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    • 1 hour, 22 minutes ago
      Donna Owens likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Yes. It’s f*ing annoying.
    • 12 hours, 5 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 13 hours, 31 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 13 hours, 32 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 13 hours, 32 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 15 hours, 44 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 15 hours, 45 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 15 hours, 46 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 16 hours, 28 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 17 hours, 51 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 19 hours, 48 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 11 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 13 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 17 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 19 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 20 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
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    In honor of National Siblings Day, if you have T1D, do you have any siblings with T1D? Share more about your experiences as siblings with T1D in the comments!

    Home > LC Polls > In honor of National Siblings Day, if you have T1D, do you have any siblings with T1D? Share more about your experiences as siblings with T1D in the comments!
    Previous

    If you use a CGM, on a scale of 1-5, how satisfied are you with the accuracy of your CGM?

    Next

    How much did you spend out-of-pocket on all of your diabetes medications and supplies from the start of January through the end of March 2023?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    36 Comments

    1. Wanacure

      My brother died in October last year. He was 3 years younger and developed T1D same age as me, at age 15. Some kind of respiratory failure. Covid maybe? I wonder. His girlfriend refused his intubation. why was I not contacted? This was a shock to me and explains my absence from this forum. And then I broke my ankle.

      2
      3 years ago Log in to Reply
      1. Kathy Hanavan

        I am really sorry about your brother and welcome back!

        1
        3 years ago Log in to Reply
      2. Marty

        So sorry!

        1
        3 years ago Log in to Reply
      3. Steven Gill

        Sorry

        3 years ago Log in to Reply
      4. Karen Tay

        My condolences.

        1
        3 years ago Log in to Reply
      5. Ahh Life

        We are all saddened by the death of your brother. Contending with the inscrutability of other people involved often seems unreasonable and unimaginable. Good luck.

        3 years ago Log in to Reply
    2. Kathleen Juzenas

      My brother, who is 10 years my elder. Oddly, we were both diagnosed in our mid-twenties.

      3 years ago Log in to Reply
    3. William Bennett

      I have five siblings, about 20 first cousins and scores of second cousins (children of first cousins). One of the second cousins has T1, that’s it. Also zero for grandparents, aunts & uncles. Same for T2 afaik, though my sister has been dx’d pre-d.

      There used to be a thread on the old TUDiabetes forum, “Are you the (lucky) one?” for people with zero T1s in their family. There were a lot of us! I was always told, from dx on, not to be surprised b/c it doesn’t typically run in families, though more recently it’s apparent to me that in some cases it does. Not in mine though.

      3 years ago Log in to Reply
    4. Amanda Barras

      No siblings

      3 years ago Log in to Reply
    5. Karen Mielish-Clausell

      My siblings have type 2

      3 years ago Log in to Reply
    6. Shannon Barnaby

      I have two siblings but neither have T1D.

      3 years ago Log in to Reply
    7. mojoseje

      My brother’s T1 manifested after he had emergency gallbladder surgery in his 20s. Mine emerged when I was 7, one month after my mother died. I wonder how many people’s T1 emerges after a traumatic experience. I’ve heard it’s a thing.

      My older brother has T2.

      Also, when I was in high school, my biology teacher asked me how many siblings I had and how many of them were diabetic. (This was in the late 70s.) She told me she had three sibling and they were all diabetic but she was spared. She was surprised there weren’t more of us. At the time, I was the only one but because she told me it runs in families, I was aware that some of my siblings would become diabetic.

      1
      3 years ago Log in to Reply
    8. Kate Kuhn

      T1D is clearly in my family- Father, Aunt, Uncle, Cousin, Sister, and Son. Interestingly, neither of my grand parents.

      3 years ago Log in to Reply
    9. Bob Durstenfeld

      I have tow out of three younger siblings with T1D. My eldest of three sons has T1D and his eldest daughter has T1D. It sort of runs in our family.

      3 years ago Log in to Reply
    10. TS

      I have one brother but he doesn’t have diabetes.

      3 years ago Log in to Reply
    11. Lynn Smith

      I had an older sister who was diabetic, but I never knew if she was a T1D LADA or an extremely insulin resistant Type 2. I was diagnosed T1D at the age of 12. She was already married and living in another city by then (at the age of 16). Years later she developed Graves disease and years after that I found out she had been diagnosed as a diabetic. She never did what the doctors told her. She ate as she pleased, didn’t always take her insulin on time or at all, and so her health got worse and worse. By the time I knew much about her health, she was taking probably 3 times the amount of insulin as I was. I could go on. Long story short, she died in 2020 at the young age of 69. Between heart bypass surgery, multiple strokes, and gastroparesis, I’m not sure what her cause of death was. My uninformed diagnosis was too many years of smoking and uncontrolled diabetes cascaded her health downward into a condition she couldn’t survive. Sad story.

      3 years ago Log in to Reply
    12. Steven Gill

      I’ve a brother diagnosed T1d a few months before our older sister died of breast cancer, I was “erroneously” diagnosed TYPE2 a week after her passing (May will be 25 years). Three years later our younger sister died of leukemia, a few weeks later at those medical trials my diagnosis was changed to T1d. Through my brother’s life with alcohol and all that goes with it we lost touch but with his sobriety we remaining brothers and he are probably closer than Iegally allowed (sarcasm). My brother and myself mostly make fun of our diabetes, even the roughest times but off and on support each other. Ironically a cousin adopted into the family was diagnosed only 15 years ago and we found ways to bond: her care is abhorrent but tough for her to change her lifestyle and habits (neuropathy, gastroparesis, COPD…). No idea of other family.

      3 years ago Log in to Reply
    13. Yaffa Steubinger

      No siblings with T1, just two grandkids 🙁

      3 years ago Log in to Reply
    14. Mary Halverson

      None of my 5 siblings have it, all older than I in their 70’s, and no other family. I was diagnosed at age 61 8 years ago.

      3 years ago Log in to Reply
    15. anj1832

      I am the only one in my family with T1D. Both my older brother (34) and little brother (28) do not have it. I was diagnosed when I was 3 and I remain the only one with it. Some days it would be nice to have someone/ family member to talk to about it but then again, I wouldn’t wish this disease on my worst enemy.

      2
      3 years ago Log in to Reply
    16. kilupx

      My parents had 2 children. My brother got type 1 at age 10. I was 9 at the time. Fast forward 57 years: My brother had died a few years before and I was diagnosed with LADA at age 66. There is no other blood relative with type 1 or type 2. How I wish my brother was here to coach me. I don’t know anyone with type 1, which is why I read this site so religiously.

      1
      3 years ago Log in to Reply
    17. Karen Tay

      Yes, my younger brother, by 2 years, was diagnosed at the age of 6.
      He passed away at the age of 43 due to other reasons but his T1D definitely put a hardship on him.

      3 years ago Log in to Reply
      1. Ita Shapiro

        I’m so sorry that you lost him.

        3 years ago Log in to Reply
    18. Kristine Warmecke

      I have 2 younger brothers, one 2 years younger and the other 8 years younger than me. The one 2 years younger than me was diagnosed at 7 months old, I was diagnosed at 11 years old. We still are the first one we ask about T1D things, especially have you ever….
      We used to come up with some pretty good pranks to play on our endo. team. 😂

      3 years ago Log in to Reply
    19. Ita Shapiro

      My beloved brother passed away from an acute t1d complication

      3 years ago Log in to Reply
    20. Kristine Brown

      Mom with TD1
      Son with TD1
      Daughter with TD1

      3 years ago Log in to Reply
    21. Melinda Lipe

      No living relatives with T1D. I had to go to a children’s camp to meet other kids like me.

      3 years ago Log in to Reply
    22. Donna Condi

      My younger brother was diagnosed with Type 2 diabetes and put on pills. After several years he was put on Lantus nightly. After a few more years he was put on Humalog injections before meals. He has never been told he is Type 1.

      3 years ago Log in to Reply
    23. Cristina Jorge Schwarz

      I have T1D. I have a sibling who does not have T1D.

      3 years ago Log in to Reply
    24. mbulzomi@optonline.net

      I’m the only one with T1D in my entire family.

      3 years ago Log in to Reply
    25. Jen Farley

      I do have 1 sibling a younger brother with type 2. I also have a sister with pancreatic cancer and she maintains with diet like type 2.

      3 years ago Log in to Reply
    26. sweetcharlie

      I like all the NO’s!!!

      3 years ago Log in to Reply
    27. RegMunro

      I do have a T1D daughter

      3 years ago Log in to Reply
    28. Missy Kirchem

      No type 1 but my sister has 3 different autoimmune diseases and my brother has 1 different one also.

      3 years ago Log in to Reply
    29. Maurine Bowser

      My sister with T1D and a nephew with T1D and a niece with celiac.

      3 years ago Log in to Reply
    30. T1D4LongTime

      I have no siblings

      3 years ago Log in to Reply

    In honor of National Siblings Day, if you have T1D, do you have any siblings with T1D? Share more about your experiences as siblings with T1D in the comments! Cancel reply

    You must be logged in to post a comment.




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