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    • 4 hours, 49 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 6 hours, 15 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 6 hours, 16 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 6 hours, 16 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 8 hours, 28 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 8 hours, 29 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 8 hours, 30 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 9 hours, 12 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 10 hours, 35 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 12 hours, 32 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 3 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 3 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 3 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 3 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 4 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 5 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 6 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 6 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 10 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 12 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 12 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 13 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    From which healthcare provider do you receive the majority of your diabetes care?

    Home > LC Polls > From which healthcare provider do you receive the majority of your diabetes care?
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    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    32 Comments

    1. AnitaS

      A physician’s assistant who specializes in diabetes.

      3
      3 years ago Log in to Reply
      1. Gary Taylor

        Same here. There is no endocrinologist in my area.

        3 years ago Log in to Reply
    2. Jane Cerullo

      I answered NP because I usually see my Endo’s NP. This month see the doctor as his NPs keep leaving. I rally liked the NP I had for years but she left after having second baby. Saw her replacement once but he is gone now. Been going to this office for over ten years so too complicated to change now. Truthfully I take care of own diabetes. Need them for scripts mostly and labs.

      4
      3 years ago Log in to Reply
    3. Robin Melen

      I answered endocrinologist, but honestly most of my questions and concerns are answered in my every-other-month calls with my diabetes educator! She’s terrific!

      3 years ago Log in to Reply
    4. GLORIA MILLER

      I marked endo but I mainly go only because my insurance demands twice yearly visits in order to fill my prescriptions. I would not go otherwise since, after 66 years, I feel I can take care of myself regarding diabetes. When I was younger I stopped going to doctors for about ten years and I did just fine.

      2
      3 years ago Log in to Reply
    5. TEH

      My answer is really both. I see my Endo once a year and the other 3 times I see my PA. My Endo knows the physiological and the PA knows how to tweak the pump.

      1
      3 years ago Log in to Reply
    6. Merry Woolsey

      I answered Endo, however, if I don’t have one my primary care provider always “provides”.

      3 years ago Log in to Reply
    7. Steven Gill

      I’ve seen 5 endocrinologists (their specialty is the endocrine system/hormones, not necessarily diabetes) one said I was too old to need insulin and lose more weight. Another just ran tests and sent me on the way, at least the last got me on a pump/CGM. The only efficient one was at those medical trials, he taught me a good bit. For now I’ve been seeing a general practitioner although that may change.

      Am now retired and entering the VA health system, up to what’s required to follow up my care.

      2
      3 years ago Log in to Reply
    8. Liz Avery

      I answered NP as I see the nurse practitioner at my Endocrinologist practice.

      1
      3 years ago Log in to Reply
    9. Marsha Miller

      I see a Nurse Practitioner, but she specializes in Type 1 Diabetes.

      1
      3 years ago Log in to Reply
    10. Georgina Sokol

      Endo, but no longer. I have been TID FOR 58 years, and waiting for his majesty the endo for three hours in the office only to gave him cancel 2 out of 4 appointments a year is ridiculous ver. At this point, there is nothing the endo can tell me. This kast year I had a new pump that turned out to be faulty and was replaced. The whole time, the endo told me it was my imagination. I have had 5 endos in my life and they are not worth the frustration, lack of knowledge and waste of time driving an hour to get there, wait 3 hours to see him and then drive home for an hour. I am sooo disappointed in the general lack of attention and knowledge on the oart of endos concerning T1D’s. I have no faith left and will just rely on my GP for insulin prescriptions and reports to Medicare. My hA1C is consistently around 5.7. I do this myself with great control.

      1
      3 years ago Log in to Reply
    11. Lawrence S.

      I clicked “other” because I’m not sure what the person I see is. I go to the Endocrinology unit of a large hospital for quarterly visits. I always see a person who is an APRN, DNP. I have no idea what APRN means, but I believe the RN part means registered nurse. This hospital does not allow patients to select doctors or practitioners, the patient is assigned their health care providers. (This is a world renowned hospital).

      3 years ago Log in to Reply
      1. Lawrence S.

        Advanced Practice Registered Nurse.

        3 years ago Log in to Reply
      2. Lawrence S.

        A DNP, Doctor of Nursing Practice, is a higher-education degree. Those who earn a DNP have completed the highest level of training in nursing practice. A DNP-prepared nurse has a deep knowledge of evidence-based care and the ability to apply this knowledge in practice. A nurse with a DNP degree can influence healthcare policies, take on administrative roles and provide clinical education for nursing programs. .

        3 years ago Log in to Reply
    12. Lee Johnson

      I have not found a competent endo doc for the last 15 years. Current one has a terrible staff which jeopardizes her reputation!

      3 years ago Log in to Reply
    13. spencercarter1

      Although I see my endo regularly, I also use Your Diabetes Insider consultant Ben Tzeel. He is amazing and provided so much insight. I’ve had T1D for 45 years and thought I knew it all, but once I started working with Ben, I realized I didn’t.

      1
      3 years ago Log in to Reply
    14. Katrina Mundinger

      I’ve been seeing the same endo for almost 30 years. There was one visit I had with a different endo when my insurance changed but then my insurance changed back. My endo is fabulous. He knows the pumps, knows their ins and outs, and ALWAYS talks to me like I’m a person.

      2
      3 years ago Log in to Reply
    15. Eva

      I’m not sure the question really captures all the different types of “diabetes” care that some type 1’s require. In terms of how insulin is absorbed relative to what I eat and how much, my endo provides most information. In terms of exercise, how much cardio and strength training I need for my organs to stay healthy given that I take insulin, my trainer would be the provider of that information. Examining the minerals, vitamins and how my body processes the food that I need (macros, sensitivities etc…) given the exercise that I preform, my functional physician is my go to provider. Each has a role to play in my diabetes care.

      3 years ago Log in to Reply
    16. Tom Rintelmann

      I’ve seen an Endocrinologist off and on my whole adult life but now I see only my knowledgeable Primary Care Physician. I study many aspects of my T1D and only see an Endocrinologist when a specific test needs to be run. My last three A1C tests have been 5.7 to 6.1.
      Tom R

      3 years ago Log in to Reply
    17. Thomas Cline

      I use my GP because I’ve found (from experience) that endo’s seem to be useful only for those who can’t or won’t manage their diabetes well. I get better/more information from the web. If I could find a knowledgeable endo who was a Type I diabetic themselves I might consider it — I truly believe it takes one to know one with this medical problem.

      1
      3 years ago Log in to Reply
    18. Jneticdiabetic

      The majority of my care comes from my certified diabetes educator who n is bc also a nurse practitioner at my local endocrinology office. I’ve found my diabetes nurses are often a bit more tech savvy and better able to give helpful advice on pump/CGM adjustments..

      3 years ago Log in to Reply
    19. Janis Senungetuk

      Since 2006 I’ve been under the care of an endocrinologist. The first one for 10 years until insurance coverage changed. The current one for the past 9 years. For the quarterly Medicare required appointments I alternate between the endo and the diabetes educator. They’re both very knowledgeable about all of the tech devices and treat me as a whole person, not just a disease with a number.

      1
      3 years ago Log in to Reply
    20. fletchina

      I see my endo more than my CDE, but my CDE provides the most valuable care/ recommendations/ suggestions for optimizing my BG control

      3 years ago Log in to Reply
    21. Daniel Bestvater

      My diabetes care has mainly been self inflicted. I’ve been a pharmacist-CDE for about 35 years. In Canada insulin, pumps and most diabetic products are nonprescription so it is very easy to try new insulins, cgms and pumps.

      3 years ago Log in to Reply
    22. Patricia Kilwein

      My Endocrinologist actually has a team. I receive care from Dr, educators, nursed and dietitian. Very awesome care!

      3 years ago Log in to Reply
      1. Patricia Kilwein

        Nurse

        3 years ago Log in to Reply
    23. George Lovelace

      My Endo and I “just click”, I am her “Pump Poster Boy” and she Fine Tunes my Numbers, last A1c’s were 5.4 and 5.6

      1
      3 years ago Log in to Reply
    24. Wanacure

      I don’t actually see her. We have phone appts.

      3 years ago Log in to Reply
    25. Lauren Carey

      I see my assigned endocrinologists PA. He is more knowledgeable and understanding about trying to live a normal life with T1D. The one and only time I actually saw my endo, he tried to make me change everything about myself, instead of working with me. I will keep seeing the PA as long as I can.

      3 years ago Log in to Reply
    26. Liadona

      I was originally diagnosed as T2 because I was over 40 and still produced _some_ insulin. I received care from my GP then. It was, however, a misdiagnosis and I am now properly diagnosed as T1 and receiving care from an Endo.

      3 years ago Log in to Reply
    27. mbulzomi@optonline.net

      I have been using an Endo. for many years, but he has a CDE staff that I see at least 3 hour’s a year. (Medicare)

      3 years ago Log in to Reply
    28. James Cheairs

      I do not use an endo though I am in good shape. I was finally able to find an Internal Medicine MD (with a focus on diabetes) that was willing to be both my PCP and Diabetes doc. I see her annually for T1D and general health. Otherwise we communicate via My Chart. She follows my lead on how to write my prescriptions for pump and insulin supplies which is simply fabulous and has made life easier.

      3 years ago Log in to Reply

    From which healthcare provider do you receive the majority of your diabetes care? Cancel reply

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