes)” and they said in 1991 that what was formerly called JD had been RENAMED as T1D due to their finding that an increasing number of people were being diagnosed with JD even at ages older than 40 years old, which made it totally meaningless and senseless to call it “Juvenile Diabetes” when most frequently diagnosed in people no longer young enough to consider as being juvenile.

        4
        2 years ago Log in to Reply
    5. Bob Durstenfeld

      My Dad, myself, two brothers, my eldest son, and his eldest daughter were all dx’ed with T1D before age 2.

      1
      2 years ago Log in to Reply
      1. Eva

        Ever tested for MODY?

        2 years ago Log in to Reply
    6. Sue Martin

      I was diagnosed at 18.

      1
      2 years ago Log in to Reply
    7. pru barry

      I was diagnosed at 14, 69 years ago. It has been an interesting adventure, with nothing more than Graves disease cropping up in the meantime to remind me that my system has its quirks. I knew long ago that respecting the do’s and don’t’s of diabetes was essential (Thank you, Dr. Joslin, Sr.)
      Just want everyone to be reminded that it’s not the end of the world. I’ve been lucky, and have tried to be diligent while trying really hard to live life to the fullest. I’m still wishing we had a medical system that didn’t place such a heavy insistence on supporting the drug barons. I know it’s complicated, but even I feel sure that we might have had a cure by now were it not for so much greed. There it is, in my most genteel terms :^}.

      5
      2 years ago Log in to Reply
    8. Joan Benedetto

      My son, age 11.5, was diagnosed at 18 mos of age.

      1
      2 years ago Log in to Reply
    9. Nevin Bowman

      Age 4, 46 years ago.

      2
      2 years ago Log in to Reply
    10. Donna Condi

      At 42 I was misdiagnosed with T2 and was finally told that I had always been a T1 two years later.

      2 years ago Log in to Reply
      1. Steven Gill

        I lived 3 1/2 years as a TYPE2, had to fire the endocrinologist to fix it.

        2 years ago Log in to Reply
    11. lis be

      I still think T1D should have a different name.

      2
      2 years ago Log in to Reply
      1. ConnieT1D62

        How about
        Insulin Deficient Diabetes (IDD) for T1D
        and Insulin Resistant Diabetes (IRD) for T2D

        2
        2 years ago Log in to Reply
    12. Kristine Warmecke

      I was 11 years old, my brother was 7 months old and his oldest daughter was 1 years old.

      2 years ago Log in to Reply
    13. ConnieT1D62

      Age 8 in 1962.

      2 years ago Log in to Reply
    14. mbulzomi@optonline.net

      I was 23 years of age, just out of the US Navy and that was 55 years ago!

      2 years ago Log in to Reply
    15. KarenM6

      Age 5

      2 years ago Log in to Reply
    16. Jen Farley

      I have had T1D for 41 years. Dang, was just called a senior citizen and given a senior discount at a store. I should be glad right. Not feeling it!

      2 years ago Log in to Reply
      1. Jen Farley

        I was 13. Worst year ever!

        2 years ago Log in to Reply
    17. PamK

      Age 2 1/2

      2 years ago Log in to Reply

    At what age were you diagnosed with T1D? Cancel reply

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