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    • 3 hours, 8 minutes ago
      Amy Schneider likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 4 hours, 35 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I want a thumbs down icon!
    • 4 hours, 35 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      I seldom have any questions other than RX refill request which I submit through the patient portal. If I do have treatment questions, I typically do my own research, and if not satisfied with what I find out, I submit a question in the portal.
    • 4 hours, 35 minutes ago
      Kathy Hanavan likes your comment at
      Between your regular T1D care visits, what questions tend to come up that you wish you could ask a diabetes expert? Share your thoughts in the comments.
      When I come up with a question between visits, I usually just do some research.
    • 6 hours, 48 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      I keep my opened insulin in the refrigerator too. When traveling I use a FRIO evaporative pouch.
    • 6 hours, 49 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Sorry. Of course I store unopened in frig. Opened in my room as I use it up in 30 days
    • 6 hours, 49 minutes ago
      ConnieT1D62 likes your comment at
      Do you store your unopened insulin in the refrigerator?
      No, I keep it in the oven! ;) Same answer as the last time they asked this ridiculous question!
    • 7 hours, 31 minutes ago
      Becky Hertz likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 8 hours, 54 minutes ago
      Bruce Schnitzler likes your comment at
      Do you store your unopened insulin in the refrigerator?
      Unopened yes, and now even opened just in case. I am getting a new health [lan (thank goodness a much better one - with better doctors and hospitals in network!) so it's worth it. But I can't get any appt - even for a PCP until September. I've been occasionally buying out of pocket insulin, pump and CGM supplies (in my mind, hoarding is a character asset for T1D people). I need to have my enough stuff to see me through, Of course, I am hoping there''s an appt cancellation.
    • 10 hours, 52 minutes ago
      alex likes your comment at
      Here’s What You Need to Know About the Dexcom G7
      This article explains the Dexcom G7 features in a clear and easy way, especially for people new to continuous glucose monitoring. Very informative and helpful. Sportzfy TV Download
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Have you ever been told you couldn’t physically do something because you live with diabetes?
      Long time ago - told there were certain occupations I would not be allowed to do because if T1D. Pilot, air traffic controller, military, etc.
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I have been told many times "YOU CAN'T EAT THAT!" ONLY to frustrate them and eat it anyway and then bolus accordingly.
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      I think it is a common experience for most people with T1D. People do not understand anything about it. I do not take it personally. I try to educate when appropriate.
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      Has someone ever told you that you can’t eat something because you live with diabetes?
      Lol hell when haven't they. Lol
    • 1 day, 2 hours ago
      KarenM6 likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 4 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was only 2 when Diagnosed 70 years ago. My small town doctor admitted he didn't know much about T1D, and fortune for my parents and I he called what is now Joslin Clinic, and they told him how much insulin to give me. He taught my parents, who then traveled over 350 miles to Boston, to learn about how to manage T1D. My doctor learned more about T1D, and was able to help 2 other young men, that were later DX with T1D in our small town. I went to Joslin until I turned 18 and returned to become a Joslin Medalist and participated in the research study, 20 years ago. Still go there for some care.
    • 1 day, 4 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was 7 when things changed in my home. My older brother was hospitalized for 2 weeks. When he came home, we no longer ate the way we had before. This was 1956. Dessert alternated between sugarless pudding or sugarless Jello. I learned that bread and potatoes had carbohydrates and that turned to sugar. There was a jar in the bathroom. It seemed my brother was testing his urine every time he went in there. There was a burner and pot on the stove designated for boiling syringes. I watched my brother give himself shots and I remember how hard it was to find someone to manage his care if my parents had to travel. Diabetic Forecast magazine came in the mail each month and there were meetings of the local diabetes association that my mother attended religiously. My brother got a kidney and pancreas transplant at age 60 and before he died lived for 5 years as a non-diabetic. A few years later I was diagnosed. Sorry he was not able to make use of today’s technology. I often wonder what he and my late parents would think about me, at age 66, being the only one in the family with type 1.
    • 1 day, 4 hours ago
      lis be likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 8 hours ago
      kilupx likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      My brother was type 1 since an early age. I was only diagnosed in my late 40s
    • 1 day, 10 hours ago
      Phyllis Biederman likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 11 hours ago
      Bill Williams likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Being 4 years of age, I think I can be forgiven for not knowing much of anything at all. That was 3 quarters of a century ago. ⎛⎝( ` ᢍ ´ )⎠⎞
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I was diagnosed in 1976 at the age of 18 while in college. One weekend, I was drinking a lot of water and peeing frequently. I remembered having read a Reader's Digest article on diabetes, and I told my friends I thought I might have it. Two days later, the diagnosis was confirmed.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      Absolutely nothing. Diagnosed in late December 1962 at at the age of 8 years and was told I was going for a stay in hospital because I have "sugar diabetes".
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      I knew I couldn’t or shouldn’t have my two fav things in the world: Pepsi cola and chocolate. I was 42, and suspected very strongly that I had it, and ate a large piece of chocolate cake before my doctor’s appointment (sounds more like I was 12). Fast forward 25 years later: I never had a real cola again, but do occasionally have chocolate. I’m way healthier than I was back then in terms of diet. I no longer have irritable bowel, and I’m lucky to be able to afford what I need to combat the ill effects of this chronic disease. I’m blessed, and grateful for insulin.
    • 1 day, 11 hours ago
      Lawrence S. likes your comment at
      How much did you know about type 1 diabetes before you were diagnosed?
      It was 35 years ago for me. I had no experience with T1d. I was starting to show symptoms and my sister-in-law quickly researched T1d and told me what she found. I went to my GP a week or two later. My BG was over 600. He sent me to the hospital right away. Blood test confirmed it.
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    How well do you understand the details of your health insurance coverage (e.g., which medications are covered, how much a service will cost, the steps you need to take about getting a service or product covered, etc.) Please select the number or statement that best represents your knowledge.

    Home > LC Polls > How well do you understand the details of your health insurance coverage (e.g., which medications are covered, how much a service will cost, the steps you need to take about getting a service or product covered, etc.) Please select the number or statement that best represents your knowledge.
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    If you use an insulin pump, please select the option which most accurately completes the statement for you: The last time I changed my pump site, I filled my reservoir/cartridge/pod with enough insulin to last me...

    Next

    Have you (or your loved one with T1D) gotten a flu shot this year?

    Sarah Howard

    Sarah Howard has worked in the diabetes research field ever since she was diagnosed with T1D while in college in May 2013. Since then, she has worked for various diabetes organizations, focusing on research, advocacy, and community-building efforts for people with T1D and their loved ones. Sarah is currently the Senior Marketing Manager at T1D Exchange.

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    28 Comments

    1. Ahh Life

      Maybe I am just a delicate scold who get the vapors over things like knowledge and understandability. Or maybe I simply have a brain of cinder-block denseness. I dunno.

      But I am intrigued by those of you who answered 5, “full or clear understanding.” My medicare book alone has about 2,000 pages. My supplemental insurance has only slightly fewer pages.

      The larger problem it would seem is a reminder of just how much we’ve acclimated ourselves to the presence of awful legalistic hour-glass capitalists into our collective health care that choke off everything but profits and abundant CEO salaries.

      18
      3 years ago Log in to Reply
      1. Lawrence S.

        Perfectly said.

        3
        3 years ago Log in to Reply
      2. Andrew Stewart

        Private insurance is not all that complicated to understand. I’m not looking forward to medicare and when I do my response will surely change.
        #BeWell

        1
        3 years ago Log in to Reply
    2. Debbie Dallmann

      I have been blessed with extremely good insurance and secondary to cover whatever I need.

      3 years ago Log in to Reply
    3. GLORIA MILLER

      I have Medicare as primary and almost never check to see what is covered under that plan. My secondary coverage is with federal Blue Cross Blue Shield and I know they will pick up anything that Medicare does not cover. My mother, who died in 2019 with lung cancer, had the same insurance and never paid a dime out of pocket for her medical needs.

      1
      3 years ago Log in to Reply
      1. Kris Sykes-David

        I am turning 65 in February and will be doing the same. My husband was the Federal employee. We decided to keep Fed BC/BS instead of switch to an Advantage plan. I hope it works, it has for him!

        3 years ago Log in to Reply
    4. Barbara Bubar

      The real trick comes when you call –in this case, a Medicare Advantage Plan company—to ask a question. THAT is a time consuming nightmare of transfers and waits to try and get someone who can figure out a possible answer. We happen to be fortunate to have an excellent local representative with the company and she has us contact her —but just how many of us does she have the time to help? The plans are all, as said above, SO complicated and they change every year. How can any phone representative keep up with the changes??? They cannot.

      2
      3 years ago Log in to Reply
    5. Lawrence S.

      I feel that I have a basic understanding of my Medicare and Secondary NYS Gov’t Empire Plan. I am always surprised at how much I have to pay after my primary and secondary get through. My copays are usually larger than I expect. I’m tired of fighting with them.

      2
      3 years ago Log in to Reply
    6. Jane Cerullo

      Made a mistake choosing the wrong plan for me. When I was able to reenroll I researched several plans and was happy with the plan last year and will continue to use this year

      3 years ago Log in to Reply
    7. pru barry

      I spent nearly all yesterday afternoon with the “book” and online, and on the phone when I’d finally reached a decision. There used to be a group to help seniors with this, but two years ago the person who tried to help was at much at sea as I am. So now I do it alone, with the idea that if I wind up with no coverage for the supplies needed to keep my 69 year use of needles and pumps alive, I will reinforce my whining with a scream they might be able to hear. The whole scenario is a disgrace, and the insurance companies should be mortified. But…..apparently they aren’t. Nothing really happens, and each year is torture.
      Thank goodness for trees, birds, and soft breezes!

      8
      3 years ago Log in to Reply
    8. Marty

      I spend a lot on Medicare and a Medicare supplement that completely covers copays and deductibles for all Medicare-approved healthcare. It took a while, but I finally have a good understanding of what Medicare approves. I also pay for a supplemental drug plan with a complicated tier coverage system, which I have to research for every new drug. My longtime endo had a problem with the Medicare requirement for face-to-face visits every 90 days so I had to find a new endo who would take me on. It also took a long time to find an insulin supplier who would/could bill Medicare Part B properly. As I said, it look a lot of effort to figure out how to use my Medicare benefits but I think I finally have things under control.

      1
      3 years ago Log in to Reply
      1. Liz Avery

        Ditto. The proper insulin supplier was a hang up for me for a year. I too think I have things under control finally.

        3 years ago Log in to Reply
      2. Bill Williams

        With traditional Medicare, a Medigap (supplement) policy and a Part D plan that fixes my insulin co-pay at zero all the way through the donut hole, my annual cost is essentially fixed. It’s not cheap, but at least I don’t get surprised.

        2
        3 years ago Log in to Reply
    9. Nevin Bowman

      My experience: the doctor can choose which insurance to accept, the insurance can choose which doctors and medications to cover, and I the patient, have zero say in any of that. Meanwhile, I pay a fortune to have almost no rights.

      4
      3 years ago Log in to Reply
    10. skoogirl

      I understand health insurance very well. I read the fine print. I have to fight tooth and nail for them to cover things that the policy clearly covers. I have contacted health advocates at work to get things added to the formulary. I routinely file appeals. Our current system puts the consumer at a disadvantage and the insurance companies seem to know that most people give up after the first “no” and take advantage.

      4
      3 years ago Log in to Reply
      1. Ms Cris

        Exactly. In my other career, I learned how to get insurance companies to fulfill their end of the bargain, ask the same question in different ways, etc. I apply those same principles to this now!

        3 years ago Log in to Reply
    11. Steve Rumble

      I have had the same basic coverage through Kaiser for 33 years! During that time I have learned the ins and outs of the coverage and where to find additional information if needed.

      3 years ago Log in to Reply
    12. Kristine Warmecke

      What I don’t understand and need clear understanding of is the Insulin Act. Does ANYONE understand it, including the lawmakers who wrote and voted on it?

      1
      3 years ago Log in to Reply
      1. Lawrence S.

        I researched it a while back. My understanding is that effective January 1, 2023, if you are on Medicare the cost of insulin is $35 per month.
        Unfortunately, if you are not on Medicare, there is no cap.

        The political side of that I that the Democrats wanted full discounts for everyone. Almost all of the Republicans voted against it. The Medicare patient coverage was left untouched.

        2
        3 years ago Log in to Reply
      2. Ms Cris

        LMAO! They do not understand T1 is not “T2 you’re born with”…that’s it’s literally life or death for us. They are lobbied to heavily to change profit margins for pharma.

        I write my reps and senators 2x per year each about it.

        The U.S. system is so broken. I’m a dual citizen, and in the other country, most of what I need is free, including insulin. Unfortunately, it’s too far to ship that much insulin safely.

        1
        3 years ago Log in to Reply
    13. Kim Murphy

      I understand it perfectly it is horrible when it comes to covering diabetes and it’s associated costs. I pay $350 a month to have it and it covers nothing until my $6000 deductible is met!

      2
      3 years ago Log in to Reply
    14. Janis Senungetuk

      Every year it gets harder to understand. I’m covered under my spouse’s employer (a hospital) with primary insurance that costs a huge portion of each paycheck. Last year, without any warning, increased my cost for DME by 40%. My secondary insurance is original Medicare. Although they’re secondary, my DME orders are limited by Medicare rules, creating the constant stress of running out before the next shipment. I wouldn’t wish this very broken health CARE system on anyone.

      3
      3 years ago Log in to Reply
    15. Lawrence S.

      Here’s a perfect example of what just happened to me minutes ago. My doctor prescribed Omeprazole tablet 20 mg for me in April, 2022. My drug company, CVS/Caremark, told me they are not covered, I must buy the over-the-counter. I just received the 2023 Formulary, and it shows Omeprazole as a covered drug. I called CVS/Caremark, and they said that the Omeprazole would have been covered if the doctor has written the prescription as, “Omeprazole Rx capsule 20mg.” I’ve been paying out of pocket since April, and it’s not even written in the Formulary the way they told me over the phone to have it prescribed. How could anyone possible know that. It comes down to who you talk to on the phone, and what mood they’re in. Geesh!

      2
      3 years ago Log in to Reply
      1. Lawrence S.

        A follow up. I got an email from the nurse at my doctor’s office telling me that she filled the prescription the correct way previously. Now, I’m negotiating between my doctor’s office and the insurance company to get a $%^&* prescription filled. OMG!

        3 years ago Log in to Reply
    16. Ms Cris

      I understand almost all the details. I’ve gotten really good at it to the point I threaten to send them a bill for my time to solve their issues.

      But, they always find a way to sneak in a surprise, don’t they?

      2
      3 years ago Log in to Reply
      1. Kayci Marr

        You’re hilarious! I love it!

        3 years ago Log in to Reply
    17. Kayci Marr

      I understand it and I also understand that insurance companies are practicing medicine without a medical degree 😡that we have to often explain what a CGM and pump is to someone who holds our life in their hands. America.

      1
      3 years ago Log in to Reply
    18. Babis Perantonakis

      In my country the Public Insurance covers 100% all services, products etc. for diabetics (Greece)

      3 years ago Log in to Reply

    How well do you understand the details of your health insurance coverage (e.g., which medications are covered, how much a service will cost, the steps you need to take about getting a service or product covered, etc.) Please select the number or statement that best represents your knowledge. Cancel reply

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